Civic Intelligence

C & S Patient Education Foundation

990 • Fiscal year 2019 • EIN 20-0904691

Jan 01, 2019 to Dec 31, 2019 • Filed on Feb 14, 2020

Organization ProfileWWW.CONQUERCHIARI.ORG
320 Osprey CourtWexford, PA 15090

(724) 940-0116

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

27th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Liabilities / Revenue

28th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Net Margin

40th percentile

0.1%

Higher net margin than 40% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Top Officer Pay

88th percentile

$101,040

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 21.9% of source-year revenue.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Asset Growth

40th percentile

0.1%

Faster asset growth than 40% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Revenue Growth

32nd percentile

-4.4%

Faster revenue growth than 32% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets27th percentile

Assets

Up

$403,962

Up $365 (+0.1%) from 2018

Net Assets

Up

$403,962

Up $365 (+0.1%) from 2018

Liabilities

Flat

$0

Flat from 2018

Revenue And Expenses
Liabilities / Revenue28th percentileNet Margin40th percentile

Revenue

Down

$460,908

Down $21,362 (-4.4%) from 2018

Expenses

Up

$460,543

Up $85,888 (+23%) from 2018

Net Income

Down

$365

Down $107,250 (-100%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth40th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2011: $593,236Liabilities 2011: $17,523Net Assets 2011: $575,7132011Assets 2012: $606,282Liabilities 2012: $2,932Net Assets 2012: $603,3502012Assets 2013: $613,891Liabilities 2013: $71,676Net Assets 2013: $542,2152013Assets 2014: $899,436Liabilities 2014: $103,534Net Assets 2014: $795,9022014Assets 2015: $549,636Liabilities 2015: $0Net Assets 2015: $549,6362015Assets 2016: $444,699Liabilities 2016: $0Net Assets 2016: $444,6992016Assets 2017: $352,979Liabilities 2017: $56,997Net Assets 2017: $295,9822017Assets 2018: $403,597Liabilities 2018: $0Net Assets 2018: $403,5972018Assets 2019: $403,962Liabilities 2019: $0Net Assets 2019: $403,9622019Assets 2020: $453,273Liabilities 2020: $0Net Assets 2020: $453,2732020Assets 2021: $650,152Liabilities 2021: $0Net Assets 2021: $650,1522021Assets 2022: $535,451Liabilities 2022: $19,416Net Assets 2022: $516,0352022Assets 2023: $541,359Liabilities 2023: $15,949Net Assets 2023: $525,4102023

Highlighted filing

2019

Assets$403,962
Liabilities$0
Net Assets$403,962
Open 2019 Filing

Operations Trend

Revenue Growth32nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2011: $427,692Expenses 2011: $409,404Net Income 2011: $18,2882011Revenue 2012: $611,699Expenses 2012: $584,062Net Income 2012: $27,6372012Revenue 2013: $562,074Expenses 2013: $623,209Net Income 2013: -$61,1352013Revenue 2014: $762,744Expenses 2014: $509,057Net Income 2014: $253,6872014Revenue 2015: $607,953Expenses 2015: $854,219Net Income 2015: -$246,2662015Revenue 2016: $595,029Expenses 2016: $650,183Net Income 2016: -$55,1542016Revenue 2017: $557,837Expenses 2017: $626,617Net Income 2017: -$68,7802017Revenue 2018: $482,270Expenses 2018: $374,655Net Income 2018: $107,6152018Revenue 2019: $460,908Expenses 2019: $460,543Net Income 2019: $3652019Revenue 2020: $383,634Expenses 2020: $334,323Net Income 2020: $49,3112020Revenue 2021: $503,852Expenses 2021: $306,973Net Income 2021: $196,8792021Revenue 2022: $421,843Expenses 2022: $555,960Net Income 2022: -$134,1172022Revenue 2023: $399,573Expenses 2023: $390,198Net Income 2023: $9,3752023

