Civic Intelligence

Hht Foundation International Inc.

990 • Fiscal year 2023 • EIN 22-3115041

Jul 01, 2022 to Jun 30, 2023 • Filed on Apr 23, 2024

Organization ProfileWWW.CUREHHT.ORG

View Organization Page

PO Box 329Monkton, MD 21111

(410) 357-9932

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

67th percentile

0.19x

Higher debt load relative to assets than 67% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Liabilities / Revenue

63rd percentile

0.18x

Higher debt load relative to revenue than 63% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Net Margin

25th percentile

-8.8%

Higher net margin than 25% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Top Officer Pay

88th percentile

$180,465

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 4.8% of source-year revenue.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Asset Growth

53rd percentile

5.8%

Faster asset growth than 53% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Revenue Growth

85th percentile

57%

Faster revenue growth than 85% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets67th percentile

Assets

Up

$3,515,746

Up $192,459 (+5.8%) from 2022

Net Assets

Down

$2,835,411

Down $309,194 (-9.8%) from 2022

Liabilities

Up

$680,335

Up $501,653 (+281%) from 2022

Revenue And Expenses
Liabilities / Revenue63rd percentileNet Margin25th percentile

Revenue

Up

$3,740,865

Up $1,363,780 (+57%) from 2022

Expenses

Up

$4,069,058

Up $2,184,671 (+116%) from 2022

Net Income

Down

-$328,193

Down $820,891 (-167%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth53rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2011: $1,844,464Liabilities 2011: $57,439Net Assets 2011: $1,787,0252011Assets 2012: $1,669,966Liabilities 2012: $24,254Net Assets 2012: $1,645,7122012Assets 2013: $1,721,975Liabilities 2013: $41,367Net Assets 2013: $1,680,6082013Assets 2014: $2,271,755Liabilities 2014: $83,254Net Assets 2014: $2,188,5012014Assets 2015: $2,005,960Liabilities 2015: $270,750Net Assets 2015: $1,735,2102015Assets 2016: $1,567,185Liabilities 2016: $63,799Net Assets 2016: $1,503,3862016Assets 2017: $1,300,277Liabilities 2017: $99,174Net Assets 2017: $1,201,1032017Assets 2018: $1,133,217Liabilities 2018: $94,260Net Assets 2018: $1,038,9572018Assets 2019: $1,519,255Liabilities 2019: $137,132Net Assets 2019: $1,382,1232019Assets 2020: $1,852,494Liabilities 2020: $170,683Net Assets 2020: $1,681,8112020Assets 2021: $3,054,085Liabilities 2021: $324,090Net Assets 2021: $2,729,9952021Assets 2022: $3,323,287Liabilities 2022: $178,682Net Assets 2022: $3,144,6052022Assets 2023: $3,515,746Liabilities 2023: $680,335Net Assets 2023: $2,835,4112023Assets 2024: $5,213,609Liabilities 2024: $809,199Net Assets 2024: $4,404,4102024Assets 2025: $8,133,180Liabilities 2025: $962,042Net Assets 2025: $7,171,1382025

