Civic Intelligence

Charcot-Marie-Tooth Association

990 • Fiscal year 2017 • EIN 22-2480896

Jan 01, 2017 to Dec 31, 2017 • Filed on Jun 01, 2018

Organization Profilewww.cmtausa.org
PO Box 105Glenolden, PA 19036

(610) 499-9264

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

39th percentile

0.04x

Higher debt load relative to assets than 39% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

28th percentile

0.02x

Higher debt load relative to revenue than 28% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

77th percentile

19%

Higher net margin than 77% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

84th percentile

$152,692

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 4.9% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

92nd percentile

54%

Faster asset growth than 92% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

34th percentile

-1.2%

Faster revenue growth than 34% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets39th percentile

Assets

Up

$1,835,763

Up $644,319 (+54%) from 2016

Net Assets

Up

$1,762,032

Up $963,030 (+121%) from 2016

Liabilities

Down

$73,731

Down $318,711 (-81%) from 2016

Revenue And Expenses
Liabilities / Revenue28th percentileNet Margin77th percentile

Revenue

Down

$3,138,829

Down $38,200 (-1.2%) from 2016

Expenses

Down

$2,539,687

Down $868,510 (-25%) from 2016

Net Income

Up

$599,142

Up $830,310 (+359%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth92nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$10M$5.0M$0Assets 2011: $865,547Liabilities 2011: $24,935Net Assets 2011: $840,6122011Assets 2012: $1,106,759Liabilities 2012: $13,418Net Assets 2012: $1,093,3412012Assets 2013: $1,073,735Liabilities 2013: $10,930Net Assets 2013: $1,062,8052013Assets 2014: $1,707,384Liabilities 2014: $289,670Net Assets 2014: $1,417,7142014Assets 2015: $1,546,625Liabilities 2015: $516,455Net Assets 2015: $1,030,1702015Assets 2016: $1,191,444Liabilities 2016: $392,442Net Assets 2016: $799,0022016Assets 2017: $1,835,763Liabilities 2017: $73,731Net Assets 2017: $1,762,0322017Assets 2018: $3,645,409Liabilities 2018: $0Net Assets 2018: $3,645,4092018Assets 2019: $4,348,541Liabilities 2019: $0Net Assets 2019: $4,348,5412019Assets 2020: $5,686,656Liabilities 2020: $0Net Assets 2020: $5,686,6562020Assets 2021: $6,028,701Liabilities 2021: $0Net Assets 2021: $6,028,7012021Assets 2022: $9,861,023Liabilities 2022: $0Net Assets 2022: $9,861,0232022Assets 2023: $9,566,018Liabilities 2023: $0Net Assets 2023: $9,566,0182023Assets 2024: $9,548,719Liabilities 2024: $0Net Assets 2024: $9,548,7192024

Highlighted filing

2017

Assets$1,835,763
Liabilities$73,731
Net Assets$1,762,032
Open 2017 Filing

Operations Trend

Revenue Growth34th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$15M$10M$5.0M$0-$5.0MRevenue 2011: $1,651,652Expenses 2011: $1,212,056Net Income 2011: $439,5962011Revenue 2012: $1,698,730Expenses 2012: $1,446,000Net Income 2012: $252,7302012Revenue 2013: $1,946,570Expenses 2013: $1,977,106Net Income 2013: -$30,5362013Revenue 2014: $3,153,002Expenses 2014: $2,798,093Net Income 2014: $354,9092014Revenue 2015: $3,652,094Expenses 2015: $4,039,638Net Income 2015: -$387,5442015Revenue 2016: $3,177,029Expenses 2016: $3,408,197Net Income 2016: -$231,1682016Revenue 2017: $3,138,829Expenses 2017: $2,539,687Net Income 2017: $599,1422017Revenue 2018: $4,984,863Expenses 2018: $3,150,332Net Income 2018: $1,834,5312018Revenue 2019: $4,754,217Expenses 2019: $4,066,749Net Income 2019: $687,4682019Revenue 2020: $5,232,342Expenses 2020: $3,903,750Net Income 2020: $1,328,5922020Revenue 2021: $5,168,679Expenses 2021: $4,839,059Net Income 2021: $329,6202021Revenue 2022: $10,398,940Expenses 2022: $6,545,390Net Income 2022: $3,853,5502022Revenue 2023: $5,761,508Expenses 2023: $6,291,966Net Income 2023: -$530,4582023Revenue 2024: $5,778,743Expenses 2024: $5,791,669Net Income 2024: -$12,9262024

Highlighted filing

2017

Revenue$3,138,829
Expenses$2,539,687
Net Income$599,142
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Jun 1, 2018
Return Version
2017v2.2
Gross Receipts
$3,300,962
Mission and Program Overview

Mission

Cmta awards research fellowships and grants for research on charcot-marie-tooth diesease. Cmta also hosts bi-annual meetings of all researchers receiving its funding to promote knowledge exchange and synergy. It uses the services of a medical research consultant to oversee the selection of the receipients of the research funding and tp write the grants and contracts with these researchers.

