Civic Intelligence

Neuropathy Action Foundation

990 • Fiscal year 2022 • EIN 20-4792248

Jan 01, 2022 to Dec 31, 2022 • Filed on Jul 20, 2023

1950 Old Tustin AvenueSanta Ana, CA 92705

(714) 550-9155

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

59th percentile

0.00x

Higher debt load relative to assets than 59% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Liabilities / Revenue

61st percentile

0.00x

Higher debt load relative to revenue than 61% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Net Margin

28th percentile

-8.4%

Higher net margin than 28% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Top Officer Pay

78th percentile

$0

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

44th percentile

-1.2%

Faster asset growth than 44% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Revenue Growth

57th percentile

17%

Faster revenue growth than 57% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Assets

Down

$283,966

Down $3,396 (-1.2%) from 2021

Net Assets

Down

$283,817

Down $3,545 (-1.2%) from 2021

Liabilities

Up

$149

Up $149 from 2021

Revenue

Up

$69,500

Up $10,282 (+17%) from 2021

Expenses

Up

$75,326

Up $52,792 (+234%) from 2021

Net Income

Down

-$5,826

Down $42,510 (-116%) from 2021

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$400K$300K$200K$100K$0Assets 2011: $187,671Liabilities 2011: $1092011Assets 2012: $247,945Liabilities 2012: $5,7512012Assets 2013: $197,384Liabilities 2013: $02013Assets 2014: $191,695Net Assets 2014: $191,6952014Assets 2015: $197,812Net Assets 2015: $197,8122015Assets 2016: $175,120Net Assets 2016: $175,1202016Assets 2017: $168,885Net Assets 2017: $168,8852017Assets 2018: $179,561Liabilities 2018: $151Net Assets 2018: $179,4102018Assets 2019: $217,122Liabilities 2019: $225Net Assets 2019: $216,8972019Assets 2020: $250,770Liabilities 2020: $92Net Assets 2020: $250,6782020Assets 2021: $287,362Liabilities 2021: $0Net Assets 2021: $287,3622021Assets 2022: $283,966Liabilities 2022: $149Net Assets 2022: $283,8172022Assets 2023: $307,368Liabilities 2023: $402Net Assets 2023: $306,9662023Assets 2024: $347,696Liabilities 2024: $1,909Net Assets 2024: $345,7872024

Highlighted filing

2022

Assets$283,966
Liabilities$149
Net Assets$283,817

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$150K$100K$50K$0-$50KRevenue 2011: $78,011Expenses 2011: $75,426Net Income 2011: $2,5852011Revenue 2012: $138,538Expenses 2012: $83,906Net Income 2012: $54,6322012Revenue 2013: $102,260Expenses 2013: $147,070Net Income 2013: -$44,8102013Revenue 2014: $99,760Expenses 2014: $105,449Net Income 2014: -$5,6892014Revenue 2015: $120,556Expenses 2015: $114,439Net Income 2015: $6,1172015Revenue 2016: $103,703Expenses 2016: $126,413Net Income 2016: -$22,7102016Revenue 2017: $107,482Expenses 2017: $113,931Net Income 2017: -$6,4492017Revenue 2018: $123,323Expenses 2018: $111,997Net Income 2018: $11,3262018Revenue 2019: $111,900Expenses 2019: $78,948Net Income 2019: $32,9522019Revenue 2020: $116,892Expenses 2020: $83,550Net Income 2020: $33,3422020Revenue 2021: $59,218Expenses 2021: $22,534Net Income 2021: $36,6842021Revenue 2022: $69,500Expenses 2022: $75,326Net Income 2022: -$5,8262022Revenue 2023: $54,886Expenses 2023: $31,603Net Income 2023: $23,2832023Revenue 2024: $73,114Expenses 2024: $34,293Net Income 2024: $38,8212024

Highlighted filing

2022

Revenue$69,500
Expenses$75,326
Net Income-$5,826
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Jul 20, 2023
Return Version
2022v5.0
Gross Receipts
$69,500
Mission and Program Overview

