Civic Intelligence

C & S Patient Education Foundation

990 • Fiscal year 2020 • EIN 20-0904691

Jan 01, 2020 to Dec 31, 2020 • Filed on Feb 18, 2021

Organization ProfileWWW.CONQUERCHIARI.ORG
320 Osprey CourtWexford, PA 15090

(724) 940-0116

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Liabilities / Revenue

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Net Margin

61st percentile

13%

Higher net margin than 61% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Top Officer Pay

98th percentile

$106,551

Higher top officer pay than 98% of similar nonprofits.

Top officer pay equals 27.8% of source-year revenue.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Asset Growth

60th percentile

12%

Faster asset growth than 60% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Revenue Growth

47th percentile

-17%

Faster revenue growth than 47% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets55th percentile

Assets

Up

$453,273

Up $49,311 (+12%) from 2019

Net Assets

Up

$453,273

Up $49,311 (+12%) from 2019

Liabilities

Flat

$0

Flat from 2019

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin61st percentile

Revenue

Down

$383,634

Down $77,274 (-17%) from 2019

Expenses

Down

$334,323

Down $126,220 (-27%) from 2019

Net Income

Up

$49,311

Up $48,946 (+13410%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth60th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2011: $593,236Liabilities 2011: $17,523Net Assets 2011: $575,7132011Assets 2012: $606,282Liabilities 2012: $2,932Net Assets 2012: $603,3502012Assets 2013: $613,891Liabilities 2013: $71,676Net Assets 2013: $542,2152013Assets 2014: $899,436Liabilities 2014: $103,534Net Assets 2014: $795,9022014Assets 2015: $549,636Liabilities 2015: $0Net Assets 2015: $549,6362015Assets 2016: $444,699Liabilities 2016: $0Net Assets 2016: $444,6992016Assets 2017: $352,979Liabilities 2017: $56,997Net Assets 2017: $295,9822017Assets 2018: $403,597Liabilities 2018: $0Net Assets 2018: $403,5972018Assets 2019: $403,962Liabilities 2019: $0Net Assets 2019: $403,9622019Assets 2020: $453,273Liabilities 2020: $0Net Assets 2020: $453,2732020Assets 2021: $650,152Liabilities 2021: $0Net Assets 2021: $650,1522021Assets 2022: $535,451Liabilities 2022: $19,416Net Assets 2022: $516,0352022Assets 2023: $541,359Liabilities 2023: $15,949Net Assets 2023: $525,4102023

Highlighted filing

2020

Assets$453,273
Liabilities$0
Net Assets$453,273
Open 2020 Filing

Operations Trend

Revenue Growth47th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2011: $427,692Expenses 2011: $409,404Net Income 2011: $18,2882011Revenue 2012: $611,699Expenses 2012: $584,062Net Income 2012: $27,6372012Revenue 2013: $562,074Expenses 2013: $623,209Net Income 2013: -$61,1352013Revenue 2014: $762,744Expenses 2014: $509,057Net Income 2014: $253,6872014Revenue 2015: $607,953Expenses 2015: $854,219Net Income 2015: -$246,2662015Revenue 2016: $595,029Expenses 2016: $650,183Net Income 2016: -$55,1542016Revenue 2017: $557,837Expenses 2017: $626,617Net Income 2017: -$68,7802017Revenue 2018: $482,270Expenses 2018: $374,655Net Income 2018: $107,6152018Revenue 2019: $460,908Expenses 2019: $460,543Net Income 2019: $3652019Revenue 2020: $383,634Expenses 2020: $334,323Net Income 2020: $49,3112020Revenue 2021: $503,852Expenses 2021: $306,973Net Income 2021: $196,8792021Revenue 2022: $421,843Expenses 2022: $555,960Net Income 2022: -$134,1172022Revenue 2023: $399,573Expenses 2023: $390,198Net Income 2023: $9,3752023

Highlighted filing

2020

Revenue$383,634
Expenses$334,323
Net Income$49,311
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Feb 18, 2021
Return Version
2020v4.0
Gross Receipts
$420,001
Mission and Program Overview

Mission

The organization is dedicated to improving the experiences and outcomes of chiari and syringomelia patients by: 1.providing accurate, up-to-date, and easy to understand information to patients so that they can take control of their health care and make intelligent,informed decisions. 2. Raising awareness among family, friends, and the general public so that they can better understand what patients are going through and are better able to provide support. 3.raising awareness among, and providing accruate, up-to-date information to the medical community, so that errors in diagnosis and treatment are reduced. 4.sponsoring research to advance the understanding of these conditions and in the end conquer chiari.

