Liabilities / Assets
59th percentile
Higher debt load relative to assets than 59% of similar nonprofits.
990 • Fiscal year 2022 • EIN 20-4792248
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
59th percentile
Higher debt load relative to assets than 59% of similar nonprofits.
Liabilities / Revenue
61st percentile
Higher debt load relative to revenue than 61% of similar nonprofits.
Net Margin
28th percentile
Higher net margin than 28% of similar nonprofits.
Top Officer Pay
78th percentile
Higher top officer pay than 78% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
44th percentile
Faster asset growth than 44% of similar nonprofits.
Revenue Growth
57th percentile
Faster revenue growth than 57% of similar nonprofits.
Assets
Down$283,966
Down $3,396 (-1.2%) from 2021
Net Assets
Down$283,817
Down $3,545 (-1.2%) from 2021
Liabilities
Up$149
Up $149 from 2021
Revenue
Up$69,500
Up $10,282 (+17%) from 2021
Expenses
Up$75,326
Up $52,792 (+234%) from 2021
Net Income
Down-$5,826
Down $42,510 (-116%) from 2021
To educate the general public, healthcare providers, patients and decision makers on what Neuropathy is and to help Neuropathy patients obtain access to individualized treatments.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $160,319 | $160,361 | ▲ $42 |
| Cash and Non-Interest-Bearing Accounts | $126,859 | $123,605 | ▼ $3,254 |
| Prepaid Expenses and Deferred Charges | $184 | $0 | ▼ $184 |
| Accounts Receivable | - | $0 | - |
| Other Notes and Loans Receivable, Net | - | $0 | - |
| Pledges and Grants Receivable | - | $0 | - |
| Receivable From Disqualified Prsn | - | $0 | - |
| Receivables From Officers Etc | - | $0 | - |
| Investments Other Securities | - | $0 | - |
| Investments Program Related | - | $0 | - |
| Investments in Publicly Traded Securities | - | $0 | - |
| Land, Buildings, and Equipment, Net | - | $0 | - |
| Intangible Assets | - | $0 | - |
| Inventories for Sale or Use | - | $0 | - |
| Total Assets | $287,362 | $283,966 | ▼ $3,396 |
| Other Assets Total | - | $0 | - |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | - | $149 | - |
| Total Liabilities | $0 | $149 | ▲ $149 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $287,362 | $283,817 | ▼ $3,545 |
| Total Net Assets Fund Balance | $287,362 | $283,817 | ▼ $3,545 |
| Total Liabilities and Net Assets / Fund Balance | $287,362 | $283,966 | ▼ $3,396 |
| Name | Title |
|---|---|
| Dominick V Spatafora | President |
| Christopher Buchanan | Director |
| Dustin Corcoran | Director |
| James D Lee JD | Director |
| Richard S Zimmerman MD | Director |
| Sarah J Fullerton | Director |
| Christopher DeSantis | Executive Director |
| Leslie Macgregor Levine | Secretary |
| Kathleen S Creason | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $75,326 |
| Total Fundraising Expense | $7,530 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Management | $6,017 | $1,719 | $859 | $8,595 |
| Advertising | $1,955 | $559 | $279 | $2,793 |
| Occupancy | $1,829 | $523 | $261 | $2,613 |
| Travel | $1,665 | $476 | $238 | $2,379 |
| Fees for Services Accounting | $560 | $160 | $80 | $800 |
| Fees for Services Other | $283 | $81 | $40 | $404 |
| Insurance | $280 | $80 | $40 | $400 |
| Other Expenses | $53 | $15 | $7 | $75 |
| All Other Expenses | $7 | $2 | $1 | $10 |
| Office Expenses | $2 | $1 | - | $3 |
| Total Functional Expenses | $52,729 | $15,067 | $7,530 | $75,326 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Disqualified Persons | - | $0 | - |
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $0 | - |
“Day to day activities including meeting planning, maintaining membership records and website, and correspondence are delegated to the manant company.”
“The management company forwards a copy to the board of directors for review and comment or corrections if necessary before filing.”
“The board of directors and key employees are required to complete an annual conflict of interest disclosure form. The board reviews and potential or actual conflicts and takes any necessary action to resolve the conflict.”
“The board of directors must review and approve any fee changes to the management contract. There are no employees. The original contract fee arrangement has not changed.”
