Liabilities / Assets
38th percentile
Higher debt load relative to assets than 38% of similar nonprofits.
990 • Fiscal year 2017 • EIN 20-5014628
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
38th percentile
Higher debt load relative to assets than 38% of similar nonprofits.
Liabilities / Revenue
34th percentile
Higher debt load relative to revenue than 34% of similar nonprofits.
Net Margin
88th percentile
Higher net margin than 88% of similar nonprofits.
Top Officer Pay
90th percentile
Higher top officer pay than 90% of similar nonprofits.
Top officer pay equals 6.4% of source-year revenue.
Asset Growth
92nd percentile
Faster asset growth than 92% of similar nonprofits.
Revenue Growth
91st percentile
Faster revenue growth than 91% of similar nonprofits.
Assets
Up$3,288,895
Up $1,225,829 (+59%) from 2016
Net Assets
Up$3,159,653
Up $1,238,899 (+65%) from 2016
Liabilities
Down$129,242
Down $13,070 (-9.2%) from 2016
Revenue
Up$3,237,856
Up $1,431,980 (+79%) from 2016
Expenses
Up$1,998,957
Up $26,630 (+1.4%) from 2016
Net Income
Up$1,238,899
Up $1,405,350 (+844%) from 2016
To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $1,660,182 | $2,174,747 | ▲ $514,565 |
| Accounts Receivable | $257,257 | $1,000,000 | ▲ $742,743 |
| Pledges and Grants Receivable | $101,764 | $79,950 | ▼ $21,814 |
| Prepaid Expenses and Deferred Charges | $31,798 | $19,760 | ▼ $12,038 |
| Cash and Non-Interest-Bearing Accounts | $12,065 | $14,438 | ▲ $2,373 |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $2,063,066 | $3,288,895 | ▲ $1,225,829 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $67,312 | $78,242 | ▲ $10,930 |
| Grants Payable | $75,000 | $51,000 | ▼ $24,000 |
| Total Liabilities | $142,312 | $129,242 | ▼ $13,070 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $1,690,704 | $2,088,666 | ▲ $397,962 |
| Temporarily Rstr Net Assets | $230,050 | $1,070,987 | ▲ $840,937 |
| Total Net Assets Fund Balance | $1,920,754 | $3,159,653 | ▲ $1,238,899 |
| Total Liabilities and Net Assets / Fund Balance | $2,063,066 | $3,288,895 | ▲ $1,225,829 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Molly White | CEO | FT | $201,991 | $4,049 | $206,040 |
| Name | Title |
|---|---|
| Jeremy Kelly | Chairman |
| Woodie Kessel | Vice-chairman |
| David Herbert | Director |
| Elizabeth Florence | Director |
| John Fitzpatrick | Director |
| Marsha Dugan | Director |
| Martha Montag-brown | Director |
| Todd Stone | Director |
| Line Item | Amount |
|---|---|
| Other Expenses | $1,133,611 |
| Salaries, Compensation, and Employee Benefits | $793,161 |
| Total Fundraising Expense | $282,377 |
| Grants and Similar Amounts Paid | $72,185 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Conferences and Meetings | $512,809 | $11,128 | $86,310 | $610,247 |
| Other Salaries and Wages | $428,491 | $32,138 | $74,985 | $535,614 |
| Fees for Services Other | $253,612 | $28,393 | $22,039 | $304,044 |
| Current Officers, Directors, Trustees, and Key Employees | $164,832 | $12,362 | $28,846 | $206,040 |
| Grants to Domestic Orgs | $72,185 | - | - | $72,185 |
| Payroll Taxes | $41,206 | $3,090 | $7,211 | $51,507 |
| Occupancy | $39,901 | $2,929 | $7,001 | $49,831 |
| Information Technology | $19,965 | $3,918 | $1,735 | $25,618 |
| Fees for Services Accounting | - | $16,000 | - | $16,000 |
| Other Expenses | $2,990 | $2,131 | $3,955 | $9,076 |
| Insurance | - | $5,666 | - | $5,666 |
| Fees for Services Legal | - | $5,373 | - | $5,373 |
| Total Functional Expenses | $1,574,010 | $142,570 | $282,377 | $1,998,957 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $2,513,863 |
| Expenses per Audited Statements | $1,998,957 |
| Total Expenses per Form 990 | $1,998,957 |
| Expenses Not Reported on Form 990 | $514,906 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Houston Methodist Neuro Inst | Houston, TX | - | Clinical Research | $102,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $85,800 |
| Fundraising Direct Expenses | $73,218 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Gala and Rally | $542,115 | $85,800 | $73,218 | $12,582 |
| Total Events | $542,115 | $85,800 | $73,218 | $12,582 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“The board is provided a copy of the tax return for review prior to being finalized.”
“The executive committee monitors and enforces compliance with the policy. The executive committee has a forum to raise and address any potential conflicts of interest and/or answer any questions. Mdf makes sure all decisions/actions are clear of conflicts during the weekly calls.”
“An independent employment search firm is used on a consulting basis to perform a market analysis of salaries and other compensation.following that analysis, the ceo salary is reviewed and approved by both the executive committee and the full board.”
“AVAILABLE UPON REQUEST.”
