Civic Intelligence

Hht Foundation International Inc.

990 • Fiscal year 2016 • EIN 22-3115041

Jul 01, 2015 to Jun 30, 2016 • Filed on Dec 20, 2016

PO Box 329Monkton, MD 21111

(410) 357-9932

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

38th percentile

0.04x

Higher debt load relative to assets than 38% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Liabilities / Revenue

41st percentile

0.07x

Higher debt load relative to revenue than 41% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Net Margin

14th percentile

-22%

Higher net margin than 14% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Top Officer Pay

84th percentile

$155,412

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 16.5% of source-year revenue.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Asset Growth

6th percentile

-22%

Faster asset growth than 6% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Revenue Growth

12th percentile

-29%

Faster revenue growth than 12% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Assets

Down

$1,567,185

Down $438,775 (-22%) from 2015

Net Assets

Down

$1,503,386

Down $231,824 (-13%) from 2015

Liabilities

Down

$63,799

Down $206,951 (-76%) from 2015

Revenue

Down

$944,349

Down $377,339 (-29%) from 2015

Expenses

Down

$1,151,299

Down $590,563 (-34%) from 2015

Net Income

Up

-$206,950

Up $213,224 (+51%) from 2015

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2011: $1,844,464Liabilities 2011: $57,439Net Assets 2011: $1,787,0252011Assets 2012: $1,669,966Liabilities 2012: $24,254Net Assets 2012: $1,645,7122012Assets 2013: $1,721,975Liabilities 2013: $41,367Net Assets 2013: $1,680,6082013Assets 2014: $2,271,755Liabilities 2014: $83,254Net Assets 2014: $2,188,5012014Assets 2015: $2,005,960Liabilities 2015: $270,750Net Assets 2015: $1,735,2102015Assets 2016: $1,567,185Liabilities 2016: $63,799Net Assets 2016: $1,503,3862016Assets 2017: $1,300,277Liabilities 2017: $99,174Net Assets 2017: $1,201,1032017Assets 2018: $1,133,217Liabilities 2018: $94,260Net Assets 2018: $1,038,9572018Assets 2019: $1,519,255Liabilities 2019: $137,132Net Assets 2019: $1,382,1232019Assets 2020: $1,852,494Liabilities 2020: $170,683Net Assets 2020: $1,681,8112020Assets 2021: $3,054,085Liabilities 2021: $324,090Net Assets 2021: $2,729,9952021Assets 2022: $3,323,287Liabilities 2022: $178,682Net Assets 2022: $3,144,6052022Assets 2023: $3,515,746Liabilities 2023: $680,335Net Assets 2023: $2,835,4112023Assets 2024: $5,213,609Liabilities 2024: $809,199Net Assets 2024: $4,404,4102024Assets 2025: $8,133,180Liabilities 2025: $962,042Net Assets 2025: $7,171,1382025

Highlighted filing

2016

Assets$1,567,185
Liabilities$63,799
Net Assets$1,503,386

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2011: $727,563Expenses 2011: $661,315Net Income 2011: $66,2482011Revenue 2012: $499,991Expenses 2012: $601,955Net Income 2012: -$101,9642012Revenue 2013: $832,248Expenses 2013: $831,083Net Income 2013: $1,1652013Revenue 2014: $1,518,285Expenses 2014: $1,054,351Net Income 2014: $463,9342014Revenue 2015: $1,321,688Expenses 2015: $1,741,862Net Income 2015: -$420,1742015Revenue 2016: $944,349Expenses 2016: $1,151,299Net Income 2016: -$206,9502016Revenue 2017: $1,044,604Expenses 2017: $1,348,119Net Income 2017: -$303,5152017Revenue 2018: $1,002,959Expenses 2018: $1,163,770Net Income 2018: -$160,8112018Revenue 2019: $1,708,278Expenses 2019: $1,369,365Net Income 2019: $338,9132019Revenue 2020: $1,790,976Expenses 2020: $1,481,024Net Income 2020: $309,9522020Revenue 2021: $2,204,324Expenses 2021: $1,231,386Net Income 2021: $972,9382021Revenue 2022: $2,377,085Expenses 2022: $1,884,387Net Income 2022: $492,6982022Revenue 2023: $3,740,865Expenses 2023: $4,069,058Net Income 2023: -$328,1932023Revenue 2024: $6,790,311Expenses 2024: $5,251,461Net Income 2024: $1,538,8502024Revenue 2025: $9,841,516Expenses 2025: $7,129,175Net Income 2025: $2,712,3412025

