Liabilities / Assets
71st percentile
Higher debt load relative to assets than 71% of similar nonprofits.
990 • Fiscal year 2016 • EIN 22-2480896
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
71st percentile
Higher debt load relative to assets than 71% of similar nonprofits.
Liabilities / Revenue
53rd percentile
Higher debt load relative to revenue than 53% of similar nonprofits.
Net Margin
25th percentile
Higher net margin than 25% of similar nonprofits.
Top Officer Pay
95th percentile
Higher top officer pay than 95% of similar nonprofits.
Top officer pay equals 10.2% of source-year revenue.
Asset Growth
5th percentile
Faster asset growth than 5% of similar nonprofits.
Revenue Growth
21st percentile
Faster revenue growth than 21% of similar nonprofits.
Assets
Down$1,191,444
Down $355,181 (-23%) from 2015
Net Assets
Down$799,002
Down $231,168 (-22%) from 2015
Liabilities
Down$392,442
Down $124,013 (-24%) from 2015
Revenue
Down$3,177,029
Down $475,065 (-13%) from 2015
Expenses
Down$3,408,197
Down $631,441 (-16%) from 2015
Net Income
Up-$231,168
Up $156,376 (+40%) from 2015
Cmta awards research fellowships and grants for research on charcot-marie-tooth diesease. Cmta also hosts bi-annual meetings of all researchers receiving its funding to promote knowledge exchange and synergy. It uses the services of a medical research consultant to oversee the selection of the receipients of the research funding and tp write the grants and contracts with these researchers.
To support the development of new drugs to treat Charcot-Marie-Tooth disease(CMT), to improve the quality of life for people with CMT and, ultimately, to find a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $1,365,878 | $1,002,637 | ▼ $363,241 |
| Pledges and Grants Receivable | $142,000 | $160,544 | ▲ $18,544 |
| Land, Buildings, and Equipment, Net | $31,332 | $19,474 | ▼ $11,858 |
| Prepaid Expenses and Deferred Charges | $7,415 | $8,789 | ▲ $1,374 |
| Total Assets | $1,546,625 | $1,191,444 | ▼ $355,181 |
| Liabilities | |||
| Grants Payable | $363,888 | $363,888 | → $0 |
| Accounts Payable and Accrued Expenses | $152,567 | $28,554 | ▼ $124,013 |
| Total Liabilities | $516,455 | $392,442 | ▼ $124,013 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $918,067 | $846,141 | ▼ $71,926 |
| Unrestricted Net Assets | $112,103 | $-47,139 | ▼ $159,242 |
| Total Net Assets Fund Balance | $1,030,170 | $799,002 | ▼ $231,168 |
| Total Liabilities and Net Assets / Fund Balance | $1,546,625 | $1,191,444 | ▼ $355,181 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $19,474 | $26,244 | $45,718 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Patrick Livney | CEO | FT | $325,000 | $325,000 |
| Kimberly J Magee | Director of Finance | FT | $82,500 | $82,500 |
| Name | Title |
|---|---|
| Gilles Bouchard | Chairman |
| Alan Korowitz | Director |
| Chris Ouellette | Director |
| Dr John Svaren | Director |
| Dr Lawrence Wrabitz | Director |
| Dr Michael Shy | Director |
| Dr Peter I Warfield | Director |
| Dr Steven Scherer | Director |
| Laura Fava | Director |
| Phyllis Sanders | Director |
| Stephen D Blevit | Director |
| Steven O'Donnell | Director |
| Herbert Beron | Secretary |
| Gary J Gasper | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| HumanFirst Therapeutics LLC | Medical Research Consultant | 9600 Dewitt Drive Suite 1, Silver Spring, MD 20910 | $224,965 |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $1,392,292 |
| Other Expenses | $1,114,998 |
| Salaries, Compensation, and Employee Benefits | $900,907 |
| Total Fundraising Expense | $319,238 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $1,392,292 | - | - | $1,392,292 |
| Other Expenses | $696,783 | - | $76,032 | $772,815 |
| Current Officers, Directors, Trustees, and Key Employees | $405,938 | $26,337 | $106,150 | $538,425 |
| Other Salaries and Wages | $231,561 | - | $84,616 | $316,177 |
| Occupancy | $28,992 | $194,270 | - | $223,262 |
| Fees for Services Management | $51,585 | - | $47,382 | $98,967 |
| Payroll Taxes | $40,551 | $1,356 | $4,398 | $46,305 |
| Depreciation Depletion | - | $11,858 | - | $11,858 |
| Conferences and Meetings | - | $7,436 | - | $7,436 |
| Advertising | - | - | $660 | $660 |
| Total Functional Expenses | $2,847,702 | $241,257 | $319,238 | $3,408,197 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $3,408,197 |
| Total Expenses per Audited Statements | $3,408,197 |
| Total Expenses per Form 990 | $3,408,197 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Iowa-Carver College of Medicine | Iowa City, IA | - | To generate XBP-1 SW6 Schwann cells and maintian the CMT database. | $150,080 |
| UB Foundation Services Inc | Buffalo, NY | - | Validation of Primary CMT1A Drug Screening Hits in Myelinating Co-Cultures.Creation of a Mouse Model of CMT1B-T124M. | $111,430 |
| National Center for Advancing Translational Science | Bethseda, MD | - | Assay Development of High Throughput Screen for CMTA Therapeutics | $90,000 |
| Johns Hopkins University | Chicago, IL | - | To characterize and validate approaches that lead to efficient differentiation of Schwann cells from human induced pluirpotent stem cells. | $60,113 |
| University of Pennsylvania | Philadelpia, PA | - | Development of mouse model for CMT2A | $50,861 |
| University of Wisconsin Madison | Madison, WI | - | Therapy development for CMT1A. | $44,335 |
| University of Missouri-Columbia | Columbia, MO | - | Developing a minimally invasive Biomarker for CMT;Neurofilament levels in CMT2E mouse model. | $35,382 |
| University of Miami | Atlanta, GA | - | Assay Development for CMT2A. | $20,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $983,840 |
| Fundraising Direct Expenses | $233,846 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| CMTA Golf Outing | $399,074 | $399,074 | $136,303 | $262,771 |
| CMTA NY Event | $254,021 | $254,021 | $46,559 | $207,462 |
| Total Events | $983,840 | $983,840 | $233,845 | $749,995 |
“Gilles Bouchard (Chairman of the Board) and Chris Ouellette (Member of the Board) are brothers-in-law.”
“The By-Laws were changed to officially incorporate the Conflict of Interest Policy. In addition, four physicians were added to the Board as Voting Members. However, they do not vote on Research spending.”
“Form 990 will be reviewed by the Board of Directors.”
“The organization had a workshop for all Board members on the Conflict of Interest Policy. The physicians on the Board disclose all pertinent research work, and do not vote on research spending.”
“The organization's Board of Director's determines CEO's compensation annually, considering whatever factors and information it deems appropriate.”
“Upon request by mail, telephone, and/or email. Audited Financial Statements are avalable on the Organization's website.”
“The organization has not changed its selection and oversight process during the tax year.”
“The Board of Directors assumes oversight of the independent auditor and the annual audit.”
