Civic Intelligence

Charcot-Marie-Tooth Association

EIN 22-2480896 • 501(c)3 • Glenolden, PA

Profile

To support the development of new drugs to treat Charcot-Marie-Tooth disease(CMT), to improve the quality of life for people with CMT and, ultimately, to find a cure.

PO Box 105Glenolden, PA 19036

www.cmtausa.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

9th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

10th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

36th percentile

-0.2%

Higher net margin than 36% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

33rd percentile

-0.2%

Faster asset growth than 33% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

35th percentile

0.3%

Faster revenue growth than 35% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets9th percentile

Assets

Down

$9,548,719

Down $17,299 (-0.2%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Down

$9,548,719

Down $17,299 (-0.2%) from 2023

Operations
Liabilities / Revenue10th percentileNet Margin36th percentile

Revenue

Up

$5,778,743

Up $17,235 (+0.3%) from 2023

Expenses

Down

$5,791,669

Down $500,297 (-8.0%) from 2023

Net Income

Up

-$12,926

Up $517,532 (+98%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth33rd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$10M$5.0M$0Assets 2011: $865,547Liabilities 2011: $24,935Net Assets 2011: $840,6122011Assets 2012: $1,106,759Liabilities 2012: $13,418Net Assets 2012: $1,093,3412012Assets 2013: $1,073,735Liabilities 2013: $10,930Net Assets 2013: $1,062,8052013Assets 2014: $1,707,384Liabilities 2014: $289,670Net Assets 2014: $1,417,7142014Assets 2015: $1,546,625Liabilities 2015: $516,455Net Assets 2015: $1,030,1702015Assets 2016: $1,191,444Liabilities 2016: $392,442Net Assets 2016: $799,0022016Assets 2017: $1,835,763Liabilities 2017: $73,731Net Assets 2017: $1,762,0322017Assets 2018: $3,645,409Liabilities 2018: $0Net Assets 2018: $3,645,4092018Assets 2019: $4,348,541Liabilities 2019: $0Net Assets 2019: $4,348,5412019Assets 2020: $5,686,656Liabilities 2020: $0Net Assets 2020: $5,686,6562020Assets 2021: $6,028,701Liabilities 2021: $0Net Assets 2021: $6,028,7012021Assets 2022: $9,861,023Liabilities 2022: $0Net Assets 2022: $9,861,0232022Assets 2023: $9,566,018Liabilities 2023: $0Net Assets 2023: $9,566,0182023Assets 2024: $9,548,719Liabilities 2024: $0Net Assets 2024: $9,548,7192024

Highlighted filing

2024

Assets$9,548,719
Liabilities$0
Net Assets$9,548,719
Open 2024 Filing

Operations Trend

Revenue Growth35th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$15M$10M$5.0M$0-$5.0MRevenue 2011: $1,651,652Expenses 2011: $1,212,056Net Income 2011: $439,5962011Revenue 2012: $1,698,730Expenses 2012: $1,446,000Net Income 2012: $252,7302012Revenue 2013: $1,946,570Expenses 2013: $1,977,106Net Income 2013: -$30,5362013Revenue 2014: $3,153,002Expenses 2014: $2,798,093Net Income 2014: $354,9092014Revenue 2015: $3,652,094Expenses 2015: $4,039,638Net Income 2015: -$387,5442015Revenue 2016: $3,177,029Expenses 2016: $3,408,197Net Income 2016: -$231,1682016Revenue 2017: $3,138,829Expenses 2017: $2,539,687Net Income 2017: $599,1422017Revenue 2018: $4,984,863Expenses 2018: $3,150,332Net Income 2018: $1,834,5312018Revenue 2019: $4,754,217Expenses 2019: $4,066,749Net Income 2019: $687,4682019Revenue 2020: $5,232,342Expenses 2020: $3,903,750Net Income 2020: $1,328,5922020Revenue 2021: $5,168,679Expenses 2021: $4,839,059Net Income 2021: $329,6202021Revenue 2022: $10,398,940Expenses 2022: $6,545,390Net Income 2022: $3,853,5502022Revenue 2023: $5,761,508Expenses 2023: $6,291,966Net Income 2023: -$530,4582023Revenue 2024: $5,778,743Expenses 2024: $5,791,669Net Income 2024: -$12,9262024

