Civic Intelligence

Neuropathy Action Foundation

990EZ • Fiscal year 2018 • EIN 20-4792248

Jan 01, 2018 to Dec 31, 2018 • Filed on May 08, 2019

Organization Profilewww.neuropathyaction.org
1950 Old Tustin AvenueSanta Ana, CA 92705

(714) 550-9155

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.00x

Higher debt load relative to assets than 58% of similar nonprofits.

2018 filings • 501(c)3 • <$500k nonprofits • Source year 2018

Liabilities / Revenue

58th percentile

0.00x

Higher debt load relative to revenue than 58% of similar nonprofits.

2018 filings • 501(c)3 • <$500k nonprofits • Source year 2018

Net Margin

62nd percentile

9.2%

Higher net margin than 62% of similar nonprofits.

2018 filings • 501(c)3 • <$500k nonprofits • Source year 2018

Top Officer Pay

81st percentile

$12,000

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 9.7% of source-year revenue.

2018 filings • 501(c)3 • <$500k nonprofits • Source year 2018

Asset Growth

58th percentile

6.3%

Faster asset growth than 58% of similar nonprofits.

2018 filings • 501(c)3 • <$500k nonprofits • Annualized from 2017 to 2018

Revenue Growth

68th percentile

15%

Faster revenue growth than 68% of similar nonprofits.

2018 filings • 501(c)3 • <$500k nonprofits • Annualized from 2017 to 2018

Balance Sheet
Liabilities / Assets58th percentile

Assets

Up

$179,561

Up $10,676 (+6.3%) from 2017

Net Assets

Up

$179,410

Up $10,525 (+6.2%) from 2017

Liabilities

$151

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / Revenue58th percentileNet Margin62nd percentile

Revenue

Up

$123,323

Up $15,841 (+15%) from 2017

Expenses

Down

$111,997

Down $1,934 (-1.7%) from 2017

Net Income

Up

$11,326

Up $17,775 (+276%) from 2017

Historical Trend

Balance Sheet Trend

Asset Growth58th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$400K$300K$200K$100K$0Assets 2011: $187,671Liabilities 2011: $1092011Assets 2012: $247,945Liabilities 2012: $5,7512012Assets 2013: $197,384Liabilities 2013: $02013Assets 2014: $191,695Net Assets 2014: $191,6952014Assets 2015: $197,812Net Assets 2015: $197,8122015Assets 2016: $175,120Net Assets 2016: $175,1202016Assets 2017: $168,885Net Assets 2017: $168,8852017Assets 2018: $179,561Liabilities 2018: $151Net Assets 2018: $179,4102018Assets 2019: $217,122Liabilities 2019: $225Net Assets 2019: $216,8972019Assets 2020: $250,770Liabilities 2020: $92Net Assets 2020: $250,6782020Assets 2021: $287,362Liabilities 2021: $0Net Assets 2021: $287,3622021Assets 2022: $283,966Liabilities 2022: $149Net Assets 2022: $283,8172022Assets 2023: $307,368Liabilities 2023: $402Net Assets 2023: $306,9662023Assets 2024: $347,696Liabilities 2024: $1,909Net Assets 2024: $345,7872024

