Civic Intelligence

Hht Foundation International Inc

EIN 22-3115041 • 501(c)3 • Monkton, MD

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Profile

Hht international, inc. Is a not-for-profit organization organized to provide information about hereditary hemorrhagic telangiectasia (hht) to patients, family members and physicians; operate as a support group for patients and family members; raise funds for basic and clinical research; and sponsor research grants for studies relating to hht.

PO Box 329Monkton, MD 21111

www.hht.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

66th percentile

0.19x

Higher debt load relative to assets than 66% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2023

Liabilities / Revenue

64th percentile

0.18x

Higher debt load relative to revenue than 64% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2023

Net Margin

24th percentile

-8.8%

Higher net margin than 24% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2023

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

55th percentile

5.8%

Faster asset growth than 55% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Revenue Growth

87th percentile

57%

Faster revenue growth than 87% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets66th percentile

Assets

Up

$8,133,180

Up $2,919,571 (+56%) from 2024

Liabilities

Up

$962,042

Up $152,843 (+19%) from 2024

Net Assets

Up

$7,171,138

Up $2,766,728 (+63%) from 2024

Operations
Liabilities / Revenue64th percentileNet Margin24th percentile

Revenue

Up

$9,841,516

Up $3,051,205 (+45%) from 2024

Expenses

Up

$7,129,175

Up $1,877,714 (+36%) from 2024

Net Income

Up

$2,712,341

Up $1,173,491 (+76%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth55th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$10M$5.0M$0Assets 2011: $1,844,464Liabilities 2011: $57,439Net Assets 2011: $1,787,0252011Assets 2012: $1,669,966Liabilities 2012: $24,254Net Assets 2012: $1,645,7122012Assets 2013: $1,721,975Liabilities 2013: $41,367Net Assets 2013: $1,680,6082013Assets 2014: $2,271,755Liabilities 2014: $83,254Net Assets 2014: $2,188,5012014Assets 2015: $2,005,960Liabilities 2015: $270,750Net Assets 2015: $1,735,2102015Assets 2016: $1,567,185Liabilities 2016: $63,799Net Assets 2016: $1,503,3862016Assets 2017: $1,300,277Liabilities 2017: $99,174Net Assets 2017: $1,201,1032017Assets 2018: $1,133,217Liabilities 2018: $94,260Net Assets 2018: $1,038,9572018Assets 2019: $1,519,255Liabilities 2019: $137,132Net Assets 2019: $1,382,1232019Assets 2020: $1,852,494Liabilities 2020: $170,683Net Assets 2020: $1,681,8112020Assets 2021: $3,054,085Liabilities 2021: $324,090Net Assets 2021: $2,729,9952021Assets 2022: $3,323,287Liabilities 2022: $178,682Net Assets 2022: $3,144,6052022Assets 2023: $3,515,746Liabilities 2023: $680,335Net Assets 2023: $2,835,4112023Assets 2024: $5,213,609Liabilities 2024: $809,199Net Assets 2024: $4,404,4102024Assets 2025: $8,133,180Liabilities 2025: $962,042Net Assets 2025: $7,171,1382025

Highlighted filing

2025

Assets$8,133,180
Liabilities$962,042
Net Assets$7,171,138
Open 2025 Filing

Operations Trend

Revenue Growth87th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2011: $727,563Expenses 2011: $661,315Net Income 2011: $66,2482011Revenue 2012: $499,991Expenses 2012: $601,955Net Income 2012: -$101,9642012Revenue 2013: $832,248Expenses 2013: $831,083Net Income 2013: $1,1652013Revenue 2014: $1,518,285Expenses 2014: $1,054,351Net Income 2014: $463,9342014Revenue 2015: $1,321,688Expenses 2015: $1,741,862Net Income 2015: -$420,1742015Revenue 2016: $944,349Expenses 2016: $1,151,299Net Income 2016: -$206,9502016Revenue 2017: $1,044,604Expenses 2017: $1,348,119Net Income 2017: -$303,5152017Revenue 2018: $1,002,959Expenses 2018: $1,163,770Net Income 2018: -$160,8112018Revenue 2019: $1,708,278Expenses 2019: $1,369,365Net Income 2019: $338,9132019Revenue 2020: $1,790,976Expenses 2020: $1,481,024Net Income 2020: $309,9522020Revenue 2021: $2,204,324Expenses 2021: $1,231,386Net Income 2021: $972,9382021Revenue 2022: $2,377,085Expenses 2022: $1,884,387Net Income 2022: $492,6982022Revenue 2023: $3,740,865Expenses 2023: $4,069,058Net Income 2023: -$328,1932023Revenue 2024: $6,790,311Expenses 2024: $5,251,461Net Income 2024: $1,538,8502024Revenue 2025: $9,841,516Expenses 2025: $7,129,175Net Income 2025: $2,712,3412025