Since our inception, we have made tremendous strides towards the goal of conquering chiari, includng:1.serving as a resource for information on chiari and related topics via our website (www.conquerchiari.org) and various publications. 2. Sponsoring research for chiari via our conquer chiari research conference and the conquer chiari research center located at the university of akron, in which grants for research projects focus on improving diagnostics, assessing the cognitive effects of chiari, genetic research, and other critical areas. 3. Promoting awareness through our conquer chiari walk across america, which is an annual fundraising event consisting of a series of walks held across the country on the same day.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$403,962$423,995▲ $20,033
Land, Buildings, and Equipment, Net$0$29,278▲ $29,278
Total Assets$403,962$453,273▲ $49,311
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$403,962$453,273▲ $49,311
Total Net Assets Fund Balance$403,962$453,273▲ $49,311
Total Liabilities and Net Assets / Fund Balance$403,962$453,273▲ $49,311

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$29,278$102,411$131,689
Compensation and Service Providers
Top Officer Pay98th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Richard LabudaExecutive Director, SecretFT$80,000$26,551$106,551

Board Members and Trustees

NameTitle
Richard KushnerPresident, Board Member
David LeeVice President, Board Memb
CHARLES O'HANLONDirector
Mark TomczakTreasurer, Board Member
Revenue and Support

Revenue Composition

Contributions and Grants
$358,591
Program Service Revenue
$5,383
Investment Income
$73
Other Revenue
$19,587
All Other Contributions
$169,198
Change in Net Assets
$49,311

Audited Revenue Reconciliation

Revenue per Audited Statements
$383,634
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$36,367
Total Revenue per Audited Statements
$420,001
Total Revenue per Form 990
$383,634
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$158,731
Total Fundraising Expense$124,287
Grants and Similar Amounts Paid$107,804
Other Expenses$67,788
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$29,913$27,180$65,407$122,500
Grants to Domestic Orgs$107,804--$107,804
Other Employee Benefits$6,483$5,891$14,176$26,550
Fees for Services Other-$1,761$13,660$15,421
Information Technology-$3,831$6,890$10,721
Payroll Taxes$2,364$2,148$5,169$9,681
Fees for Services Legal-$6,538$970$7,508
Fees for Services Accounting-$7,241-$7,241
Depreciation Depletion--$5,856$5,856
Insurance-$3,183-$3,183
Other Expenses$118$2,024$5,981$2,024
Total Functional Expenses$146,682$63,354$124,287$334,323

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$370,690
Expenses per Audited Statements$334,323
Total Expenses per Form 990$334,323
Expenses Not Reported on Form 990$36,367
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of AkronAkron, OH501(c)(3)ONGOING BUDGET FOR CONQUER CHIARI RESEARCH CENTER, ESTABLISH "CHIARI 1000", TARGETING SYRINX$107,804
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$55,954
Fundraising Direct Expenses$36,367
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk Across America$217,047$55,954$36,367$19,587
Total Events$217,047$55,954$36,367$19,587
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization distributes a draft 990 to all board directors and the executive director via email. If necessary, discussion is undertaken via email or by meeting if so desired by any director. A vote is then taken to affirmatively adopt and file the 990. At the next official board meeting, the minutes reflect the adoption of the 990.”

Form 990, Part VI, Section B, Line 12C

“The executive director is responsible for distributing and collecting signed conflict disclosure statements annually.”

Form 990, Part VI, Section B, Line 15A

“The compensation committee meets to review the performance of the executive director. The compensation committee chair seeks input from the other directors and the executive director regarding accomplishments. The committee establishes an annual performance bonus, if so earned, and salary for the following year. Salary and bonuses are based in part on the size of the organization in revenue and comparable executive directors' salaries at similar sized organizations. The compensation committee's recommendation is made at the following board meeting and voted on by the board. Minutes from the compensation committee's meeting are entered into the record.”

Form 990, Part VI, Section C, Line 19

“Form 990 and the 501(c)(3)determination letter are available on the website. Audited financials and policies are included in the annual report which is posted on the website.”

