Liabilities / Assets
56th percentile
Higher debt load relative to assets than 56% of similar nonprofits.
990EZ • Fiscal year 2019 • EIN 20-4792248
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
56th percentile
Higher debt load relative to assets than 56% of similar nonprofits.
Liabilities / Revenue
57th percentile
Higher debt load relative to revenue than 57% of similar nonprofits.
Net Margin
84th percentile
Higher net margin than 84% of similar nonprofits.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
73rd percentile
Faster asset growth than 73% of similar nonprofits.
Revenue Growth
35th percentile
Faster revenue growth than 35% of similar nonprofits.
Assets
Up$217,122
Up $37,561 (+21%) from 2018
Net Assets
Up$216,897
Up $37,487 (+21%) from 2018
Liabilities
Up$225
Up $74 (+49%) from 2018
Revenue
Down$111,900
Down $11,423 (-9.3%) from 2018
Expenses
Down$78,948
Down $33,049 (-30%) from 2018
Net Income
Up$32,952
Up $21,626 (+191%) from 2018
To educate the general public, healthcare providers, patients and decision makers on what Neuropathy is and to help Neuropathy patients obtain access to individualized treatments.
| Description | Grants | Expenses |
|---|---|---|
| The NAFs biggest accomplishment in 2019 was its Digital Army and Email List Acquisition Campaign focusing on Multifocal Motor Neuropathy (MMN). The MMN campaign generated nearly 6,000 new users to the NAF database. The campaign reached over 160,000 unique people and generated nearly 360,000 impressions. The campaign also generated 2,153 new Facebook followers and 335 new Twitter followers. Through email responses and online forms over 100 patients submitted their stories to the NAF. The NAF identified three individuals who agreed to share their personal journeys with MMN on video. The three videos can be viewed at the following links: https://youtu.be/dd1iV8UOFHs, https://youtu.be/YJgWv9nWpK4 and https://youtu.be/dgIaVtq0UA0.Other 2019 activities of the NAF included:The NAF continued its bi-monthly Patient Voice newsletter.Helped over 100 patients with medication access issues. Answered over 600 patient emails/phone calls and either emailed or mailed over 460 informational brochures to patients across the U.S.Continued a Diabetic Peripheral Neuropathy (DPN) digital awareness campaign in Spanish and English. The NAF took a lead role in helping neuropathy community deal with a National IVIG Shortage in 2019. Patients across America receive regular phone calls about their intravenous immunoglobulin (IVIG) treatments. Typically, these calls are to confirm scheduled treatments. However, in 2019, the calls are causing distress by relaying messages such as: "Due to the nationwide IVIG shortage, we need to cancel your appointment" or "You must switch to subcutaneous treatment." This shortage has understandably caused panic among patients who depend on IVIG to function normally and live productive lives. The NAF has heard from 117 neuropathy patients having access issues to IG products. Nearly fifty percent of the communications have been from the states of New Jersey, Massachusetts, California and Colorado, however we have heard from neuropathy patients in 21 total states. The NAF took a lead role in helping bring awareness to the issue as well as helped over 100 patients. Through our website (which is constantly updated) and patient brochures in 2019 the NAF reached millions of patients and interested parties obtain the necessary resources, information and tools to access individualized treatment to improve their quality of life. | - | - |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Dominick V Spatafora | President | PT | $0 | - | - |
| James D Lee JD | Director | - | $0 | - | - |
| Dustin Corcoran | Director | - | $0 | - | - |
| Leslie Macgregor Levine | Secretary | - | $0 | - | - |
| Jeffrey W Ralph MD | Director | - | $0 | - | - |
| Christopher Buchanan | Director | - | $0 | - | - |
| Richard S Zimmerman MD | Director | - | $0 | - | - |
| Kathleen S Creason | Treasurer | - | $0 | - | - |
| Sarah J Metter | Director | - | $0 | - | - |
“Advertising and Promotion $650”
“Office Expenses $150”
“Travel $2802”
“Insurance $1297”
“Patient Education/Awareness $60508”
“Patient Relations & Advocacy $1500”
“Software services $1338”
“Utilities $133”
“Taxes & Licenses $60”
“Accounts Payable and Accrued Expenses - Beginning $151 Accounts Payable and Accrued Expenses - Ending $225”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
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| IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt | 0 | 217122 |
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| IRS990EZ/FundraisingGrossIncomeAmt | 0 | 0 |
| IRS990EZ/GrossReceiptsAmt | 0 | 111900 |
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| IRS990EZ/InfoInScheduleOPartIInd | 0 | X |
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| IRS990EZ/MadeLoansToFromOfficersInd | 0 | false |
| IRS990EZ/MethodOfAccountingCashInd | 0 | X |
| IRS990EZ/NetAssetsOrFundBalancesBOYAmt | 0 | 179410 |
| IRS990EZ/NetAssetsOrFundBalancesEOYAmt | 0 | 216897 |
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| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 8 | 0 |
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| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 1 | James D Lee JD |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 2 | Dustin Corcoran |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 3 | Leslie Macgregor Levine |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 4 | Jeffrey W Ralph MD |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 5 | Christopher Buchanan |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 6 | Richard S Zimmerman MD |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 7 | Kathleen S Creason |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 8 | Sarah J Metter |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 0 | President |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 1 | Director |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 2 | Director |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 3 | Secretary |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 4 | Director |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 5 | Director |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 6 | Director |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 7 | Treasurer |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 8 | Director |
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| IRS990EZ/Organization501c3Ind | 0 | X |
| IRS990EZ/OrganizationDissolvedEtcInd | 0 | false |
| IRS990EZ/OrganizationHadUBIInd | 0 | false |
| IRS990EZ/OtherChangesInNetAssetsAmt | 0 | 4535 |
| IRS990EZ/OtherExpensesTotalAmt | 0 | 68438 |
| IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt | 0 | NONE |
| IRS990EZ/PartVIOfCompOfHghstPdEmplTxt | 0 | NONE |
| IRS990EZ/PoliticalCampaignActyInd | 0 | false |
| IRS990EZ/PrimaryExemptPurposeTxt | 0 | To educate the general public, healthcare providers, patients and decision makers on what Neuropathy is and to help Neuropathy patients obtain access to individualized treatments. |
