Civic Intelligence

Myotonic Dystrophy Foundation Inc

990 • Fiscal year 2014 • EIN 20-5014628

Jan 01, 2014 to Dec 31, 2014 • Filed on Aug 27, 2015

Organization ProfileWWW.MYOTONIC.ORG
1004A Oreilly AvenueSan Francisco, CA 94129

(415) 800-7745

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.21x

Higher debt load relative to assets than 61% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

76th percentile

0.47x

Higher debt load relative to revenue than 76% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

6th percentile

-50%

Higher net margin than 6% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

86th percentile

$163,300

Higher top officer pay than 86% of similar nonprofits.

Top officer pay equals 22.4% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

6th percentile

-21%

Faster asset growth than 6% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

4th percentile

-51%

Faster revenue growth than 4% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets61st percentile

Assets

Down

$1,642,464

Down $443,409 (-21%) from 2013

Net Assets

Down

$1,297,819

Down $360,612 (-22%) from 2013

Liabilities

Down

$344,645

Down $82,797 (-19%) from 2013

Revenue And Expenses
Liabilities / Revenue76th percentileNet Margin6th percentile

Revenue

Down

$727,525

Down $754,841 (-51%) from 2013

Expenses

Up

$1,088,137

Up $102,596 (+10%) from 2013

Net Income

Down

-$360,612

Down $857,437 (-173%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth6th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2011: $1,890,239Liabilities 2011: $153,769Net Assets 2011: $1,736,4702011Assets 2012: $1,699,136Liabilities 2012: $537,530Net Assets 2012: $1,161,6062012Assets 2013: $2,085,873Liabilities 2013: $427,442Net Assets 2013: $1,658,4312013Assets 2014: $1,642,464Liabilities 2014: $344,645Net Assets 2014: $1,297,8192014Assets 2015: $2,299,688Liabilities 2015: $212,483Net Assets 2015: $2,087,2052015Assets 2016: $2,063,066Liabilities 2016: $142,312Net Assets 2016: $1,920,7542016Assets 2017: $3,288,895Liabilities 2017: $129,242Net Assets 2017: $3,159,6532017Assets 2018: $3,794,207Liabilities 2018: $471,821Net Assets 2018: $3,322,3862018Assets 2019: $3,955,407Liabilities 2019: $609,043Net Assets 2019: $3,346,3642019Assets 2020: $4,489,179Liabilities 2020: $322,658Net Assets 2020: $4,166,5212020Assets 2021: $5,846,076Liabilities 2021: $786,638Net Assets 2021: $5,059,4382021Assets 2022: $6,830,491Liabilities 2022: $1,488,211Net Assets 2022: $5,342,2802022Assets 2023: $5,467,413Liabilities 2023: $1,465,481Net Assets 2023: $4,001,9322023Assets 2024: $5,826,049Liabilities 2024: $1,917,906Net Assets 2024: $3,908,1432024

Highlighted filing

2014

Assets$1,642,464
Liabilities$344,645
Net Assets$1,297,819
Open 2014 Filing

Operations Trend

Revenue Growth4th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$2.0M$0-$2.0MExpenses 2011: $736,1602011Expenses 2012: $1,312,3652012Revenue 2013: $1,482,366Expenses 2013: $985,541Net Income 2013: $496,8252013Revenue 2014: $727,525Expenses 2014: $1,088,137Net Income 2014: -$360,6122014Revenue 2015: $2,139,511Expenses 2015: $1,350,125Net Income 2015: $789,3862015Revenue 2016: $1,805,876Expenses 2016: $1,972,327Net Income 2016: -$166,4512016Revenue 2017: $3,237,856Expenses 2017: $1,998,957Net Income 2017: $1,238,8992017Revenue 2018: $2,183,628Expenses 2018: $2,021,676Net Income 2018: $161,9522018Revenue 2019: $2,271,866Expenses 2019: $2,248,284Net Income 2019: $23,5822019Revenue 2020: $1,947,806Expenses 2020: $1,124,779Net Income 2020: $823,0272020Revenue 2021: $2,383,618Expenses 2021: $1,490,525Net Income 2021: $893,0932021Revenue 2022: $2,774,035Expenses 2022: $2,506,145Net Income 2022: $267,8902022Revenue 2023: $2,448,480Expenses 2023: $3,791,128Net Income 2023: -$1,342,6482023Revenue 2024: $3,659,795Expenses 2024: $3,754,033Net Income 2024: -$94,2382024

Highlighted filing

2014

Revenue$727,525
Expenses$1,088,137
Net Income-$360,612
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Aug 27, 2015
Return Version
2014v5.0
Gross Receipts
$727,525
Mission and Program Overview