To support the development of new drugs to treat Charcot-Marie-Tooth disease (CMT), to improve the quality of life for people with CMT and ultimately, to find a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,002,637$1,685,878▲ $683,241
Pledges and Grants Receivable$160,544$125,000▼ $35,544
Land, Buildings, and Equipment, Net$19,474$17,235▼ $2,239
Prepaid Expenses and Deferred Charges$8,789$7,650▼ $1,139
Total Assets$1,191,444$1,835,763▲ $644,319
Liabilities
Grants Payable$363,888--
Accounts Payable and Accrued Expenses$28,554$73,731▲ $45,177
Total Liabilities$392,442$73,731▼ $318,711
Net Assets / Fund Balance
Temporarily Rstr Net Assets$846,141$1,120,754▲ $274,613
Unrestricted Net Assets$-47,139$641,278▲ $688,417
Total Net Assets Fund Balance$799,002$1,762,032▲ $963,030
Total Liabilities and Net Assets / Fund Balance$1,191,444$1,835,763▲ $644,319

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$17,235$38,483$55,718
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Amy GrayChief Executive OfficerFT$152,692$152,692
Kimberly MageeDirector of FinanceFT$75,000$75,000

Board Members and Trustees

NameTitle
Giles BouchardChairman
Alan KorowitzDirector
Chris OuelletteDirector
Laura FavaDirector
Phyllis SandersDirector
Steven ODonnellDirector
Thomas DubenskyDirector
Herbert BeronSecretary
Gary GasperTreasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
HumanFirst Therapeutics LLCmedical research9600 Dewitt Drive Suite 1, Silver Spring, MD 20910$151,997
Revenue and Support

Revenue Composition

Contributions and Grants
$2,088,880
Program Service Revenue
$494,088
Investment Income
$835
Other Revenue
$555,026
All Other Contributions
$2,029,465
Change in Net Assets
$599,142

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,138,829
Total Revenue per Audited Statements
$3,138,829
Total Revenue per Form 990
$3,138,829
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,047,756
Grants and Similar Amounts Paid$884,528
Salaries, Compensation, and Employee Benefits$600,482
Total Fundraising Expense$216,448
Professional Fundraising Fees$6,921

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$874,028--$874,028
Other Salaries and Wages$434,342$22,500$89,933$546,775
Fees for Services Other$181,778-$12,469$194,247
Other Expenses$79,320-$19,830$99,150
Information Technology$67,626-$11,934$79,560
Travel$72,734$3,969$1,018$77,721
Conferences and Meetings$63,870--$63,870
Payroll Taxes$29,362$1,524$6,101$36,987
Office Expenses$22,723$7,460$3,002$33,185
Fees for Services Lobbying$30,520--$30,520
Advertising$22,487--$22,487
Fees for Services Legal$21,085$241-$21,326
Fees for Services Accounting-$17,290-$17,290
All Other Expenses$8,076$6,174$950$15,200
Occupancy$12,241$1,602$852$14,695
Pension Plan Contributions$10,072$531$2,124$12,727
Depreciation Depletion-$12,239-$12,239
Grants to Domestic Individuals$10,500--$10,500
Insurance-$9,764-$9,764
Fees for Services Professional Fundraising--$6,921$6,921
Other Employee Benefits$3,224$154$615$3,993
Total Functional Expenses$2,239,791$83,448$216,448$2,539,687

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,539,687
Total Expenses per Audited Statements$2,539,687
Total Expenses per Form 990$2,539,687
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of PennsylvaniaPhiladelphia, PA-CMT Research$93,706
UB Foundation Services IncBuffalo, NY-CMT Research$91,104
Cedars-Sinai Medical CenterLos Angeles, CA-CMT Research$72,021
Columbia UniversityNew York, NY-CMT Research$60,964
University of Iowa-Carver CollegeIowa City, IA-CMT Research$56,484
University of MiamiAtlanta, GA-CMT Research$56,484
University of Missouri ColumbiaColumbia, MO-CMT Research$44,620
MdaTucson, AZ-CMT Research$28,897
University of Wisconsin MadisonMadison, WI-CMT Research$12,500
not itemized--CMT Research$2,355

