Civic Intelligence

Myotonic Dystrophy Foundation Inc

990 • Fiscal year 2021 • EIN 20-5014628

Jan 01, 2021 to Dec 31, 2021 • Filed on Sep 16, 2022

663 Thirteenth Street Suite 100Oakland, CA 94612

(415) 800-7745

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

51st percentile

0.13x

Higher debt load relative to assets than 51% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Liabilities / Revenue

66th percentile

0.33x

Higher debt load relative to revenue than 66% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Net Margin

80th percentile

37%

Higher net margin than 80% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Top Officer Pay

83rd percentile

$237,006

Higher top officer pay than 83% of similar nonprofits.

Top officer pay equals 9.9% of source-year revenue.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2021

Asset Growth

81st percentile

30%

Faster asset growth than 81% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2020 to 2021

Revenue Growth

63rd percentile

22%

Faster revenue growth than 63% of similar nonprofits.

2021 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2020 to 2021

Assets

Up

$5,846,076

Up $1,356,897 (+30%) from 2020

Net Assets

Up

$5,059,438

Up $892,917 (+21%) from 2020

Liabilities

Up

$786,638

Up $463,980 (+144%) from 2020

Revenue

Up

$2,383,618

Up $435,812 (+22%) from 2020

Expenses

Up

$1,490,525

Up $365,746 (+33%) from 2020

Net Income

Up

$893,093

Up $70,066 (+8.5%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2011: $1,890,239Liabilities 2011: $153,769Net Assets 2011: $1,736,4702011Assets 2012: $1,699,136Liabilities 2012: $537,530Net Assets 2012: $1,161,6062012Assets 2013: $2,085,873Liabilities 2013: $427,442Net Assets 2013: $1,658,4312013Assets 2014: $1,642,464Liabilities 2014: $344,645Net Assets 2014: $1,297,8192014Assets 2015: $2,299,688Liabilities 2015: $212,483Net Assets 2015: $2,087,2052015Assets 2016: $2,063,066Liabilities 2016: $142,312Net Assets 2016: $1,920,7542016Assets 2017: $3,288,895Liabilities 2017: $129,242Net Assets 2017: $3,159,6532017Assets 2018: $3,794,207Liabilities 2018: $471,821Net Assets 2018: $3,322,3862018Assets 2019: $3,955,407Liabilities 2019: $609,043Net Assets 2019: $3,346,3642019Assets 2020: $4,489,179Liabilities 2020: $322,658Net Assets 2020: $4,166,5212020Assets 2021: $5,846,076Liabilities 2021: $786,638Net Assets 2021: $5,059,4382021Assets 2022: $6,830,491Liabilities 2022: $1,488,211Net Assets 2022: $5,342,2802022Assets 2023: $5,467,413Liabilities 2023: $1,465,481Net Assets 2023: $4,001,9322023Assets 2024: $5,826,049Liabilities 2024: $1,917,906Net Assets 2024: $3,908,1432024

Highlighted filing

2021

Assets$5,846,076
Liabilities$786,638
Net Assets$5,059,438

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$2.0M$0-$2.0MExpenses 2011: $736,1602011Expenses 2012: $1,312,3652012Revenue 2013: $1,482,366Expenses 2013: $985,541Net Income 2013: $496,8252013Revenue 2014: $727,525Expenses 2014: $1,088,137Net Income 2014: -$360,6122014Revenue 2015: $2,139,511Expenses 2015: $1,350,125Net Income 2015: $789,3862015Revenue 2016: $1,805,876Expenses 2016: $1,972,327Net Income 2016: -$166,4512016Revenue 2017: $3,237,856Expenses 2017: $1,998,957Net Income 2017: $1,238,8992017Revenue 2018: $2,183,628Expenses 2018: $2,021,676Net Income 2018: $161,9522018Revenue 2019: $2,271,866Expenses 2019: $2,248,284Net Income 2019: $23,5822019Revenue 2020: $1,947,806Expenses 2020: $1,124,779Net Income 2020: $823,0272020Revenue 2021: $2,383,618Expenses 2021: $1,490,525Net Income 2021: $893,0932021Revenue 2022: $2,774,035Expenses 2022: $2,506,145Net Income 2022: $267,8902022Revenue 2023: $2,448,480Expenses 2023: $3,791,128Net Income 2023: -$1,342,6482023Revenue 2024: $3,659,795Expenses 2024: $3,754,033Net Income 2024: -$94,2382024

Highlighted filing

2021

Revenue$2,383,618
Expenses$1,490,525
Net Income$893,093
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Sep 16, 2022
Return Version
2021v4.0
Gross Receipts
$2,433,128
Mission and Program Overview

Mission

To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$3,425,079$4,543,350▲ $1,118,271
Pledges and Grants Receivable$687,525$903,607▲ $216,082
Cash and Non-Interest-Bearing Accounts$321,288$349,365▲ $28,077
Prepaid Expenses and Deferred Charges$55,287$49,754▼ $5,533
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$4,489,179$5,846,076▲ $1,356,897
Other Assets Total-$0-
Liabilities
Grants Payable$284,545$722,500▲ $437,955
Accounts Payable and Accrued Expenses$38,113$64,138▲ $26,025
Total Liabilities$322,658$786,638▲ $463,980
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,449,101$4,347,279▲ $898,178
Net Assets With Donor Restrictions$717,420$712,159▼ $5,261
Total Net Assets Fund Balance$4,166,521$5,059,438▲ $892,917
Total Liabilities and Net Assets / Fund Balance$4,489,179$5,846,076▲ $1,356,897
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Tanya StevensonCEOFT$216,761$20,245$237,006

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$2,409,559
Program Service Revenue
$23,300
Investment Income
$269
Other Revenue
$-49,510
All Other Contributions
$1,375,020
Change in Net Assets
$893,093