Highlighted filing

2019

Revenue$460,908
Expenses$460,543
Net Income$365
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Feb 14, 2020
Return Version
2019v5.0
Gross Receipts
$568,033
Mission and Program Overview

Mission

The organization is dedicated to improving the experiences and outcomes of chiari and syringomelia patients by: 1.providing accurate, up-to-date, and easy to understand information to patients so that they can take control of their health care and make intelligent,informed decisions. 2. Raising awareness among family, friends, and the general public so that they can better understand what patients are going through and are better able to provide support. 3.raising awareness among, and providing accruate, up-to-date information to the medical community, so that errors in diagnosis and treatment are reduced. 4.sponsoring research to advance the understanding of these conditions and in the end conquer chiari.

Since our inception, we have made tremendous strides towards the goal of conquering chiari, includng:1.serving as a resource for information on chiari and related topics via our website (www.conquerchiari.org) and various publications. 2. Sponsoring research for chiari via our conquer chiari research conference and the conquer chiari research center located at the university of akron, in which grants for research projects focus on improving diagnostics, assessing the cognitive effects of chiari, genetic research, and other critical areas. 3. Promoting awareness through our conquer chiari walk across america, which is an annual fundraising event consisting of a series of walks held across the country on the same day.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$383,638$403,962▲ $20,324
Total Assets$403,597$403,962▲ $365
Other Assets Total$19,959$0▼ $19,959
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$403,597$403,962▲ $365
Total Net Assets Fund Balance$403,597$403,962▲ $365
Total Liabilities and Net Assets / Fund Balance$403,597$403,962▲ $365
Compensation and Service Providers
Top Officer Pay88th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Richard LabudaExecutive Director, SecretaryFT$75,000$26,040$101,040

Board Members and Trustees

NameTitle
Richard KushnerPresident, Board Member
David LeeVice President, Board Member
CHARLES O'HANLONDirector
Mark TomczakTreasurer, Board Member
Revenue and Support

Revenue Composition

Contributions and Grants
$465,558
Program Service Revenue
$5,195
Investment Income
$116
Other Revenue
$-9,961
All Other Contributions
$132,856
Change in Net Assets
$365

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table304$21,671Donor Value
Other Non Cash Contri Table124$8,070Face Value
Other Non Cash Contri Table84$5,762Estimated Value
Other Non Cash Contri Table39$4,759Similar Services
Total Noncash Contributions551$40,262-

Audited Revenue Reconciliation

Revenue per Audited Statements
$460,908
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$107,125
Total Revenue per Audited Statements
$568,033
Total Revenue per Form 990
$460,908
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$230,860
Salaries, Compensation, and Employee Benefits$151,081
Total Fundraising Expense$116,882
Other Expenses$78,602
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$230,860--$230,860
Other Salaries and Wages$38,167$24,622$52,711$115,500
Other Employee Benefits$8,736$5,636$12,066$26,438
Depreciation Depletion--$19,959$19,959
Fees for Services Other$1,690$1,726$13,520$16,936
Information Technology$771$2,726$7,302$10,799
Payroll Taxes$3,021$1,949$4,173$9,143
Fees for Services Legal$1,030$7,842$105$8,977
Fees for Services Accounting-$6,921-$6,921
Insurance-$2,129-$2,129
Other Expenses$188$1,991$3,223$1,991
Total Functional Expenses$284,463$59,198$116,882$460,543

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$567,668
Expenses per Audited Statements$460,543
Total Expenses per Form 990$460,543
Expenses Not Reported on Form 990$107,125
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of AkronAkron, OH501(c)(3)ONGOING BUDGET FOR CONQUER CHIARI RESEARCH CENTER, ESTABLISH "CHIARI 1000", TARGETING SYRINX$200,860
Emory UniversityAtlanta, GA501(c)(3)Extension of Project to Evaluate the Use of Dense Mr Imaging in Chiari Diagnosis and Research$30,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$107,125
Fundraising Gross Income$97,164
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk Across America$429,866$97,164$107,125$-9,961
Total Events$429,866$97,164$107,125$-9,961
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization distributes a draft 990 to all board directors and the executive director via email. If necessary, discussion is undertaken via email or by meeting if so desired by any director. A vote is then taken to affirmatively adopt and file the 990. At the next official board meeting, the minutes reflect the adoption of the 990.”