Mission

To educate the general public, healthcare providers, patients and decision makers on what Neuropathy is and to help Neuropathy patients obtain access to individualized treatments.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$160,319$160,361▲ $42
Cash and Non-Interest-Bearing Accounts$126,859$123,605▼ $3,254
Prepaid Expenses and Deferred Charges$184$0▼ $184
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$287,362$283,966▼ $3,396
Other Assets Total-$0-
Liabilities
Accounts Payable and Accrued Expenses-$149-
Total Liabilities$0$149▲ $149
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$287,362$283,817▼ $3,545
Total Net Assets Fund Balance$287,362$283,817▼ $3,545
Total Liabilities and Net Assets / Fund Balance$287,362$283,966▼ $3,396
Compensation and Service Providers

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$69,458
Program Service Revenue
$0
Investment Income
$42
Other Revenue
$0
All Other Contributions
$26,703
Change in Net Assets
$-5,826
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$75,326
Total Fundraising Expense$7,530
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$6,017$1,719$859$8,595
Advertising$1,955$559$279$2,793
Occupancy$1,829$523$261$2,613
Travel$1,665$476$238$2,379
Fees for Services Accounting$560$160$80$800
Fees for Services Other$283$81$40$404
Insurance$280$80$40$400
Other Expenses$53$15$7$75
All Other Expenses$7$2$1$10
Office Expenses$2$1-$3
Total Functional Expenses$52,729$15,067$7,530$75,326
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Section A, Line 3

Day to day activities including meeting planning, maintaining membership records and website, and correspondence are delegated to the manant company.

Form 990, Part VI, Section B, Line 11B

The management company forwards a copy to the board of directors for review and comment or corrections if necessary before filing.

Form 990, Part VI, Section B, Line 12C

The board of directors and key employees are required to complete an annual conflict of interest disclosure form. The board reviews and potential or actual conflicts and takes any necessary action to resolve the conflict.

Form 990, Part VI, Section B, Line 15A

The board of directors must review and approve any fee changes to the management contract. There are no employees. The original contract fee arrangement has not changed.

Form 990, Part VI, Section C, Line 19

The organization does make available all governing documents to the general public upon request.

Filing and Contact Details

Filer

Filer Name
Neuropathy Action Foundation
EIN
20-4792248
Phone
7145509155
Address
1950 Old Tustin Avenue, Santa Ana, CA 92705

Signing Officer

Name
Christopher DeSantis
Title
Executive Director
Signed
2023-07-20
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Dominick V Spatafora
Voting Board Members
9
Independent Board Members
9
Employees
0