Highlighted filing

2025

Revenue$9,841,516
Expenses$7,129,175
Net Income$2,712,341
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$8,133,180
Liabilities
$962,042
Net assets
$7,171,138
Revenue
$9,841,516
Expenses
$7,129,175
Net income
$2,712,341
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$8.13$0.96$7.17$9.84$7.13$2.71
2024Detailed filing. Detailed filing data is available for this year.$5.21$0.81$4.40$6.79$5.25$1.54
2023Detailed filing. Detailed filing data is available for this year.$3.52$0.68$2.84$3.74$4.07$0.33
2022Detailed filing. Detailed filing data is available for this year.$3.32$0.18$3.14$2.38$1.88$0.49
2021Detailed filing. Detailed filing data is available for this year.$3.05$0.32$2.73$2.20$1.23$0.97
2020Detailed filing. Detailed filing data is available for this year.$1.85$0.17$1.68$1.79$1.48$0.31
2019Detailed filing. Detailed filing data is available for this year.$1.52$0.14$1.38$1.71$1.37$0.34
2018Detailed filing. Detailed filing data is available for this year.$1.13$0.09$1.04$1.00$1.16$0.16
2017Detailed filing. Detailed filing data is available for this year.$1.30$0.10$1.20$1.04$1.35$0.30
2016Detailed filing. Detailed filing data is available for this year.$1.57$0.06$1.50$0.94$1.15$0.21
2015Detailed filing. Detailed filing data is available for this year.$2.01$0.27$1.74$1.32$1.74$0.42
2014Summary only. Only limited summary data is available for this year.$2.27$0.08$2.19$1.52$1.05$0.46
2013Summary only. Only limited summary data is available for this year.$1.72$0.04$1.68$0.83$0.83$0.00
2012Summary only. Only limited summary data is available for this year.$1.67$0.02$1.65$0.50$0.60$0.10
2011Summary only. Only limited summary data is available for this year.$1.84$0.06$1.79$0.73$0.66$0.07
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jul 1, 2024 to Jun 30, 2025
Signed
Mar 9, 2026
Return Version
2024v5.5
Gross Receipts
$10,713,422
Mission and Program Overview

Mission

Hht international, inc is a not-for-profit organization organized to provide information about hereditary hemorrhagic telangiectasia (hht) to patients, family members and physicians, operate as a support group for patients and family members, raise funds for basic and clinical research, and sponsor research grants for studies relating to hht.

Find a cure for hht while saving the lives and improving the well-being of individuals and families affected by hht.

Balance Sheet Detail
LineBeginningEndChange
Assets
Pledges and Grants Receivable$2,030,724$3,729,712▲ $1,698,988
Investments in Publicly Traded Securities$2,420,226$3,430,897▲ $1,010,671
Cash and Non-Interest-Bearing Accounts$501,341$786,548▲ $285,207
Prepaid Expenses and Deferred Charges$158,211$84,089▼ $74,122
Land, Buildings, and Equipment, Net$3,567$1,703▼ $1,864
Total Assets$5,213,609$8,133,180▲ $2,919,571
Other Assets Total$99,540$100,231▲ $691
Liabilities
Accounts Payable and Accrued Expenses$658,420$962,042▲ $303,622
Deferred Revenue$150,779--
Total Liabilities$809,199$962,042▲ $152,843
Net Assets / Fund Balance
Net Assets With Donor Restrictions$2,469,710$3,823,418▲ $1,353,708
Net Assets Without Donor Restrictions$1,934,700$3,347,720▲ $1,413,020
Total Net Assets Fund Balance$4,404,410$7,171,138▲ $2,766,728
Total Liabilities and Net Assets / Fund Balance$5,213,609$8,133,180▲ $2,919,571

