Civic Intelligence

Hht Foundation International Inc.

990 • Fiscal year 2024 • EIN 22-3115041

Jul 01, 2023 to Jun 30, 2024 • Filed on Apr 24, 2025

Organization ProfileWWW.CUREHHT.ORG

View Organization Page

PO Box 329Monkton, MD 21111

(410) 357-9932

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

55th percentile

0.16x

Higher debt load relative to assets than 55% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

43rd percentile

0.12x

Higher debt load relative to revenue than 43% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

76th percentile

23%

Higher net margin than 76% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

78th percentile

$216,436

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 3.2% of source-year revenue.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2024

Asset Growth

91st percentile

48%

Faster asset growth than 91% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

89th percentile

82%

Faster revenue growth than 89% of similar nonprofits.

2024 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets55th percentile

Assets

Up

$5,213,609

Up $1,697,863 (+48%) from 2023

Net Assets

Up

$4,404,410

Up $1,568,999 (+55%) from 2023

Liabilities

Up

$809,199

Up $128,864 (+19%) from 2023

Revenue And Expenses
Liabilities / Revenue43rd percentileNet Margin76th percentile

Revenue

Up

$6,790,311

Up $3,049,446 (+82%) from 2023

Expenses

Up

$5,251,461

Up $1,182,403 (+29%) from 2023

Net Income

Up

$1,538,850

Up $1,867,043 (+569%) from 2023

Historical Trend

Balance Sheet Trend

Asset Growth91st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2011: $1,844,464Liabilities 2011: $57,439Net Assets 2011: $1,787,0252011Assets 2012: $1,669,966Liabilities 2012: $24,254Net Assets 2012: $1,645,7122012Assets 2013: $1,721,975Liabilities 2013: $41,367Net Assets 2013: $1,680,6082013Assets 2014: $2,271,755Liabilities 2014: $83,254Net Assets 2014: $2,188,5012014Assets 2015: $2,005,960Liabilities 2015: $270,750Net Assets 2015: $1,735,2102015Assets 2016: $1,567,185Liabilities 2016: $63,799Net Assets 2016: $1,503,3862016Assets 2017: $1,300,277Liabilities 2017: $99,174Net Assets 2017: $1,201,1032017Assets 2018: $1,133,217Liabilities 2018: $94,260Net Assets 2018: $1,038,9572018Assets 2019: $1,519,255Liabilities 2019: $137,132Net Assets 2019: $1,382,1232019Assets 2020: $1,852,494Liabilities 2020: $170,683Net Assets 2020: $1,681,8112020Assets 2021: $3,054,085Liabilities 2021: $324,090Net Assets 2021: $2,729,9952021Assets 2022: $3,323,287Liabilities 2022: $178,682Net Assets 2022: $3,144,6052022Assets 2023: $3,515,746Liabilities 2023: $680,335Net Assets 2023: $2,835,4112023Assets 2024: $5,213,609Liabilities 2024: $809,199Net Assets 2024: $4,404,4102024Assets 2025: $8,133,180Liabilities 2025: $962,042Net Assets 2025: $7,171,1382025

Highlighted filing

2024

Assets$5,213,609
Liabilities$809,199
Net Assets$4,404,410
Open 2024 Filing

Operations Trend

Revenue Growth89th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2011: $727,563Expenses 2011: $661,315Net Income 2011: $66,2482011Revenue 2012: $499,991Expenses 2012: $601,955Net Income 2012: -$101,9642012Revenue 2013: $832,248Expenses 2013: $831,083Net Income 2013: $1,1652013Revenue 2014: $1,518,285Expenses 2014: $1,054,351Net Income 2014: $463,9342014Revenue 2015: $1,321,688Expenses 2015: $1,741,862Net Income 2015: -$420,1742015Revenue 2016: $944,349Expenses 2016: $1,151,299Net Income 2016: -$206,9502016Revenue 2017: $1,044,604Expenses 2017: $1,348,119Net Income 2017: -$303,5152017Revenue 2018: $1,002,959Expenses 2018: $1,163,770Net Income 2018: -$160,8112018Revenue 2019: $1,708,278Expenses 2019: $1,369,365Net Income 2019: $338,9132019Revenue 2020: $1,790,976Expenses 2020: $1,481,024Net Income 2020: $309,9522020Revenue 2021: $2,204,324Expenses 2021: $1,231,386Net Income 2021: $972,9382021Revenue 2022: $2,377,085Expenses 2022: $1,884,387Net Income 2022: $492,6982022Revenue 2023: $3,740,865Expenses 2023: $4,069,058Net Income 2023: -$328,1932023Revenue 2024: $6,790,311Expenses 2024: $5,251,461Net Income 2024: $1,538,8502024Revenue 2025: $9,841,516Expenses 2025: $7,129,175Net Income 2025: $2,712,3412025