International Summary

Employees
1
Spending
$75,145

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe including Iceland and GreenlandGrant makinggrant making-1$75,145
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$708,477
Fundraising Direct Expenses$153,017
Professional Fundraising Fees$6,921

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
NY Event$232,509$232,509$54,522$177,987
All Star$222,376$222,376$74,108$148,268
Total Events$708,477$708,477$153,017$555,460
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
Yes
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Gilles Bouchard (board chairman) and Chris Ouellette (board member) are brothers-in-law.”

Organizational document changes Part VI line 4

“The By-Laws were changed to officially incorporate the Conflict of Interest Policy. In addition, four physicians were added to the Board as voting members. However, they do not vote on research spending.”

Form 990 governing body review Part VI line 11

“Form 990 will be reviewed by the Board of Directors.”

Conflict of interest policy compliance Part VI line 12C

“The organization had a workshop for all Board members on the Conflict of Interest Policy. The physicians on the Board disclose all pertinent research work, and do not vote on research spending.”

CEO executive director top management comp Part VI line 15A

“The organizations Board of Directors determines the CEOs compensation annually, considering whatever factors and information it deems appropriate.”

Governing documents etc available to public Part VI line 19

“Upon request by mail, telephone, and/or email audited financial statements are available on the CMTAs website.”

Filing and Contact Details

Filer

Filer Name
Charcot-Marie-Tooth Association
EIN
22-2480896
Address
PO Box 105, Glenolden, PA 19036

Signing Officer

Name
Amy Gray
Title
Chief Executive
Phone
6104999264
Signed
2018-06-01
Discuss with paid preparer
No

Organization Details

Principal Officer
Amy Gray
Formed
1983
Legal Domicile
Pa
Voting Board Members
9
Independent Board Members
9
Employees
10

Preparer

Firm
Peterson Fieo & Co LLP
Address
103 Chesley Drive Suite 102, Media, PA 19063-1757
Preparer
George Fieo CPA
Phone
6104571486
Supplemental Narrative

Additional Explanations

Not undergone required audits or steps for audit part XII line 3B

“The CMTA has not changed its selection and oversight process during the tax year. The Board of Directors assumes oversight of the independent auditor and the annual audit.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgSrvcAccomActy2Grp/Desc0The organization organize and conducts support groups, conferences and educational webinars for patients, their families and medical practitioners to share knowledge and promote awareness of Charcot-Marie-Tooth Disease.
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IRS990/ProgSrvcAccomActy3Grp/Desc0The organization publishes a bi-monthly newsletter and other educational publications and maintains a website for patients, their families and medical practitioners to assist in understanding and treating Charcot-Marie-Tooth Disease.
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Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,835,763
Liabilities
$73,731
Net assets
$1,762,032
Revenue
$3,138,829
Expenses
$2,539,687
Net income
$599,142
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.55$0.00$9.55$5.78$5.79$0.01
2023Summary only. Only limited summary data is available for this year.$9.57$0.00$9.57$5.76$6.29$0.53
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.86$0.00$9.86$10.4$6.55$3.85
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.03$0.00$6.03$5.17$4.84$0.33
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.69$0.00$5.69$5.23$3.90$1.33
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.35$0.00$4.35$4.75$4.07$0.69
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.65$0.00$3.65$4.98$3.15$1.83
2017Detailed filing. Detailed filing data is available for this year.$1.84$0.07$1.76$3.14$2.54$0.60
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.19$0.39$0.80$3.18$3.41$0.23
2015Detailed filing. Detailed filing data is available for this year.$1.55$0.52$1.03$3.65$4.04$0.39
2014Summary only. Only limited summary data is available for this year.$1.71$0.29$1.42$3.15$2.80$0.35
2013Summary only. Only limited summary data is available for this year.$1.07$0.01$1.06$1.95$1.98$0.03
2012Summary only. Only limited summary data is available for this year.$1.11$0.01$1.09$1.70$1.45$0.25
2011Summary only. Only limited summary data is available for this year.$0.87$0.02$0.84$1.65$1.21$0.44