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,445$6,992$8,437
Leasehold Improvements$258$5,792$6,050

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$390,387-▲ $52,599-$442,986
2023$327,159-▲ $63,228-$390,387
2022$285,033-▲ $42,126-$327,159
2021$307,864$7,308▼ $30,139-$285,033
2020$226,950$2,500▲ $78,414-$307,864
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Marianne ClancyExecutive DirectorFT$199,190$35,561$234,751
Melissa DickeyDIRECTOR, NAT'L HHT COORDINATING CENTERFT$145,845$13,525$159,370
Melissa DickeyDIRECTOR, NAT'L HHT COORDINATING CEN-$145,845$13,525$159,370
Stefanie-nicole SchaeferChief Operating OfficerFT$114,106$22,165$136,271

Board Members and Trustees

NameTitle
John DunnPresident
Gabriella ChoiVice President
Anthony Anzell PhdMember
Brandon Probst PhdMember
Dennis Sprecher MdMember
Howard LichtigMember
Marijo MccuneMember
Mike NolanMember
Scott BoatwrightMember
Terry Thompson JrMember
Dennis RoutledgeMember Emeritus
Karen Silber Weissel PhdSecretary
Marc Topaz EsqTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Biorasi LLCClinical Trials And Research18851 NE 29TH AVE SUITE 800, Miami, FL 33180$709,889
Q Squared Solutions LLCConsulting Services2400 ELLIS ROAD, Durham, NC 27703$179,085
-Clinical Trials And Research3311 CANOE BROOK PKWY, Raleigh, NC 27614$157,413
Revenue and Support

Revenue Composition

Contributions and Grants
$9,245,580
Program Service Revenue
$470,997
Investment Income
$134,970
Other Revenue
$-10,031
All Other Contributions
$4,798,567
Change in Net Assets
$2,712,341

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded6$207,396Fair Market Value
Total Noncash Contributions6$207,396-

Audited Revenue Reconciliation

Revenue per Audited Statements
$9,837,949
Revenue Not Reported on Financial Statements
$3,567
Revenue Not Reported on Form 990
$54,387
Total Revenue per Audited Statements
$9,892,336
Total Revenue per Form 990
$9,841,516
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$3,255,409
Grants and Similar Amounts Paid$2,385,005
Salaries, Compensation, and Employee Benefits$1,354,761
Total Fundraising Expense$370,532
Professional Fundraising Fees$134,000

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,350,067--$2,350,067
Fees for Services Other$1,851,192$133,866$456$1,985,514
Other Salaries and Wages$625,698$85,792$46,966$758,456
Conferences and Meetings$428,497$125-$428,622
Current Officers, Directors, Trustees, and Key Employees$240,300$111,218$69,338$420,856
Information Technology$222,337$161,343$3,767$387,447
Office Expenses$95,796$49,313$23,535$168,644
Fees for Services Professional Fundraising--$134,000$134,000
Travel$41,507$22,438$27,711$91,656
Payroll Taxes$64,603$14,764$8,430$87,797
Other Employee Benefits$60,909$6,117$3,524$70,550
Advertising$31,784$409$28,101$60,294
Fees for Services Lobbying$59,747--$59,747
Grants to Domestic Individuals$34,938--$34,938
Pension Plan Contributions$15,277$1,253$572$17,102
Occupancy-$14,171-$14,171
Fees for Service Investment Mgmnt Fees-$3,567-$3,567
Depreciation Depletion-$1,864-$1,864
Other Expenses$8,606$1,426$10,385$1,426
Total Functional Expenses$6,146,108$612,535$370,532$7,129,175