Highlighted filing

2023

Assets$3,515,746
Liabilities$680,335
Net Assets$2,835,411
Open 2023 Filing

Operations Trend

Revenue Growth85th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$10M$5.0M$0-$5.0MRevenue 2011: $727,563Expenses 2011: $661,315Net Income 2011: $66,2482011Revenue 2012: $499,991Expenses 2012: $601,955Net Income 2012: -$101,9642012Revenue 2013: $832,248Expenses 2013: $831,083Net Income 2013: $1,1652013Revenue 2014: $1,518,285Expenses 2014: $1,054,351Net Income 2014: $463,9342014Revenue 2015: $1,321,688Expenses 2015: $1,741,862Net Income 2015: -$420,1742015Revenue 2016: $944,349Expenses 2016: $1,151,299Net Income 2016: -$206,9502016Revenue 2017: $1,044,604Expenses 2017: $1,348,119Net Income 2017: -$303,5152017Revenue 2018: $1,002,959Expenses 2018: $1,163,770Net Income 2018: -$160,8112018Revenue 2019: $1,708,278Expenses 2019: $1,369,365Net Income 2019: $338,9132019Revenue 2020: $1,790,976Expenses 2020: $1,481,024Net Income 2020: $309,9522020Revenue 2021: $2,204,324Expenses 2021: $1,231,386Net Income 2021: $972,9382021Revenue 2022: $2,377,085Expenses 2022: $1,884,387Net Income 2022: $492,6982022Revenue 2023: $3,740,865Expenses 2023: $4,069,058Net Income 2023: -$328,1932023Revenue 2024: $6,790,311Expenses 2024: $5,251,461Net Income 2024: $1,538,8502024Revenue 2025: $9,841,516Expenses 2025: $7,129,175Net Income 2025: $2,712,3412025

Highlighted filing

2023

Revenue$3,740,865
Expenses$4,069,058
Net Income-$328,193
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2022 to Jun 30, 2023
Signed
Apr 23, 2024
Return Version
2022v5.0
Gross Receipts
$4,440,678
Mission and Program Overview

Mission

Hht foundation international, inc. Is a not-for-profit organization dedicated to serving individuals affected by hereditary hemorrhagic telangiectasia (hht). The organization provides information to patients, family members, and healthcare professionals; offers support and community for patients and their families; raises funds to advance basic and clinical research; and sponsors research grants to promote scientific studies focused on hht.

Hht international, inc is a not-for-profit organization organized to provide information about hereditary hemorrhagic telangiectasia (hht) to patients, family members and physicians, operate as a support group for patients and family members, raise funds for basic and clinical research, and sponsor research grants for studies relating to hht.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,157,352$2,271,426▲ $114,074
Pledges and Grants Receivable$451,242$703,055▲ $251,813
Cash and Non-Interest-Bearing Accounts$583,916$411,022▼ $172,894
Prepaid Expenses and Deferred Charges$21,429$21,876▲ $447
Land, Buildings, and Equipment, Net$7,801$6,717▼ $1,084
Total Assets$3,323,287$3,515,746▲ $192,459
Other Assets Total$101,547$101,650▲ $103
Liabilities
Accounts Payable and Accrued Expenses$178,682$680,335▲ $501,653
Total Liabilities$178,682$680,335▲ $501,653
Net Assets / Fund Balance
Net Assets With Donor Restrictions$1,890,414$1,459,893▼ $430,521
Net Assets Without Donor Restrictions$1,254,191$1,375,518▲ $121,327
Total Net Assets Fund Balance$3,144,605$2,835,411▼ $309,194
Total Liabilities and Net Assets / Fund Balance$3,323,287$3,515,746▲ $192,459

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$0$127,429$127,429
Equipment$4,444$62,695$67,139
Leasehold Improvements$2,273$3,777$6,050

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2022$285,033-▲ $42,126-$327,159
2021$307,864$7,308▼ $30,139-$285,033
2020$226,950$2,500▲ $78,414-$307,864
2019$218,808$642▲ $7,500-$226,950
2018$218,870$0▼ $62-$218,808
Compensation and Service Providers
Top Officer Pay88th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Marianne ClancyExecutive DirectorFT$167,703$12,762$180,465
Stefanie-nicole SchaeferChief Operating OfficerFT$103,340$5,736$109,076
Gary SaumFormer DirectorFT$108,746-$108,746

Board Members and Trustees

NameTitle
Sara Palmer PhdPast President
John DunnPresident
Benjamin Holt EsqVice President
Ann TrussellMember
Anthony Anzell PhdMember
Brandon Probst PhdMember
Dennis Sprecher MdMember
Gabriella ChoiMember
Howard LichtigMember
Jim LapidesMember
Karen Silber Weissel PhdMember
Marijo MccuneMember
Scott BoatwrightMember
Scott Olitsky MdMember
Dennis RoutledgeMember Emeritus
Robert BerkmanMember Emeritus
Savanah SchottSecretary
Marc Topaz EsqTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
Biorasi LLCClinical Trials And Research18851 NE 29TH AVE SUITE 800, Miami, FL 33180$392,862
Revenue and Support

