Liabilities / Assets
51st percentile
Higher debt load relative to assets than 51% of similar nonprofits.
990 • Fiscal year 2021 • EIN 20-5014628
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
51st percentile
Higher debt load relative to assets than 51% of similar nonprofits.
Liabilities / Revenue
66th percentile
Higher debt load relative to revenue than 66% of similar nonprofits.
Net Margin
80th percentile
Higher net margin than 80% of similar nonprofits.
Top Officer Pay
83rd percentile
Higher top officer pay than 83% of similar nonprofits.
Top officer pay equals 9.9% of source-year revenue.
Asset Growth
81st percentile
Faster asset growth than 81% of similar nonprofits.
Revenue Growth
63rd percentile
Faster revenue growth than 63% of similar nonprofits.
Assets
Up$5,846,076
Up $1,356,897 (+30%) from 2020
Net Assets
Up$5,059,438
Up $892,917 (+21%) from 2020
Liabilities
Up$786,638
Up $463,980 (+144%) from 2020
Revenue
Up$2,383,618
Up $435,812 (+22%) from 2020
Expenses
Up$1,490,525
Up $365,746 (+33%) from 2020
Net Income
Up$893,093
Up $70,066 (+8.5%) from 2020
To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $3,425,079 | $4,543,350 | ▲ $1,118,271 |
| Pledges and Grants Receivable | $687,525 | $903,607 | ▲ $216,082 |
| Cash and Non-Interest-Bearing Accounts | $321,288 | $349,365 | ▲ $28,077 |
| Prepaid Expenses and Deferred Charges | $55,287 | $49,754 | ▼ $5,533 |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $4,489,179 | $5,846,076 | ▲ $1,356,897 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Grants Payable | $284,545 | $722,500 | ▲ $437,955 |
| Accounts Payable and Accrued Expenses | $38,113 | $64,138 | ▲ $26,025 |
| Total Liabilities | $322,658 | $786,638 | ▲ $463,980 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $3,449,101 | $4,347,279 | ▲ $898,178 |
| Net Assets With Donor Restrictions | $717,420 | $712,159 | ▼ $5,261 |
| Total Net Assets Fund Balance | $4,166,521 | $5,059,438 | ▲ $892,917 |
| Total Liabilities and Net Assets / Fund Balance | $4,489,179 | $5,846,076 | ▲ $1,356,897 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Tanya Stevenson | CEO | FT | $216,761 | $20,245 | $237,006 |
| Name | Title |
|---|---|
| Jeremy Kelly | Chair |
| Martha Montag Brown | Vice-chair |
| Charles Thornton | Director |
| David Berman | Director |
| Joel Revill | Director |
| John Fitzpatrick | Director |
| John W Day | Director |
| TOM McPeek | Director |
| Elizabeth Florence | Secretary |
| David Herbert | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $605,089 |
| Grants and Similar Amounts Paid | $553,570 |
| Other Expenses | $331,866 |
| Total Fundraising Expense | $58,658 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $553,570 | - | - | $553,570 |
| Other Salaries and Wages | $239,811 | $49,870 | $23,943 | $313,624 |
| Current Officers, Directors, Trustees, and Key Employees | $181,225 | $37,687 | $18,094 | $237,006 |
| Fees for Services Other | $161,330 | $24,937 | $4,648 | $190,915 |
| Payroll Taxes | $28,720 | $5,973 | $2,868 | $37,561 |
| Conferences and Meetings | $35,844 | - | - | $35,844 |
| Occupancy | $21,071 | $1,587 | $1,947 | $24,605 |
| Fees for Services Accounting | $12,973 | $2,006 | $2,496 | $17,475 |
| Other Employee Benefits | $12,921 | $2,687 | $1,290 | $16,898 |
| Insurance | $4,292 | $1,323 | $2,081 | $7,696 |
| Other Expenses | $3,133 | $966 | $254 | $4,353 |
| Information Technology | $491 | $76 | $95 | $662 |
| Total Functional Expenses | $1,293,123 | $138,744 | $58,658 | $1,490,525 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $1,550,270 |
| Expenses per Audited Statements | $1,490,525 |
| Total Expenses per Form 990 | $1,490,525 |
| Expenses Not Reported on Form 990 | $59,745 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Univeristy of Rochester | Rochester, NY | 501(c)(3) | Research | $160,000 |
| Baylor College of Medicine | Houston, TX, Uk | 501(c)(3) | Research Fellowship | $105,000 |
| Massachusetts General Hosp | Boston, MA | 501(c)(3) | Research | $105,000 |
| University of Florida | Gainesville, FL | 501(c)(3) | Research | $83,494 |
| University of Nottingham | Albany, NY | Gb 690 391 225 | Research | $55,000 |
| Unversity at Albany | - | 501(c)(3) | Research | $55,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $49,510 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Gala | $951,839 | - | $49,510 | - |
| Total Events | $951,839 | - | $49,510 | $-49,510 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“The board is provided a copy of the tax return for review prior to being finalized.”