Highlighted filing

2016

Revenue$944,349
Expenses$1,151,299
Net Income-$206,950
Jump To
Filing Snapshot
Filing Period
Jul 1, 2015 to Jun 30, 2016
Signed
Dec 20, 2016
Return Version
2015v2.1
Gross Receipts
$1,630,854
Mission and Program Overview

Mission

Hht foundation international, inc. Is a not-for-profit organization dedicated to serving individuals affected by hereditary hemorrhagic telangiectasia (hht). The organization provides information to patients, family members, and healthcare professionals; offers support and community for patients and their families; raises funds to advance basic and clinical research; and sponsors research grants to promote scientific studies focused on hht.

Hht international, inc. Is a not-for-profit organization organized to provide information about hereditary hemorrhagic telangiectasia (hht) to patients, family members and physicians; to operate as a support group for patients and family members; to raise funds for basic and clinical research; and to sponsor research grants for studies relating to hht.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,329,594$894,381▼ $435,213
Pledges and Grants Receivable$453,882$388,635▼ $65,247
Cash and Non-Interest-Bearing Accounts$76,972$142,225▲ $65,253
Prepaid Expenses and Deferred Charges$7,268$36,782▲ $29,514
Savings and Temporary Cash Investments$29,401--
Land, Buildings, and Equipment, Net$8,768$3,780▼ $4,988
Total Assets$2,005,960$1,567,185▼ $438,775
Other Assets Total$100,075$101,382▲ $1,307
Liabilities
Accounts Payable and Accrued Expenses$270,750$58,299▼ $212,451
Deferred Revenue-$5,500-
Total Liabilities$270,750$63,799▼ $206,951
Net Assets / Fund Balance
Temporarily Rstr Net Assets$792,668$719,978▼ $72,690
Unrestricted Net Assets$783,431$619,197▼ $164,234
Permanently Rstr Net Assets$159,111$164,211▲ $5,100
Total Net Assets Fund Balance$1,735,210$1,503,386▼ $231,824
Total Liabilities and Net Assets / Fund Balance$2,005,960$1,567,185▼ $438,775

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$3,780$134,919$138,699
Other Assets Org$101,382--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2015$159,111$5,100--$164,211
2014$109,111$50,000--$159,111
2013$109,061$50--$109,111
2012$106,861$2,200--$109,061
2011$104,116$2,745--$106,861
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Marianne ClancyExecutive DirectorFT$122,516$32,896$155,412
Revenue and Support

Revenue Composition

Contributions and Grants
$942,887
Program Service Revenue
$3,145
Investment Income
$39,020
Other Revenue
$-40,703
All Other Contributions
$791,861
Change in Net Assets
$-206,950

Audited Revenue Reconciliation

Revenue per Audited Statements
$938,706
Revenue Not Reported on Financial Statements
$5,643
Revenue Not Reported on Form 990
$-19,231
Total Revenue per Audited Statements
$919,475
Total Revenue per Form 990
$944,349
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$584,508
Other Expenses$470,319
Total Fundraising Expense$168,441
Grants and Similar Amounts Paid$96,472
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$283,286$24,239$62,029$369,554
Current Officers, Directors, Trustees, and Key Employees$115,005$15,541$24,866$155,412
Grants to Domestic Orgs$96,472--$96,472
Office Expenses$41,447$21,563$10,056$73,066
Information Technology$31,993$3,122$6,983$42,098
Payroll Taxes$30,482$2,975$6,654$40,111
Fees for Services Lobbying$27,277$9,608$3,209$40,094
Fees for Services Other$27,464--$27,464
Other Expenses$457$1,207$14,616$16,280
All Other Expenses$10,821-$4,438$15,259
Other Employee Benefits$11,579$107$2,755$14,441
Travel$9,710$430$3,194$13,334
Occupancy$10,032$924$2,244$13,200
Conferences and Meetings$11,906$964$33$12,903
Fees for Services Accounting$6,803$2,397$800$10,000
Pension Plan Contributions$3,848$266$876$4,990
Depreciation Depletion$3,792$350$846$4,988
Fees for Services Legal$147--$147
Total Functional Expenses$896,738$86,120$168,441$1,151,299