Revenue Composition

Contributions and Grants
$3,263,861
Program Service Revenue
$410,107
Investment Income
$69,101
Other Revenue
$-2,204
All Other Contributions
$1,113,956
Change in Net Assets
$-328,193

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,738,303
Revenue Not Reported on Financial Statements
$2,562
Revenue Not Reported on Form 990
$18,999
Total Revenue per Audited Statements
$3,757,302
Total Revenue per Form 990
$3,740,865
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,702,745
Other Expenses$1,276,949
Salaries, Compensation, and Employee Benefits$1,089,364
Total Fundraising Expense$77,272
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,702,745--$1,702,745
Other Salaries and Wages$492,829$110,253$18,265$621,347
Conferences and Meetings$413,913-$3,135$417,048
Current Officers, Directors, Trustees, and Key Employees$229,654$51,376$8,511$289,541
Fees for Services Other$142,816$59,324$716$202,856
Fees for Services Accounting$65,524$92,703$987$159,214
Office Expenses$54,460$55,756$24,583$134,799
Other Employee Benefits$82,385$18,611$3,083$104,079
Travel$53,469$27,798$2,079$83,346
Information Technology$61,983$5,430$767$68,180
Payroll Taxes$53,389$12,046$1,996$67,431
Advertising$40,887$-823-$40,064
Fees for Services Lobbying$36,000--$36,000
Occupancy$7,302$6,916-$14,218
Pension Plan Contributions$5,508$1,250$208$6,966
Depreciation Depletion$2,454$554$92$3,100
Fees for Service Investment Mgmnt Fees-$2,562-$2,562
Fees for Services Legal-$1,602-$1,602
Other Expenses$9,544$273$10,103$273
Total Functional Expenses$3,460,889$530,897$77,272$4,069,058

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$4,069,058
Expenses per Audited Statements$4,066,496
Total Expenses per Audited Statements$4,066,496
Expenses Not Reported on Financial Statements$2,562
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Augusta University Research Institute IncAtlanta, GA-Dod Grant Reimbursable$64,656
University of Colorado Anschutz Medical CampusAurora, CO-Hrsa Hht Centers$49,097
Columbia UniversityNew York City, NY-Dod Grant Reimbursable$48,006
The University of North Carolina at Chapel Hill Office of Sponsored ProgramAtlanta, GA-Hrsa Hht Centers$39,901
Washington University in St Louis-school of Medicine AdministrationSt Louis, MT-Hrsa Hht Centers$33,440
Oregon Health Science University - Office of Proposal & Award ManagementPortland, OR-Hrsa Hht Centers$25,150
Mayo ClinicRochester, MN-Hrsa Hht Centers$23,553
Trustees of the University of PennsylvaniaPhiladelphia, PA-Hrsa Hht Centers$17,636
University of UtahSalt Lake City, UT-Dod Grant Reimbursable$7,028
Johns Hopkins CentralChicago, IL-Dod Grant R$6,550
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$11,211
Fundraising Gross Income$3,244
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Third Party$31,622-$4,471-
Stoner Golf$13,162-$3,107-
Total Events$53,787-$11,211$-11,211
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Marianne ClancyExecutive DirectorLease of Office SpaceNo$12,100
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The executive director reviews the 990 before filing. The form 990 is distributed and reviewed by the board of directors.”

Form 990, Part VI, Section B, Line 12C

“Hht foundation international, inc has a conflict of interest policy and management annually discusses this important document with the board of directors and has them sign the agreement to ensure it is current.”

