Liabilities / Assets
70th percentile
Higher debt load relative to assets than 70% of similar nonprofits.
990 • Fiscal year 2015 • EIN 22-2480896
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
70th percentile
Higher debt load relative to assets than 70% of similar nonprofits.
Liabilities / Revenue
55th percentile
Higher debt load relative to revenue than 55% of similar nonprofits.
Net Margin
20th percentile
Higher net margin than 20% of similar nonprofits.
Top Officer Pay
95th percentile
Higher top officer pay than 95% of similar nonprofits.
Top officer pay equals 8.9% of source-year revenue.
Asset Growth
13th percentile
Faster asset growth than 13% of similar nonprofits.
Revenue Growth
72nd percentile
Faster revenue growth than 72% of similar nonprofits.
Assets
Down$1,546,625
Down $160,759 (-9.4%) from 2014
Net Assets
Down$1,030,170
Down $387,544 (-27%) from 2014
Liabilities
Up$516,455
Up $226,785 (+78%) from 2014
Revenue
Up$3,652,094
Up $499,092 (+16%) from 2014
Expenses
Up$4,039,638
Up $1,241,545 (+44%) from 2014
Net Income
Down-$387,544
Down $742,453 (-209%) from 2014
Cmta awards research fellowships and grants for research on charcot-marie-tooth diesease. Cmta also hosts bi-annual meetings of all researchers receiving its funding to promote knowledge exchange and synergy. It uses the services of a medical research consultant to oversee the selection of the receipients of the research funding and tp write the grants and contracts with these researchers.
To support the development of new drugs to treat Charcot-Marie-Tooth disease(CMT), to improve the quality of life for people with CMT and, ultimately, to find a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $1,688,854 | $1,365,878 | ▼ $322,976 |
| Pledges and Grants Receivable | $7,750 | $142,000 | ▲ $134,250 |
| Land, Buildings, and Equipment, Net | $7,461 | $31,332 | ▲ $23,871 |
| Prepaid Expenses and Deferred Charges | $3,319 | $7,415 | ▲ $4,096 |
| Total Assets | $1,707,384 | $1,546,625 | ▼ $160,759 |
| Liabilities | |||
| Grants Payable | $266,328 | $363,888 | ▲ $97,560 |
| Accounts Payable and Accrued Expenses | $23,342 | $152,567 | ▲ $129,225 |
| Total Liabilities | $289,670 | $516,455 | ▲ $226,785 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $20,120 | $918,067 | ▲ $897,947 |
| Unrestricted Net Assets | $1,397,594 | $112,103 | ▼ $1,285,491 |
| Total Net Assets Fund Balance | $1,417,714 | $1,030,170 | ▼ $387,544 |
| Total Liabilities and Net Assets / Fund Balance | $1,707,384 | $1,546,625 | ▼ $160,759 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Other Land Buildings | $31,332 | $14,386 | $45,718 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Patrick Livney | CEO | FT | $325,000 | $875 | $325,875 |
| Jeana Sweeney | Director of Community Service | FT | $127,712 | - | $127,712 |
| Kimberly J Magee | Director of Finance | FT | $108,899 | - | $108,899 |
| Name | Title |
|---|---|
| Herbert Beron | Chairman/President |
| Elizabeth Ouellette | Vice Chair/Secretary |
| Alan Korowitz | Director |
| Chris Ouellette | Director |
| Dr Peter I Warfield | Director |
| Laura Fava | Director |
| Phyllis Sanders | Director |
| Stephen C Weiss | Director |
| Stephen D Blevit | Director |
| Steven O'Donnell | Director |
| William Vangelos | Director |
| Gary J Gasper | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| HumanFirst LLC | Medical Research Consultant | 9600 Dewitt Drive Suite 1, Silver Spring, MD 20910 | $147,985 |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $1,879,117 |
| Other Expenses | $1,194,770 |
| Salaries, Compensation, and Employee Benefits | $965,751 |
| Total Fundraising Expense | $633,234 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $1,879,117 | - | - | $1,879,117 |
| Other Expenses | $536,072 | - | $24,635 | $560,707 |
| Current Officers, Directors, Trustees, and Key Employees | $227,508 | $35,767 | $192,545 | $455,820 |
| Other Salaries and Wages | $321,929 | - | $115,177 | $437,106 |
| Advertising | $105,557 | - | $148,533 | $254,090 |
| Fees for Services Management | $110,278 | - | $127,275 | $237,553 |
| Occupancy | $70,887 | $59,796 | - | $130,683 |
| Payroll Taxes | $37,023 | - | $22,692 | $59,715 |
| Other Employee Benefits | $10,733 | - | $2,377 | $13,110 |
| Conferences and Meetings | - | $11,737 | - | $11,737 |
| Total Functional Expenses | $3,299,104 | $107,300 | $633,234 | $4,039,638 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $4,039,638 |
| Total Expenses per Audited Statements | $4,039,638 |
| Total Expenses per Form 990 | $4,039,638 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| PsychoGenics Inc | New York, NY | - | To produce HET animals to start profiling of the CMT rat setting a base line of what a CMT1A and CMT2A rat looks like. | $545,534 |
| Genzyme Corporation | Framingham, MA | - | To screen compound libraries for compounds that down-regulate PMP22 gene expression. | $250,000 |
| Cedar Sinai Medical Center | Los Angeles, CA | - | Characterize and validate human IPSC-derived cellular modules of CMT2A. | $190,330 |
| University of Iowa (Shy) Dept of Neurology Carver College of Medicine | Iowa City, IA | - | To generate XBP-1 S16 Schwann Cells then insert CMT1B mutations | $182,160 |
| UB Foundation Services Inc | Buffalo, NY | - | Validation of Primary CMT1A Drug Screening Hits in Myelinating Co-Cultures.Creation of a Mouse Model of CMT1B-T124M. | $125,152 |
| National Center for Advancing Translational Science | Bethseda, MD | - | Assay Development of High Throughput Screen for CMTA Therapeutics | $90,000 |
| University of Wisconsin Madison | Madison, WI | - | Development of Assays for CMT1B. Test and validate candidate compounds stemming from CMT1A assays for lowering of PMP22. | $83,790 |
| Johns Hopkins University | Chicago, IL | - | To characterize and validate approaches that lead to efficient differentiation of Schwann cells from human induced pluirpotent stem cells. | $60,185 |
| University of Miami | Atlanta, GA | - | Development of Mouse Model for CMT2A. | $54,648 |
| Charles River Lab | Wilmington, MA | - | Contract Research Organization - provides breeding services and maintenance of colonies of CMT animals for various disease states. | $52,736 |
| Columbia University | New York, NY | - | To develop a generation of cell lines for CMT2E drug screening. | $50,000 |
| Sage Labs Inc | Boyertown, PA | - | To develop transgenic rat models with dominant mutation in the MFN2 gene. | $44,178 |
| NY Stem Cell Foundation Inc | New York, NY | - | Produce CMT iPs cell lines. | $38,250 |
| Renovo Neural | Cleveland, OH | - | Contract Research organization - provides histology work on CMT animals. | $19,650 |
| University of Iowa Dept of Neurology Carver College of Medicine | Iowa City, IA | - | To maintain a database of patients afflicted with CMT in North America, "North America CMT Network".To Generate XBP-1 SW6 Schwann Cells. | $17,500 |
| Jackson Laboratory | Bar Harbor, ME | - | Contract Research Organization - provides breeding services and maintenance of colonies of CMT animals for various disease states | $6,290 |
| Genesis Project Inc | Miami Beach, FL | - | Provides analytic tools and services to genetics researchers. | $6,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $1,010,050 |
| Fundraising Direct Expenses | $275,222 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| CMTA Golf Outing - Livney | $499,514 | $499,514 | $125,589 | $373,925 |
| CMTA NY Event | $185,246 | $185,246 | $39,492 | $145,754 |
| Total Events | $1,010,050 | $1,010,050 | $275,222 | $734,828 |