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$1,151,299
Total Expenses per Audited Statements$1,151,299
Total Expenses per Form 990$1,151,299
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Geisel School of Medicine at Dartmouth CollegeHanover, NH501(c)(3)Research$70,990
University of FloridaGrainesville, FL501(c)(3)Research$25,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$40,703
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Hope Holds a Cure$61,667-$21,968-
National Walks$42,338-$9,821-
Total Events$151,026-$40,703$-40,703
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Marianne ClancyExecutive DirectorLease of Office SpaceNo$13,200
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11

No review of the form 990 occurs at the board of directors level, but a review does take place by the foundation's finance committee. After the return is prepared by the foundation's auditors a draft copy of the return is provided to the foundation for review. The accountant first agrees all amounts to the general ledger and financial statements and discusses any questions with the auditors. Once this is done then the accountant reviews the entire return with the executive director and then the return is distributed to the finance committee for their review. All questions are then summarized and discussed with the auditor and a final return is reviewed and signed by the executive director.

Form 990, Part VI, Section B, Line 12C

Hht foundation international, inc. Has a conflict of interest policy and management annually discusses this important document with the board of directors and has them sign the agreement to ensure it is current.

Form 990, Part VI, Section B, Line 15A

The executive director's salary is approved by the executive committee, or its designees. Each year when approving the budget, the executive committee, or its designees, evaluates the amounts included within the salary expense line item. In addition the executive committee, or its designees, performs a semi-annual review of the executive director's performance during the prior six months. Based on this performance review, as well as additional analysis including but not limited to a comparison of the cash amounts received by the executive director to compensation of individuals in similar positions within the industry, the executive committee, or its designees, determines any applicable bonuses and adjustments to the subsequent year's base salary. Once amounts are approved, a member of the executive director who in turn provides it to the financial administrator of the organization. The financial administrator maintains documentation supporting the executive committee's decision and processes the information within the payroll system.

Form 990, Part VI, Section C, Line 19

All of the organization's governing documents are kept in the organization's main office. Being public documents, they are available to interested parties; however, they must physically come to the hht foundation international, inc. Office to inspect any of the documents.

Filing and Contact Details

Filer

Filer Name
Hht Foundation International Inc
EIN
22-3115041
Phone
4103579932
Address
PO BOX 329, MONKTON, MD 21111
Doing Business As
Cure Hht

Signing Officer

Name
Marianne Clancy
Title
Executive Director
Phone
4103579932
Signed
2016-12-20
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Marianne Clancy
Formed
1990
Legal Domicile
Ct
Voting Board Members
18
Independent Board Members
17
Employees
12
Volunteers
0

Preparer

Firm
Squire Lemkin Company Llp
Address
111 ROCKVILLE PIKE SUITE 475, ROCKVILLE, MD 20850
Preparer
Nancy Johnson
Phone
3014246800
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

Appreciation of cash surrender value of life insurance 1,307.

Financial Statement Notes

PART V, LINE 4:

Net assets permanently restricted result from contributions to be used to generate income to provide for medical research and/or education. Income earned from these net assets must be used for medical research and/or educational projects as determined by the foundation's management and board of directors.

PART X, LINE 2:

Cure hht has adopted the accounting standard for uncertainty in income taxes, which addresses the determination of whether tax benefits claimed or expected to be claimed on a tax return should be recorded in the financial statements. Under this policy, cure hht may recognize the tax benefit from an uncertain tax position only if it is more likely-than-not that the tax position would be sustained on examination by taxing authorities, based on the technical merits of the position. Management evaluated cure hht's tax positions and concluded that it has taken no uncertain tax positions that require adjustment to the financial statements to comply with provisions of this guidance. With few exceptions, cure hht is no longer subject to income tax examinations from the u.s. Federal, state or local tax authorities for years ending before june 30, 2013.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Appreciation on cash surrender value of life insurance

Part XI, Line 2D

Appreciation on cash surrender value of life insurance.

