Civic Intelligence

C & S Patient Education Foundation

990 • Fiscal year 2025 • EIN 20-0904691

Jan 01, 2025 to Dec 31, 2025

Organization ProfileWWW.CONQUERCHIARI.ORG
320 Osprey CourtWexford, PA 15090

(724) 940-0116

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

64th percentile

0.06x

Higher debt load relative to assets than 64% of similar nonprofits.

2025 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2025

Liabilities / Revenue

70th percentile

0.09x

Higher debt load relative to revenue than 70% of similar nonprofits.

2025 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2025

Net Margin

53rd percentile

5.8%

Higher net margin than 53% of similar nonprofits.

2025 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2025

Top Officer Pay

91st percentile

$119,077

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 28.5% of source-year revenue.

2025 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2025

Asset Growth

65th percentile

10.0%

Faster asset growth than 65% of similar nonprofits.

2025 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2024 to 2025

Revenue Growth

34th percentile

-2.2%

Faster revenue growth than 34% of similar nonprofits.

2025 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2024 to 2025

Balance Sheet
Liabilities / Assets64th percentile

Assets

Up

$687,733

Up $146,374 (+27%) from 2023

Net Assets

Up

$648,460

Up $123,050 (+23%) from 2023

Liabilities

Up

$39,273

Up $23,324 (+146%) from 2023

Revenue And Expenses
Liabilities / Revenue70th percentileNet Margin53rd percentile

Revenue

Up

$417,470

Up $17,897 (+4.5%) from 2023

Expenses

Up

$393,060

Up $2,862 (+0.7%) from 2023

Net Income

Up

$24,410

Up $15,035 (+160%) from 2023

Historical Trend

Balance Sheet Trend

Asset Growth65th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2011: $593,236Liabilities 2011: $17,523Net Assets 2011: $575,7132011Assets 2012: $606,282Liabilities 2012: $2,932Net Assets 2012: $603,3502012Assets 2013: $613,891Liabilities 2013: $71,676Net Assets 2013: $542,2152013Assets 2014: $899,436Liabilities 2014: $103,534Net Assets 2014: $795,9022014Assets 2015: $549,636Liabilities 2015: $0Net Assets 2015: $549,6362015Assets 2016: $444,699Liabilities 2016: $0Net Assets 2016: $444,6992016Assets 2017: $352,979Liabilities 2017: $56,997Net Assets 2017: $295,9822017Assets 2018: $403,597Liabilities 2018: $0Net Assets 2018: $403,5972018Assets 2019: $403,962Liabilities 2019: $0Net Assets 2019: $403,9622019Assets 2020: $453,273Liabilities 2020: $0Net Assets 2020: $453,2732020Assets 2021: $650,152Liabilities 2021: $0Net Assets 2021: $650,1522021Assets 2022: $535,451Liabilities 2022: $19,416Net Assets 2022: $516,0352022Assets 2023: $541,359Liabilities 2023: $15,949Net Assets 2023: $525,4102023Assets 2025: $687,733Liabilities 2025: $39,273Net Assets 2025: $648,4602025

Highlighted filing

2025

Assets$687,733
Liabilities$39,273
Net Assets$648,460
Open 2025 Filing

Operations Trend

Revenue Growth34th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2011: $427,692Expenses 2011: $409,404Net Income 2011: $18,2882011Revenue 2012: $611,699Expenses 2012: $584,062Net Income 2012: $27,6372012Revenue 2013: $562,074Expenses 2013: $623,209Net Income 2013: -$61,1352013Revenue 2014: $762,744Expenses 2014: $509,057Net Income 2014: $253,6872014Revenue 2015: $607,953Expenses 2015: $854,219Net Income 2015: -$246,2662015Revenue 2016: $595,029Expenses 2016: $650,183Net Income 2016: -$55,1542016Revenue 2017: $557,837Expenses 2017: $626,617Net Income 2017: -$68,7802017Revenue 2018: $482,270Expenses 2018: $374,655Net Income 2018: $107,6152018Revenue 2019: $460,908Expenses 2019: $460,543Net Income 2019: $3652019Revenue 2020: $383,634Expenses 2020: $334,323Net Income 2020: $49,3112020Revenue 2021: $503,852Expenses 2021: $306,973Net Income 2021: $196,8792021Revenue 2022: $421,843Expenses 2022: $555,960Net Income 2022: -$134,1172022Revenue 2023: $399,573Expenses 2023: $390,198Net Income 2023: $9,3752023Revenue 2025: $417,470Expenses 2025: $393,060Net Income 2025: $24,4102025