Highlighted filing

2024

Revenue$5,778,743
Expenses$5,791,669
Net Income-$12,926
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$9,548,719
Liabilities
$0
Net assets
$9,548,719
Revenue
$5,778,743
Expenses
$5,791,669
Net income
-$12,926
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$9.55$0.00$9.55$5.78$5.79$0.01
2023Summary only. Only limited summary data is available for this year.$9.57$0.00$9.57$5.76$6.29$0.53
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$9.86$0.00$9.86$10.4$6.55$3.85
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.03$0.00$6.03$5.17$4.84$0.33
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.69$0.00$5.69$5.23$3.90$1.33
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.35$0.00$4.35$4.75$4.07$0.69
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.65$0.00$3.65$4.98$3.15$1.83
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.84$0.07$1.76$3.14$2.54$0.60
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.19$0.39$0.80$3.18$3.41$0.23
2015Detailed filing. Detailed filing data is available for this year.$1.55$0.52$1.03$3.65$4.04$0.39
2014Summary only. Only limited summary data is available for this year.$1.71$0.29$1.42$3.15$2.80$0.35
2013Summary only. Only limited summary data is available for this year.$1.07$0.01$1.06$1.95$1.98$0.03
2012Summary only. Only limited summary data is available for this year.$1.11$0.01$1.09$1.70$1.45$0.25
2011Summary only. Only limited summary data is available for this year.$0.87$0.02$0.84$1.65$1.21$0.44
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Aug 5, 2025
Return Version
2024v5.2
Gross Receipts
$6,074,621
Mission and Program Overview

Mission

To support the development of new drugs to treat Charcot-Marie-Tooth disease(CMT), to improve the quality of life for people with CMT and, ultimately, to find a cure.

To support the development of new drugs to treat charcot-marie-tooth disease (cmt), to improve the quality of life for people with cmt and untimately, to fund a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$8,457,711$8,097,765▼ $359,946
Cash and Non-Interest-Bearing Accounts$908,308$1,169,913▲ $261,605
Investments Program Related$199,999$281,041▲ $81,042
Total Assets$9,566,018$9,548,719▼ $17,299
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$6,460,062$7,507,710▲ $1,047,648
Net Assets With Donor Restrictions$3,105,956$2,041,009▼ $1,064,947
Total Net Assets Fund Balance$9,566,018$9,548,719▼ $17,299
Total Liabilities and Net Assets / Fund Balance$9,566,018$9,548,719▼ $17,299
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseOtherTotal
Suzanne BruhnChief Executive OfficerFT$300,000$11,016$311,016
Jeana SweeneyChief Engagement and Gift OfficerFT$140,000$5,515$145,515
Katherine ForseyChief Research OfficerFT$125,404$6,552$131,956
Laurel RichardsonDirector of Community OutreachFT$101,520$3,724$105,244
Kimberly MageeDirecot of Finance and AdminFT$98,400$3,676$102,076

Board Members and Trustees

NameTitle
Gilles BouchardChairman
Craig ZeltsarBoard Member
Dan ChambyBoard Member
David AppleBoard Member
David ColdironBoard Member
Dr Michael ShyBoard Member
Dr Steven SchererBoard Member
Dr Thomas DubenskyBoard Member
Gary J GasperBoard Member
John SvarenBoard Member
Jon PastorBoard Member
Bernard CoulieBoard Member (eff 2/24)
Kevin MarksBoard Member (eff 2/24)
Wendy ArnoneBoard Member (eff 3/24)
Partricia Verduin OhdBoard Member (eff 4/24)
STEVEN O'DONNELLBoard Member (thru 12/24)
Alan KorowitzBoard Member (thru 2/24)
Phyllis SandersBoard Member (thru 2/24)
David NorcomBoard Member (thru 9/24)
Herbert BeronSecretary
Kevin SamiTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$4,074,711
Program Service Revenue
$1,282,115
Investment Income
$421,917
Other Revenue
$0
All Other Contributions
$3,367,359
Change in Net Assets
$-12,926

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,778,743
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$291,505
Total Revenue per Audited Statements
$6,070,248
Total Revenue per Form 990
$5,778,743
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,339,962
Other Expenses$2,100,099
Salaries, Compensation, and Employee Benefits$1,351,608
Total Fundraising Expense$326,214
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,765,178--$1,765,178
Other Salaries and Wages$632,112$62,826$111,691$806,629
Foreign Grants$574,784--$574,784
Fees for Services Other$458,851$85,836$25,479$570,166
Current Officers, Directors, Trustees, and Key Employees$323,718$50,868$38,506$413,092
Information Technology$207,847$24,723$32,661$265,231
Office Expenses$156,595$21,574$37,444$215,613
Conferences and Meetings$95,489$36,831$4,092$136,412
Payroll Taxes$80,881$9,621$12,709$103,211
Fees for Services Accounting$62,572$11,854$5,874$80,300
Advertising$53,218$5,317$5,366$63,901
Fees for Services Legal$39,378$7,460$3,697$50,535
Pension Plan Contributions$22,472$2,673$3,531$28,676
Other Expenses$27,265$474$45,164$27,739
Total Functional Expenses$5,145,398$320,057$326,214$5,791,669