Form 990, Part VI, Section B, Line 15A

“The executive director's salary is approved by the executive committee or its designees each year when approving the budget. The executive committee, or its designees, perform a semi-annual review of the executive director's performance during the prior six months. Based on this performance review, as well as additional analysis including but not limited to a comparison of the cash amounts received by the executive director to compensation of individuals in similar positions within the industry, the executive committee, or its designees, determines any applicable bonuses and adjustments to the subsequent year's base salary. Once amounts are approved, a member of the executive committee provides the approval to the financial administrator. The financial administrator maintains documentation supporting the executive committee's decision and processes the information within the payroll system.”

Form 990, Part VI, Section C, Line 19

“Governing documents are available to the public upon request only.”

Filing and Contact Details

Filer

Filer Name
Hht Foundation
EIN
22-3115041
Phone
4103579932
Address
PO BOX 329, MONKTON, MD 21111
Doing Business As
Cure Hht

Signing Officer

Name
Marianne Clancy
Title
Executive Director
Phone
4103579932
Signed
2024-04-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Marianne Clancy
Formed
1990
Legal Domicile
Md
Voting Board Members
18
Independent Board Members
18
Employees
18
Volunteers
0

Preparer

Firm
Uhy Advisors Mid-atlantic Inc
Address
8601 ROBERT FULTON DRIVE SUITE 210, COLUMBIA, MD 21046
Preparer
Katsiaryna Vasiliev
Phone
4107205220
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“The process has not changed from the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The income tax positions taken by cure hht for any year open under the various statutes of limitations are that the organization continues to be exempt from income taxes and that the organization has properly reported unrelated business income that is subject to income taxes. Cure hht believes that there are no tax positions taken or expected to be taken that would significantly increase unrecognized tax benefits within 12 months of the reporting date. None of the cure hht's income tax returns are currently under examination.”