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,383,618
Revenue Not Reported on Form 990
$195,429
Total Revenue per Audited Statements
$2,579,047
Total Revenue per Form 990
$2,383,618
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$605,089
Grants and Similar Amounts Paid$553,570
Other Expenses$331,866
Total Fundraising Expense$58,658
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$553,570--$553,570
Other Salaries and Wages$239,811$49,870$23,943$313,624
Current Officers, Directors, Trustees, and Key Employees$181,225$37,687$18,094$237,006
Fees for Services Other$161,330$24,937$4,648$190,915
Payroll Taxes$28,720$5,973$2,868$37,561
Conferences and Meetings$35,844--$35,844
Occupancy$21,071$1,587$1,947$24,605
Fees for Services Accounting$12,973$2,006$2,496$17,475
Other Employee Benefits$12,921$2,687$1,290$16,898
Insurance$4,292$1,323$2,081$7,696
Other Expenses$3,133$966$254$4,353
Information Technology$491$76$95$662
Total Functional Expenses$1,293,123$138,744$58,658$1,490,525

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,550,270
Expenses per Audited Statements$1,490,525
Total Expenses per Form 990$1,490,525
Expenses Not Reported on Form 990$59,745
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Univeristy of RochesterRochester, NY501(c)(3)Research$160,000
Baylor College of MedicineHouston, TX, Uk501(c)(3)Research Fellowship$105,000
Massachusetts General HospBoston, MA501(c)(3)Research$105,000
University of FloridaGainesville, FL501(c)(3)Research$83,494
University of NottinghamAlbany, NYGb 690 391 225Research$55,000
Unversity at Albany-501(c)(3)Research$55,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$49,510
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$951,839-$49,510-
Total Events$951,839-$49,510$-49,510
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

The board is provided a copy of the tax return for review prior to being finalized.

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

The executive committee monitors and enforces compliance with the policy. The executive committee has a forum to raise and address any potential conflicts of interest and/or answer any questions. Mdf makes sure all decisions/actions are clear of conflicts during regularly scheduled meetings.

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

An independent employment search firm is used on a consulting basis to perform a market analysis of salaries and other compensation.following that analysis, the ceo salary is reviewed and approved by both the executive committee and the full board.

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

AVAILABLE UPON REQUEST.

Filing and Contact Details

Filer

Filer Name
Myotonic Dystrophy Foundation Inc
EIN
20-5014628
Phone
4158007745
Address
663 THIRTEENTH STREET SUITE 100, OAKLAND, CA 94612

Signing Officer

Name
Tanya Stevenson
Title
CEO
Signed
2022-09-16
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Tanya Stevenson
Formed
2006
Legal Domicile
CA
Voting Board Members
10
Independent Board Members
10
Employees
5
Volunteers
90

Preparer

Firm
Propp Christensen Caniglia Llp
Address
9261 Sierra College Boulevard, Roseville, CA 95661
Preparer
K Jeffrey De Lyser CPA
Phone
9167512900
Supplemental Narrative

Financial Statement Notes

Part XI, Line 2D: Other revenue amounts included in F/S but not included on form 990

Affiliate's revenue on consolidated f/s $146095 special events expenses $49510

Part XII, Line 2D: Other expenses and losses per audited F/S

Affiliate's expenses on consolidated f/s $10235 special events expenses $49510

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IRS990/MissionDesc0To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12043
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IRS990/PayrollTaxesGrp/FundraisingAmt02868
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IRS990/PayrollTaxesGrp/ProgramServicesAmt028720
IRS990/PayrollTaxesGrp/TotalAmt037561
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IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt055287
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt049754
IRS990/PrincipalOfficerNm0TANYA STEVENSON
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IRS990/ProgramServiceRevenueGrp/Desc0Conference Registration
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt023300
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IRS990/ProgSrvcAccomActy2Grp/Desc0Education - We strive not only to help affected individuals, their families and medical professionals understand this disorder, but also to raise awareness about the disease in the general population. MDF supports and helps organize conferences for affected families and medical professionals.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Advocacy - In collaboration with other organizations, we are establishing and perpetuating local and regional support groups to offer emotional support and help to educate families about this disease. In addition to providing information about available services, we advocate for increased funding for myotonic dystrophy research and patient support.
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IRS990/ReconcilationRevenueExpnssAmt0893093
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IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt068225
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt0205789
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IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt0269
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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$5.83$1.92$3.91$3.66$3.75$0.09
2023Detailed filing. Detailed filing data is available for this year.$5.47$1.47$4.00$2.45$3.79$1.34
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.83$1.49$5.34$2.77$2.51$0.27
2021Detailed filing. Detailed filing data is available for this year.$5.85$0.79$5.06$2.38$1.49$0.89
2020Detailed filing. Detailed filing data is available for this year.$4.49$0.32$4.17$1.95$1.12$0.82
2019Detailed filing. Detailed filing data is available for this year.$3.96$0.61$3.35$2.27$2.25$0.02
2018Detailed filing. Detailed filing data is available for this year.$3.79$0.47$3.32$2.18$2.02$0.16
2017Detailed filing. Detailed filing data is available for this year.$3.29$0.13$3.16$3.24$2.00$1.24
2016Detailed filing. Detailed filing data is available for this year.$2.06$0.14$1.92$1.81$1.97$0.17
2015Detailed filing. Detailed filing data is available for this year.$2.30$0.21$2.09$2.14$1.35$0.79
2014Detailed filing. Detailed filing data is available for this year.$1.64$0.34$1.30$0.73$1.09$0.36
2013Detailed filing. Detailed filing data is available for this year.$2.09$0.43$1.66$1.48$0.99$0.50
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.70$0.54$1.16$1.31
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.89$0.15$1.74$0.74