Highlighted filing

2018

Assets$179,561
Liabilities$151
Net Assets$179,410
Open 2018 Filing

Operations Trend

Revenue Growth68th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$150K$100K$50K$0-$50KRevenue 2011: $78,011Expenses 2011: $75,426Net Income 2011: $2,5852011Revenue 2012: $138,538Expenses 2012: $83,906Net Income 2012: $54,6322012Revenue 2013: $102,260Expenses 2013: $147,070Net Income 2013: -$44,8102013Revenue 2014: $99,760Expenses 2014: $105,449Net Income 2014: -$5,6892014Revenue 2015: $120,556Expenses 2015: $114,439Net Income 2015: $6,1172015Revenue 2016: $103,703Expenses 2016: $126,413Net Income 2016: -$22,7102016Revenue 2017: $107,482Expenses 2017: $113,931Net Income 2017: -$6,4492017Revenue 2018: $123,323Expenses 2018: $111,997Net Income 2018: $11,3262018Revenue 2019: $111,900Expenses 2019: $78,948Net Income 2019: $32,9522019Revenue 2020: $116,892Expenses 2020: $83,550Net Income 2020: $33,3422020Revenue 2021: $59,218Expenses 2021: $22,534Net Income 2021: $36,6842021Revenue 2022: $69,500Expenses 2022: $75,326Net Income 2022: -$5,8262022Revenue 2023: $54,886Expenses 2023: $31,603Net Income 2023: $23,2832023Revenue 2024: $73,114Expenses 2024: $34,293Net Income 2024: $38,8212024

Highlighted filing

2018

Revenue$123,323
Expenses$111,997
Net Income$11,326
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
May 8, 2019
Return Version
2018v3.1
Gross Receipts
$123,323
Mission and Program Overview

Mission

To educate the general public, healthcare providers, patients and decision makers on what neuropathy is and to helping neuropathy patients obtain access to individualized treatments.

To educate the general public, healthcare providers, patients and decision makers on what Neuropathy is and to help Neuropathy patients obtain access to individualized treatments.

Program Services

DescriptionGrantsExpenses
The NAF held its 11th annual "Neuropathy Action Awareness Day" which provided an opportunity for patients to interact with other patients, physicians and exhibitors. Over 200 Neuropathy patients/caretakers attended this event in person and over 1,000 watched the event live via the latest live streaming technology to learn aboutneuropathy and to promote awareness of this disease. Other 2018 accomplishmentsinclude:The NAF created and released a Continuity of Care Policy Principles and Priorities brochure.The NAF continued its bi-monthly Patient Voice newsletter.Helped over 100 patients with access issues obtaining IVIG and othermedications.Held the largest neuropathy education event in the U.S. annually called the "Neuropathy Action Awareness Day." For the past twelve years thousands have attended in person and thousands more have watched on the NAF website.The NAF conducted a Diabetic Peripheral Neuropathy (DPN) National survey and released the results. Nearly 1,000 patients responded to the survey.The NAF continued its DPN awareness campaign and released awareness posters in both Spanish and English which were distributed to provider offices throughout the U.S.The NAF released a Financial Assistant Programs Patient Guide.The NAF created and released a Continuity of Care Policy Principles and Priorities brochure.The NAF continued its bi-monthly Patient Voice newsletter.When it comes to treating the over 100 different types of neuropathy, out-of-pocket costs can put medications out of reach for some patients. Worse, pharmacy benefit