Highlighted filing

2025

Revenue$417,470
Expenses$393,060
Net Income$24,410
Open 2025 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2025 to Dec 31, 2025
Signed
Mar 9, 2026
Return Version
2025v4.0
Gross Receipts
$480,116
Mission and Program Overview

Mission

The organization is dedicated to improving the experiences and outcomes of chiari and syringomelia patients by: 1.providing accurate, up-to-date, and easy to understand information to patients so that they can take control of their health care and make intelligent,informed decisions. 2. Raising awareness among family, friends, and the general public so that they can better understand what patients are going through and are better able to provide support. 3.raising awareness among, and providing accruate, up-to-date information to the medical community, so that errors in diagnosis and treatment are reduced. 4.sponsoring research to advance the understanding of these conditions and in the end conquer chiari.

Since our inception, we have made tremendous strides towards the goal of conquering chiari, includng:1.serving as a resource for information on chiari and related topics via our website (www.conquerchiari.org) and various publications. 2. Sponsoring research for chiari via our conquer chiari research conference and the conquer chiari research center located at the university of akron, in which grants for research projects focus on improving diagnostics, assessing the cognitive effects of chiari, genetic research, and other critical areas. 3. Promoting awareness through our conquer chiari walk across america, which is an annual fundraising event consisting of a series of walks held across the country on the same day.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$609,356$678,471▲ $69,115
Land, Buildings, and Equipment, Net$15,137$9,082▼ $6,055
Pledges and Grants Receivable$925$180▼ $745
Total Assets$625,418$687,733▲ $62,315
Liabilities
Grants Payable$0$32,585▲ $32,585
Accounts Payable and Accrued Expenses$1,368$6,688▲ $5,320
Total Liabilities$1,368$39,273▲ $37,905
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$601,133$648,460▲ $47,327
Net Assets With Donor Restrictions$22,917$0▼ $22,917
Total Net Assets Fund Balance$624,050$648,460▲ $24,410
Total Liabilities and Net Assets / Fund Balance$625,418$687,733▲ $62,315

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$9,082$9,082$18,164
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Richard LabudaExecutive Director, SecretFT$108,000$11,077$119,077

Board Members and Trustees

NameTitle
Richard KushnerPresident, Board Member
David LeeVice President, Board Memb
Blaise NwotchouangBoard Member
Mark TomczakTreasurer, Board Member
Revenue and Support

Revenue Composition

Contributions and Grants
$425,093
Program Service Revenue
$1,356
Investment Income
$15,441
Other Revenue
$-24,420
All Other Contributions
$207,927
Change in Net Assets
$24,410

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table137$11,475Donor Value
Other Non Cash Contri Table29$9,753Estimated Value
Other Non Cash Contri Table71$4,950Face Value
Other Non Cash Contri Table9$2,550Similiar Services
Total Noncash Contributions246$28,728-

Audited Revenue Reconciliation

Revenue per Audited Statements
$417,470
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$62,646
Total Revenue per Audited Statements
$480,116
Total Revenue per Form 990
$417,470
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$183,828
Other Expenses$137,800
Total Fundraising Expense$111,024
Grants and Similar Amounts Paid$71,432
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$72,350$15,676$67,602$155,628
Grants to Domestic Orgs$71,432--$71,432
Fees for Services Other$58,070$559$6,404$65,033
Fees for Services Legal$671$17,029-$17,700
Other Employee Benefits$7,409$1,605$6,923$15,937
Payroll Taxes$5,701$1,235$5,327$12,263
Information Technology$5,197$3,203$3,173$11,573
Fees for Services Accounting-$9,970-$9,970
Depreciation Depletion--$6,055$6,055
Insurance-$3,030-$3,030
Other Expenses$3,228$253$1,736$1,989
Total Functional Expenses$224,058$57,978$111,024$393,060

