Civic Intelligence

Myotonic Dystrophy Foundation Inc

990 • Fiscal year 2020 • EIN 20-5014628

Jan 01, 2020 to Dec 31, 2020 • Filed on Aug 02, 2021

663 Thirteenth Street Suite 100Oakland, CA 94612

(415) 800-7745

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

45th percentile

0.07x

Higher debt load relative to assets than 45% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

54th percentile

0.17x

Higher debt load relative to revenue than 54% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

87th percentile

42%

Higher net margin than 87% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

92nd percentile

$232,668

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 11.9% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

64th percentile

13%

Faster asset growth than 64% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

28th percentile

-14%

Faster revenue growth than 28% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Assets

Up

$4,489,179

Up $533,772 (+13%) from 2019

Net Assets

Up

$4,166,521

Up $820,157 (+25%) from 2019

Liabilities

Down

$322,658

Down $286,385 (-47%) from 2019

Revenue

Down

$1,947,806

Down $324,060 (-14%) from 2019

Expenses

Down

$1,124,779

Down $1,123,505 (-50%) from 2019

Net Income

Up

$823,027

Up $799,445 (+3390%) from 2019

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2011: $1,890,239Liabilities 2011: $153,769Net Assets 2011: $1,736,4702011Assets 2012: $1,699,136Liabilities 2012: $537,530Net Assets 2012: $1,161,6062012Assets 2013: $2,085,873Liabilities 2013: $427,442Net Assets 2013: $1,658,4312013Assets 2014: $1,642,464Liabilities 2014: $344,645Net Assets 2014: $1,297,8192014Assets 2015: $2,299,688Liabilities 2015: $212,483Net Assets 2015: $2,087,2052015Assets 2016: $2,063,066Liabilities 2016: $142,312Net Assets 2016: $1,920,7542016Assets 2017: $3,288,895Liabilities 2017: $129,242Net Assets 2017: $3,159,6532017Assets 2018: $3,794,207Liabilities 2018: $471,821Net Assets 2018: $3,322,3862018Assets 2019: $3,955,407Liabilities 2019: $609,043Net Assets 2019: $3,346,3642019Assets 2020: $4,489,179Liabilities 2020: $322,658Net Assets 2020: $4,166,5212020Assets 2021: $5,846,076Liabilities 2021: $786,638Net Assets 2021: $5,059,4382021Assets 2022: $6,830,491Liabilities 2022: $1,488,211Net Assets 2022: $5,342,2802022Assets 2023: $5,467,413Liabilities 2023: $1,465,481Net Assets 2023: $4,001,9322023Assets 2024: $5,826,049Liabilities 2024: $1,917,906Net Assets 2024: $3,908,1432024

Highlighted filing

2020

Assets$4,489,179
Liabilities$322,658
Net Assets$4,166,521

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$2.0M$0-$2.0MExpenses 2011: $736,1602011Expenses 2012: $1,312,3652012Revenue 2013: $1,482,366Expenses 2013: $985,541Net Income 2013: $496,8252013Revenue 2014: $727,525Expenses 2014: $1,088,137Net Income 2014: -$360,6122014Revenue 2015: $2,139,511Expenses 2015: $1,350,125Net Income 2015: $789,3862015Revenue 2016: $1,805,876Expenses 2016: $1,972,327Net Income 2016: -$166,4512016Revenue 2017: $3,237,856Expenses 2017: $1,998,957Net Income 2017: $1,238,8992017Revenue 2018: $2,183,628Expenses 2018: $2,021,676Net Income 2018: $161,9522018Revenue 2019: $2,271,866Expenses 2019: $2,248,284Net Income 2019: $23,5822019Revenue 2020: $1,947,806Expenses 2020: $1,124,779Net Income 2020: $823,0272020Revenue 2021: $2,383,618Expenses 2021: $1,490,525Net Income 2021: $893,0932021Revenue 2022: $2,774,035Expenses 2022: $2,506,145Net Income 2022: $267,8902022Revenue 2023: $2,448,480Expenses 2023: $3,791,128Net Income 2023: -$1,342,6482023Revenue 2024: $3,659,795Expenses 2024: $3,754,033Net Income 2024: -$94,2382024