Mission

To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,703,958$1,473,876▼ $230,082
Pledges and Grants Receivable$277,650$90,636▼ $187,014
Accounts Receivable$80,110$58,900▼ $21,210
Cash and Non-Interest-Bearing Accounts$20,625$15,522▼ $5,103
Prepaid Expenses and Deferred Charges$3,530$3,530→ $0
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$2,085,873$1,642,464▼ $443,409
Other Assets Total-$0-
Liabilities
Grants Payable$375,000$300,000▼ $75,000
Accounts Payable and Accrued Expenses$52,442$44,645▼ $7,797
Total Liabilities$427,442$344,645▼ $82,797
Net Assets / Fund Balance
Unrestricted Net Assets$1,163,764$807,054▼ $356,710
Temporarily Rstr Net Assets$494,667$490,765▼ $3,902
Total Net Assets Fund Balance$1,658,431$1,297,819▼ $360,612
Total Liabilities and Net Assets / Fund Balance$2,085,873$1,642,464▼ $443,409
Compensation and Service Providers
Top Officer Pay86th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Molly WhiteExecutive DirectorFT$163,300$163,300

Board Members and Trustees

NameTitle
Jeremy KellyChairman
John BrekkaVice-chairman
David HerbertBoard Member
Elizabeth FlorenceBoard Member
Melvin KohnBoard Member
Timothy M KaineBoard Member
Todd StoneBoard Member
Woodie KesselBoard Member
John FitzpatrickTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$696,805
Program Service Revenue
$28,534
Investment Income
$2,186
Other Revenue
$0
All Other Contributions
$696,805
Change in Net Assets
$-360,612

Audited Revenue Reconciliation

Revenue per Audited Statements
$727,525
Total Revenue per Audited Statements
$727,525
Total Revenue per Form 990
$727,525
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$510,872
Salaries, Compensation, and Employee Benefits$364,087
Grants and Similar Amounts Paid$213,178
Total Fundraising Expense$73,498
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$155,708$60,927$15,022$231,657
Grants to Domestic Orgs$213,178--$213,178
Current Officers, Directors, Trustees, and Key Employees$124,108$22,862$16,330$163,300
Other Salaries and Wages$119,446$22,003$15,717$157,166
Payroll Taxes$17,173$3,163$2,260$22,596
Other Employee Benefits$15,979$2,944$2,102$21,025
Occupancy$13,133$2,419$1,728$17,280
Information Technology$14,775$533-$15,308
Fees for Services Accounting$6,608$2,620$637$9,865
Conferences and Meetings$3,628$1,771-$5,399
Fees for Services Legal$3,145$1,247$303$4,695
Advertising$1,047$687-$1,734
Insurance-$1,290-$1,290
Other Expenses$400$575$77$1,052
Total Functional Expenses$857,318$157,321$73,498$1,088,137

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,111,436
Expenses per Audited Statements$1,088,137
Total Expenses per Form 990$1,088,137
Expenses Not Reported on Form 990$23,299
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Rockefell UniversityNew York, NY501(c)(3)Post Doctoral Support Research Proj$100,000
Scripps Research InstituteJupiter, FL501(c)(3)Post Doctoral Support Research Proj$100,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“The board is provided a copy of the tax return for review prior to being finalized.”

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

“The executive committee monitors and enforces compliance with the policy. The executive committee has a forum to raise and address any potential conflicts of interest and/or answer any questions. Mdf makes sure all decisions/actions are clear of conflicts during the weekly calls.”

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

“An independent human resource organization is used on a consulting basis to determine the appropriateness of salaries and other compensation.following that review, salaries are again reviewed and approved by both the executive committee and the full board.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“AVAILABLE UPON REQUEST.”

Filing and Contact Details

Filer

Filer Name
Myotonic Dystrophy Foundation Inc
EIN
20-5014628
Phone
4158007745
Address
1004A OREILLY AVENUE, SAN FRANCISCO, CA 94129

Signing Officer

Name
Molly White
Title
Executive Direc
Signed
2015-08-27
Discuss with paid preparer
Yes

Organization Details

Formed
2006
Legal Domicile
CA
Voting Board Members
9
Independent Board Members
9
Employees
4
Volunteers
40

Preparer

Firm
Propp Christensen Caniglia Llp
Address
9261 Sierra College Boulevard, Roseville, CA 95661-5919
Preparer
K Jeffrey De Lyser CPA
Phone
9167512900
Supplemental Narrative

Financial Statement Notes

Part XII, Line 2D: Other expenses and losses per audited F/S

“Affiliate's expenses on consolidated f/s $23299”