Filing and Contact Details

Filer

Filer Name
C & S Patient Education Foundation
EIN
20-0904691
Phone
7249400116
Address
320 OSPREY COURT, WEXFORD, PA 15090
Doing Business As
Conquer Chiari

Signing Officer

Name
Richard Labuda
Title
Executive Director
Phone
7249400116
Signed
2021-02-18
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Richard Labuda
Formed
2004
Legal Domicile
Pa
Voting Board Members
5
Independent Board Members
4
Employees
2
Volunteers
150

Preparer

Firm
Grossman Yanak & Ford Llp
Address
THREE GATEWAY CTR STE 1800, PITTSBURGH, PA 15222
Preparer
Richard E Dynoske
Phone
4123389300
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The foundation is exempt from federal income taxes under section 501(c)(3) of the internal revenue code and applicable state law. Management believes that there is no liability related to uncertain tax positions at december 31, 2020. The foundation is no longer subject to tax examinations for tax periods through december 31, 2017.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expenses netted against income”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expenses netted against income”

Raw XML AppendixShowing 400 of 456 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0SINCE OUR INCEPTION, WE HAVE MADE TREMENDOUS STRIDES TOWARDS THE GOAL OF CONQUERING CHIARI, INCLUDNG:1.SERVING AS A RESOURCE FOR INFORMATION ON CHIARI AND RELATED TOPICS VIA OUR WEBSITE (WWW.CONQUERCHIARI.ORG) AND VARIOUS PUBLICATIONS. 2. SPONSORING RESEARCH FOR CHIARI VIA OUR CONQUER CHIARI RESEARCH CONFERENCE AND THE CONQUER CHIARI RESEARCH CENTER LOCATED AT THE UNIVERSITY OF AKRON, IN WHICH GRANTS FOR RESEARCH PROJECTS FOCUS ON IMPROVING DIAGNOSTICS, ASSESSING THE COGNITIVE EFFECTS OF CHIARI, GENETIC RESEARCH, AND OTHER CRITICAL AREAS. 3. PROMOTING AWARENESS THROUGH OUR CONQUER CHIARI WALK ACROSS AMERICA, WHICH IS AN ANNUAL FUNDRAISING EVENT CONSISTING OF A SERIES OF WALKS HELD ACROSS THE COUNTRY ON THE SAME DAY.
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IRS990/Form990PartVIISectionAGrp/PersonNm1RICHARD KUSHNER
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IRS990/Form990PartVIISectionAGrp/PersonNm3MARK TOMCZAK
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IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT, BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE PRESIDENT, BOARD MEMB
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER, BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
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IRS990/MissionDesc0THE ORGANIZATION IS DEDICATED TO IMPROVING THE EXPERIENCES AND OUTCOMES OF CHIARI AND SYRINGOMELIA PATIENTS BY: 1.PROVIDING ACCURATE, UP-TO-DATE, AND EASY TO UNDERSTAND INFORMATION TO PATIENTS SO THAT THEY CAN TAKE CONTROL OF THEIR HEALTH CARE AND MAKE INTELLIGENT,INFORMED DECISIONS. 2. RAISING AWARENESS AMONG FAMILY, FRIENDS, AND THE GENERAL PUBLIC SO THAT THEY CAN BETTER UNDERSTAND WHAT PATIENTS ARE GOING THROUGH AND ARE BETTER ABLE TO PROVIDE SUPPORT. 3.RAISING AWARENESS AMONG, AND PROVIDING ACCRUATE, UP-TO-DATE INFORMATION TO THE MEDICAL COMMUNITY, SO THAT ERRORS IN DIAGNOSIS AND TREATMENT ARE REDUCED. 4.SPONSORING RESEARCH TO ADVANCE THE UNDERSTANDING OF THESE CONDITIONS AND IN THE END CONQUER CHIARI.
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IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt027180
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt029913
IRS990/OtherSalariesAndWagesGrp/TotalAmt0122500
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt05169
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt02148
IRS990/PayrollTaxesGrp/ProgramServicesAmt02364
IRS990/PayrollTaxesGrp/TotalAmt09681
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0RICHARD LABUDA
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0PROGRAM RELATED SALES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt05383
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt05383
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0465558
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0230860
IRS990/PYInvestmentIncomeAmt0116
IRS990/PYOtherExpensesAmt078602
IRS990/PYOtherRevenueAmt0-9961
IRS990/PYProgramServiceRevenueAmt05195
IRS990/PYRevenuesLessExpensesAmt0365
IRS990/PYSalariesCompEmpBnftPaidAmt0151081
IRS990/PYTotalExpensesAmt0460543
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0460908
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt049311
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0414545
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0562722
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0571308
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0700833
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0737380
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02986788
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt073
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt0116
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0123
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0152
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0202
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0666
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt03689
IRS990ScheduleA/OtherIncome170Grp/TotalAmt03689
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.89290
IRS990ScheduleA/PublicSupportPY170Pct00.91590
IRS990ScheduleA/PublicSupportTotal170Amt02670796
IRS990ScheduleA/SubstantialContributorsTotAmt0315992
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0414545
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0562722
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0571308
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0700833
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0737380
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02986788
IRS990ScheduleA/TotalSupportAmt02991143
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt036367
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0334323
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherExpensesIncludedAmt036367
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt029278