“The return is amended to change the name of the Officer signing the tax return and to change Page 6, Part VI, Section A, Item 8b to Yes.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 152567 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 28554 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | To support the development of new drugs to treat Charcot-Marie-Tooth disease(CMT), to improve the quality of life for people with CMT and, ultimately, to find a cure. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 660 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 660 |
| IRS990/AllOtherContributionsAmt | 0 | 1564773 |
| IRS990/AmendedReturnInd | 0 | X |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Kimberly Magee |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6104999264 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | P O Box 105 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Glenolden |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | PA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 19036 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1365878 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1002637 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 1 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 106150 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 26337 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 405938 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 538425 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 7436 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 7436 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 224965 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 9600 Dewitt Drive Suite 1 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | Silver Spring |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | MD |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 20910 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | HumanFirst Therapeutics LLC |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | Medical Research Consultant |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1642776 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 1392292 |
| IRS990/CYInvestmentIncomeAmt | 0 | 695 |
| IRS990/CYOtherExpensesAmt | 0 | 1114998 |
| IRS990/CYOtherRevenueAmt | 0 | 749994 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 783564 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -231168 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 900907 |
| IRS990/CYTotalExpensesAmt | 0 | 3408197 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 319238 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 3177029 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 11858 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 11858 |
| IRS990/Desc | 0 | The organization awards research fellowships and grants for research on Charcot-Marie-Tooth Disease. It also hosts bi-annual meetings of all researchers receiving its funding to promote knowledge exchange and synergy, as well as meetings and consortiums of others working in this field. It uses the services of a medical research consultant to oversee the selection of the recipients of the research funding and to write the grants and contracts with these researchers. (See Part VII, Section B). |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 8 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 1724733 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 47382 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 51585 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 98967 |
| IRS990/ForeignActivitiesInd | 0 | 1 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Herbert Beron |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Stephen D Blevit |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Gilles Bouchard |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Laura Fava |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Gary J Gasper |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Alan Korowitz |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Steven O'Donnell |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Chris Ouellette |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Phyllis Sanders |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Dr Steven Scherer |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | Dr Michael Shy |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | Dr John Svaren |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | Dr Peter I Warfield |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | Dr Lawrence Wrabitz |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | Patrick Livney |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | Kimberly J Magee |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 325000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 82500 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Chairman |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | Director of Finance |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1983 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 233846 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 983840 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 14 |
| IRS990/GrantAmt | 0 | 1392292 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 363888 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 363888 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 1392292 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 1392292 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 3410875 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 14 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 695 |
| IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt | 0 | 695 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 19 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 26244 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 31332 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 19474 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 45718 |
| IRS990/LegalDomicileStateCd | 0 | PA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembershipDuesAmt | 0 | 78003 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | To support the development of new drugs to treat Charcot-Marie-Tooth disease(CMT), to improve the quality of life for people with CMT and, ultimately, to find a cure. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1030170 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 799002 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 749994 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 749994 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 194270 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 28992 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 223262 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | Direct Program Expenses |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 76032 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 696783 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 772815 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 84616 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 231561 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 316177 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 4398 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1356 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 40551 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 46305 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 142000 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 160544 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 7415 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 8789 |