Part V, Line 4

“Net assets permanently restricted result from contributions to be used to generate income to provide for medical research and/or education. Income earned from these net assets must be used for medical research and/or educational projects as determined by the foundation's management and board of directors.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt110
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt120
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt130
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt140
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1812762
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt195736
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/PersonNm0ANN TRUSSELL
IRS990/Form990PartVIISectionAGrp/PersonNm1ANTHONY ANZELL PHD
IRS990/Form990PartVIISectionAGrp/PersonNm2BENJAMIN HOLT ESQ
IRS990/Form990PartVIISectionAGrp/PersonNm3BRANDON PROBST PHD
IRS990/Form990PartVIISectionAGrp/PersonNm4DENNIS ROUTLEDGE
IRS990/Form990PartVIISectionAGrp/PersonNm5DENNIS SPRECHER MD
IRS990/Form990PartVIISectionAGrp/PersonNm6GABRIELLA CHOI
IRS990/Form990PartVIISectionAGrp/PersonNm7HOWARD LICHTIG
IRS990/Form990PartVIISectionAGrp/PersonNm8JIM LAPIDES
IRS990/Form990PartVIISectionAGrp/PersonNm9JOHN DUNN
IRS990/Form990PartVIISectionAGrp/PersonNm10KAREN SILBER WEISSEL PHD
IRS990/Form990PartVIISectionAGrp/PersonNm11MARC TOPAZ ESQ
IRS990/Form990PartVIISectionAGrp/PersonNm12MARIJO MCCUNE
IRS990/Form990PartVIISectionAGrp/PersonNm13ROBERT BERKMAN
IRS990/Form990PartVIISectionAGrp/PersonNm14SARA PALMER PHD
IRS990/Form990PartVIISectionAGrp/PersonNm15SAVANAH SCHOTT
IRS990/Form990PartVIISectionAGrp/PersonNm16SCOTT BOATWRIGHT
IRS990/Form990PartVIISectionAGrp/PersonNm17SCOTT OLITSKY MD
IRS990/Form990PartVIISectionAGrp/PersonNm18MARIANNE CLANCY
IRS990/Form990PartVIISectionAGrp/PersonNm19STEFANIE-NICOLE SCHAEFER
IRS990/Form990PartVIISectionAGrp/PersonNm20GARY SAUM
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt18167703
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt19103340
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20108746
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/TitleTxt0MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt1MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt3MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4MEMBER EMERITUS
IRS990/Form990PartVIISectionAGrp/TitleTxt5MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt6MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt7MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt8MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt9PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt10MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt11TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt12MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt13MEMBER EMERITUS
IRS990/Form990PartVIISectionAGrp/TitleTxt14PAST PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt15SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt16MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt17MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt18EXECUTIVE DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19CHIEF OPERATING OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt20FORMER DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01990
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt053787
IRS990/FundraisingDirectExpensesAmt011211
IRS990/FundraisingGrossIncomeAmt03244
IRS990/GainOrLossGrp/SecuritiesAmt013387
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt018
IRS990/GovernmentGrantsAmt02096118
IRS990/GrantAmt01702745
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01702745
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01702745
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0701989
IRS990/GrossReceiptsAmt04440678
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt018
IRS990/IndivRcvdGreaterThan100KCnt03
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt0767
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt05430
IRS990/InformationTechnologyGrp/ProgramServicesAmt061983
IRS990/InformationTechnologyGrp/TotalAmt068180
IRS990/InvestmentIncomeGrp/ExclusionAmt055714
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt055714
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt02157352
IRS990/InvestmentsPubTradedSecGrp/EOYAmt02271426
IRS990/IRPDocumentCnt024
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0193901
IRS990/LandBldgEquipBasisNetGrp/BOYAmt07801
IRS990/LandBldgEquipBasisNetGrp/EOYAmt06717
IRS990/LandBldgEquipCostOrOtherBssAmt0200618
IRS990/LegalDomicileStateCd0MD
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0688602
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0HHT INTERNATIONAL, INC IS A NOT-FOR-PROFIT ORGANIZATION ORGANIZED TO PROVIDE INFORMATION ABOUT HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) TO PATIENTS, FAMILY MEMBERS AND PHYSICIANS, OPERATE AS A SUPPORT GROUP FOR PATIENTS AND FAMILY MEMBERS, RAISE FUNDS FOR BASIC AND CLINICAL RESEARCH, AND SPONSOR RESEARCH GRANTS FOR STUDIES RELATING TO HHT.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt03144605
IRS990/NetAssetsOrFundBalancesEOYAmt02835411
IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt013387
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt013387
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-7967
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-7967
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt018999
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01254191
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt01375518
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt06916
IRS990/OccupancyGrp/ProgramServicesAmt07302
IRS990/OccupancyGrp/TotalAmt014218
IRS990/OfficeExpensesGrp/FundraisingAmt024583
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt055756
IRS990/OfficeExpensesGrp/ProgramServicesAmt054460
IRS990/OfficeExpensesGrp/TotalAmt0134799
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0101547
IRS990/OtherAssetsTotalGrp/EOYAmt0101650
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt03083
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt018611
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt082385
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0104079
IRS990/OtherExpensesGrp/Desc0MISCELLANEOUS AND CREDI
IRS990/OtherExpensesGrp/Desc1SUBSCRIPTIONS AND DUES
IRS990/OtherExpensesGrp/Desc2PAZOPANIB
IRS990/OtherExpensesGrp/Desc3OTHER GRANTS AND AWARDS
IRS990/OtherExpensesGrp/FundraisingAmt02747
IRS990/OtherExpensesGrp/FundraisingAmt110103
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt085146
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1120
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2273
IRS990/OtherExpensesGrp/ProgramServicesAmt05127
IRS990/OtherExpensesGrp/ProgramServicesAmt1900
IRS990/OtherExpensesGrp/ProgramServicesAmt29544
IRS990/OtherExpensesGrp/TotalAmt093020
IRS990/OtherExpensesGrp/TotalAmt111123
IRS990/OtherExpensesGrp/TotalAmt29544
IRS990/OtherExpensesGrp/TotalAmt3273
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0OTHER INCOME
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt05763
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt05763
IRS990/OtherRevenueTotalAmt05763
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt018265
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0110253
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0492829
IRS990/OtherSalariesAndWagesGrp/TotalAmt0621347
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt01996
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt012046
IRS990/PayrollTaxesGrp/ProgramServicesAmt053389
IRS990/PayrollTaxesGrp/TotalAmt067431
IRS990/PensionPlanContributionsGrp/FundraisingAmt0208
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt01250
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt05508
IRS990/PensionPlanContributionsGrp/TotalAmt06966
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0451242
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0703055
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt021429
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt021876
IRS990/PrincipalOfficerNm0MARIANNE CLANCY
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE FEES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0410107
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0410107
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION - THE GOAL OF THE EDUCATION PROGRAM IS TO PROMOTE EDUCATION, DIAGNOSIS, AND BEST PRACTICE TREATMENTS RELATED TO HHT THROUGH PATIENT SUPPORT, SUPPORT OF CONFERENCES, MEETINGS, AND COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0860601
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0410109
IRS990/ProgSrvcAccomActy3Grp/Desc0PUBLIC INFORMATION - THE GOAL OF THE PUBLIC INFORMATION PROGRAM IS TO INCREASE PUBLIC, PRIVATE, AND GOVERNMENTAL AWARENESS OF THE HHT DISORDER THROUGH THE PRESS AND THE MEDIA.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0145663
IRS990/ProgSrvcAccomActyOtherGrp/Desc0ADVOCACY - THE GOAL OF THE ADVOCACY PROGRAM IS TO ADVOCATE FOR AND SUPPORT THOSE WITH HHT BY PURSUING RECOGNITION AND FUNDING FOR AWARENESS, ACCESS TO EXPERT CARE AND CLINICAL TRIALS.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt011223
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt02356154
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt029900
IRS990/PYInvestmentIncomeAmt015516

Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,515,746
Liabilities
$680,335
Net assets
$2,835,411
Revenue
$3,740,865
Expenses
$4,069,058
Net income
-$328,193
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$8.13$0.96$7.17$9.84$7.13$2.71
2024Detailed filing. Detailed filing data is available for this year.$5.21$0.81$4.40$6.79$5.25$1.54
2023Detailed filing. Detailed filing data is available for this year.$3.52$0.68$2.84$3.74$4.07$0.33
2022Detailed filing. Detailed filing data is available for this year.$3.32$0.18$3.14$2.38$1.88$0.49
2021Detailed filing. Detailed filing data is available for this year.$3.05$0.32$2.73$2.20$1.23$0.97
2020Detailed filing. Detailed filing data is available for this year.$1.85$0.17$1.68$1.79$1.48$0.31
2019Detailed filing. Detailed filing data is available for this year.$1.52$0.14$1.38$1.71$1.37$0.34
2018Detailed filing. Detailed filing data is available for this year.$1.13$0.09$1.04$1.00$1.16$0.16
2017Detailed filing. Detailed filing data is available for this year.$1.30$0.10$1.20$1.04$1.35$0.30
2016Detailed filing. Detailed filing data is available for this year.$1.57$0.06$1.50$0.94$1.15$0.21
2015Detailed filing. Detailed filing data is available for this year.$2.01$0.27$1.74$1.32$1.74$0.42
2014Summary only. Only limited summary data is available for this year.$2.27$0.08$2.19$1.52$1.05$0.46
2013Summary only. Only limited summary data is available for this year.$1.72$0.04$1.68$0.83$0.83$0.00
2012Summary only. Only limited summary data is available for this year.$1.67$0.02$1.65$0.50$0.60$0.10
2011Summary only. Only limited summary data is available for this year.$1.84$0.06$1.79$0.73$0.66$0.07