Highlighted filing

2024

Revenue$6,790,311
Expenses$5,251,461
Net Income$1,538,850
Open 2024 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2023 to Jun 30, 2024
Signed
Apr 24, 2025
Return Version
2023v6.0
Gross Receipts
$7,502,661
Mission and Program Overview

Mission

Hht foundation international, inc. Is a not-for-profit organization dedicated to serving individuals affected by hereditary hemorrhagic telangiectasia (hht). The organization provides information to patients, family members, and healthcare professionals; offers support and community for patients and their families; raises funds to advance basic and clinical research; and sponsors research grants to promote scientific studies focused on hht.

Find a cure for hht while saving the lives and improving the well-being of individuals and families affected by hht.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,271,426$2,420,226▲ $148,800
Pledges and Grants Receivable$703,055$2,030,724▲ $1,327,669
Cash and Non-Interest-Bearing Accounts$411,022$501,341▲ $90,319
Prepaid Expenses and Deferred Charges$21,876$158,211▲ $136,335
Land, Buildings, and Equipment, Net$6,717$3,567▼ $3,150
Total Assets$3,515,746$5,213,609▲ $1,697,863
Other Assets Total$101,650$99,540▼ $2,110
Liabilities
Accounts Payable and Accrued Expenses$680,335$658,420▼ $21,915
Deferred Revenue-$150,779-
Total Liabilities$680,335$809,199▲ $128,864
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,459,893$2,469,710▲ $1,009,817
Net Assets Without Donor Restrictions$1,375,518$1,934,700▲ $559,182
Total Net Assets Fund Balance$2,835,411$4,404,410▲ $1,568,999
Total Liabilities and Net Assets / Fund Balance$3,515,746$5,213,609▲ $1,697,863

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$127,429$127,429
Equipment$2,503$64,636$67,139
Leasehold Improvements$1,064$4,986$6,050

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2023$327,159-▲ $63,228-$390,387
2022$285,033-▲ $42,126-$327,159
2021$307,864$7,308▼ $30,139-$285,033
2020$226,950$2,500▲ $78,414-$307,864
2019$218,808$642▲ $7,500-$226,950
Compensation and Service Providers
Top Officer Pay78th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Marianne ClancyExecutive DirectorFT$183,462$32,974$216,436
Melissa DickeyDIRECTOR, NAT'L HHT COORDINATING CENTERFT$141,292$9,410$150,702
Melissa DickeyDIRECTOR, NAT'L HHT COORDINATING CEN-$141,292$9,410$150,702
Stefanie-nicole SchaeferChief Operating OfficerFT$114,154$19,789$133,943

Board Members and Trustees

NameTitle
John DunnPresident
Benjamin Holt EsqVice-president
Ann TrussellMember
Anthony Anzell PhdMember
Brandon Probst PhdMember
Dennis Sprecher MdMember
Gabriella ChoiMember
Howard LichtigMember
Jim LapidesMember
Karen Silber Weissel PhdMember
Marijo MccuneMember
Scott BoatwrightMember
Scott Olitsky MdMember
Dennis RoutledgeMember Emeritus
Robert BerkmanMember Emeritus
Savanah BenhartSecretary
Marc Topaz EsqTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Biorasi LLCClinical Trials And Research18851 NE 29TH AVE SUITE 800, Miami, FL 33180$725,403
Revenue and Support

Revenue Composition

Contributions and Grants
$6,587,947
Program Service Revenue
$104,766
Investment Income
$134,583
Other Revenue
$-36,985
All Other Contributions
$2,891,195
Change in Net Assets
$1,538,850