“Intercompany eliminations $-170304 affiliate's revenue on consolidated f/s $2547451”
“Affiliate's expenses on consolidated f/s $611992 intercompany eliminations $-170304 special events expenses $73218”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 67312 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 78242 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 257257 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 1000000 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research. |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 0 |
| IRS990/AllAffiliatesIncludedInd | 0 | false |
| IRS990/AllOtherContributionsAmt | 0 | 2560078 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 0 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | false |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | MOLLY WHITE |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 4158007745 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1003B OREILLY AVENUE |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | SAN FRANCISCO |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 94129 |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 12065 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 14438 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 28846 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 12362 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 164832 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 206040 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 86310 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 11128 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 512809 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 610247 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | true |
| IRS990/ContriRptFundraisingEventAmt | 0 | 456315 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 3016393 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 72185 |
| IRS990/CYInvestmentIncomeAmt | 0 | 3092 |
| IRS990/CYOtherExpensesAmt | 0 | 1133611 |
| IRS990/CYOtherRevenueAmt | 0 | 12582 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 205789 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 1238899 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 793161 |
| IRS990/CYTotalExpensesAmt | 0 | 1998957 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 282377 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 3237856 |
| IRS990/DAFExcessBusinessHoldingsInd | 0 | false |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 0 |
| IRS990/Desc | 0 | Research - We raise additional funds in the private sector in order to accelerate further understanding of the disease through research. MDF supports both clinical and scientific research with a goal of finding a treatment and eventually a cure for this chronic, degenerative disease. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DistributionToDonorInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 7 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | false |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/EscrowAccountInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 711015 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 16000 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 16000 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 5373 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 5373 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 22039 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 28393 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 253612 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 304044 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignCountryCd | 0 | OC |
| IRS990/ForeignFinancialAccountInd | 0 | true |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 60.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 4049 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JEREMY KELLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | WOODIE KESSEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | DAVID HERBERT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | ELIZABETH FLORENCE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | MARSHA DUGAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MARTHA MONTAG-BROWN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JOHN FITZPATRICK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | TODD STONE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MOLLY WHITE |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 201991 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Chairman |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE-CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | CEO |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/Form990TFiledInd | 0 | false |
| IRS990/FormationYr | 0 | 2006 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 456315 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 73218 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 85800 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 8 |
| IRS990/GrantAmt | 0 | 72185 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 75000 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 51000 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 72185 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 72185 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 3311074 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 8 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 1735 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 3918 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 19965 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 25618 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 5666 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 5666 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 3092 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 3092 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/InvestTaxExemptBondsInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 25 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LicensedMoreThanOneStateInd | 0 | false |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1920754 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 3159653 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 12582 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 12582 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 7001 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 2929 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 39901 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 49831 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 0 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OnBehalfOfIssuerInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OrgFiledInLieuOfForm1041Ind | 0 | false |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | ADMINISTRATION |
| IRS990/OtherExpensesGrp/Desc | 1 | Printing and Publications |
| IRS990/OtherExpensesGrp/Desc | 2 | Postage and Shipping |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 40835 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 9460 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 3955 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 14345 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 5097 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 2131 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 30868 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 7151 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 2990 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 86048 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 21708 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 9076 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 74985 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 32138 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 428491 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 535614 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 7211 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3090 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 41206 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 51507 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 101764 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 79950 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 31798 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 19760 |
| IRS990/PrincipalOfficerNm | 0 | MOLLY WHITE |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 624100 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Conference Revenue |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 205789 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 205789 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | Education - We strive not only to help affected individuals, their families and medical professionals understand this disorder, but also to raise awareness about the disease in the general population. MDF supports and helps organize conferences for affected families and medical professionals. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 566407 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 205789 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | Advocacy - In collaboration with other organizations, we are establishing and perpetuating local and regional support groups to offer emotional support and help to educate families about this disease. In addition to providing information about available services, we advocate for increased funding for myotonic dystrophy research and patient support. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 296588 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 1551282 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 72637 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1686 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 998425 |
| IRS990/PYOtherRevenueAmt | 0 | 46667 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 206241 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -166451 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 901265 |
| IRS990/PYTotalExpensesAmt | 0 | 1972327 |
| IRS990/PYTotalRevenueAmt | 0 | 1805876 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 1238899 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | true |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | true |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 1660182 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 2174747 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 3016393 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1551282 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2113561 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 696805 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1464729 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 8842770 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 3092 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1686 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1425 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2186 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1457 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 9846 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 205789 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 35347 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 24525 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 28534 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 16180 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 310375 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 3092 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 1686 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 1425 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 2186 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 1457 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 9846 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00110 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00110 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearAmt | 0 | 12582 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus1YearAmt | 0 | 46667 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 59249 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.99250 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.99890 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 9153145 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 3222182 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1586629 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2138086 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 725339 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1480909 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 9153145 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 3237856 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 1634982 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 2139511 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 727525 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 1482366 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 9222240 |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 514906 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 1998957 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 514906 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 2377147 |
| IRS990ScheduleD/OtherRevenuesNotIncludedAmt | 0 | -73218 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 2377147 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | -73218 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 3311074 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | INTERCOMPANY ELIMINATIONS $-170304 AFFILIATE'S REVENUE ON CONSOLIDATED F/S $2547451 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | AFFILIATE'S EXPENSES ON CONSOLIDATED F/S $611992 INTERCOMPANY ELIMINATIONS $-170304 SPECIAL EVENTS EXPENSES $73218 |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Part XI, Line 2d: Other revenue amounts included in F/S but not included on form 990 |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Part XII, Line 2d: Other expenses and losses per audited F/S |
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Displayed year
2017 • Form 990Detailed filing. Detailed filing data is available for this year.