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$455,706
Expenses per Audited Statements$393,060
Total Expenses per Form 990$393,060
Expenses Not Reported on Form 990$62,646
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of AkronAkron, OH501(c)(3)ONGOING BUDGET FOR CONQUER CHIARI RESEARCH CENTER, ESTABLISH "CHIARI 1000", TARGETING SYRINX$38,879
Northeastern UniversityBoston, MA501(c)(3)Researching a Novel Hypothesis for the Pathophysiology for Adult Cmi.$32,585
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$62,646
Fundraising Gross Income$38,226
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk Across America$255,392$38,226$62,646$-24,420
Total Events$255,392$38,226$62,646$-24,420
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization distributes a draft 990 to all board directors and the executive director via email. If necessary, discussion is undertaken via email or by meeting if so desired by any director. A vote is then taken to affirmatively adopt and file the 990. At the next official board meeting, the minutes reflect the adoption of the 990.”

Form 990, Part VI, Section B, Line 12C

“The volunteer coordinator is responsible for distributing and collecting signed conflict disclosure statements annually.”

Form 990, Part VI, Section B, Line 15A

“The compensation committee meets to review the performance of the executive director and volunteer coordinator. The compensation committee chair seeks input from the other directors and the executive director regarding accomplishments. The committee establishes an annual performance bonus, if so earned, and salary for the following year. Salary and bonuses are based in part on the size of the organization in revenue and comparable executive directors' salaries at similar sized organizations. The compensation committee's recommendation is made at the following board meeting and voted on by the board. Minutes from the compensation committee's meeting are entered into the record.”

Form 990, Part VI, Section C, Line 19

“Form 990 and the 501(c)(3)determination letter are available on the website. Audited financials and policies are included in the annual report which is posted on the website.”

Filing and Contact Details

Filer

Filer Name
C & S Patient Education Foundation
EIN
20-0904691
Phone
7249400116
Address
320 OSPREY COURT, WEXFORD, PA 15090
Doing Business As
Conquer Chiari

Signing Officer

Name
Richard Labuda
Title
Executive Director
Phone
7249400116
Signed
2026-03-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Richard Labuda
Formed
2004
Legal Domicile
Pa
Voting Board Members
5
Independent Board Members
4
Employees
2
Volunteers
150

Preparer

Firm
Grossman Yanak & Ford Llp
Address
444 LIBERTY AVENUE SUITE 500, PITTSBURGH, PA 15222
Preparer
Richard E Dynoske
Phone
4123389300
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Other professional services: program service expenses 38,070. Management and general expenses 559. Fundraising expenses 6,404. Total expenses 45,033. Independent contractors - research: program service expenses 20,000. Management and general expenses 0. Fundraising expenses 0. Total expenses 20,000.”

Financial Statement Notes

PART X, LINE 2:

“The foundation is exempt from federal income taxes under section 501(c)(3) of the internal revenue code and applicable state law. Management believes that there is no liability related to uncertain tax positions at december 31, 2025. The foundation is no longer subject to tax examinations for tax periods through december 31, 2022.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expenses netted against income”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expenses netted against income”