Audited Revenue Reconciliation

Revenue per Audited Statements
$6,787,386
Revenue Not Reported on Financial Statements
$2,925
Revenue Not Reported on Form 990
$30,149
Total Revenue per Audited Statements
$6,817,535
Total Revenue per Form 990
$6,790,311
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,930,944
Salaries, Compensation, and Employee Benefits$1,209,237
Other Expenses$1,111,280
Total Fundraising Expense$439,115
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,930,944--$2,930,944
Other Salaries and Wages$576,008$34,990$84,040$695,038
Fees for Services Other$178,307$119,089$140,852$438,248
Current Officers, Directors, Trustees, and Key Employees$259,102$62,841$36,884$358,827
Information Technology$141,301$16,142$2,199$159,642
Office Expenses$66,070$42,135$37,812$146,017
Payroll Taxes$62,097$6,167$8,908$77,172
Advertising$44,102$1,545$27,407$73,054
Travel$47,567$8,735$14,933$71,235
Other Employee Benefits$57,796$4,387$8,441$70,624
Conferences and Meetings$59,312--$59,312
Fees for Services Lobbying$37,944--$37,944
Occupancy-$13,577-$13,577
Other Expenses$9,979$3,796$10,419$9,979
Pension Plan Contributions$6,449$183$944$7,576
Depreciation Depletion-$3,151-$3,151
Fees for Service Investment Mgmnt Fees-$2,925-$2,925
Total Functional Expenses$4,490,997$321,349$439,115$5,251,461

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$5,251,461
Expenses per Audited Statements$5,248,536
Total Expenses per Audited Statements$5,248,536
Expenses Not Reported on Financial Statements$2,925
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Mayo ClinicRochester, MN501(c)(3)Hrsa Hht Centers, Dod Grants Reimbursable$194,348
Massachusetts General HospitalBoston, MA501(c)(3)Hrsa Hht Centers$192,184
Augusta University Research Institute IncAtlanta, GA501(c)(3)Hrsa Hht Centers, Dod Grants Reimbursable$166,982
The University of North Carolina at Chapel Hill Office of Sponsored ProgramChapel Hill, NC501(c)(3)Hrsa Hht Centers, Dod Grant Reimbursable$140,087
Yale University Office of Sponsored ProjectsNew Haven, CT501(c)(3)Hrsa Hht Centers$136,752
Ucsf Regents of the University of CaliforniaSan Francisco, CA501(c)(3)Hrsa Hht Centers$135,184
University of UtahSalt Lake City, UT501(c)(3)Hrsa Hht Centers, Dod Grant Reimbursable$131,483
Washington University in St Louis-school of Medicine AdministrationSt Louis, MT-Hrsa Hht Centers, Dod Grants Reimbursable$123,973
Oregon Health Science University - Office of Proposal & Award ManagementPortland, OR501(c)(3)Hrsa Hht Centers, Dod Grants Reimbursable$109,709
Ut Southwestern Medical CenterDallas, TX501(c)(3)Hrsa Hht Centers$101,906
Columbia UniversityNew York City, NY-Hrsa Hht Centers, Called to Cure Campaign$97,302
Trustees of the University of PennsylvaniaPhiladelphia, PA-Hrsa Hht Centers$95,721
Cleveland Clinic FoundationIndependence, OH-Hrsa Hht Centers, Dod Grants Reimbursable$76,292
University of California Los Angeles Extramural Fund ManagementLos Angeles, CA-Hrsa Hht Centers, Called to Cure Campaign, Dod Grants Reimbursable$64,246
University of Colorado Anschutz Medical CampusAurora, CO-Hrsa Hht Centers$38,233
Uplifting Athletes IncDoylestown, PA-Research$10,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$43,605
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Night of Hope$56,803-$15,169-
Stoner Golf$36,679-$19,158-
Total Events$116,642-$43,605$-43,605
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Marianne ClancyExecutive DirectorLease of Office SpaceNo$13,200
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The executive director reviews the 990 before filing. The form 990 is distributed and reviewed by the board of directors.”

Form 990, Part VI, Section B, Line 12C

“Hht foundation international, inc has a conflict of interest policy and management annually discusses this important document with the board of directors and has them sign the agreement to ensure it is current.”