Preparer

Firm
Russell CPAs
Address
1111 Exposition Blvd Ste 100, Sacramento, CA 95815
Preparer
Jason Russell CPA
Phone
9169669366
Raw XML AppendixShowing 400 of 443 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt0149
IRS990/AccountsReceivableGrp/EOYAmt00
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0To educate the general public, healthcare providers, patients and decision makers on what Neuropathy is and to help Neuropathy patients obtain access to individualized treatments.
IRS990/AdvertisingGrp/FundraisingAmt0279
IRS990/AdvertisingGrp/ManagementAndGeneralAmt0559
IRS990/AdvertisingGrp/ProgramServicesAmt01955
IRS990/AdvertisingGrp/TotalAmt02793
IRS990/AllOtherContributionsAmt026703
IRS990/AllOtherExpensesGrp/FundraisingAmt01
IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt02
IRS990/AllOtherExpensesGrp/ProgramServicesAmt07
IRS990/AllOtherExpensesGrp/TotalAmt010
IRS990/AnnualDisclosureCoveredPrsnInd0true
IRS990/BackupWthldComplianceInd0false
IRS990/BenefitsToMembersGrp/TotalAmt00
IRS990/BooksInCareOfDetail/PersonNm0Medical Association Management
IRS990/BooksInCareOfDetail/PhoneNum07145509155
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt01950 Old Tustin Ave
IRS990/BooksInCareOfDetail/USAddress/CityNm0Santa Ana
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0CA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd092705
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0126859
IRS990/CashNonInterestBearingGrp/EOYAmt0123605
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt00
IRS990/CompDisqualPersonsGrp/TotalAmt00
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0true
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/TotalAmt00
IRS990/ConflictOfInterestPolicyInd0true
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt069458
IRS990/CYGrantsAndSimilarPaidAmt00
IRS990/CYInvestmentIncomeAmt042
IRS990/CYOtherExpensesAmt075326
IRS990/CYOtherRevenueAmt00
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-5826
IRS990/CYSalariesCompEmpBnftPaidAmt00
IRS990/CYTotalExpensesAmt075326
IRS990/CYTotalFundraisingExpenseAmt07530
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt069500
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0true
IRS990/DepreciationDepletionGrp/TotalAmt00
IRS990/Desc0Following a successful five year Multifocal Motor Neuropathy MMN education campaign which resulted in three patient videos, thousands of new grassroots advocates, and over 1 million ad impressions we shifted our educational efforts to Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). In 2021, the Neuropathy Action Foundation conducted and announced the results from an international Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Quality of Life (QOL) Patient Survey. The survey focused on three primary areas: timely and accurate diagnosis, efficacy of treatment, and the impact of the disease on patients quality of life. This survey is important because early and accurate diagnosis can mean the difference between CIDP patients being successfully managed or becoming permanently disabled. Timely treatment can make a big difference in patients lives. The NAF believes these survey results will increase awareness and action among providers, the public and public policy officials. The majority of the 297 participants completing the survey were males (62%) from the United States (88%) with respondents from five other countries contributing to the results. While 70% of respondents reported that they were diagnosed between the ages of 41 and 65 years old, more than 54% of those completing the survey reported that it took more than one year to be accurately diagnosed. The majority of the misdiagnoses were made by Neurologists (60%) and Family Care Providers (21%). These results demonstrated that it is very clear that we need to do a better job at accurately diagnosing these patients. The sooner we can identify CIDP, the sooner we can start individuals on the proper therapy, alleviate their symptoms and improve their lives. When asked about treatment options, 76% reported receiving intravenous immunoglobulin (IVIg) and 11% reported receiving subcutaneous immunoglobulin (SCIg). A reduction in symptoms was reported within three months of their first Ig treatment by 68% of respondents. Only 7% reported that Ig did not help them manage their symptoms. If recommended by their Neurologist, 67% would consider SCIg treatment. Interruptions in treatment due to COVID-19 were experienced by 39% of the respondents. Nearly 30% of all participants stated that CIDP often or always interferes with their employment and 51% said it impacts their quality of life. Loss of balance (51%) and weakness in legs (49%) were the most common symptoms before starting treatment. CIDP has a direct impact the participant's emotional wellbeing. Fatigue was reported by 43% of the respondents. Some 46% reported feeling depressed and 28% of those completing the survey said they had time when they felt hopeless. Feeling embarrassed by their physical limitations was a concern for 49% of respondents. The survey results illustrate the complexity of CIDP and the impact it can have on peoples lives. The good news is that the data also shows that treatment helps many individuals.Other 2021 services provided and accomplishments include:The NAF continued its bi-monthly Patient Voice newsletter.Helped over 175 patients with medication access issues.Answered over 1,000 patient emails/phone calls and either emailed or mailed over 500 informational brochures to patients across the U.S.Continued a Diabetic Peripheral Neuropathy (DPN) awareness campaign in Spanish and English.Through our website (which is constantly updated) and patient brochures the NAF reached millions of patients and interested parties obtain the necessary resources, information and tools to access individualized treatment to improve their quality of life.Continued to partner with numerous state and national coalitions and organizations to ensure individualized care and access to treatments and medications through policy, legislative, grassroots and traditional/social media efforts.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt00
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt052729
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/FundraisingAmt080