Raw XML AppendixShowing 400 of 500 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0SINCE OUR INCEPTION, WE HAVE MADE TREMENDOUS STRIDES TOWARDS THE GOAL OF CONQUERING CHIARI, INCLUDNG:1.SERVING AS A RESOURCE FOR INFORMATION ON CHIARI AND RELATED TOPICS VIA OUR WEBSITE (WWW.CONQUERCHIARI.ORG) AND VARIOUS PUBLICATIONS. 2. SPONSORING RESEARCH FOR CHIARI VIA OUR CONQUER CHIARI RESEARCH CONFERENCE AND THE CONQUER CHIARI RESEARCH CENTER LOCATED AT THE UNIVERSITY OF AKRON, IN WHICH GRANTS FOR RESEARCH PROJECTS FOCUS ON IMPROVING DIAGNOSTICS, ASSESSING THE COGNITIVE EFFECTS OF CHIARI, GENETIC RESEARCH, AND OTHER CRITICAL AREAS. 3. PROMOTING AWARENESS THROUGH OUR CONQUER CHIARI WALK ACROSS AMERICA, WHICH IS AN ANNUAL FUNDRAISING EVENT CONSISTING OF A SERIES OF WALKS HELD ACROSS THE COUNTRY ON THE SAME DAY.
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IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT, BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE PRESIDENT, BOARD MEMB
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IRS990/MissionDesc0THE ORGANIZATION IS DEDICATED TO IMPROVING THE EXPERIENCES AND OUTCOMES OF CHIARI AND SYRINGOMELIA PATIENTS BY: 1.PROVIDING ACCURATE, UP-TO-DATE, AND EASY TO UNDERSTAND INFORMATION TO PATIENTS SO THAT THEY CAN TAKE CONTROL OF THEIR HEALTH CARE AND MAKE INTELLIGENT,INFORMED DECISIONS. 2. RAISING AWARENESS AMONG FAMILY, FRIENDS, AND THE GENERAL PUBLIC SO THAT THEY CAN BETTER UNDERSTAND WHAT PATIENTS ARE GOING THROUGH AND ARE BETTER ABLE TO PROVIDE SUPPORT. 3.RAISING AWARENESS AMONG, AND PROVIDING ACCRUATE, UP-TO-DATE INFORMATION TO THE MEDICAL COMMUNITY, SO THAT ERRORS IN DIAGNOSIS AND TREATMENT ARE REDUCED. 4.SPONSORING RESEARCH TO ADVANCE THE UNDERSTANDING OF THESE CONDITIONS AND IN THE END CONQUER CHIARI.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0624050
IRS990/NetAssetsOrFundBalancesEOYAmt0648460
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-24420
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-24420
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0601133
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0648460
IRS990/NoncashContributionsAmt028728
IRS990/NondeductibleContributionsInd00
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt06923
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt01605
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt07409
IRS990/OtherEmployeeBenefitsGrp/TotalAmt015937
IRS990/OtherExpensesGrp/Desc0OTHER
IRS990/OtherExpensesGrp/Desc1STATE REGISTRATION FEES
IRS990/OtherExpensesGrp/Desc2PAYROLL PROCESSING FEES
IRS990/OtherExpensesGrp/Desc3PRINTING AND SHIPPING
IRS990/OtherExpensesGrp/FundraisingAmt013804
IRS990/OtherExpensesGrp/FundraisingAmt11736
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0702
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12424
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt22292
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt3253
IRS990/OtherExpensesGrp/ProgramServicesAmt03228
IRS990/OtherExpensesGrp/TotalAmt017734
IRS990/OtherExpensesGrp/TotalAmt12424
IRS990/OtherExpensesGrp/TotalAmt22292
IRS990/OtherExpensesGrp/TotalAmt31989
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt067602
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt015676
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt072350
IRS990/OtherSalariesAndWagesGrp/TotalAmt0155628
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05327
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01235
IRS990/PayrollTaxesGrp/ProgramServicesAmt05701
IRS990/PayrollTaxesGrp/TotalAmt012263
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0925
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0180
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0RICHARD LABUDA
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0PROGRAM RELATED SALES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt01356
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt01356
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0418420
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt054201
IRS990/PYInvestmentIncomeAmt019609
IRS990/PYOtherExpensesAmt071040
IRS990/PYOtherRevenueAmt0-12644
IRS990/PYProgramServiceRevenueAmt01532
IRS990/PYRevenuesLessExpensesAmt098640
IRS990/PYSalariesCompEmpBnftPaidAmt0203036
IRS990/PYTotalExpensesAmt0328277
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0426917
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/ReconcilationRevenueExpnssAmt024410
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0463319
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0464844
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0464523
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0498172
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0585072
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02475930
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt015441
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt019609
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt08328
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt01386
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt08
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt044772
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt01356
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt01533
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt04216
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt05383
IRS990ScheduleA/OtherIncome170Grp/TotalAmt012488
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.82190
IRS990ScheduleA/PublicSupportPY170Pct00.83610
IRS990ScheduleA/PublicSupportTotal170Amt02081933
IRS990ScheduleA/SubstantialContributorsTotAmt0393997
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0463319
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0464844
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0464523
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0498172
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0585072
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02475930
IRS990ScheduleA/TotalSupportAmt02533190
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt062646
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0393060
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherExpensesIncludedAmt062646
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt09082
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt09082
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt018164
IRS990ScheduleD/OtherRevenueAmt062646
IRS990ScheduleD/RevenueNotReportedAmt062646
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0417470
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND APPLICABLE STATE LAW. MANAGEMENT BELIEVES THAT THERE IS NO LIABILITY RELATED TO UNCERTAIN TAX POSITIONS AT DECEMBER 31, 2025. THE FOUNDATION IS NO LONGER SUBJECT TO TAX EXAMINATIONS FOR TAX PERIODS THROUGH DECEMBER 31, 2022.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1FUNDRAISING EXPENSES NETTED AGAINST INCOME
