Liabilities / Assets
45th percentile
Higher debt load relative to assets than 45% of similar nonprofits.
990 • Fiscal year 2020 • EIN 20-5014628
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
45th percentile
Higher debt load relative to assets than 45% of similar nonprofits.
Liabilities / Revenue
54th percentile
Higher debt load relative to revenue than 54% of similar nonprofits.
Net Margin
87th percentile
Higher net margin than 87% of similar nonprofits.
Top Officer Pay
92nd percentile
Higher top officer pay than 92% of similar nonprofits.
Top officer pay equals 11.9% of source-year revenue.
Asset Growth
64th percentile
Faster asset growth than 64% of similar nonprofits.
Revenue Growth
28th percentile
Faster revenue growth than 28% of similar nonprofits.
Assets
Up$4,489,179
Up $533,772 (+13%) from 2019
Net Assets
Up$4,166,521
Up $820,157 (+25%) from 2019
Liabilities
Down$322,658
Down $286,385 (-47%) from 2019
Revenue
Down$1,947,806
Down $324,060 (-14%) from 2019
Expenses
Down$1,124,779
Down $1,123,505 (-50%) from 2019
Net Income
Up$823,027
Up $799,445 (+3390%) from 2019
To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $2,119,320 | $3,425,079 | ▲ $1,305,759 |
| Investments in Publicly Traded Securities | $1,017,125 | $0 | ▼ $1,017,125 |
| Pledges and Grants Receivable | $791,519 | $687,525 | ▼ $103,994 |
| Cash and Non-Interest-Bearing Accounts | $5,251 | $321,288 | ▲ $316,037 |
| Prepaid Expenses and Deferred Charges | $22,192 | $55,287 | ▲ $33,095 |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $3,955,407 | $4,489,179 | ▲ $533,772 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Grants Payable | $565,771 | $284,545 | ▼ $281,226 |
| Accounts Payable and Accrued Expenses | $43,272 | $38,113 | ▼ $5,159 |
| Total Liabilities | $609,043 | $322,658 | ▼ $286,385 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $2,628,944 | $3,449,101 | ▲ $820,157 |
| Net Assets With Donor Restrictions | $717,420 | $717,420 | → $0 |
| Total Net Assets Fund Balance | $3,346,364 | $4,166,521 | ▲ $820,157 |
| Total Liabilities and Net Assets / Fund Balance | $3,955,407 | $4,489,179 | ▲ $533,772 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Tanya Stevenson | CEO | FT | $216,456 | $16,212 | $232,668 |
| Kleed Cumming | Comms. & Tech Mngr | FT | $101,656 | $852 | $102,508 |
| Name | Title |
|---|---|
| Jeremy Kelly | Chair |
| Martha Montag Brown | Vice-chair |
| Charles Thornton | Director |
| David Berman | Director |
| Joel Revill | Director |
| John Fitzpatrick | Director |
| John W Day | Director |
| Elizabeth Florence | Secretary |
| David Herbert | Treasurer |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 7 | $117,380 | Quoted Fair Market Value (FMV) |
| Total Noncash Contributions | 7 | $117,380 | - |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $573,340 |
| Other Expenses | $434,110 |
| Grants and Similar Amounts Paid | $117,329 |
| Total Fundraising Expense | $82,282 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $271,224 | $15,068 | $15,068 | $301,360 |
| Fees for Services Other | $187,011 | $54,973 | $10,999 | $252,983 |
| Current Officers, Directors, Trustees, and Key Employees | $209,402 | $11,633 | $11,633 | $232,668 |
| Grants to Domestic Orgs | $117,329 | - | - | $117,329 |
| Occupancy | $33,840 | $1,880 | $1,880 | $37,600 |
| Payroll Taxes | $30,758 | $1,709 | $1,709 | $34,176 |
| Fees for Services Accounting | $23,646 | $6,951 | $1,391 | $31,988 |
| Other Expenses | $7,137 | $1,941 | $5,559 | $14,637 |
| Information Technology | $4,375 | $1,286 | $257 | $5,918 |
| Other Employee Benefits | $4,622 | $257 | $257 | $5,136 |
| Insurance | $2,097 | $570 | $1,633 | $4,300 |
| Fees for Services Legal | $2,465 | $725 | $145 | $3,335 |
| Conferences and Meetings | $1,254 | $154 | $936 | $2,344 |
| Total Functional Expenses | $934,618 | $107,879 | $82,282 | $1,124,779 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $1,411,823 |
| Expenses per Audited Statements | $1,124,779 |
| Total Expenses per Form 990 | $1,124,779 |
| Expenses Not Reported on Form 990 | $287,044 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Baylor College of Medicine | Houston, TX | 501(c)(3) | Research Fellowship | $55,000 |
| University of CA San Diego | La Jolla, CA | 501(c)(3) | Research Fellowship | $55,000 |
| Virginia Commonwealth Univers | Richmond, VA | 501(c)(3) | Research | $7,400 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $71,671 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Gala | $908,388 | - | $71,671 | - |
| Total Events | $908,388 | - | $71,671 | $-71,671 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“The board is provided a copy of the tax return for review prior to being finalized.”
“The executive committee monitors and enforces compliance with the policy. The executive committee has a forum to raise and address any potential conflicts of interest and/or answer any questions. Mdf makes sure all decisions/actions are clear of conflicts during the weekly calls.”