Form 990, Part VI, Section B, Line 12C

“The executive director is responsible for distributing and collecting signed conflict disclosure statements annually.”

Form 990, Part VI, Section B, Line 15A

“The compensation committee meets to review the performance of the executive director. The compensation committee chair seeks input from the other directors and the executive director regarding accomplishments. The committee establishes an annual performance bonus, if so earned, and salary for the following year. Salary and bonuses are based in part on the size of the organization in revenue and comparable executive directors' salaries at similar sized organizations. The compensation committee's recommendation is made at the following board meeting and voted on by the board. Minutes from the compensation committee's meeting are entered into the record.”

Form 990, Part VI, Section C, Line 19

“Form 990 and the 501(c)(3)determination letter are available on the website. Audited financials and policies are included in the annual report which is posted on the website.”

Filing and Contact Details

Filer

Filer Name
C & S Patient Education Foundation
EIN
20-0904691
Phone
7249400116
Address
320 OSPREY COURT, WEXFORD, PA 15090
Doing Business As
Conquer Chiari

Signing Officer

Name
Richard Labuda
Title
Executive Director
Phone
7249400116
Signed
2020-02-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Richard Labuda
Formed
2004
Legal Domicile
Pa
Voting Board Members
5
Independent Board Members
4
Employees
2
Volunteers
150

Preparer

Firm
Grossman Yanak & Ford Llp
Address
THREE GATEWAY CTR STE 1800, PITTSBURGH, PA 15222
Preparer
Richard E Dynoske
Phone
4123389300
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The foundation is exempt from federal income taxes under section 501(c)(3) of the internal revenue code and applicable state law. Management believes that there is no liability related to uncertain tax positions at december 31, 2019. The foundation is no longer subject to tax examinations for tax periods through december 31, 2016 .”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expenses netted against income”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expenses netted against income”