| IRS990/PrincipalOfficerNm | 0 | Amy Gray |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 624100 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Support Group Revenue |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 783564 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 783564 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | The organization publishes a bi-monthly newsletter and other educational publications and maintains a website for patients, their families, and medical practitioners to assist in understanding and treating Charcot-Marie-Tooth Disease. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 118413 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | The organization organizes and conducts support groups, conferences and educational webinars for patients, their families, and medical practitioners, to share knowledge and promote awareness of CMT Disease. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 180656 |
| IRS990/ProgSrvcAccomActy3Grp/RevenueAmt | 0 | 783564 |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | Allocated Program Services Expenses such as Salaries, Benefits, Occupancy Expenses, and Management Services. |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 823900 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 2297705 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 1879117 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1191 |
| IRS990/PYOtherExpensesAmt | 0 | 1194770 |
| IRS990/PYOtherRevenueAmt | 0 | 734828 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 618370 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -387544 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 965751 |
| IRS990/PYTotalExpensesAmt | 0 | 4039638 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 3652094 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -231168 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 1642776 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 2297705 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2361672 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1114359 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 896651 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 8313163 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 695 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1191 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2615 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2165 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1778 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 8444 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 1767404 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 1628420 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 944580 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 958215 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 911366 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 6209985 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 695 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 1191 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 2615 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 2165 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 1778 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 8444 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00060 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00070 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.99940 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.99930 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 14523148 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 3410180 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 3926125 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 3306252 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2072574 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1808017 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 14523148 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 3410875 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 3927316 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 3308867 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 2074739 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 1809795 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 14531592 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearAmt | 0 | 73493 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus1Amt | 0 | 78739 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus2Amt | 0 | 67328 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus3Amt | 0 | 58000 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt | 0 | 277560 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt | 0 | 293971 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus1Amt | 0 | 314955 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus2Amt | 0 | 269312 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus3Amt | 0 | 232000 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/TotalAmt | 0 | 1110238 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearAmt | 0 | 31725 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus1Amt | 0 | 30300 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus2Amt | 0 | 26250 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus3Amt | 0 | 18475 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/TotalAmt | 0 | 106750 |
| IRS990ScheduleC/GrassrootsCeilingAmt | 0 | 416340 |
| IRS990ScheduleC/GrassrootsNontaxableGrp/FilingOrganizationsTotalAmt | 0 | 73493 |
| IRS990ScheduleC/LobbyingCeilingAmt | 0 | 1665357 |
| IRS990ScheduleC/LobbyingNontaxableAmountGrp/FilingOrganizationsTotalAmt | 0 | 293971 |
| IRS990ScheduleC/OtherExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 2847702 |
| IRS990ScheduleC/TotalDirectLobbyingGrp/FilingOrganizationsTotalAmt | 0 | 31725 |
| IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 2879427 |
| IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt | 0 | 31725 |
| IRS990ScheduleC/TotLbbyExpendMnsLbbyngNonTxGrp/FilingOrganizationsTotalAmt | 0 | 0 |
| IRS990ScheduleC/TotLbbyngGrassrootMnsNonTxGrp/FilingOrganizationsTotalAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
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Displayed year
2016 • Form 990Detailed filing. Detailed filing data is available for this year.