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IRS990/Form990PartVIISectionAGrp/PersonNm13CHRISTOPHER GIBSON PHD
IRS990/Form990PartVIISectionAGrp/PersonNm14SARA PALMER PHD
IRS990/Form990PartVIISectionAGrp/PersonNm15BENJAMIN HOLT
IRS990/Form990PartVIISectionAGrp/PersonNm16DAVID RINN
IRS990/Form990PartVIISectionAGrp/PersonNm17ROBERT BERKMAN
IRS990/Form990PartVIISectionAGrp/PersonNm18MARIANNE CLANCY
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18122516
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt16MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt17MEMBER EMERITUS
IRS990/Form990PartVIISectionAGrp/TitleTxt18EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd00
IRS990/FormationYr01990
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0151026
IRS990/FundraisingDirectExpensesAmt040703
IRS990/FundraisingGrossIncomeAmt00
IRS990/GainOrLossGrp/SecuritiesAmt010257
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt018
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt096472
IRS990/GrantsToDomesticOrgsGrp/TotalAmt096472
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0656059
IRS990/GrossReceiptsAmt01630854
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt017
IRS990/IndivRcvdGreaterThan100KCnt01
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt06983
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt03122
IRS990/InformationTechnologyGrp/ProgramServicesAmt031993
IRS990/InformationTechnologyGrp/TotalAmt042098
IRS990/InvestmentExpenseAmt0-5643
IRS990/InvestmentIncomeGrp/ExclusionAmt028763
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt028763
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt01329594
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0894381
IRS990/IRPDocumentCnt04
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0134919
IRS990/LandBldgEquipBasisNetGrp/BOYAmt08768
IRS990/LandBldgEquipBasisNetGrp/EOYAmt03780
IRS990/LandBldgEquipCostOrOtherBssAmt0138699
IRS990/LegalDomicileStateCd0CT
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0645802
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0HHT INTERNATIONAL, INC. IS A NOT-FOR-PROFIT ORGANIZATION ORGANIZED TO PROVIDE INFORMATION ABOUT HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) TO PATIENTS, FAMILY MEMBERS AND PHYSICIANS; OPERATE AS A SUPPORT GROUP FOR PATIENTS AND FAMILY MEMBERS; RAISE FUNDS FOR BASIC AND CLINICAL RESEARCH; AND SPONSOR RESEARCH GRANTS FOR STUDIES RELATING TO HHT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt01735210
IRS990/NetAssetsOrFundBalancesEOYAmt01503386
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt010257
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt010257
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-40703
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-40703
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-20538
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt02244
IRS990/OccupancyGrp/ManagementAndGeneralAmt0924
IRS990/OccupancyGrp/ProgramServicesAmt010032
IRS990/OccupancyGrp/TotalAmt013200
IRS990/OfficeExpensesGrp/FundraisingAmt010056
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt021563
IRS990/OfficeExpensesGrp/ProgramServicesAmt041447
IRS990/OfficeExpensesGrp/TotalAmt073066
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0100075
IRS990/OtherAssetsTotalGrp/EOYAmt0101382
IRS990/OtherChangesInNetAssetsAmt01307
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt02755
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0107
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt011579
IRS990/OtherEmployeeBenefitsGrp/TotalAmt014441
IRS990/OtherExpensesGrp/Desc0NEWSLETTERS, BROCHURES,
IRS990/OtherExpensesGrp/Desc1MAJOR DONOR DEVELOPMENT
IRS990/OtherExpensesGrp/Desc2BOARD OF DIRECTOR MEETI
IRS990/OtherExpensesGrp/Desc3MISCELLANEOUS
IRS990/OtherExpensesGrp/FundraisingAmt020262
IRS990/OtherExpensesGrp/FundraisingAmt14580
IRS990/OtherExpensesGrp/FundraisingAmt214616
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt02427
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11207
IRS990/OtherExpensesGrp/ProgramServicesAmt0100243
IRS990/OtherExpensesGrp/ProgramServicesAmt152246
IRS990/OtherExpensesGrp/ProgramServicesAmt221728
IRS990/OtherExpensesGrp/ProgramServicesAmt3457
IRS990/OtherExpensesGrp/TotalAmt0120505
IRS990/OtherExpensesGrp/TotalAmt159253
IRS990/OtherExpensesGrp/TotalAmt221728
IRS990/OtherExpensesGrp/TotalAmt316280
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt062029
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt024239
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0283286
IRS990/OtherSalariesAndWagesGrp/TotalAmt0369554
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt06654
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt02975
IRS990/PayrollTaxesGrp/ProgramServicesAmt030482
IRS990/PayrollTaxesGrp/TotalAmt040111
IRS990/PensionPlanContributionsGrp/FundraisingAmt0876
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0266
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt03848
IRS990/PensionPlanContributionsGrp/TotalAmt04990
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt0159111
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt0164211
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0453882
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0388635
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt07268
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt036782
IRS990/PrincipalOfficerNm0MARIANNE CLANCY
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0611710
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt03145
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt03145
IRS990/ProgSrvcAccomActy2Grp/Desc0PUBLIC INFORMATION - THE GOAL OF THE PUBLIC INFORMATION PROGRAM IS TO INCREASE PUBLIC, PRIVATE AND GOVERNMENTAL AWARENESS OF THE HHT DISORDER THROUGH THE PRESS AND MEDIA.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0284951
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH - THE RESEARCH PROGRAM IS SUPPORTIVE IN FUNDING RESEARCH, FOR UNDERSTANDING THE MECHANISM OF HHT DISEASE, NOVEL THERAPEUTIC APPROACHES OF TREATMENT AND MANAGEMENT, AND TRANSLATIONAL RESEARCH.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0208559
IRS990/ProgSrvcAccomActy3Grp/GrantAmt096472
IRS990/ProgSrvcAccomActyOtherGrp/Desc0ADVOCACY- THE GOAL OF THE ADVOCACY PROGRAM IS TO ADVOCATE FOR AND SUPPORT THOSE WITH HHT BY PURSUING RECOGNITION AND FUNDING.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt073210
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01001807
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0193221
IRS990/PYInvestmentIncomeAmt036099
IRS990/PYOtherExpensesAmt01080042
IRS990/PYOtherRevenueAmt0-36661
IRS990/PYProgramServiceRevenueAmt0320443
IRS990/PYRevenuesLessExpensesAmt0-420174
IRS990/PYSalariesCompEmpBnftPaidAmt0468599
IRS990/PYTotalExpensesAmt01741862
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01321688
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-206950
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd01
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt03145
IRS990/SavingsAndTempCashInvstGrp/BOYAmt029401
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0942887
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01001807
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01467932
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0553607
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0365299