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$7,129,175
Expenses per Audited Statements$7,125,608
Total Expenses per Audited Statements$7,125,608
Expenses Not Reported on Financial Statements$3,567
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of California Los Angeles Extramural Fund ManagementLos Angeles, CA-Hht-related Research$251,639
The Broad Institute IncCambridge, MA501(c)(3)Hht-related Research$177,045
Columbia UniversityNew York City, NY501(c)(3)Hht-related Research$169,911
Augusta University Research Institute IncAtlanta, GA501(c)(3)Hht-related Research$151,338
Ucsf Regents of the University of CaliforniaSan Francisco, CA501(c)(3)Hht-related Research$137,195
Massachusetts General HospitalBoston, MA501(c)(3)Hht-related Research$135,793
Washington University in St LouisSt Louis, MT-Hht-related Research$133,986
The Board of Trustees of the Leland Stanford Junior UniversityRedwood City, CA501(c)(3)Hht-related Research$130,000
The University of North Carolina at Chapel Hill Office of Sponsored ProgramChapel Hill, NC501(c)(3)Hht-related Research$127,255
Ut Southwestern Medical CenterDallas, TX-Hht-related Research$126,071
University of Colorado Anschutz Medical CampusAurora, CO-Hht-related Research$123,553
Cleveland Clinic FoundationIndependence, OH501(c)(3)Hht-related Research$118,974
Yale University Office of Sponsored ProjectsNew Haven, CT-Hht-related Research$113,034
Mayo ClinicRochester, MN501(c)(3)Hht-related Research$106,707
Trustees of the University of PennsylvaniaPhiladelphia, PA501(c)(3)Hht-related Research$86,466
University of UtahSalt Lake City, UT-Hht-related Research$80,218
Oregon Health Science University - Office of Proposal & Award ManagementPortland, OR501(c)(3)Hht-related Research$79,872
Johns Hopkins UniversityChicago, IL501(c)(3)Hht-related Research$74,747
Theuniversity of Alabama at BirminghamBirmingham, AL-Hht-related Research$25,397

International Summary

Offices
0
Employees
0
Spending
$489,764

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Program ServicesInternational Scientific Conference00$489,764
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$134,000
Fundraising Direct Expenses$29,804
Fundraising Gross Income$11,942

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Grassroots$17,820-$12,257-
Stoner Golf$19,158$11,942$17,547$-5,605
Total Events$41,978$11,942$29,804$-17,862
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Marianne ClancyExecutive DirectorLease of Office SpaceNo$13,200
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The executive director reviews the 990 before filing. The form 990 is distributed and reviewed by the board of directors.”

Form 990, Part VI, Section B, Line 12C

“Hht foundation international, inc. Maintains a conflict-of-interest policy, which is reviewed annually by management with the board of directors. Board members discuss the policy and sign a disclosure agreement each year to confirm understanding and ensure the policy remains current.”

Form 990, Part VI, Section B, Line 15A

“The executive director's salary is approved annually by the executive committee, or its designees, as part of the budget approval process. The executive committee, or its designees, also conducts an annual performance review covering the prior twelve-month period. Based on the results of this performance review, as well as additional analyses - including, but not limited to, comparisons of the executive director's compensation with that of individuals in comparable positions within the nonprofit sector - the executive committee, or its designees, determines any applicable bonuses and adjustments to the subsequent year's base salary. Once compensation decisions are approved, a member of the executive committee communicates the approval to the financial administrator. The financial administrator retains documentation supporting the executive committee's determinations and processes the approved compensation through the payroll system.”

Form 990, Part VI, Section C, Line 19

“Governing documents are available to the public upon request only.”

Filing and Contact Details

Filer

Filer Name
Hht Foundation
EIN
22-3115041
Phone
4103579932
Address
PO BOX 329, MONKTON, MD 21111
Doing Business As
Cure Hht

Signing Officer

Name
Marianne Clancy
Title
CEO and Managing Director
Phone
4103579932
Signed
2026-03-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Marianne Clancy
Formed
1990
Legal Domicile
Md
Voting Board Members
13
Independent Board Members
13
Employees
19
Volunteers
13

Preparer

Firm
Uhy Advisors Mid-atlantic Inc
Address
8601 ROBERT FULTON DRIVE SUITE 210, COLUMBIA, MD 21046
Preparer
Hsuanyi Wang
Phone
4107205220
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Professional fees: program service expenses 92,023. Management and general expenses 133,866. Fundraising expenses 456. Total expenses 226,345. Medical director consulting: program service expenses 19,100. Management and general expenses 0. Fundraising expenses 0. Total expenses 19,100. Scientific director consulting: program service expenses 63,475. Management and general expenses 0. Fundraising expenses 0. Total expenses 63,475. Subcontractors: program service expenses 1,676,594. Management and general expenses 0. Fundraising expenses 0. Total expenses 1,676,594.”