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt0160
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt0560
IRS990/FeesForServicesAccountingGrp/TotalAmt0800
IRS990/FeesForServicesLegalGrp/TotalAmt00
IRS990/FeesForServicesLobbyingGrp/TotalAmt00
IRS990/FeesForServicesManagementGrp/FundraisingAmt0859
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt01719
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt06017
IRS990/FeesForServicesManagementGrp/TotalAmt08595
IRS990/FeesForServicesOtherGrp/FundraisingAmt040
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt081
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0283
IRS990/FeesForServicesOtherGrp/TotalAmt0404
IRS990/FeesForServicesProfFundraising/TotalAmt00
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt00
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignGrantsGrp/TotalAmt00
IRS990/ForeignOfficeInd0false
IRS990/Form1098CFiledInd0false
IRS990/Form8282FiledCnt00
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form8899Filedind0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt80.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt011.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt14.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt21.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt30.25
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.50
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt60.23
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt70.23
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt80.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/PersonNm0Dominick V Spatafora
IRS990/Form990PartVIISectionAGrp/PersonNm1Christopher DeSantis
IRS990/Form990PartVIISectionAGrp/PersonNm2James D Lee JD
IRS990/Form990PartVIISectionAGrp/PersonNm3Dustin Corcoran
IRS990/Form990PartVIISectionAGrp/PersonNm4Leslie Macgregor Levine
IRS990/Form990PartVIISectionAGrp/PersonNm5Christopher Buchanan
IRS990/Form990PartVIISectionAGrp/PersonNm6Richard S Zimmerman MD
IRS990/Form990PartVIISectionAGrp/PersonNm7Kathleen S Creason
IRS990/Form990PartVIISectionAGrp/PersonNm8Sarah J Fullerton
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/TitleTxt0President
IRS990/Form990PartVIISectionAGrp/TitleTxt1Executive Dir.
IRS990/Form990PartVIISectionAGrp/TitleTxt2Director
IRS990/Form990PartVIISectionAGrp/TitleTxt3Director
IRS990/Form990PartVIISectionAGrp/TitleTxt4Secretary
IRS990/Form990PartVIISectionAGrp/TitleTxt5Director
IRS990/Form990PartVIISectionAGrp/TitleTxt6Director
IRS990/Form990PartVIISectionAGrp/TitleTxt7Treasurer
IRS990/Form990PartVIISectionAGrp/TitleTxt8Director
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedInd0false
IRS990/FundraisingActivitiesInd0false
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt09
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt00
IRS990/GrantsToDomesticOrgsGrp/TotalAmt00
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0false
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt069500
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt09
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/TotalAmt00
IRS990/InsuranceGrp/FundraisingAmt040
IRS990/InsuranceGrp/ManagementAndGeneralAmt080
IRS990/InsuranceGrp/ProgramServicesAmt0280
IRS990/InsuranceGrp/TotalAmt0400
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/EOYAmt00
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt042
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt042
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/EOYAmt00
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0To educate the general public, healthcare providers, patients and decision makers on what Neuropathy is and to help Neuropathy patients obtain access to individualized treatments.
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0287362
IRS990/NetAssetsOrFundBalancesEOYAmt0283817
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt00
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeFromGamingGrp/TotalRevenueColumnAmt00
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NetRentalIncomeOrLossGrp/TotalRevenueColumnAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0287362
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0283817
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/FundraisingAmt0261
IRS990/OccupancyGrp/ManagementAndGeneralAmt0523
IRS990/OccupancyGrp/ProgramServicesAmt01829
IRS990/OccupancyGrp/TotalAmt02613
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01
IRS990/OfficeExpensesGrp/ProgramServicesAmt02
IRS990/OfficeExpensesGrp/TotalAmt03
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/EOYAmt00
IRS990/OtherEmployeeBenefitsGrp/TotalAmt00
IRS990/OtherExpensesGrp/Desc0Patient Education/Awareness
IRS990/OtherExpensesGrp/Desc1Utilities
IRS990/OtherExpensesGrp/Desc2Patient Relations & Advocacy
IRS990/OtherExpensesGrp/Desc3Taxes & Licenses
IRS990/OtherExpensesGrp/FundraisingAmt05500
IRS990/OtherExpensesGrp/FundraisingAmt1157
IRS990/OtherExpensesGrp/FundraisingAmt268
IRS990/OtherExpensesGrp/FundraisingAmt37
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt011000
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1315
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt2136
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt315
IRS990/OtherExpensesGrp/ProgramServicesAmt038500
IRS990/OtherExpensesGrp/ProgramServicesAmt11103
IRS990/OtherExpensesGrp/ProgramServicesAmt2475
IRS990/OtherExpensesGrp/ProgramServicesAmt353
IRS990/OtherExpensesGrp/TotalAmt055000
IRS990/OtherExpensesGrp/TotalAmt11575
IRS990/OtherExpensesGrp/TotalAmt2679
IRS990/OtherExpensesGrp/TotalAmt375
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/TotalAmt00
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/TotalAmt00
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt0184
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/PrincipalOfficerNm0Dominick V Spatafora
IRS990/PriorPeriodAdjustmentsAmt02281
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/Desc0Auction Items
IRS990/ProgramServiceRevenueGrp/Desc1Exhibit Income
IRS990/ProgramServiceRevenueGrp/Desc2Registration
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt055702
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt016
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt022534