Raw XML AppendixShowing 400 of 486 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0SINCE OUR INCEPTION, WE HAVE MADE TREMENDOUS STRIDES TOWARDS THE GOAL OF CONQUERING CHIARI, INCLUDNG:1.SERVING AS A RESOURCE FOR INFORMATION ON CHIARI AND RELATED TOPICS VIA OUR WEBSITE (WWW.CONQUERCHIARI.ORG) AND VARIOUS PUBLICATIONS. 2. SPONSORING RESEARCH FOR CHIARI VIA OUR CONQUER CHIARI RESEARCH CONFERENCE AND THE CONQUER CHIARI RESEARCH CENTER LOCATED AT THE UNIVERSITY OF AKRON, IN WHICH GRANTS FOR RESEARCH PROJECTS FOCUS ON IMPROVING DIAGNOSTICS, ASSESSING THE COGNITIVE EFFECTS OF CHIARI, GENETIC RESEARCH, AND OTHER CRITICAL AREAS. 3. PROMOTING AWARENESS THROUGH OUR CONQUER CHIARI WALK ACROSS AMERICA, WHICH IS AN ANNUAL FUNDRAISING EVENT CONSISTING OF A SERIES OF WALKS HELD ACROSS THE COUNTRY ON THE SAME DAY.
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IRS990/Form990PartVIISectionAGrp/PersonNm1RICHARD KUSHNER
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IRS990/Form990PartVIISectionAGrp/PersonNm3MARK TOMCZAK
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IRS990/Form990PartVIISectionAGrp/TitleTxt0EXECUTIVE DIRECTOR, SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT, BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE PRESIDENT, BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER, BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
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IRS990/MissionDesc0THE ORGANIZATION IS DEDICATED TO IMPROVING THE EXPERIENCES AND OUTCOMES OF CHIARI AND SYRINGOMELIA PATIENTS BY: 1.PROVIDING ACCURATE, UP-TO-DATE, AND EASY TO UNDERSTAND INFORMATION TO PATIENTS SO THAT THEY CAN TAKE CONTROL OF THEIR HEALTH CARE AND MAKE INTELLIGENT,INFORMED DECISIONS. 2. RAISING AWARENESS AMONG FAMILY, FRIENDS, AND THE GENERAL PUBLIC SO THAT THEY CAN BETTER UNDERSTAND WHAT PATIENTS ARE GOING THROUGH AND ARE BETTER ABLE TO PROVIDE SUPPORT. 3.RAISING AWARENESS AMONG, AND PROVIDING ACCRUATE, UP-TO-DATE INFORMATION TO THE MEDICAL COMMUNITY, SO THAT ERRORS IN DIAGNOSIS AND TREATMENT ARE REDUCED. 4.SPONSORING RESEARCH TO ADVANCE THE UNDERSTANDING OF THESE CONDITIONS AND IN THE END CONQUER CHIARI.
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IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1496
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt22735
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt31991
IRS990/OtherExpensesGrp/ProgramServicesAmt0188
IRS990/OtherExpensesGrp/TotalAmt04436
IRS990/OtherExpensesGrp/TotalAmt13719
IRS990/OtherExpensesGrp/TotalAmt22735
IRS990/OtherExpensesGrp/TotalAmt31991
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt052711
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt024622
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt038167
IRS990/OtherSalariesAndWagesGrp/TotalAmt0115500
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt04173
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01949
IRS990/PayrollTaxesGrp/ProgramServicesAmt03021
IRS990/PayrollTaxesGrp/TotalAmt09143
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0RICHARD LABUDA
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0PROGRAM RELATED SALES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt05195
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt05195
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0511037
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0149451
IRS990/PYInvestmentIncomeAmt0123
IRS990/PYOtherExpensesAmt072189
IRS990/PYOtherRevenueAmt0-36932
IRS990/PYProgramServiceRevenueAmt08042
IRS990/PYRevenuesLessExpensesAmt0107615
IRS990/PYSalariesCompEmpBnftPaidAmt0153015
IRS990/PYTotalExpensesAmt0374655
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0482270
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0365
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0562722
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0571308
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0700833
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0737380
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0890302
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt03462545
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0116
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0123
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0152
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0202
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0458
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt01051
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt03689
IRS990ScheduleA/OtherIncome170Grp/TotalAmt03689
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.91590
IRS990ScheduleA/PublicSupportPY170Pct00.94080
IRS990ScheduleA/PublicSupportTotal170Amt03175799
IRS990ScheduleA/SubstantialContributorsTotAmt0286746
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0562722
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0571308
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0700833
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0737380
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0890302
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt03462545
IRS990ScheduleA/TotalSupportAmt03467285
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt0107125
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0460543
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherExpensesIncludedAmt0107125
IRS990ScheduleD/OtherRevenueAmt0107125
IRS990ScheduleD/RevenueNotReportedAmt0107125
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0460908
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND APPLICABLE STATE LAW. MANAGEMENT BELIEVES THAT THERE IS NO LIABILITY RELATED TO UNCERTAIN TAX POSITIONS AT DECEMBER 31, 2019. THE FOUNDATION IS NO LONGER SUBJECT TO TAX EXAMINATIONS FOR TAX PERIODS THROUGH DECEMBER 31, 2016 .
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1FUNDRAISING EXPENSES NETTED AGAINST INCOME
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2FUNDRAISING EXPENSES NETTED AGAINST INCOME
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalExpensesPerForm990Amt0460543
IRS990ScheduleD/TotalRevenuePerForm990Amt0460908
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0568033
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0567668
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0332702