“An independent employment search firm is used on a consulting basis to perform a market analysis of salaries and other compensation.following that analysis, the ceo salary is reviewed and approved by both the executive committee and the full board.”
“AVAILABLE UPON REQUEST.”
“Intercompany eliminations $0 affiliate's revenue on consolidated f/s $21029 special events expenses $71671”
“Affiliate's expenses on consolidated f/s $215373 intercompany eliminations $0 special events expenses $71671”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 43272 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 38113 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research. |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 0 |
| IRS990/AllOtherContributionsAmt | 0 | 970354 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 0 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | false |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | TANYA STEVENSON |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 4158007745 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 663 THIRTEENTH STREET SUITE 100 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | OAKLAND |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 94612 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 5251 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 321288 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 11633 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 11633 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 209402 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 232668 |
| IRS990/CompDisqualPersonsGrp/TotalAmt | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | true |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 936 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 154 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 1254 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 2344 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | true |
| IRS990/ContriRptFundraisingEventAmt | 0 | 908388 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1987042 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 117329 |
| IRS990/CYInvestmentIncomeAmt | 0 | 6329 |
| IRS990/CYOtherExpensesAmt | 0 | 434110 |
| IRS990/CYOtherRevenueAmt | 0 | -71671 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 26106 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 823027 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 573340 |
| IRS990/CYTotalExpensesAmt | 0 | 1124779 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 82282 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1947806 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | true |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 0 |
| IRS990/Desc | 0 | Education - We strive not only to help affected individuals, their families and medical professionals understand this disorder, but also to raise awareness about the disease in the general population. MDF supports and helps organize conferences for affected families and medical professionals. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 717420 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 717420 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 4 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 398527 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 1391 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 6951 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 23646 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 31988 |
| IRS990/FeesForServicesLegalGrp/FundraisingAmt | 0 | 145 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 725 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 2465 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 3335 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 10999 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 54973 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 187011 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 252983 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignCountryCd | 0 | OC |
| IRS990/ForeignFinancialAccountInd | 0 | true |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 9 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 60.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 16212 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 852 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | TANYA STEVENSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | KLEED CUMMING |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JEREMY KELLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | MARTHA MONTAG BROWN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ELIZABETH FLORENCE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DAVID HERBERT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DAVID BERMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | JOHN W DAY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | CHARLES THORNTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | JOHN FITZPATRICK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | JOEL REVILL |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 216456 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 101656 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CEO |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | COMMS. & TECH MNGR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | VICE-CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | Director |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2006 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 908388 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 71671 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 9 |
| IRS990/GovernmentGrantsAmt | 0 | 108300 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 565771 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 284545 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 0 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 117329 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 117329 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 2019477 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 9 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 257 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 1286 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 4375 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 5918 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 1633 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 570 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 2097 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 4300 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 6329 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 6329 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 1017125 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 22 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 3346364 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 4166521 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -71671 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -71671 |
| IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -2870 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 2628944 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 3449101 |
| IRS990/NoncashContributionsAmt | 0 | 117380 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 1880 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1880 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 33840 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 37600 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 0 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 257 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 257 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 4622 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 5136 |
| IRS990/OtherExpensesGrp/Desc | 0 | ADMINISTRATION |
| IRS990/OtherExpensesGrp/Desc | 1 | Printing and Publications |
| IRS990/OtherExpensesGrp/Desc | 2 | Postage and Shipping |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 24544 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 6271 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 5559 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 8542 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 2190 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 1941 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 31407 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 8051 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 7137 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 64493 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 16512 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 14637 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 15068 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 15068 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 271224 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 301360 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 1709 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1709 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 30758 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 34176 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 791519 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 687525 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 22192 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 55287 |
| IRS990/PrincipalOfficerNm | 0 | TANYA STEVENSON |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 624100 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Conference Registration |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 26106 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 26106 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | Research - We raise additional funds in the private sector in order to accelerate further understanding of the disease through research. MDF supports both clinical and scientific research with a goal of finding a treatment and eventually a cure for this chronic, degenerative disease. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 364004 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 117329 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | Advocacy - In collaboration with other organizations, we are establishing and perpetuating local and regional support groups to offer emotional support and help to educate families about this disease. In addition to providing information about available services, we advocate for increased funding for myotonic dystrophy research and patient support. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 172087 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 1672633 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 501662 |
| IRS990/PYInvestmentIncomeAmt | 0 | 16560 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 1148071 |
| IRS990/PYOtherRevenueAmt | 0 | 507010 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 75663 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 23582 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 598551 |
| IRS990/PYTotalExpensesAmt | 0 | 2248284 |
| IRS990/PYTotalRevenueAmt | 0 | 2271866 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 823027 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | true |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | true |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 26106 |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 2119320 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 3425079 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt | 0 | 142138 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt | 0 | 150957 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt | 0 | 111543 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt | 0 | 148428 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt | 0 | 16500 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 569566 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 1987042 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1671220 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2080997 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 3016393 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1551282 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 10306934 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 6329 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 16560 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 8449 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 3092 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1686 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 36116 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 26106 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 75663 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 68225 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 205789 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 35347 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 411130 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 6329 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 16560 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 8449 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 3092 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 1686 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 36116 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00320 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00270 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearAmt | 0 | -71671 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus1YearAmt | 0 | 507010 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 25957 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 12582 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 46667 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 520545 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.