Highlighted filing

2020

Revenue$1,947,806
Expenses$1,124,779
Net Income$823,027
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Aug 2, 2021
Return Version
2020v4.0
Gross Receipts
$2,019,477
Mission and Program Overview

Mission

To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$2,119,320$3,425,079▲ $1,305,759
Investments in Publicly Traded Securities$1,017,125$0▼ $1,017,125
Pledges and Grants Receivable$791,519$687,525▼ $103,994
Cash and Non-Interest-Bearing Accounts$5,251$321,288▲ $316,037
Prepaid Expenses and Deferred Charges$22,192$55,287▲ $33,095
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$3,955,407$4,489,179▲ $533,772
Other Assets Total-$0-
Liabilities
Grants Payable$565,771$284,545▼ $281,226
Accounts Payable and Accrued Expenses$43,272$38,113▼ $5,159
Total Liabilities$609,043$322,658▼ $286,385
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$2,628,944$3,449,101▲ $820,157
Net Assets With Donor Restrictions$717,420$717,420→ $0
Total Net Assets Fund Balance$3,346,364$4,166,521▲ $820,157
Total Liabilities and Net Assets / Fund Balance$3,955,407$4,489,179▲ $533,772
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Tanya StevensonCEOFT$216,456$16,212$232,668
Kleed CummingComms. & Tech MngrFT$101,656$852$102,508

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$1,987,042
Program Service Revenue
$26,106
Investment Income
$6,329
Other Revenue
$-71,671
All Other Contributions
$970,354
Change in Net Assets
$823,027

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded7$117,380Quoted Fair Market Value (FMV)
Total Noncash Contributions7$117,380-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,947,806
Revenue Not Reported on Form 990
$89,830
Total Revenue per Audited Statements
$2,037,636
Total Revenue per Form 990
$1,947,806
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$573,340
Other Expenses$434,110
Grants and Similar Amounts Paid$117,329
Total Fundraising Expense$82,282
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$271,224$15,068$15,068$301,360
Fees for Services Other$187,011$54,973$10,999$252,983
Current Officers, Directors, Trustees, and Key Employees$209,402$11,633$11,633$232,668
Grants to Domestic Orgs$117,329--$117,329
Occupancy$33,840$1,880$1,880$37,600
Payroll Taxes$30,758$1,709$1,709$34,176
Fees for Services Accounting$23,646$6,951$1,391$31,988
Other Expenses$7,137$1,941$5,559$14,637
Information Technology$4,375$1,286$257$5,918
Other Employee Benefits$4,622$257$257$5,136
Insurance$2,097$570$1,633$4,300
Fees for Services Legal$2,465$725$145$3,335
Conferences and Meetings$1,254$154$936$2,344
Total Functional Expenses$934,618$107,879$82,282$1,124,779

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,411,823
Expenses per Audited Statements$1,124,779
Total Expenses per Form 990$1,124,779
Expenses Not Reported on Form 990$287,044
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Baylor College of MedicineHouston, TX501(c)(3)Research Fellowship$55,000
University of CA San DiegoLa Jolla, CA501(c)(3)Research Fellowship$55,000
Virginia Commonwealth UniversRichmond, VA501(c)(3)Research$7,400
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$71,671
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gala$908,388-$71,671-
Total Events$908,388-$71,671$-71,671
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
Yes
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

The board is provided a copy of the tax return for review prior to being finalized.

Form 990, Part VI, Line 12C: Explanation of Monitoring and Enforcement of Conflicts

The executive committee monitors and enforces compliance with the policy. The executive committee has a forum to raise and address any potential conflicts of interest and/or answer any questions. Mdf makes sure all decisions/actions are clear of conflicts during the weekly calls.