Form 990, Part VI, Section B, Line 15A

“The executive director's salary is approved by the executive committee or its designees each year when approving the budget. The executive committee, or its designees, perform a semi-annual review of the executive director's performance during the prior six months. Based on this performance review, as well as additional analysis including but not limited to a comparison of the cash amounts received by the executive director to compensation of individuals in similar positions within the industry, the executive committee, or its designees, determines any applicable bonuses and adjustments to the subsequent year's base salary. Once amounts are approved, a member of the executive committee provides the approval to the financial administrator. The financial administrator maintains documentation supporting the executive committee's decision and processes the information within the payroll system.”

Form 990, Part VI, Section C, Line 19

“Governing documents are available to the public upon request only.”

Filing and Contact Details

Filer

Filer Name
Hht Foundation
EIN
22-3115041
Phone
4103579932
Address
PO BOX 329, MONKTON, MD 21111
Doing Business As
Cure Hht

Signing Officer

Name
Marianne Clancy
Title
Executive Director
Phone
4103579932
Signed
2025-04-24
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Marianne Clancy
Formed
1990
Legal Domicile
Md
Voting Board Members
17
Independent Board Members
17
Employees
15
Volunteers
0

Preparer

Firm
Uhy Advisors Mid-atlantic Inc
Address
8601 ROBERT FULTON DRIVE SUITE 210, COLUMBIA, MD 21046
Preparer
Yi Shrestha
Phone
4107205220
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“The process has not changed from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The income tax positions taken by cure hht for any year open under the various statutes of limitations are that the organization continues to be exempt from income taxes and that the organization has properly reported unrelated business income that is subject to income taxes. Cure hht believes that there are no tax positions taken or expected to be taken that would significantly increase unrecognized tax benefits within 12 months of the reporting date. None of the cure hht's income tax returns are currently under examination.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Direct fundraising expense”