companies increasingly are restricting the list of drugs they will cover, leaving patients to pay the full cost of the medication they need. Consider, too, that neuropathy is a chronic disease, often requiring ongoing treatment. It's no wonder why the NAF receives so many calls from patients worried about access to their medications. To this end, the NAF created a patient brochure that lists various assistance programs that we help will allow patients to continue or obtain needed treatments and medications. The brochure is titled: Financial Assistance Programs for IVIG and Other Medications.In 2017, the NAF released the results of a national Diabetic Peripheral Neuropathy (DPN) patient Quality of Life (QOL) survey. Out of 978 total survey responses the majority of patients reported that they were misdiagnosed multiple times before they were accurately diagnosed with DPN (59%). More than 52% reported that it took more than a year to be accurately diagnosed. Of these individuals, more than 49% reported that it took over two years to be accurately diagnosed. The majority of survey respondents reported that they currently experience nerve pain (64%). Given these results the NAF launched a poster in both English and Spanish in 2018 to be hung in providers' offices in hopes of bringing awareness to this disease. The posters can also be found on the NAF website. Our goal is to bring additional awareness to DPN and help the general public better recognize the symptoms and warning signs of DPN. We also hope the flyer sheds light on the importance for patients to have meaningful conversations with their health care providers about how to better recognize and manage DPN symptoms.--
Through our website and patient brochures in 2018 the NAF reached millions ofpatients and interested parties obtain the necessary resources, information andtools to access individualized treatment to improve their quality of life. The NAFalso increased awareness among physicians, appropriate institutions, the generalpublic and public policy officials that neuropathy can potentially be a serious,widespread and disabling condition, which may be treatable when appropriatemedical care is provided. Other 2017 accomplishments include:The NAF presented poster board sessions of our MMN International QOL Surveys at the American Academy of Neurology (AAN) annual meeting in Boston as well as the Peripheral Nerve Society (PNS) annual meeting in Spain.The NAF conducted a Diabetic Peripheral Neuropathy (DPN) National survey and released the results. Nearly 1,000 patients responded to the survey.The NAF continued its DPN awareness campaign and released awareness posters in both Spanish and English which were distributed to provider offices throughout the U.S.The NAF released a Financial Assistant Programs Patient Guide.The NAF created and released a Continuity of Care Policy Principles and Priorities brochure.The NAF continued its bi-monthly Patient Voice newsletter.--
Compensation and Service Providers
Top Officer Pay81st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Dominick V SpataforaPresidentPT$12,000-$12,000
James D Lee JDDirector-$0--
Dustin CorcoranDirector-$0--
Leslie Macgregor LevineSecretary-$0--
Jeffrey W Ralph MDDirector-$0--
Christopher BuchananDirector-$0--
Richard S Zimmerman MDDirector-$0--
Kathleen S CreasonTreasurer-$0--
Sarah J MetterDirector-$0--
Filing and Contact Details