“The organization does make available all governing documents to the general public upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 149 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | To educate the general public, healthcare providers, patients and decision makers on what Neuropathy is and to help Neuropathy patients obtain access to individualized treatments. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 279 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 559 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 1955 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 2793 |
| IRS990/AllOtherContributionsAmt | 0 | 26703 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 1 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 7 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 10 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | false |
| IRS990/BenefitsToMembersGrp/TotalAmt | 0 | 0 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | Medical Association Management |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 7145509155 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1950 Old Tustin Ave |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Santa Ana |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 92705 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 126859 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 123605 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 0 |
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| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
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| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 69458 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 42 |
| IRS990/CYOtherExpensesAmt | 0 | 75326 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -5826 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 75326 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 7530 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 69500 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | true |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 0 |
| IRS990/Desc | 0 | Following a successful five year Multifocal Motor Neuropathy MMN education campaign which resulted in three patient videos, thousands of new grassroots advocates, and over 1 million ad impressions we shifted our educational efforts to Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). In 2021, the Neuropathy Action Foundation conducted and announced the results from an international Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Quality of Life (QOL) Patient Survey. The survey focused on three primary areas: timely and accurate diagnosis, efficacy of treatment, and the impact of the disease on patients quality of life. This survey is important because early and accurate diagnosis can mean the difference between CIDP patients being successfully managed or becoming permanently disabled. Timely treatment can make a big difference in patients lives. The NAF believes these survey results will increase awareness and action among providers, the public and public policy officials. The majority of the 297 participants completing the survey were males (62%) from the United States (88%) with respondents from five other countries contributing to the results. While 70% of respondents reported that they were diagnosed between the ages of 41 and 65 years old, more than 54% of those completing the survey reported that it took more than one year to be accurately diagnosed. The majority of the misdiagnoses were made by Neurologists (60%) and Family Care Providers (21%). These results demonstrated that it is very clear that we need to do a better job at accurately diagnosing these patients. The sooner we can identify CIDP, the sooner we can start individuals on the proper therapy, alleviate their symptoms and improve their lives. When asked about treatment options, 76% reported receiving intravenous immunoglobulin (IVIg) and 11% reported receiving subcutaneous immunoglobulin (SCIg). A reduction in symptoms was reported within three months of their first Ig treatment by 68% of respondents. Only 7% reported that Ig did not help them manage their symptoms. If recommended by their Neurologist, 67% would consider SCIg treatment. Interruptions in treatment due to COVID-19 were experienced by 39% of the respondents. Nearly 30% of all participants stated that CIDP often or always interferes with their employment and 51% said it impacts their quality of life. Loss of balance (51%) and weakness in legs (49%) were the most common symptoms before starting treatment. CIDP has a direct impact the participant's emotional wellbeing. Fatigue was reported by 43% of the respondents. Some 46% reported feeling depressed and 28% of those completing the survey said they had time when they felt hopeless. Feeling embarrassed by their physical limitations was a concern for 49% of respondents. The survey results illustrate the complexity of CIDP and the impact it can have on peoples lives. The good news is that the data also shows that treatment helps many individuals.Other 2021 services provided and accomplishments include:The NAF continued its bi-monthly Patient Voice newsletter.Helped over 175 patients with medication access issues.Answered over 1,000 patient emails/phone calls and either emailed or mailed over 500 informational brochures to patients across the U.S.Continued a Diabetic Peripheral Neuropathy (DPN) awareness campaign in Spanish and English.Through our website (which is constantly updated) and patient brochures the NAF reached millions of patients and interested parties obtain the necessary resources, information and tools to access individualized treatment to improve their quality of life.Continued to partner with numerous state and national coalitions and organizations to ensure individualized care and access to treatments and medications through policy, legislative, grassroots and traditional/social media efforts. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 52729 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 80 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 160 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 560 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 800 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 0 |
| IRS990/FeesForServicesManagementGrp/FundraisingAmt | 0 | 859 |
| IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt | 0 | 1719 |
| IRS990/FeesForServicesManagementGrp/ProgramServicesAmt | 0 | 6017 |
| IRS990/FeesForServicesManagementGrp/TotalAmt | 0 | 8595 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 40 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 81 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 283 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 404 |
| IRS990/FeesForServicesProfFundraising/TotalAmt | 0 | 0 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282FiledCnt | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form8899Filedind | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 11.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.50 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.23 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.23 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Dominick V Spatafora |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Christopher DeSantis |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | James D Lee JD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Dustin Corcoran |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Leslie Macgregor Levine |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Christopher Buchanan |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Richard S Zimmerman MD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Kathleen S Creason |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | Sarah J Fullerton |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Executive Dir. |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Secretary |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Treasurer |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | Director |
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| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 69500 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
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| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 0 |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 40 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 80 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 280 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 400 |
| IRS990/IntangibleAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/InterestGrp/TotalAmt | 0 | 0 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt | 0 | 42 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 42 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsProgramRelatedGrp/EOYAmt | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 0 |