Part V, Line 4

“Net assets permanently restricted result from contributions to be used to generate income to provide for medical research and/or education. Income earned from these net assets must be used for medical research and/or educational projects as determined by the foundation's management and board of directors.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0FIND A CURE FOR HHT WHILE SAVING THE LIVES AND IMPROVING THE WELL-BEING OF INDIVIDUALS AND FAMILIES AFFECTED BY HHT.
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IRS990/Form990PartVIISectionAGrp/OfficerInd5X
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1732974
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1819789
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt199410
IRS990/Form990PartVIISectionAGrp/PersonNm0JOHN DUNN
IRS990/Form990PartVIISectionAGrp/PersonNm1BENJAMIN HOLT ESQ
IRS990/Form990PartVIISectionAGrp/PersonNm2MARC TOPAZ ESQ
IRS990/Form990PartVIISectionAGrp/PersonNm3SAVANAH BENHART
IRS990/Form990PartVIISectionAGrp/PersonNm4ANTHONY ANZELL PHD
IRS990/Form990PartVIISectionAGrp/PersonNm5SCOTT BOATWRIGHT
IRS990/Form990PartVIISectionAGrp/PersonNm6GABRIELLA CHOI
IRS990/Form990PartVIISectionAGrp/PersonNm7JIM LAPIDES
IRS990/Form990PartVIISectionAGrp/PersonNm8HOWARD LICHTIG
IRS990/Form990PartVIISectionAGrp/PersonNm9MARIJO MCCUNE
IRS990/Form990PartVIISectionAGrp/PersonNm10SCOTT OLITSKY MD
IRS990/Form990PartVIISectionAGrp/PersonNm11BRANDON PROBST PHD
IRS990/Form990PartVIISectionAGrp/PersonNm12DENNIS SPRECHER MD
IRS990/Form990PartVIISectionAGrp/PersonNm13KAREN SILBER WEISSEL PHD
IRS990/Form990PartVIISectionAGrp/PersonNm14ANN TRUSSELL
IRS990/Form990PartVIISectionAGrp/PersonNm15ROBERT BERKMAN
IRS990/Form990PartVIISectionAGrp/PersonNm16DENNIS ROUTLEDGE
IRS990/Form990PartVIISectionAGrp/PersonNm17MARIANNE CLANCY
IRS990/Form990PartVIISectionAGrp/PersonNm18STEFANIE-NICOLE SCHAEFER
IRS990/Form990PartVIISectionAGrp/PersonNm19MELISSA DICKEY
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt17183462
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18114154
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19141292
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE-PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt4MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt5MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt10MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt12MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt14MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt15MEMBER EMERITUS
IRS990/Form990PartVIISectionAGrp/TitleTxt16MEMBER EMERITUS
IRS990/Form990PartVIISectionAGrp/TitleTxt17EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18CHIEF OPERATING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR, NAT'L HHT COORDINATING CENTER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01990
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0116642
IRS990/FundraisingDirectExpensesAmt043605
IRS990/FundraisingGrossIncomeAmt00
IRS990/GainOrLossGrp/SecuritiesAmt029643
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt017
IRS990/GovernmentGrantsAmt03580110
IRS990/GrantAmt02900571
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt02930944
IRS990/GrantsToDomesticOrgsGrp/TotalAmt02930944
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0698388
IRS990/GrossReceiptsAmt07502661
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt017
IRS990/IndivRcvdGreaterThan100KCnt03
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt02199
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt016142
IRS990/InformationTechnologyGrp/ProgramServicesAmt0141301
IRS990/InformationTechnologyGrp/TotalAmt0159642
IRS990/InvestmentIncomeGrp/ExclusionAmt0104940
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0104940
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt02271426
IRS990/InvestmentsPubTradedSecGrp/EOYAmt02420226
IRS990/IRPDocumentCnt023
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0197051
IRS990/LandBldgEquipBasisNetGrp/BOYAmt06717
IRS990/LandBldgEquipBasisNetGrp/EOYAmt03567
IRS990/LandBldgEquipCostOrOtherBssAmt0200618
IRS990/LegalDomicileStateCd0MD
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0668745
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0HHT INTERNATIONAL, INC IS A NOT-FOR-PROFIT ORGANIZATION ORGANIZED TO PROVIDE INFORMATION ABOUT HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) TO PATIENTS, FAMILY MEMBERS AND PHYSICIANS, OPERATE AS A SUPPORT GROUP FOR PATIENTS AND FAMILY MEMBERS, RAISE FUNDS FOR BASIC AND CLINICAL RESEARCH, AND SPONSOR RESEARCH GRANTS FOR STUDIES RELATING TO HHT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt02835411
IRS990/NetAssetsOrFundBalancesEOYAmt04404410
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt029643
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt029643
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-43605
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-43605
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt030149
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01375518
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt01934700
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt013577
IRS990/OccupancyGrp/TotalAmt013577
IRS990/OfficeExpensesGrp/FundraisingAmt037812
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt042135
IRS990/OfficeExpensesGrp/ProgramServicesAmt066070
IRS990/OfficeExpensesGrp/TotalAmt0146017
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0101650
IRS990/OtherAssetsTotalGrp/EOYAmt099540
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt08441
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt04387
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt057796
IRS990/OtherEmployeeBenefitsGrp/TotalAmt070624
IRS990/OtherExpensesGrp/Desc0OTHER GRANTS AND AWARDS
IRS990/OtherExpensesGrp/Desc1MISCELLANEOUS AND CREDI
IRS990/OtherExpensesGrp/Desc2SUBSCRIPTIONS AND DUES
IRS990/OtherExpensesGrp/Desc3PAZOPANIB
IRS990/OtherExpensesGrp/FundraisingAmt049711
IRS990/OtherExpensesGrp/FundraisingAmt116565
IRS990/OtherExpensesGrp/FundraisingAmt210419
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01686
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt13796
IRS990/OtherExpensesGrp/ProgramServicesAmt012969
IRS990/OtherExpensesGrp/ProgramServicesAmt11050
IRS990/OtherExpensesGrp/ProgramServicesAmt29979
IRS990/OtherExpensesGrp/TotalAmt051397
IRS990/OtherExpensesGrp/TotalAmt133330
IRS990/OtherExpensesGrp/TotalAmt211469
IRS990/OtherExpensesGrp/TotalAmt39979
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER INCOME
IRS990/OtherRevenueMiscGrp/ExclusionAmt06620
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt06620
IRS990/OtherRevenueTotalAmt06620
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt084040
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt034990
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0576008
IRS990/OtherSalariesAndWagesGrp/TotalAmt0695038
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt08908
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt06167
IRS990/PayrollTaxesGrp/ProgramServicesAmt062097
IRS990/PayrollTaxesGrp/TotalAmt077172
IRS990/PensionPlanContributionsGrp/FundraisingAmt0944
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0183
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt06449
IRS990/PensionPlanContributionsGrp/TotalAmt07576
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0703055
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt02030724
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt021876
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt0158211
IRS990/PrincipalOfficerNm0MARIANNE CLANCY
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0104766
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0104766
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION - THE GOAL OF THE EDUCATION PROGRAM IS TO PROMOTE EDUCATION, DIAGNOSIS, AND BEST PRACTICE TREATMENTS RELATED TO HHT THROUGH PATIENT SUPPORT, SUPPORT OF CONFERENCES, MEETINGS, AND COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0460292
IRS990/ProgSrvcAccomActy2Grp/GrantAmt030373
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0104766
IRS990/ProgSrvcAccomActy3Grp/Desc0PUBLIC INFORMATION - THE GOAL OF THE PUBLIC INFORMATION PROGRAM IS TO INCREASE PUBLIC, PRIVATE, AND GOVERNMENTAL AWARENESS OF THE HHT DISORDER THROUGH THE PRESS AND THE MEDIA.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0224818
IRS990/ProgSrvcAccomActy3Grp/GrantAmt00
IRS990/ProgSrvcAccomActyOtherGrp/Desc0ADVOCACY - THE GOAL OF THE ADVOCACY PROGRAM IS TO ADVOCATE FOR AND SUPPORT THOSE WITH HHT BY PURSUING RECOGNITION AND FUNDING FOR AWARENESS, ACCESS TO EXPERT CARE AND CLINICAL TRIALS.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt036959
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03263861
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01702745
IRS990/PYInvestmentIncomeAmt069101
IRS990/PYOtherExpensesAmt01276949
IRS990/PYOtherRevenueAmt0-2204
IRS990/PYProgramServiceRevenueAmt0410107
IRS990/PYRevenuesLessExpensesAmt0-328193
IRS990/PYSalariesCompEmpBnftPaidAmt01089364
IRS990/PYTotalExpensesAmt04069058
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt03740865
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt01538850
IRS990/RegularMonitoringEnfrcInd01