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0332702
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt0107125
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0WALK ACROSS AMERICA
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0429866
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0429866
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt097164
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt097164
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-9961
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt0107125
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt0107125
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt0200860
IRS990ScheduleI/RecipientTable/CashGrantAmt130000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501(C)(3)
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0ONGOING BUDGET FOR CONQUER CHIARI RESEARCH CENTER, ESTABLISH "CHIARI 1000", TARGETING SYRINX
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1EXTENSION OF PROJECT TO EVALUATE THE USE OF DENSE MR IMAGING IN CHIARI DIAGNOSIS AND RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF AKRON
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1EMORY UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientEIN0346002924
IRS990ScheduleI/RecipientTable/RecipientEIN1580566256
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0284 POLSKY
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1201 DOWMAN DRIVE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0AKRON
IRS990ScheduleI/RecipientTable/USAddress/CityNm1ATLANTA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0OH
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1GA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd044325
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd130322
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE EXECUTIVE DIRECTOR IS RESPONSIBLE FOR OVERSEEING RESEARCH GRANTS. EACH GRANT RECIPIENT MUST SUBMIT A FINAL REPORT DETAILING BOTH THE WORK PERFORMED AND HOW THE FUNDS WERE USED.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990/ScheduleJRequiredInd00
IRS990ScheduleM/AnyPropertyThatMustBeHeldInd00
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt0304
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt1124
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt284
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt339
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc0GIFT BASKETS
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc1GIFT CERTIFICATES
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc2MISC. DONATIONS
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc3PROFESSIONAL SERVICES
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt0DONOR VALUE
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt1FACE VALUE
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt2ESTIMATED VALUE
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt3SIMILAR SERVICES
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd0X
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd1X
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd2X
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd3X
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt021671
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt18070
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt25762
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt34759
IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd00
IRS990ScheduleM/ThirdPartiesUsedInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION DISTRIBUTES A DRAFT 990 TO ALL BOARD DIRECTORS AND THE EXECUTIVE DIRECTOR VIA EMAIL. IF NECESSARY, DISCUSSION IS UNDERTAKEN VIA EMAIL OR BY MEETING IF SO DESIRED BY ANY DIRECTOR. A VOTE IS THEN TAKEN TO AFFIRMATIVELY ADOPT AND FILE THE 990. AT THE NEXT OFFICIAL BOARD MEETING, THE MINUTES REFLECT THE ADOPTION OF THE 990.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE EXECUTIVE DIRECTOR IS RESPONSIBLE FOR DISTRIBUTING AND COLLECTING SIGNED CONFLICT DISCLOSURE STATEMENTS ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE COMPENSATION COMMITTEE MEETS TO REVIEW THE PERFORMANCE OF THE EXECUTIVE DIRECTOR. THE COMPENSATION COMMITTEE CHAIR SEEKS INPUT FROM THE OTHER DIRECTORS AND THE EXECUTIVE DIRECTOR REGARDING ACCOMPLISHMENTS. THE COMMITTEE ESTABLISHES AN ANNUAL PERFORMANCE BONUS, IF SO EARNED, AND SALARY FOR THE FOLLOWING YEAR. SALARY AND BONUSES ARE BASED IN PART ON THE SIZE OF THE ORGANIZATION IN REVENUE AND COMPARABLE EXECUTIVE DIRECTORS' SALARIES AT SIMILAR SIZED ORGANIZATIONS. THE COMPENSATION COMMITTEE'S RECOMMENDATION IS MADE AT THE FOLLOWING BOARD MEETING AND VOTED ON BY THE BOARD. MINUTES FROM THE COMPENSATION COMMITTEE'S MEETING ARE ENTERED INTO THE RECORD.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3FORM 990 AND THE 501(C)(3)DETERMINATION LETTER ARE AVAILABLE ON THE WEBSITE. AUDITED FINANCIALS AND POLICIES ARE INCLUDED IN THE ANNUAL REPORT WHICH IS POSTED ON THE WEBSITE.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0AL
IRS990/StatesWhereCopyOfReturnIsFldCd1AK
IRS990/StatesWhereCopyOfReturnIsFldCd2AR
IRS990/StatesWhereCopyOfReturnIsFldCd3CA
IRS990/StatesWhereCopyOfReturnIsFldCd4CO
IRS990/StatesWhereCopyOfReturnIsFldCd5CT
IRS990/StatesWhereCopyOfReturnIsFldCd6FL
IRS990/StatesWhereCopyOfReturnIsFldCd7GA
IRS990/StatesWhereCopyOfReturnIsFldCd8HI
IRS990/StatesWhereCopyOfReturnIsFldCd9IL
IRS990/StatesWhereCopyOfReturnIsFldCd10KS
IRS990/StatesWhereCopyOfReturnIsFldCd11KY
IRS990/StatesWhereCopyOfReturnIsFldCd12LA
IRS990/StatesWhereCopyOfReturnIsFldCd13ME
IRS990/StatesWhereCopyOfReturnIsFldCd14MD
IRS990/StatesWhereCopyOfReturnIsFldCd15MA
IRS990/StatesWhereCopyOfReturnIsFldCd16MI
IRS990/StatesWhereCopyOfReturnIsFldCd17MN
IRS990/StatesWhereCopyOfReturnIsFldCd18MS
IRS990/StatesWhereCopyOfReturnIsFldCd19NV
IRS990/StatesWhereCopyOfReturnIsFldCd20NH
IRS990/StatesWhereCopyOfReturnIsFldCd21NJ
IRS990/StatesWhereCopyOfReturnIsFldCd22NY
IRS990/StatesWhereCopyOfReturnIsFldCd23NC
IRS990/StatesWhereCopyOfReturnIsFldCd24ND
IRS990/StatesWhereCopyOfReturnIsFldCd25OH
IRS990/StatesWhereCopyOfReturnIsFldCd26OK
IRS990/StatesWhereCopyOfReturnIsFldCd27OR
IRS990/StatesWhereCopyOfReturnIsFldCd28PA
IRS990/StatesWhereCopyOfReturnIsFldCd29RI
IRS990/StatesWhereCopyOfReturnIsFldCd30SC
IRS990/StatesWhereCopyOfReturnIsFldCd31TN
IRS990/StatesWhereCopyOfReturnIsFldCd32UT