“The executive committee monitors and enforces compliance with the policy. The executive committee has a forum to raise and address any potential conflicts of interest and/or answer any questions. Mdf makes sure all decisions/actions are clear of conflicts during regularly scheduled meetings.”
“An independent employment search firm is used on a consulting basis to perform a market analysis of salaries and other compensation.following that analysis, the ceo salary is reviewed and approved by both the executive committee and the full board.”
“AVAILABLE UPON REQUEST.”
“Affiliate's revenue on consolidated f/s $146095 special events expenses $49510”
“Affiliate's expenses on consolidated f/s $10235 special events expenses $49510”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 38113 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 64138 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research. |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 0 |
| IRS990/AllOtherContributionsAmt | 0 | 1375020 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 0 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | false |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | TANYA STEVENSON |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 4158007745 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 663 THIRTEENTH STREET SUITE 100 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | OAKLAND |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 94612 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 321288 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 349365 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 18094 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 37687 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 181225 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 237006 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 35844 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 35844 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | true |
| IRS990/ContriRptFundraisingEventAmt | 0 | 951839 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 2409559 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 553570 |
| IRS990/CYInvestmentIncomeAmt | 0 | 269 |
| IRS990/CYOtherExpensesAmt | 0 | 331866 |
| IRS990/CYOtherRevenueAmt | 0 | -49510 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 23300 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 893093 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 605089 |
| IRS990/CYTotalExpensesAmt | 0 | 1490525 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 58658 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 2383618 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 0 |
| IRS990/Desc | 0 | Research - We raise additional funds in the private sector in order to accelerate further understanding of the disease through research. MDF supports both clinical and scientific research with a goal of finding a treatment and eventually a cure for this chronic, degenerative disease. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 717420 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 712159 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 791279 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 2496 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 2006 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 12973 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 17475 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 4648 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 24937 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 161330 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 190915 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignCountryCd | 0 | OC |
| IRS990/ForeignFinancialAccountInd | 0 | true |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 60.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 20245 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | TANYA STEVENSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JEREMY KELLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | MARTHA MONTAG BROWN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ELIZABETH FLORENCE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | DAVID HERBERT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DAVID BERMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JOHN W DAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CHARLES THORNTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | JOHN FITZPATRICK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | JOEL REVILL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | TOM McPeek |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 216761 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | VICE-CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2006 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 951839 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 49510 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GovernmentGrantsAmt | 0 | 82700 |
| IRS990/GrantAmt | 0 | 553570 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 284545 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 722500 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 553570 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 553570 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 2433128 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 95 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 76 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 491 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 662 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 2081 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1323 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 4292 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 7696 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 269 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 269 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 12 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
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| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -49510 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -49510 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -176 |
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| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 4347279 |
| IRS990/NondeductibleContributionsInd | 0 | false |
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| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1587 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 21071 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 24605 |
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| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
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| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 2687 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 12921 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 16898 |
| IRS990/OtherExpensesGrp/Desc | 0 | ADMINISTRATION |
| IRS990/OtherExpensesGrp/Desc | 1 | Printing and Publications |
| IRS990/OtherExpensesGrp/Desc | 2 | Postage and Shipping |
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| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 254 |
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| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 2043 |
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| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 6629 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 3133 |
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| IRS990/OtherExpensesGrp/TotalAmt | 1 | 9614 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 4353 |
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| IRS990/PartialLiquidationInd | 0 | false |
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| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2868 |
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| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 28720 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 37561 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
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| IRS990/PoliticalCampaignActyInd | 0 | false |
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| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 49754 |
| IRS990/PrincipalOfficerNm | 0 | TANYA STEVENSON |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 624100 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Conference Registration |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 23300 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 23300 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | Education - We strive not only to help affected individuals, their families and medical professionals understand this disorder, but also to raise awareness about the disease in the general population. MDF supports and helps organize conferences for affected families and medical professionals. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 358221 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 23300 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | Advocacy - In collaboration with other organizations, we are establishing and perpetuating local and regional support groups to offer emotional support and help to educate families about this disease. In addition to providing information about available services, we advocate for increased funding for myotonic dystrophy research and patient support. |
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| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
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| IRS990/PYExcessBenefitTransInd | 0 | false |
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| IRS990/PYInvestmentIncomeAmt | 0 | 6329 |
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| IRS990/PYOtherRevenueAmt | 0 | -71671 |
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| IRS990/PYRevenuesLessExpensesAmt | 0 | 823027 |
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| IRS990/QuidProQuoContributionsInd | 0 | false |
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| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 893093 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
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| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
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| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt | 0 | 111543 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 148428 |
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| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2080997 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 3016393 |
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| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 16560 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 8449 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 3092 |
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| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 23300 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 26106 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 75663 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 68225 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 205789 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 399083 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
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| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 6329 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 16560 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 8449 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 3092 |
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| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00320 |
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| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus1YearAmt | 0 | -71671 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 507010 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 25957 |
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| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 424368 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.89120 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.90010 |
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| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearAmt | 0 | 295682 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus1YearAmt | 0 | 142138 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus2YearsAmt | 0 | 150957 |
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Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.