FORM 990, PART XII, LINE 2C:

“The process has not changed from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The income tax positions taken by cure hht for any year open under the various statutes of limitations are that the organization continues to be exempt from income taxes and that the organization has properly reported unrelated business income that is subject to income taxes. Cure hht believes that there are no tax positions taken or expected to be taken that would significantly increase unrecognized tax benefits within 12 months of the reporting date. None of the cure hht's income tax returns are currently under examination.”

Part V, Line 4

“Net assets permanently restricted result from contributions to be used to generate income to provide for medical research and/or education. Income earned from these net assets must be used for medical research and/or educational projects as determined by the foundation's management and board of directors.”

Raw XML AppendixShowing 400 of 999 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0FIND A CURE FOR HHT WHILE SAVING THE LIVES AND IMPROVING THE WELL-BEING OF INDIVIDUALS AND FAMILIES AFFECTED BY HHT.
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IRS990/Desc0RESEARCH - THE RESEARCH PROGRAM SUPPORTS FUNDING FOR STUDIES THAT ADVANCE UNDERSTANDING OF THE UNDERLYING MECHANISMS OF HHT, FOSTERS THE DEVELOPMENT OF NOVEL THERAPEUTIC APPROACHES FOR TREATMENT AND DISEASE MANAGEMENT, AND PROMOTES TRANSLATIONAL RESEARCH THAT LEADS TO MULTI-CENTER CLINICAL TRIALS. IN ADDITION, THE HHT INTERNATIONAL SCIENTIFIC CONFERENCE IS HELD BIENNIALLY TO FACILITATE COLLABORATION AND THE EXCHANGE OF SCIENTIFIC KNOWLEDGE AMONG RESEARCHERS AND CLINICIANS.
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IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
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IRS990/Form990PartVIISectionAGrp/TitleTxt12MEMBER EMERITUS
IRS990/Form990PartVIISectionAGrp/TitleTxt13EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14CHIEF OPERATING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR, NAT'L HHT COORDINATING CENTER
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IRS990/MissionDesc0HHT FOUNDATION INTERNATIONAL, INC. IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO SERVING INDIVIDUALS AFFECTED BY HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT). THE ORGANIZATION PROVIDES INFORMATION TO PATIENTS, FAMILY MEMBERS, AND HEALTHCARE PROFESSIONALS; OFFERS SUPPORT AND COMMUNITY FOR PATIENTS AND THEIR FAMILIES; RAISES FUNDS TO ADVANCE BASIC AND CLINICAL RESEARCH; AND SPONSORS RESEARCH GRANTS TO PROMOTE SCIENTIFIC STUDIES FOCUSED ON HHT.
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IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION - THE GOAL OF THE EDUCATION PROGRAM IS TO ADVANCE AWARENESS, ACCURATE DIAGNOSIS, AND BEST-PRACTICE TREATMENT OF HHT BY SUPPORTING PATIENT EDUCATION AND OUTREACH, SPONSORING EDUCATIONAL CONFERENCES AND PROFESSIONAL MEETINGS, AND STRENGTHENING A NETWORK OF COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE.
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IRS990/ProgSrvcAccomActy3Grp/Desc0PUBLIC INFORMATION - THE GOAL OF THE PUBLIC INFORMATION PROGRAM IS TO INCREASE AWARENESS OF HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) AMONG THE GENERAL PUBLIC, PRIVATE SECTOR, AND GOVERNMENTAL AUDIENCES THROUGH STRATEGIC ENGAGEMENT WITH THE PRESS AND OTHER MEDIA CHANNELS.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0ADVOCACY - THE GOAL OF THE ADVOCACY PROGRAM IS TO REPRESENT AND SUPPORT INDIVIDUALS AFFECTED BY HHT BY ADVANCING RECOGNITION OF THE DISORDER AND SECURING FUNDING TO EXPAND AWARENESS EFFORTS, IMPROVE ACCESS TO EXPERT CARE, AND PROMOTE PARTICIPATION IN CLINICAL TRIALS.
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IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0NET INCOME FROM FUNDRAISING EVENTS AND OTHER INCOME

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