Form 990, Part VI, Line 15A: Compensation Review & Approval Process - CEO, Top Management

An independent employment search firm is used on a consulting basis to perform a market analysis of salaries and other compensation.following that analysis, the ceo salary is reviewed and approved by both the executive committee and the full board.

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

AVAILABLE UPON REQUEST.

Filing and Contact Details

Filer

Filer Name
Myotonic Dystrophy Foundation Inc
EIN
20-5014628
Phone
4158007745
Address
663 THIRTEENTH STREET SUITE 100, OAKLAND, CA 94612

Signing Officer

Name
Tanya Stevenson
Title
CEO
Signed
2021-08-02
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Tanya Stevenson
Formed
2006
Legal Domicile
CA
Voting Board Members
9
Independent Board Members
9
Employees
4
Volunteers
60

Preparer

Firm
Propp Christensen Caniglia Llp
Address
9261 Sierra College Boulevard, Roseville, CA 95661
Preparer
K Jeffrey De Lyser CPA
Phone
9167512900
Supplemental Narrative

Financial Statement Notes

Part XI, Line 2D: Other revenue amounts included in F/S but not included on form 990

Intercompany eliminations $0 affiliate's revenue on consolidated f/s $21029 special events expenses $71671

Part XII, Line 2D: Other expenses and losses per audited F/S

Affiliate's expenses on consolidated f/s $215373 intercompany eliminations $0 special events expenses $71671