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2FUNDRAISING EXPENSES NETTED AGAINST INCOME
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt09082
IRS990ScheduleD/TotalExpensesPerForm990Amt0393060
IRS990ScheduleD/TotalRevenuePerForm990Amt0417470
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0480116
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0455706
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0217166
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0217166
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt062646
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0WALK ACROSS AMERICA
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0255392
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0255392
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt038226
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt038226
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-24420
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt062646
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt062646
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt038879
IRS990ScheduleI/RecipientTable/CashGrantAmt132585
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501(C)(3)
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0ONGOING BUDGET FOR CONQUER CHIARI RESEARCH CENTER, ESTABLISH "CHIARI 1000", TARGETING SYRINX
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1RESEARCHING A NOVEL HYPOTHESIS FOR THE PATHOPHYSIOLOGY FOR ADULT CMI.
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF AKRON
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1NORTHEASTERN UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientEIN0346002924
IRS990ScheduleI/RecipientTable/RecipientEIN1041679980
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0302 E BUCHTEL AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1360 HUNTINGDON AVENUE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0AKRON
IRS990ScheduleI/RecipientTable/USAddress/CityNm1BOSTON
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0OH
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd044325
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd102115
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE EXECUTIVE DIRECTOR IS RESPONSIBLE FOR OVERSEEING RESEARCH GRANTS. EACH GRANT RECIPIENT MUST SUBMIT A FINAL REPORT DETAILING BOTH THE WORK PERFORMED AND HOW THE FUNDS WERE USED.
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt1UNIVERSITY OF AKRON GRANTS WERE USED FOR ONGOING BUDGET FOR CONQUER CHIARI RESEARCH CENTER. THE FOLLOWING ACTIVITY IN 2025 RESULTS IN THE $38,879 REFLECTED ON PART II, LINE 1D: ORIGINAL GRANTS 2025: $54,751 LESS: RETURN OF 2024 GRANTS ($15,872) TOTAL GRANTS FOR 2025: $38,879
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc1PART II, LINE 1D
IRS990/ScheduleJRequiredInd00
IRS990ScheduleM/AnyPropertyThatMustBeHeldInd00
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt0137
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt129
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt271
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt39
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc0GIFT BASKETS
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc1MISCELLAENOUS DONATIONS
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc2GIFT CERTIFICATES
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc3PROFESSIONAL SERVICES
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt0DONOR VALUE
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt1ESTIMATED VALUE
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt2FACE VALUE
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt3SIMILIAR SERVICES
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd0X
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd1X
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd2X
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd3X
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt011475
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt19753
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt24950
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt32550
IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd00
IRS990ScheduleM/ThirdPartiesUsedInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION DISTRIBUTES A DRAFT 990 TO ALL BOARD DIRECTORS AND THE EXECUTIVE DIRECTOR VIA EMAIL. IF NECESSARY, DISCUSSION IS UNDERTAKEN VIA EMAIL OR BY MEETING IF SO DESIRED BY ANY DIRECTOR. A VOTE IS THEN TAKEN TO AFFIRMATIVELY ADOPT AND FILE THE 990. AT THE NEXT OFFICIAL BOARD MEETING, THE MINUTES REFLECT THE ADOPTION OF THE 990.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE VOLUNTEER COORDINATOR IS RESPONSIBLE FOR DISTRIBUTING AND COLLECTING SIGNED CONFLICT DISCLOSURE STATEMENTS ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE COMPENSATION COMMITTEE MEETS TO REVIEW THE PERFORMANCE OF THE EXECUTIVE DIRECTOR AND VOLUNTEER COORDINATOR. THE COMPENSATION COMMITTEE CHAIR SEEKS INPUT FROM THE OTHER DIRECTORS AND THE EXECUTIVE DIRECTOR REGARDING ACCOMPLISHMENTS. THE COMMITTEE ESTABLISHES AN ANNUAL PERFORMANCE BONUS, IF SO EARNED, AND SALARY FOR THE FOLLOWING YEAR. SALARY AND BONUSES ARE BASED IN PART ON THE SIZE OF THE ORGANIZATION IN REVENUE AND COMPARABLE EXECUTIVE DIRECTORS' SALARIES AT SIMILAR SIZED ORGANIZATIONS. THE COMPENSATION COMMITTEE'S RECOMMENDATION IS MADE AT THE FOLLOWING BOARD MEETING AND VOTED ON BY THE BOARD. MINUTES FROM THE COMPENSATION COMMITTEE'S MEETING ARE ENTERED INTO THE RECORD.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3FORM 990 AND THE 501(C)(3)DETERMINATION LETTER ARE AVAILABLE ON THE WEBSITE. AUDITED FINANCIALS AND POLICIES ARE INCLUDED IN THE ANNUAL REPORT WHICH IS POSTED ON THE WEBSITE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4OTHER PROFESSIONAL SERVICES: PROGRAM SERVICE EXPENSES 38,070. MANAGEMENT AND GENERAL EXPENSES 559. FUNDRAISING EXPENSES 6,404. TOTAL EXPENSES 45,033. INDEPENDENT CONTRACTORS - RESEARCH: PROGRAM SERVICE EXPENSES 20,000. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 20,000.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART IX, LINE 11G
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0AL
IRS990/StatesWhereCopyOfReturnIsFldCd1AK
IRS990/StatesWhereCopyOfReturnIsFldCd2AR
IRS990/StatesWhereCopyOfReturnIsFldCd3CA
IRS990/StatesWhereCopyOfReturnIsFldCd4CO
IRS990/StatesWhereCopyOfReturnIsFldCd5CT
IRS990/StatesWhereCopyOfReturnIsFldCd6FL
IRS990/StatesWhereCopyOfReturnIsFldCd7GA
IRS990/StatesWhereCopyOfReturnIsFldCd8HI
IRS990/StatesWhereCopyOfReturnIsFldCd9IL
IRS990/StatesWhereCopyOfReturnIsFldCd10KS
IRS990/StatesWhereCopyOfReturnIsFldCd11KY
IRS990/StatesWhereCopyOfReturnIsFldCd12LA