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt0102411
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt0131689
IRS990ScheduleD/OtherRevenueAmt036367
IRS990ScheduleD/RevenueNotReportedAmt036367
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0383634
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND APPLICABLE STATE LAW. MANAGEMENT BELIEVES THAT THERE IS NO LIABILITY RELATED TO UNCERTAIN TAX POSITIONS AT DECEMBER 31, 2020. THE FOUNDATION IS NO LONGER SUBJECT TO TAX EXAMINATIONS FOR TAX PERIODS THROUGH DECEMBER 31, 2017.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1FUNDRAISING EXPENSES NETTED AGAINST INCOME
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2FUNDRAISING EXPENSES NETTED AGAINST INCOME
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt029278
IRS990ScheduleD/TotalExpensesPerForm990Amt0334323
IRS990ScheduleD/TotalRevenuePerForm990Amt0383634
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0420001
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0370690
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0161093
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0161093
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt036367
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0WALK ACROSS AMERICA
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0217047
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0217047
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt055954
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt055954
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt019587
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt036367
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt036367
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt0107804
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0ONGOING BUDGET FOR CONQUER CHIARI RESEARCH CENTER, ESTABLISH "CHIARI 1000", TARGETING SYRINX
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF AKRON
IRS990ScheduleI/RecipientTable/RecipientEIN0346002924
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0284 POLSKY
IRS990ScheduleI/RecipientTable/USAddress/CityNm0AKRON
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0OH
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd044325
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE EXECUTIVE DIRECTOR IS RESPONSIBLE FOR OVERSEEING RESEARCH GRANTS. EACH GRANT RECIPIENT MUST SUBMIT A FINAL REPORT DETAILING BOTH THE WORK PERFORMED AND HOW THE FUNDS WERE USED.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION DISTRIBUTES A DRAFT 990 TO ALL BOARD DIRECTORS AND THE EXECUTIVE DIRECTOR VIA EMAIL. IF NECESSARY, DISCUSSION IS UNDERTAKEN VIA EMAIL OR BY MEETING IF SO DESIRED BY ANY DIRECTOR. A VOTE IS THEN TAKEN TO AFFIRMATIVELY ADOPT AND FILE THE 990. AT THE NEXT OFFICIAL BOARD MEETING, THE MINUTES REFLECT THE ADOPTION OF THE 990.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE EXECUTIVE DIRECTOR IS RESPONSIBLE FOR DISTRIBUTING AND COLLECTING SIGNED CONFLICT DISCLOSURE STATEMENTS ANNUALLY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE COMPENSATION COMMITTEE MEETS TO REVIEW THE PERFORMANCE OF THE EXECUTIVE DIRECTOR. THE COMPENSATION COMMITTEE CHAIR SEEKS INPUT FROM THE OTHER DIRECTORS AND THE EXECUTIVE DIRECTOR REGARDING ACCOMPLISHMENTS. THE COMMITTEE ESTABLISHES AN ANNUAL PERFORMANCE BONUS, IF SO EARNED, AND SALARY FOR THE FOLLOWING YEAR. SALARY AND BONUSES ARE BASED IN PART ON THE SIZE OF THE ORGANIZATION IN REVENUE AND COMPARABLE EXECUTIVE DIRECTORS' SALARIES AT SIMILAR SIZED ORGANIZATIONS. THE COMPENSATION COMMITTEE'S RECOMMENDATION IS MADE AT THE FOLLOWING BOARD MEETING AND VOTED ON BY THE BOARD. MINUTES FROM THE COMPENSATION COMMITTEE'S MEETING ARE ENTERED INTO THE RECORD.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3FORM 990 AND THE 501(C)(3)DETERMINATION LETTER ARE AVAILABLE ON THE WEBSITE. AUDITED FINANCIALS AND POLICIES ARE INCLUDED IN THE ANNUAL REPORT WHICH IS POSTED ON THE WEBSITE.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0AL
IRS990/StatesWhereCopyOfReturnIsFldCd1AK
IRS990/StatesWhereCopyOfReturnIsFldCd2AR
IRS990/StatesWhereCopyOfReturnIsFldCd3CA
IRS990/StatesWhereCopyOfReturnIsFldCd4CO
IRS990/StatesWhereCopyOfReturnIsFldCd5CT
IRS990/StatesWhereCopyOfReturnIsFldCd6FL
IRS990/StatesWhereCopyOfReturnIsFldCd7GA
IRS990/StatesWhereCopyOfReturnIsFldCd8HI
IRS990/StatesWhereCopyOfReturnIsFldCd9IL
IRS990/StatesWhereCopyOfReturnIsFldCd10KS
IRS990/StatesWhereCopyOfReturnIsFldCd11KY
IRS990/StatesWhereCopyOfReturnIsFldCd12LA
IRS990/StatesWhereCopyOfReturnIsFldCd13ME
IRS990/StatesWhereCopyOfReturnIsFldCd14MD
IRS990/StatesWhereCopyOfReturnIsFldCd15MA
IRS990/StatesWhereCopyOfReturnIsFldCd16MI
IRS990/StatesWhereCopyOfReturnIsFldCd17MN
IRS990/StatesWhereCopyOfReturnIsFldCd18MS
IRS990/StatesWhereCopyOfReturnIsFldCd19NV
IRS990/StatesWhereCopyOfReturnIsFldCd20NH
IRS990/StatesWhereCopyOfReturnIsFldCd21NJ
IRS990/StatesWhereCopyOfReturnIsFldCd22NY
IRS990/StatesWhereCopyOfReturnIsFldCd23NC
IRS990/StatesWhereCopyOfReturnIsFldCd24ND
IRS990/StatesWhereCopyOfReturnIsFldCd25OH
IRS990/StatesWhereCopyOfReturnIsFldCd26OK
IRS990/StatesWhereCopyOfReturnIsFldCd27OR
IRS990/StatesWhereCopyOfReturnIsFldCd28PA
IRS990/StatesWhereCopyOfReturnIsFldCd29RI
IRS990/StatesWhereCopyOfReturnIsFldCd30SC
IRS990/StatesWhereCopyOfReturnIsFldCd31TN
IRS990/StatesWhereCopyOfReturnIsFldCd32UT
IRS990/StatesWhereCopyOfReturnIsFldCd33VA
IRS990/StatesWhereCopyOfReturnIsFldCd34WA
IRS990/StatesWhereCopyOfReturnIsFldCd35WV
IRS990/StatesWhereCopyOfReturnIsFldCd36WI
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt0403962
IRS990/TotalAssetsEOYAmt0453273
IRS990/TotalAssetsGrp/BOYAmt0403962
IRS990/TotalAssetsGrp/EOYAmt0453273
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0358591
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt0124287
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt063354
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0146682
IRS990/TotalFunctionalExpensesGrp/TotalAmt0334323
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0403962
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0453273
IRS990/TotalOtherCompensationAmt026551