Raw XML AppendixShowing 400 of 643 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt043272
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt038113
IRS990/AccountsReceivableGrp/EOYAmt00
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
IRS990/AdvertisingGrp/TotalAmt00
IRS990/AllOtherContributionsAmt0970354
IRS990/AllOtherExpensesGrp/TotalAmt00
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0false
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0TANYA STEVENSON
IRS990/BooksInCareOfDetail/PhoneNum04158007745
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt0663 THIRTEENTH STREET SUITE 100
IRS990/BooksInCareOfDetail/USAddress/CityNm0OAKLAND
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0CA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd094612
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt05251
IRS990/CashNonInterestBearingGrp/EOYAmt0321288
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt011633
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt011633
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt0209402
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0232668
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0true
IRS990/ConferencesMeetingsGrp/FundraisingAmt0936
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt0154
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt01254
IRS990/ConferencesMeetingsGrp/TotalAmt02344
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0true
IRS990/ContriRptFundraisingEventAmt0908388
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt01987042
IRS990/CYGrantsAndSimilarPaidAmt0117329
IRS990/CYInvestmentIncomeAmt06329
IRS990/CYOtherExpensesAmt0434110
IRS990/CYOtherRevenueAmt0-71671
IRS990/CYProgramServiceRevenueAmt026106
IRS990/CYRevenuesLessExpensesAmt0823027
IRS990/CYSalariesCompEmpBnftPaidAmt0573340
IRS990/CYTotalExpensesAmt01124779
IRS990/CYTotalFundraisingExpenseAmt082282
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt01947806
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0true
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/DepreciationDepletionGrp/TotalAmt00
IRS990/Desc0Education - We strive not only to help affected individuals, their families and medical professionals understand this disorder, but also to raise awareness about the disease in the general population. MDF supports and helps organize conferences for affected families and medical professionals.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0true
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0717420
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt0717420
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt04
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0398527
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/FundraisingAmt01391
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt06951
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt023646
IRS990/FeesForServicesAccountingGrp/TotalAmt031988
IRS990/FeesForServicesLegalGrp/FundraisingAmt0145
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt0725
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt02465
IRS990/FeesForServicesLegalGrp/TotalAmt03335
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/FundraisingAmt010999
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt054973
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0187011
IRS990/FeesForServicesOtherGrp/TotalAmt0252983
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0false
IRS990/ForeignCountryCd0OC
IRS990/ForeignFinancialAccountInd0true
IRS990/ForeignGrantsGrp/TotalAmt00
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt90.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt100.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt060.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt140.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt25.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt35.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt45.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt55.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt91.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt101.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt016212
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1852
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt90
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt100
IRS990/Form990PartVIISectionAGrp/PersonNm0TANYA STEVENSON
IRS990/Form990PartVIISectionAGrp/PersonNm1KLEED CUMMING
IRS990/Form990PartVIISectionAGrp/PersonNm2JEREMY KELLY
IRS990/Form990PartVIISectionAGrp/PersonNm3MARTHA MONTAG BROWN
IRS990/Form990PartVIISectionAGrp/PersonNm4ELIZABETH FLORENCE
IRS990/Form990PartVIISectionAGrp/PersonNm5DAVID HERBERT
IRS990/Form990PartVIISectionAGrp/PersonNm6DAVID BERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm7JOHN W DAY
IRS990/Form990PartVIISectionAGrp/PersonNm8CHARLES THORNTON
IRS990/Form990PartVIISectionAGrp/PersonNm9JOHN FITZPATRICK
IRS990/Form990PartVIISectionAGrp/PersonNm10JOEL REVILL
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt0216456
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1101656
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1COMMS. & TECH MNGR
IRS990/Form990PartVIISectionAGrp/TitleTxt2CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3VICE-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt4Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt5Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990PartVIISectionAGrp/TitleTxt9Director
IRS990/Form990PartVIISectionAGrp/TitleTxt10Director
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02006
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/ConsolidatedBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt0908388
IRS990/FundraisingDirectExpensesAmt071671
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt09
IRS990/GovernmentGrantsAmt0108300
IRS990/GrantsPayableGrp/BOYAmt0565771
IRS990/GrantsPayableGrp/EOYAmt0284545
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0117329
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0117329
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt02019477
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt09
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt0257
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt01286
IRS990/InformationTechnologyGrp/ProgramServicesAmt04375
IRS990/InformationTechnologyGrp/TotalAmt05918
IRS990/InsuranceGrp/FundraisingAmt01633
IRS990/InsuranceGrp/ManagementAndGeneralAmt0570
IRS990/InsuranceGrp/ProgramServicesAmt02097
IRS990/InsuranceGrp/TotalAmt04300
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt06329
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt06329
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt01017125
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/IRPDocumentCnt022
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LegalDomicileStateCd0CA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0To lead and mobilize resources toward effective management, treatment and ultimately a cure for myotonic dystrophy through education, advocacy and research.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt03346364
IRS990/NetAssetsOrFundBalancesEOYAmt04166521
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-71671
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-71671
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-2870
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt02628944
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt03449101