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$687,733
Liabilities
$39,273
Net assets
$648,460
Revenue
$417,470
Expenses
$393,060
Net income
$24,410
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$6.88$0.39$6.48$4.17$3.93$0.24
2023Summary only. Only limited summary data is available for this year.$5.41$0.16$5.25$4.00$3.90$0.09
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.35$0.19$5.16$4.22$5.56$1.34
2021Summary only. Only limited summary data is available for this year.$6.50$0.00$6.50$5.04$3.07$1.97
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.53$0.00$4.53$3.84$3.34$0.49
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.04$0.00$4.04$4.61$4.61$0.00
2018Summary only. Only limited summary data is available for this year.$4.04$0.00$4.04$4.82$3.75$1.08
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.53$0.57$2.96$5.58$6.27$0.69
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.45$0.00$4.45$5.95$6.50$0.55
2015Summary only. Only limited summary data is available for this year.$5.50$0.00$5.50$6.08$8.54$2.46
2014Summary only. Only limited summary data is available for this year.$8.99$1.04$7.96$7.63$5.09$2.54
2013Summary only. Only limited summary data is available for this year.$6.14$0.72$5.42$5.62$6.23$0.61
2012Summary only. Only limited summary data is available for this year.$6.06$0.03$6.03$6.12$5.84$0.28
2011Summary only. Only limited summary data is available for this year.$5.93$0.18$5.76$4.28$4.09$0.18
Peer Organizations

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