IRS990/PYProgramServiceRevenueAmt03500
IRS990/PYRevenuesLessExpensesAmt036684
IRS990/PYTotalExpensesAmt022534
IRS990/PYTotalRevenueAmt059218
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0-5826
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/RelatedOrganizationsAmt042755
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0160319
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0160361
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt069458
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt055702
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0112369
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0111852
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt093535
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0442916
IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt016
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt023
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt048
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt048
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0135
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt00
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt016
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt023
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt048
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt048
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt0135
IRS990ScheduleA/InvestmentIncomeCYPct00.00030
IRS990ScheduleA/InvestmentIncomePYPct00.00040
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt00
IRS990ScheduleA/OtherIncome509Grp/TotalAmt00
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.99970
IRS990ScheduleA/PublicSupportPY509Pct00.99960
IRS990ScheduleA/PublicSupportTotal509Amt0442916
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt069458
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt055702
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0112369
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0111852
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt093535
IRS990ScheduleA/Total509Grp/TotalAmt0442916
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt069458
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt055718
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0112392
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0111900
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt093583
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt0443051
IRS990/ScheduleBRequiredInd0false
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Day to day activities including meeting planning, maintaining membership records and website, and correspondence are delegated to the manant company.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The management company forwards a copy to the board of directors for review and comment or corrections if necessary before filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The board of directors and key employees are required to complete an annual conflict of interest disclosure form. The board reviews and potential or actual conflicts and takes any necessary action to resolve the conflict.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The board of directors must review and approve any fee changes to the management contract. There are no employees. The original contract fee arrangement has not changed.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4The organization does make available all governing documents to the general public upon request.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, Line 3
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section B, Line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part VI, Section C, Line 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0CA
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0287362
IRS990/TotalAssetsEOYAmt0283966
IRS990/TotalAssetsGrp/BOYAmt0287362
IRS990/TotalAssetsGrp/EOYAmt0283966
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt069458
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt07530
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt015067
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt052729
IRS990/TotalFunctionalExpensesGrp/TotalAmt075326
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt0149
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt0149
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0287362
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0283817
IRS990/TotalProgramServiceExpensesAmt052729
IRS990/TotalProgramServiceRevenueAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt042
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt069500
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0287362
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0283966
IRS990/TravelGrp/FundraisingAmt0238
IRS990/TravelGrp/ManagementAndGeneralAmt0476
IRS990/TravelGrp/ProgramServicesAmt01665
IRS990/TravelGrp/TotalAmt02379
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.48$0.02$3.46$0.73$0.34$0.39
2023Detailed filing. Detailed filing data is available for this year.$3.07$0.00$3.07$0.55$0.32$0.23
2022Detailed filing. Detailed filing data is available for this year.$2.84$0.00$2.84$0.70$0.75$0.06
2021Detailed filing. Detailed filing data is available for this year.$2.87$0.00$2.87$0.59$0.23$0.37
2020Detailed filing. Detailed filing data is available for this year.$2.51$0.00$2.51$1.17$0.84$0.33
2019Detailed filing. Detailed filing data is available for this year.$2.17$0.00$2.17$1.12$0.79$0.33
2018Detailed filing. Detailed filing data is available for this year.$1.80$0.00$1.79$1.23$1.12$0.11
2017Detailed filing. Detailed filing data is available for this year.$1.69$1.69$1.07$1.14$0.06
2016Detailed filing. Detailed filing data is available for this year.$1.75$1.75$1.04$1.26$0.23
2015Detailed filing. Detailed filing data is available for this year.$1.98$1.98$1.21$1.14$0.06
2014Detailed filing. Detailed filing data is available for this year.$1.92$1.92$1.00$1.05$0.06
2013Summary only. Only limited summary data is available for this year.$1.97$0.00$1.02$1.47$0.45
2012Summary only. Only limited summary data is available for this year.$2.48$0.06$1.39$0.84$0.55
2011Summary only. Only limited summary data is available for this year.$1.88$0.00$0.78$0.75$0.03