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$6,087,547
Expenses per Audited Statements$5,791,669
Total Expenses per Form 990$5,791,669
Expenses Not Reported on Form 990$295,878
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Psychogenics IncNew York, NY501c3Cmt Research$684,436
University of RochesterRochester, NY501c3Cmt Research$241,946
Ut Southwestern Medical CenterDallas, TX-Cmt Research$224,010
University of IowaIowa City, IA-Cmt Research$134,380
University of Wisconsin - MadisonMadison, WI-Cmt Research$62,306
Jd Gladstone InstitutesSan Francisco, CA501c3Cmt Research$57,398
Henry Jackson FoundationBethesda, MD501c3Cmt Research$55,000
University of MiamiAtlanta, GA-Cmt Research$45,096
Cleveland Cliniclerner Research InsCleveland, OH501c3Cmt Research$42,689
Arq Genetics LLCBastrop, TX501c3Cmt Research$6,934
The Jackson LaboratoryBar Harbor, ME501c3Cmt Research$6,623
Frontage Laboratories IncExton, PA501c3Cmt Research$5,345

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$295,878
Fundraising Gross Income$295,878
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Paulsen-4c Gala$254,230$152,319$152,319$0
Walk & Cycle$403,481$83,671$83,671$0
Total Events$1,003,230$295,878$295,878$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Form 990 will be reviewed by the board of directors”

Form 990, Part VI, Section B, Line 12C

“The conflict of interest policy is sent out to all board members and key employee and reviewed by the nominating and governance committee of the board”

Form 990, Part VI, Section B, Line 15

“Compensation for employees is overseen by the finance committee of the board. The organization has performed a market comparison check for all employees using an external consultant and reviewed by the committee”

Form 990, Part VI, Section C, Line 19

“Upon request by mail, telephone, and/or email. Audited financial statements are available on the cmta's website.”

Filing and Contact Details

Filer

Filer Name
Charcot-marie-tooth Association
EIN
22-2480896
Phone
6104272971
Address
PO BOX 105, GLENOLDEN, PA 19036

Signing Officer

Name
Suzanne Bruhn
Title
Chief Executive Officer
Phone
6104272971
Signed
2025-08-05

Organization Details

Principal Officer
Suzanne Bruhn
Formed
1983
Legal Domicile
Pa
Voting Board Members
17
Independent Board Members
17
Employees
13
Volunteers
125

Preparer

Firm
Barbacane Thornton and Company
Address
503 CARE RD SUITE 100, WILMINGTON, DE 19809
Preparer
Jeffrey a Kowalczyk CPA
Phone
3024788940
Supplemental Narrative

Additional Explanations

Basis of Accounting

“The organization is in the process of converting its financial reporting from cash basis to accrual basis accounting. The organization's 2025 financial statements and form 990 will be prepared on an accrual basis of accounting in accordance with accounting principles generally accepted in the united states of america.”

Financial Statement Notes

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expenses reported at gross on fs”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expenses reported at gross on fs”