Document Assets

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Filings

Displayed year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,213,609
Liabilities
$809,199
Net assets
$4,404,410
Revenue
$6,790,311
Expenses
$5,251,461
Net income
$1,538,850
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$8.13$0.96$7.17$9.84$7.13$2.71
2024Detailed filing. Detailed filing data is available for this year.$5.21$0.81$4.40$6.79$5.25$1.54
2023Detailed filing. Detailed filing data is available for this year.$3.52$0.68$2.84$3.74$4.07$0.33
2022Detailed filing. Detailed filing data is available for this year.$3.32$0.18$3.14$2.38$1.88$0.49
2021Detailed filing. Detailed filing data is available for this year.$3.05$0.32$2.73$2.20$1.23$0.97
2020Detailed filing. Detailed filing data is available for this year.$1.85$0.17$1.68$1.79$1.48$0.31
2019Detailed filing. Detailed filing data is available for this year.$1.52$0.14$1.38$1.71$1.37$0.34
2018Detailed filing. Detailed filing data is available for this year.$1.13$0.09$1.04$1.00$1.16$0.16
2017Detailed filing. Detailed filing data is available for this year.$1.30$0.10$1.20$1.04$1.35$0.30
2016Detailed filing. Detailed filing data is available for this year.$1.57$0.06$1.50$0.94$1.15$0.21
2015Detailed filing. Detailed filing data is available for this year.$2.01$0.27$1.74$1.32$1.74$0.42
2014Summary only. Only limited summary data is available for this year.$2.27$0.08$2.19$1.52$1.05$0.46
2013Summary only. Only limited summary data is available for this year.$1.72$0.04$1.68$0.83$0.83$0.00
2012Summary only. Only limited summary data is available for this year.$1.67$0.02$1.65$0.50$0.60$0.10
2011Summary only. Only limited summary data is available for this year.$1.84$0.06$1.79$0.73$0.66$0.07