“From 990 will be reviewed by the Board of Directors.”
“The organization's Board of Director's determines CEO's compensation annually, considering whatever factors and information it deems apporpriate.”
“Upon request by mail, telephone, and/or email. Audited Financial Statements are avalable on the Organization's website.”
“The organization has not changed its selection and oversight process during the tax year.”
“The Board of Directors assumes oversight of the independent auditor and the annual audit.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 23342 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 152567 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | To support the development of new drugs to treat Charcot-Marie-Tooth disease(CMT), to improve the quality of life for people with CMT and, ultimately, to find a cure. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 148533 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 105557 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 254090 |
| IRS990/AllOtherContributionsAmt | 0 | 2210555 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Kimberly Magee |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6104999264 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | P O Box 105 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Glenolden |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | PA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 19036 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1688854 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1365878 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 192545 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 35767 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 227508 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 455820 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 11737 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 11737 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 147985 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 9600 Dewitt Drive Suite 1 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | Silver Spring |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | MD |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 20910 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | HumanFirst LLC |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | Medical Research Consultant |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 2297705 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 1879117 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1191 |
| IRS990/CYOtherExpensesAmt | 0 | 1194770 |
| IRS990/CYOtherRevenueAmt | 0 | 734828 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 618370 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -387544 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 965751 |
| IRS990/CYTotalExpensesAmt | 0 | 4039638 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 633234 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 3652094 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | The organization awards research fellowships and grants for research on Charcot-Marie-Tooth Disease. It also hosts bi-annual meetings of all researchers receiving its funding to promote knowledge exchange and synergy, as well as meetings and consortiums of others working in this field. It uses the services of a medical research consultant to oversee the selection of the recipients of the research funding and to write the grants and contracts with these researchers. (See Part VII, Section B). |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 14 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 2001109 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 127275 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 110278 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 237553 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Herbert Beron |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Stephen D Blevit |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Gary J Gasper |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Alan Korowitz |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Steven O'Donnell |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Elizabeth Ouellette |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Phyllis Sanders |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | William Vangelos |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Dr Peter I Warfield |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | Stephen C Weiss |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | Chris Ouellette |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | Laura Fava |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | Patrick Livney |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | Kimberly J Magee |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | Jeana Sweeney |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 325875 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 108899 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 127712 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Chairman/President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Vice Chair/Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | Director of Finance |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | Director of Community Service |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1983 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 275222 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 1010050 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 14 |
| IRS990/GrantAmt | 0 | 1879117 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 266328 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 363888 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 1879117 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 1879117 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 3927316 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 14 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1191 |
| IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt | 0 | 1191 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 13 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 14386 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 7461 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 31332 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 45718 |
| IRS990/LegalDomicileStateCd | 0 | PA |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembershipDuesAmt | 0 | 87150 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | To support the development of new drugs to treat Charcot-Marie-Tooth disease(CMT), to improve the quality of life for people with CMT and, ultimately, to find a cure. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 1 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1417714 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1030170 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 734828 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 734828 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 59796 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 70887 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 130683 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 2377 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 10733 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 13110 |