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$8.13$0.96$7.17$9.84$7.13$2.71
2024Detailed filing. Detailed filing data is available for this year.$5.21$0.81$4.40$6.79$5.25$1.54
2023Detailed filing. Detailed filing data is available for this year.$3.52$0.68$2.84$3.74$4.07$0.33
2022Detailed filing. Detailed filing data is available for this year.$3.32$0.18$3.14$2.38$1.88$0.49
2021Detailed filing. Detailed filing data is available for this year.$3.05$0.32$2.73$2.20$1.23$0.97
2020Detailed filing. Detailed filing data is available for this year.$1.85$0.17$1.68$1.79$1.48$0.31
2019Detailed filing. Detailed filing data is available for this year.$1.52$0.14$1.38$1.71$1.37$0.34
2018Detailed filing. Detailed filing data is available for this year.$1.13$0.09$1.04$1.00$1.16$0.16
2017Detailed filing. Detailed filing data is available for this year.$1.30$0.10$1.20$1.04$1.35$0.30
2016Detailed filing. Detailed filing data is available for this year.$1.57$0.06$1.50$0.94$1.15$0.21
2015Detailed filing. Detailed filing data is available for this year.$2.01$0.27$1.74$1.32$1.74$0.42
2014Summary only. Only limited summary data is available for this year.$2.27$0.08$2.19$1.52$1.05$0.46
2013Summary only. Only limited summary data is available for this year.$1.72$0.04$1.68$0.83$0.83$0.00
2012Summary only. Only limited summary data is available for this year.$1.67$0.02$1.65$0.50$0.60$0.10
2011Summary only. Only limited summary data is available for this year.$1.84$0.06$1.79$0.73$0.66$0.07