Raw XML AppendixShowing 400 of 538 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt02186
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IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
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IRS990/IRPDocumentCnt020
IRS990/IRPDocumentW2GCnt00
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IRS990/MembersOrStockholdersInd0false
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IRS990/MinutesOfCommitteesInd0true
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IRS990/MissionDesc0To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
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IRS990/OccupancyGrp/TotalAmt017280
IRS990/OfficeExpensesGrp/TotalAmt00
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IRS990/OnBehalfOfIssuerInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
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IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt02102
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt02944
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt015979
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IRS990/OtherExpensesGrp/Desc1AUDIO/VISUAL
IRS990/OtherExpensesGrp/Desc2EVENT EXPENSES
IRS990/OtherExpensesGrp/Desc3DUES & SUBSCRIPTIONS
IRS990/OtherExpensesGrp/FundraisingAmt016240
IRS990/OtherExpensesGrp/FundraisingAmt13082
IRS990/OtherExpensesGrp/FundraisingAmt277
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1575
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IRS990/OtherExpensesGrp/ProgramServicesAmt112816
IRS990/OtherExpensesGrp/ProgramServicesAmt29386
IRS990/OtherExpensesGrp/ProgramServicesAmt3400
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IRS990/OtherExpensesGrp/TotalAmt112816
IRS990/OtherExpensesGrp/TotalAmt212468
IRS990/OtherExpensesGrp/TotalAmt31052
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt015717
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt022003
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0119446
IRS990/OtherSalariesAndWagesGrp/TotalAmt0157166
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt02260
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt03163
IRS990/PayrollTaxesGrp/ProgramServicesAmt017173
IRS990/PayrollTaxesGrp/TotalAmt022596
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0277650
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt090636
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt03530
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt03530
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0624100
IRS990/ProgramServiceRevenueGrp/Desc0Conference Revenue
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt028534
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt028534
IRS990/ProgSrvcAccomActy2Grp/Desc0Education - We strive not only to help affected individuals, their families and medical professionals understand this disorder, but also to raise awareness about the disease in the general population. MDF supports and helps organize conferences for affected families and medical professionals.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0322403
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0500
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt028534
IRS990/ProgSrvcAccomActy3Grp/Desc0Advocacy - In collaboration with other organizations, we are establishing and perpetuating local and regional support groups to offer emotional support and help to educate families about this disease. In addition to providing information about available services, we advocate for increased funding for myotonic dystrophy research and patient support.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0200581
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt01464729
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0224403
IRS990/PYInvestmentIncomeAmt01457
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0510966
IRS990/PYProgramServiceRevenueAmt016180
IRS990/PYRevenuesLessExpensesAmt0496825
IRS990/PYSalariesCompEmpBnftPaidAmt0250172
IRS990/PYTotalExpensesAmt0985541
IRS990/PYTotalRevenueAmt01482366
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0-360612
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt01703958
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01473876
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0696805
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt01464729
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0726874
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt01602055
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0481910
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt04972373
IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt02186
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt01457
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt0319
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt0307
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt0119
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt04388
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt028534
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt016180
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt010308
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt055022
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
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IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt0119
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt04388
IRS990ScheduleA/InvestmentIncomeCYPct00.00090
IRS990ScheduleA/InvestmentIncomePYPct00.00090
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IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
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IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt01602055
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0481910
IRS990ScheduleA/Total509Grp/TotalAmt05027395
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0727525
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt01482366
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0737501
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt01602362
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0482029
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt05031783
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Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,642,464
Liabilities
$344,645
Net assets
$1,297,819
Revenue
$727,525
Expenses
$1,088,137
Net income
-$360,612
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$5.83$1.92$3.91$3.66$3.75$0.09
2023Detailed filing. Detailed filing data is available for this year.$5.47$1.47$4.00$2.45$3.79$1.34
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.83$1.49$5.34$2.77$2.51$0.27
2021Detailed filing. Detailed filing data is available for this year.$5.85$0.79$5.06$2.38$1.49$0.89
2020Detailed filing. Detailed filing data is available for this year.$4.49$0.32$4.17$1.95$1.12$0.82
2019Detailed filing. Detailed filing data is available for this year.$3.96$0.61$3.35$2.27$2.25$0.02
2018Detailed filing. Detailed filing data is available for this year.$3.79$0.47$3.32$2.18$2.02$0.16
2017Detailed filing. Detailed filing data is available for this year.$3.29$0.13$3.16$3.24$2.00$1.24
2016Detailed filing. Detailed filing data is available for this year.$2.06$0.14$1.92$1.81$1.97$0.17
2015Detailed filing. Detailed filing data is available for this year.$2.30$0.21$2.09$2.14$1.35$0.79
2014Detailed filing. Detailed filing data is available for this year.$1.64$0.34$1.30$0.73$1.09$0.36
2013Detailed filing. Detailed filing data is available for this year.$2.09$0.43$1.66$1.48$0.99$0.50
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.70$0.54$1.16$1.31
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.89$0.15$1.74$0.74