Filer

Filer Name
Neuropathy Action Foundation
EIN
20-4792248
Phone
7145509155
Address
1950 Old Tustin Avenue, Santa Ana, CA 92705

Signing Officer

Name
Christopher DeSantis
Title
Executive Director
Signed
2019-05-08
Discuss with paid preparer
Yes

Preparer

Firm
Russell CPAs
Address
1111 Exposition Blvd Building 100, Sacramento, CA 95815
Preparer
Jason Russell CPA
Phone
9169669366
Supplemental Narrative

Additional Explanations

Other Expenses.1001

“Advertising and Promotion $5439”

Other Expenses.1002

“Office Expenses $268”

Other Expenses.1005

“Travel $2452”

Other Expenses.1007

“Conferences, Conventions, and Meetings $33310”

Other Expenses.1

“Patient Education/Awareness $35263”

Other Expenses.2

“Patient Relations & Advocacy $12500”

Other Expenses.3

“Internet services $1941”

Other Expenses.5

“Board Meetings $1037”

Other Expenses.7

“Dues & Subscriptions $250”

Other Expenses.8

“Taxes & Licenses $80”

Total Liabilities.1001

“Accounts Payable and Accrued Expenses - Beginning $0 Accounts Payable and Accrued Expenses - Ending $151”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0The NAF held its 11th annual "Neuropathy Action Awareness Day" which provided an opportunity for patients to interact with other patients, physicians and exhibitors. Over 200 Neuropathy patients/caretakers attended this event in person and over 1,000 watched the event live via the latest live streaming technology to learn aboutneuropathy and to promote awareness of this disease. Other 2018 accomplishmentsinclude:The NAF created and released a Continuity of Care Policy Principles and Priorities brochure.The NAF continued its bi-monthly Patient Voice newsletter.Helped over 100 patients with access issues obtaining IVIG and othermedications.Held the largest neuropathy education event in the U.S. annually called the "Neuropathy Action Awareness Day." For the past twelve years thousands have attended in person and thousands more have watched on the NAF website.The NAF conducted a Diabetic Peripheral Neuropathy (DPN) National survey and released the results. Nearly 1,000 patients responded to the survey.The NAF continued its DPN awareness campaign and released awareness posters in both Spanish and English which were distributed to provider offices throughout the U.S.The NAF released a Financial Assistant Programs Patient Guide.The NAF created and released a Continuity of Care Policy Principles and Priorities brochure.The NAF continued its bi-monthly Patient Voice newsletter.When it comes to treating the over 100 different types of neuropathy, out-of-pocket costs can put medications out of reach for some patients. Worse, pharmacy benefit companies increasingly are restricting the list of drugs they will cover, leaving patients to pay the full cost of the medication they need. Consider, too, that neuropathy is a chronic disease, often requiring ongoing treatment. It's no wonder why the NAF receives so many calls from patients worried about access to their medications. To this end, the NAF created a patient brochure that lists various assistance programs that we help will allow patients to continue or obtain needed treatments and medications. The brochure is titled: Financial Assistance Programs for IVIG and Other Medications.In 2017, the NAF released the results of a national Diabetic Peripheral Neuropathy (DPN) patient Quality of Life (QOL) survey. Out of 978 total survey responses the majority of patients reported that they were misdiagnosed multiple times before they were accurately diagnosed with DPN (59%). More than 52% reported that it took more than a year to be accurately diagnosed. Of these individuals, more than 49% reported that it took over two years to be accurately diagnosed. The majority of survey respondents reported that they currently experience nerve pain (64%). Given these results the NAF launched a poster in both English and Spanish in 2018 to be hung in providers' offices in hopes of bringing awareness to this disease. The posters can also be found on the NAF website. Our goal is to bring additional awareness to DPN and help the general public better recognize the symptoms and warning signs of DPN. We also hope the flyer sheds light on the importance for patients to have meaningful conversations with their health care providers about how to better recognize and manage DPN symptoms.
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ReturnHeader/BuildTS02019-02-21 02:37:17Z
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ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Russell CPAs
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt01111 Exposition Blvd Building 100
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Sacramento
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd095815
ReturnHeader/PreparerPersonGrp/PhoneNum09169669366
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Jason Russell CPA
ReturnHeader/ReturnTs02019-05-08T15:46:02-07:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02018-01-01
ReturnHeader/TaxPeriodEndDt02018-12-31
ReturnHeader/TaxYr02018

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Filings

Displayed year

2018 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$179,561
Liabilities
$151
Net assets
$179,410
Revenue
$123,323
Expenses
$111,997
Net income
$11,326
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.48$0.02$3.46$0.73$0.34$0.39
2023Detailed filing. Detailed filing data is available for this year.$3.07$0.00$3.07$0.55$0.32$0.23
2022Detailed filing. Detailed filing data is available for this year.$2.84$0.00$2.84$0.70$0.75$0.06
2021Detailed filing. Detailed filing data is available for this year.$2.87$0.00$2.87$0.59$0.23$0.37
2020Detailed filing. Detailed filing data is available for this year.$2.51$0.00$2.51$1.17$0.84$0.33
2019Detailed filing. Detailed filing data is available for this year.$2.17$0.00$2.17$1.12$0.79$0.33
2018Detailed filing. Detailed filing data is available for this year.$1.80$0.00$1.79$1.23$1.12$0.11
2017Detailed filing. Detailed filing data is available for this year.$1.69$1.69$1.07$1.14$0.06
2016Detailed filing. Detailed filing data is available for this year.$1.75$1.75$1.04$1.26$0.23
2015Detailed filing. Detailed filing data is available for this year.$1.98$1.98$1.21$1.14$0.06
2014Detailed filing. Detailed filing data is available for this year.$1.92$1.92$1.00$1.05$0.06
2013Summary only. Only limited summary data is available for this year.$1.97$0.00$1.02$1.47$0.45
2012Summary only. Only limited summary data is available for this year.$2.48$0.06$1.39$0.84$0.55
2011Summary only. Only limited summary data is available for this year.$1.88$0.00$0.78$0.75$0.03