| IRS990/OtherExpensesGrp/Desc | 0 | Direct Program Expenses |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 24635 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 536072 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 560707 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 115177 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 321929 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 437106 |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 22692 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 37023 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 59715 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 7750 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 142000 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 3319 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 7415 |
| IRS990/PrincipalOfficerNm | 0 | Mr Patrick Livney |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 624100 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Support Group Revenue |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 618370 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 618370 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | The organization publishes a bi-monthly newsletter and other educational publications and maintains a website for patients, their families, and medical practitioners to assist in understanding and treating Charcot-Marie-Tooth Disease. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 156391 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | The organization organizes and conducts support groups, conferences and educational webinars for patients, their families, and medical practitioners, to share knowledge and promote awareness of CMT Disease. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 178340 |
| IRS990/ProgSrvcAccomActy3Grp/RevenueAmt | 0 | 618370 |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | Allocated Program Services Expenses such as Salaries, Benefits, Occupancy Expenses, and Management Services. |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 963264 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 2361672 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 1586583 |
| IRS990/PYInvestmentIncomeAmt | 0 | 2615 |
| IRS990/PYOtherExpensesAmt | 0 | 611360 |
| IRS990/PYOtherRevenueAmt | 0 | 452098 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 336617 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 354909 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 600150 |
| IRS990/PYTotalExpensesAmt | 0 | 2798093 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 3153002 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -387544 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 0 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 2297705 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 2361672 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1114359 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 896651 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1137223 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 7807610 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 1191 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 2615 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2165 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1778 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1290 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 9039 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 1628420 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 944580 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 958215 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 911366 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 563260 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 5005841 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 1191 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 2615 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 2165 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 1778 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 1290 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 9039 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00070 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00100 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.99930 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.99900 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 12813451 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 3926125 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 3306252 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2072574 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1808017 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1700483 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 12813451 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 3927316 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 3308867 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 2074739 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 1809795 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 1701773 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 12822490 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearAmt | 0 | 78739 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus1Amt | 0 | 67328 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus2Amt | 0 | 58000 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/CurrentYearMinus3Amt | 0 | 44475 |
| IRS990ScheduleC/AvgGrassrootsNontaxableGrp/TotalAmt | 0 | 248542 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearAmt | 0 | 314955 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus1Amt | 0 | 269312 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus2Amt | 0 | 232000 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/CurrentYearMinus3Amt | 0 | 177898 |
| IRS990ScheduleC/AvgLobbyingNontaxableAmountGrp/TotalAmt | 0 | 994165 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearAmt | 0 | 30300 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus1Amt | 0 | 26250 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/CurrentYearMinus2Amt | 0 | 18475 |
| IRS990ScheduleC/AvgTotalLobbyingExpendGrp/TotalAmt | 0 | 75025 |
| IRS990ScheduleC/GrassrootsCeilingAmt | 0 | 372813 |
| IRS990ScheduleC/GrassrootsNontaxableGrp/FilingOrganizationsTotalAmt | 0 | 78739 |
| IRS990ScheduleC/LobbyingCeilingAmt | 0 | 1491248 |
| IRS990ScheduleC/LobbyingNontaxableAmountGrp/FilingOrganizationsTotalAmt | 0 | 314955 |
| IRS990ScheduleC/OtherExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 3268804 |
| IRS990ScheduleC/TotalDirectLobbyingGrp/FilingOrganizationsTotalAmt | 0 | 30300 |
| IRS990ScheduleC/TotalExemptPurposeExpendGrp/FilingOrganizationsTotalAmt | 0 | 3299104 |
| IRS990ScheduleC/TotalLobbyingExpendGrp/FilingOrganizationsTotalAmt | 0 | 30300 |
| IRS990ScheduleC/TotLbbyExpendMnsLbbyngNonTxGrp/FilingOrganizationsTotalAmt | 0 | 0 |
| IRS990ScheduleC/TotLbbyngGrassrootMnsNonTxGrp/FilingOrganizationsTotalAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 4039638 |
| IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt | 0 | 31332 |
| IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt | 0 | 14386 |
| IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt | 0 | 45718 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 0 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
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Displayed year
2015 • Form 990Detailed filing. Detailed filing data is available for this year.