Document Assets

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Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$403,962
Liabilities
$0
Net assets
$403,962
Revenue
$460,908
Expenses
$460,543
Net income
$365
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$5.41$0.16$5.25$4.00$3.90$0.09
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.35$0.19$5.16$4.22$5.56$1.34
2021Summary only. Only limited summary data is available for this year.$6.50$0.00$6.50$5.04$3.07$1.97
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.53$0.00$4.53$3.84$3.34$0.49
2019Detailed filing. Detailed filing data is available for this year.$4.04$0.00$4.04$4.61$4.61$0.00
2018Summary only. Only limited summary data is available for this year.$4.04$0.00$4.04$4.82$3.75$1.08
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.53$0.57$2.96$5.58$6.27$0.69
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.45$0.00$4.45$5.95$6.50$0.55
2015Summary only. Only limited summary data is available for this year.$5.50$0.00$5.50$6.08$8.54$2.46
2014Summary only. Only limited summary data is available for this year.$8.99$1.04$7.96$7.63$5.09$2.54
2013Summary only. Only limited summary data is available for this year.$6.14$0.72$5.42$5.62$6.23$0.61
2012Summary only. Only limited summary data is available for this year.$6.06$0.03$6.03$6.12$5.84$0.28
2011Summary only. Only limited summary data is available for this year.$5.93$0.18$5.76$4.28$4.09$0.18