IRS990/NoncashContributionsAmt0117380
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/FundraisingAmt01880
IRS990/OccupancyGrp/ManagementAndGeneralAmt01880
IRS990/OccupancyGrp/ProgramServicesAmt033840
IRS990/OccupancyGrp/TotalAmt037600
IRS990/OfficeExpensesGrp/TotalAmt00
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0257
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0257
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt04622
IRS990/OtherEmployeeBenefitsGrp/TotalAmt05136
IRS990/OtherExpensesGrp/Desc0ADMINISTRATION
IRS990/OtherExpensesGrp/Desc1Printing and Publications
IRS990/OtherExpensesGrp/Desc2Postage and Shipping
IRS990/OtherExpensesGrp/FundraisingAmt024544
IRS990/OtherExpensesGrp/FundraisingAmt16271
IRS990/OtherExpensesGrp/FundraisingAmt25559
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt08542
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12190
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt21941
IRS990/OtherExpensesGrp/ProgramServicesAmt031407
IRS990/OtherExpensesGrp/ProgramServicesAmt18051
IRS990/OtherExpensesGrp/ProgramServicesAmt27137
IRS990/OtherExpensesGrp/TotalAmt064493
IRS990/OtherExpensesGrp/TotalAmt116512
IRS990/OtherExpensesGrp/TotalAmt214637
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt015068
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt015068
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0271224
IRS990/OtherSalariesAndWagesGrp/TotalAmt0301360
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt01709
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01709
IRS990/PayrollTaxesGrp/ProgramServicesAmt030758
IRS990/PayrollTaxesGrp/TotalAmt034176
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0791519
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0687525
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt022192
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt055287
IRS990/PrincipalOfficerNm0TANYA STEVENSON
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0624100
IRS990/ProgramServiceRevenueGrp/Desc0Conference Registration
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt026106
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt026106
IRS990/ProgSrvcAccomActy2Grp/Desc0Research - We raise additional funds in the private sector in order to accelerate further understanding of the disease through research. MDF supports both clinical and scientific research with a goal of finding a treatment and eventually a cure for this chronic, degenerative disease.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0364004
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0117329
IRS990/ProgSrvcAccomActy3Grp/Desc0Advocacy - In collaboration with other organizations, we are establishing and perpetuating local and regional support groups to offer emotional support and help to educate families about this disease. In addition to providing information about available services, we advocate for increased funding for myotonic dystrophy research and patient support.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0172087
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt01672633
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0501662
IRS990/PYInvestmentIncomeAmt016560
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt01148071
IRS990/PYOtherRevenueAmt0507010
IRS990/PYProgramServiceRevenueAmt075663
IRS990/PYRevenuesLessExpensesAmt023582
IRS990/PYSalariesCompEmpBnftPaidAmt0598551
IRS990/PYTotalExpensesAmt02248284
IRS990/PYTotalRevenueAmt02271866
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0823027
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0true
IRS990/RelatedOrganizationCtrlEntInd0true
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt026106
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt02119320
IRS990/SavingsAndTempCashInvstGrp/EOYAmt03425079
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearAmt0142138
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus1YearAmt0150957
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus2YearsAmt0111543
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus3YearsAmt0148428
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/CurrentTaxYearMinus4YearsAmt016500
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt0569566
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt01987042
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt01671220
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt02080997
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt03016393
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt01551282
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt010306934
IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt06329
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt016560
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt08449
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt03092
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt01686
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt036116
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt026106
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt075663
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt068225
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt0205789
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt035347
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0411130
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt06329
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt016560
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt08449
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt03092
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt01686
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt036116
IRS990ScheduleA/InvestmentIncomeCYPct00.00320
IRS990ScheduleA/InvestmentIncomePYPct00.00270
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearAmt0-71671
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus1YearAmt0507010
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus2YearsAmt025957
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus3YearsAmt012582
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus4YearsAmt046667
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt0520545
IRS990ScheduleA/OtherIncome509Grp/TotalAmt00
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$5.83$1.92$3.91$3.66$3.75$0.09
2023Detailed filing. Detailed filing data is available for this year.$5.47$1.47$4.00$2.45$3.79$1.34
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$6.83$1.49$5.34$2.77$2.51$0.27
2021Detailed filing. Detailed filing data is available for this year.$5.85$0.79$5.06$2.38$1.49$0.89
2020Detailed filing. Detailed filing data is available for this year.$4.49$0.32$4.17$1.95$1.12$0.82
2019Detailed filing. Detailed filing data is available for this year.$3.96$0.61$3.35$2.27$2.25$0.02
2018Detailed filing. Detailed filing data is available for this year.$3.79$0.47$3.32$2.18$2.02$0.16
2017Detailed filing. Detailed filing data is available for this year.$3.29$0.13$3.16$3.24$2.00$1.24
2016Detailed filing. Detailed filing data is available for this year.$2.06$0.14$1.92$1.81$1.97$0.17
2015Detailed filing. Detailed filing data is available for this year.$2.30$0.21$2.09$2.14$1.35$0.79
2014Detailed filing. Detailed filing data is available for this year.$1.64$0.34$1.30$0.73$1.09$0.36
2013Detailed filing. Detailed filing data is available for this year.$2.09$0.43$1.66$1.48$0.99$0.50
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.70$0.54$1.16$1.31
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.89$0.15$1.74$0.74