| IRS990EZ/PrintingPublicationsPostageAmt | 0 | 368 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | The NAFs biggest accomplishment in 2019 was its Digital Army and Email List Acquisition Campaign focusing on Multifocal Motor Neuropathy (MMN). The MMN campaign generated nearly 6,000 new users to the NAF database. The campaign reached over 160,000 unique people and generated nearly 360,000 impressions. The campaign also generated 2,153 new Facebook followers and 335 new Twitter followers. Through email responses and online forms over 100 patients submitted their stories to the NAF. The NAF identified three individuals who agreed to share their personal journeys with MMN on video. The three videos can be viewed at the following links: https://youtu.be/dd1iV8UOFHs, https://youtu.be/YJgWv9nWpK4 and https://youtu.be/dgIaVtq0UA0.Other 2019 activities of the NAF included:The NAF continued its bi-monthly Patient Voice newsletter.Helped over 100 patients with medication access issues. Answered over 600 patient emails/phone calls and either emailed or mailed over 460 informational brochures to patients across the U.S.Continued a Diabetic Peripheral Neuropathy (DPN) digital awareness campaign in Spanish and English. The NAF took a lead role in helping neuropathy community deal with a National IVIG Shortage in 2019. Patients across America receive regular phone calls about their intravenous immunoglobulin (IVIG) treatments. Typically, these calls are to confirm scheduled treatments. However, in 2019, the calls are causing distress by relaying messages such as: "Due to the nationwide IVIG shortage, we need to cancel your appointment" or "You must switch to subcutaneous treatment." This shortage has understandably caused panic among patients who depend on IVIG to function normally and live productive lives. The NAF has heard from 117 neuropathy patients having access issues to IG products. Nearly fifty percent of the communications have been from the states of New Jersey, Massachusetts, California and Colorado, however we have heard from neuropathy patients in 21 total states. The NAF took a lead role in helping bring awareness to the issue as well as helped over 100 patients. Through our website (which is constantly updated) and patient brochures in 2019 the NAF reached millions of patients and interested parties obtain the necessary resources, information and tools to access individualized treatment to improve their quality of life. |
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| IRS990EZ/ScheduleBNotRequiredInd | 0 | X |
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| IRS990EZ/SpecialEventsDirectExpensesAmt | 0 | 0 |
| IRS990EZ/SubjectToProxyTaxInd | 0 | false |
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| IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt | 0 | 225 |
| IRS990EZ/TanningServicesProvidedInd | 0 | false |
| IRS990EZ/TaxImposedOnOrganizationMgrAmt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4911Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4912Amt | 0 | 0 |
| IRS990EZ/TaxImposedUnderIRC4955Amt | 0 | 0 |
| IRS990EZ/TaxReimbursedByOrganizationAmt | 0 | 0 |
| IRS990EZ/TotalExpensesAmt | 0 | 78948 |
| IRS990EZ/TotalRevenueAmt | 0 | 111900 |
| IRS990EZ/TransactionWithControlEntInd | 0 | false |
| IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990EZ/WebsiteAddressTxt | 0 | www.neuropathyaction.org |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 111852 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 93535 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 81355 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 72437 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 72126 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 431305 |
| IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 48 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 48 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 47 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 51 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 70 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 264 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 48 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt | 0 | 48 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt | 0 | 47 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt | 0 | 51 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt | 0 | 70 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 264 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00060 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00060 |
| IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/Post1975UBTIGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.99940 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.99940 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 431305 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 111852 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 93535 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 81355 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 72437 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 72126 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 431305 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 111900 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 93583 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 81402 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 72488 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 72196 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 431569 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Advertising and Promotion $650 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Office Expenses $150 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | Travel $2802 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Insurance $1297 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | Patient Education/Awareness $60508 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | Patient Relations & Advocacy $1500 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | Software services $1338 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 7 | Utilities $133 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 8 | Taxes & Licenses $60 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 9 | Accounts Payable and Accrued Expenses - Beginning $151 Accounts Payable and Accrued Expenses - Ending $225 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Other Expenses.1001 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Other Expenses.1002 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Other Expenses.1005 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Other Expenses.1012 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Other Expenses.1 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | Other Expenses.2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | Other Expenses.3 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 7 | Other Expenses.5 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 8 | Other Expenses.6 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 9 | Total Liabilities.1001 |
| ReturnHeader/BuildTS | 0 | 2021-01-29 14:40:06Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Christopher DeSantis |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Executive Director |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2020-05-13 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | Neuropathy Action Foundation |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | NEUR |
| ReturnHeader/Filer/EIN | 0 | 204792248 |
| ReturnHeader/Filer/PhoneNum | 0 | 7145509155 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 1950 Old Tustin Avenue |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Santa Ana |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | CA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 92705 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 364750860 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | Russell CPAs |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 1111 Exposition Blvd Building 100 |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | Sacramento |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | CA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 95815 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 9169669366 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | Jason Russell CPA |
| ReturnHeader/ReturnTs | 0 | 2020-05-13T07:51:01-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2019-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2019-12-31 |
| ReturnHeader/TaxYr | 0 | 2019 |
No mirrored PDF or thumbnail assets are attached yet.
Displayed year
2019 • Form 990EZDetailed filing. Detailed filing data is available for this year.