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$453,273
Liabilities
$0
Net assets
$453,273
Revenue
$383,634
Expenses
$334,323
Net income
$49,311
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$5.41$0.16$5.25$4.00$3.90$0.09
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.35$0.19$5.16$4.22$5.56$1.34
2021Summary only. Only limited summary data is available for this year.$6.50$0.00$6.50$5.04$3.07$1.97
2020Detailed filing. Detailed filing data is available for this year.$4.53$0.00$4.53$3.84$3.34$0.49
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.04$0.00$4.04$4.61$4.61$0.00
2018Summary only. Only limited summary data is available for this year.$4.04$0.00$4.04$4.82$3.75$1.08
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.53$0.57$2.96$5.58$6.27$0.69
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.45$0.00$4.45$5.95$6.50$0.55
2015Summary only. Only limited summary data is available for this year.$5.50$0.00$5.50$6.08$8.54$2.46
2014Summary only. Only limited summary data is available for this year.$8.99$1.04$7.96$7.63$5.09$2.54
2013Summary only. Only limited summary data is available for this year.$6.14$0.72$5.42$5.62$6.23$0.61
2012Summary only. Only limited summary data is available for this year.$6.06$0.03$6.03$6.12$5.84$0.28
2011Summary only. Only limited summary data is available for this year.$5.93$0.18$5.76$4.28$4.09$0.18