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| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To educate the general public, healthcare providers, patients and decision makers on what Neuropathy is and to help Neuropathy patients obtain access to individualized treatments. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 287362 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 283817 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 0 |
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| IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 0 |
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| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 283817 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
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| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 523 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 1829 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 2613 |
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| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 3 |
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| IRS990/OperateHospitalInd | 0 | false |
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| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | Patient Education/Awareness |
| IRS990/OtherExpensesGrp/Desc | 1 | Utilities |
| IRS990/OtherExpensesGrp/Desc | 2 | Patient Relations & Advocacy |
| IRS990/OtherExpensesGrp/Desc | 3 | Taxes & Licenses |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 5500 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 157 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 68 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 7 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 11000 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 315 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 136 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 15 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 38500 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 1103 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 475 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 53 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 55000 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 1575 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 679 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 75 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 0 |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 0 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PaymentsToAffiliatesGrp/TotalAmt | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 0 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 0 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 0 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 184 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | Dominick V Spatafora |
| IRS990/PriorPeriodAdjustmentsAmt | 0 | 2281 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Auction Items |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | Exhibit Income |
| IRS990/ProgramServiceRevenueGrp/Desc | 2 | Registration |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 55702 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 16 |
| IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 22534 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 3500 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 36684 |
| IRS990/PYTotalExpensesAmt | 0 | 22534 |
| IRS990/PYTotalRevenueAmt | 0 | 59218 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -5826 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/RelatedOrganizationsAmt | 0 | 42755 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RoyaltiesGrp/TotalAmt | 0 | 0 |
| IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 160319 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 160361 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 69458 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 55702 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 112369 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 111852 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 93535 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 442916 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 16 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 23 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 48 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 48 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 135 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 16 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 23 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 48 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 48 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 135 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00030 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00040 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.99970 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.99960 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 442916 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 69458 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 55702 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 112369 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 111852 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 93535 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 442916 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 69458 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 55718 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 112392 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 111900 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 93583 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 443051 |
| IRS990/ScheduleBRequiredInd | 0 | false |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Day to day activities including meeting planning, maintaining membership records and website, and correspondence are delegated to the manant company. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The management company forwards a copy to the board of directors for review and comment or corrections if necessary before filing. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | The board of directors and key employees are required to complete an annual conflict of interest disclosure form. The board reviews and potential or actual conflicts and takes any necessary action to resolve the conflict. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | The board of directors must review and approve any fee changes to the management contract. There are no employees. The original contract fee arrangement has not changed. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | The organization does make available all governing documents to the general public upon request. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part VI, Section A, Line 3 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Section B, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Section B, Line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990, Part VI, Section B, Line 15a |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Form 990, Part VI, Section C, Line 19 |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | CA |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 287362 |
| IRS990/TotalAssetsEOYAmt | 0 | 283966 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 287362 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 283966 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 69458 |
| IRS990/TotalEmployeeCnt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 7530 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 15067 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 52729 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 75326 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 149 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 149 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 287362 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 283817 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 52729 |
| IRS990/TotalProgramServiceRevenueAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 42 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 69500 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 287362 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 283966 |
| IRS990/TravelGrp/FundraisingAmt | 0 | 238 |
| IRS990/TravelGrp/ManagementAndGeneralAmt | 0 | 476 |
| IRS990/TravelGrp/ProgramServicesAmt | 0 | 1665 |
| IRS990/TravelGrp/TotalAmt | 0 | 2379 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
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Displayed year
2022 • Form 990Detailed filing. Detailed filing data is available for this year.