Raw XML AppendixShowing 400 of 795 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd00
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO SUPPORT THE DEVELOPMENT OF NEW DRUGS TO TREAT CHARCOT-MARIE-TOOTH DISEASE (CMT), TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE WITH CMT AND UNTIMATELY, TO FUND A CURE.
IRS990/AdvertisingGrp/FundraisingAmt05366
IRS990/AdvertisingGrp/ManagementAndGeneralAmt05317
IRS990/AdvertisingGrp/ProgramServicesAmt053218
IRS990/AdvertisingGrp/TotalAmt063901
IRS990/AllOtherContributionsAmt03367359
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd01
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt0THE ORGANIZATION
IRS990/BooksInCareOfDetail/PhoneNum06104272971
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0PO BOX 105
IRS990/BooksInCareOfDetail/USAddress/CityNm0GLENOLDEN
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0PA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd019036
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt0908308
IRS990/CashNonInterestBearingGrp/EOYAmt01169913
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt038506
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt050868
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0323718
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0413092
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd01
IRS990/ConferencesMeetingsGrp/FundraisingAmt04092
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt036831
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt095489
IRS990/ConferencesMeetingsGrp/TotalAmt0136412
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/ContriRptFundraisingEventAmt0707352
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt04074711
IRS990/CYGrantsAndSimilarPaidAmt02339962
IRS990/CYInvestmentIncomeAmt0421917
IRS990/CYOtherExpensesAmt02100099
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt01282115
IRS990/CYRevenuesLessExpensesAmt0-12926
IRS990/CYSalariesCompEmpBnftPaidAmt01351608
IRS990/CYTotalExpensesAmt05791669
IRS990/CYTotalFundraisingExpenseAmt0326214
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt05778743
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/Desc0CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DISEASE. IT ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A SCIENTIFIC ADVISORY BOARD OF RESEARCH AND CLINICAL EXPERTS TO OVERSEE THE SELECTION OF THE RECIPIENTS OF THE RESEARCH FUNDING AND TO WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.
IRS990/DescribedInSection501c3Ind01
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IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt013
IRS990/EmploymentTaxReturnsFiledInd01
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IRS990/ExpenseAmt03864194
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
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IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt011854
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt062572
IRS990/FeesForServicesAccountingGrp/TotalAmt080300
IRS990/FeesForServicesLegalGrp/FundraisingAmt03697
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt07460
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt039378
IRS990/FeesForServicesLegalGrp/TotalAmt050535
IRS990/FeesForServicesOtherGrp/FundraisingAmt025479
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt085836
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0458851
IRS990/FeesForServicesOtherGrp/TotalAmt0570166
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt0574784
IRS990/ForeignGrantsGrp/TotalAmt0574784
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IRS990/Form990PartVIISectionAGrp/PersonNm3DAN CHAMBY
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IRS990/Form990PartVIISectionAGrp/PersonNm5DAVID COLDIRON
IRS990/Form990PartVIISectionAGrp/PersonNm6DR MICHAEL SHY
IRS990/Form990PartVIISectionAGrp/PersonNm7DR STEVEN SCHERER
IRS990/Form990PartVIISectionAGrp/PersonNm8DR THOMAS DUBENSKY
IRS990/Form990PartVIISectionAGrp/PersonNm9GARY J GASPER
IRS990/Form990PartVIISectionAGrp/PersonNm10GILLES BOUCHARD
IRS990/Form990PartVIISectionAGrp/PersonNm11HERBERT BERON
IRS990/Form990PartVIISectionAGrp/PersonNm12JOHN SVAREN
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IRS990/Form990PartVIISectionAGrp/PersonNm15KEVIN SAMI
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IRS990/Form990PartVIISectionAGrp/PersonNm18SUZANNE BRUHN
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IRS990/Form990PartVIISectionAGrp/PersonNm20STEVEN O'DONNELL
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IRS990/Form990PartVIISectionAGrp/PersonNm22KIMBERLY MAGEE
IRS990/Form990PartVIISectionAGrp/PersonNm23JEANA SWEENEY
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IRS990/Form990PartVIISectionAGrp/TitleTxt2BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4BOARD MEMBER
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IRS990/Form990PartVIISectionAGrp/TitleTxt17BOARD MEMBER (THRU 2/24)
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IRS990/Form990PartVIISectionAGrp/TitleTxt19BOARD MEMBER (EFF 3/24)
IRS990/Form990PartVIISectionAGrp/TitleTxt20BOARD MEMBER (THRU 12/24)
IRS990/Form990PartVIISectionAGrp/TitleTxt21BOARD MEMBER (THRU 9/24)
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECOT OF FINANCE AND ADMIN
IRS990/Form990PartVIISectionAGrp/TitleTxt23CHIEF ENGAGEMENT AND GIFT OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt24CHIEF RESEARCH OFFICER
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR OF COMMUNITY OUTREACH
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IRS990/MissionDesc0CMTA AWARDS RESEARCH FELLOWSHIPS AND GRANTS FOR RESEARCH ON CHARCOT-MARIE-TOOTH DIESEASE. CMTA ALSO HOSTS BI-ANNUAL MEETINGS OF ALL RESEARCHERS RECEIVING ITS FUNDING TO PROMOTE KNOWLEDGE EXCHANGE AND SYNERGY. IT USES THE SERVICES OF A MEDICAL RESEARCH CONSULTANT TO OVERSEE THE SELECTION OF THE RECEIPIENTS OF THE RESEARCH FUNDING AND TP WRITE THE GRANTS AND CONTRACTS WITH THESE RESEARCHERS.
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IRS990/ProgSrvcAccomActy2Grp/Desc0CMTA ORGANIZES AND CONDUCTS SUPPORT GROUPS, CONFERENCES, A CAMP FOR CHILDREN AGES 10-18 WITH CMT AT 2 U.S. LOCATIONS, AND EDUCATIONAL WEBINARS FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO SHARE KNOWLEDGE AND PROMOTE AWARENESS OF CHARCOT-MARIE-TOOTH DISEASE.CMTA ALSO PUBLISHES A BI-MONTHLY NEWSLETTER AND OTHER EDUCATIONAL PUBLICATIONS WHICH ARE AVAILABLE TO THE PUBLIC.CMTA ALSO MAINTAINS A WEBSITE FOR PATIENTS, THEIR FAMILIES AND MEDICAL PRACTITIONERS TO ASSIST IN UNDERSTANDING AND TREATING CHARCOT-MARIE-TOOTH DISEASE.
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IRS990/ReconcilationRevenueExpnssAmt0-12926
IRS990/RegularMonitoringEnfrcInd01
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