Civic Intelligence

C & S Patient Education Foundation

990 • Fiscal year 2022 • EIN 20-0904691

Jan 01, 2022 to Dec 31, 2022 • Filed on Feb 27, 2023

Organization ProfileWWW.CONQUERCHIARI.ORG
320 Osprey CourtWexford, PA 15090

(724) 940-0116

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.04x

Higher debt load relative to assets than 57% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Liabilities / Revenue

59th percentile

0.05x

Higher debt load relative to revenue than 59% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Net Margin

11th percentile

-32%

Higher net margin than 11% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Top Officer Pay

91st percentile

$115,597

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 27.4% of source-year revenue.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Asset Growth

13th percentile

-18%

Faster asset growth than 13% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Revenue Growth

22nd percentile

-16%

Faster revenue growth than 22% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets57th percentile

Assets

Down

$535,451

Down $114,701 (-18%) from 2021

Net Assets

Down

$516,035

Down $134,117 (-21%) from 2021

Liabilities

Up

$19,416

Up $19,416 from 2021

Revenue And Expenses
Liabilities / Revenue59th percentileNet Margin11th percentile

Revenue

Down

$421,843

Down $82,009 (-16%) from 2021

Expenses

Up

$555,960

Up $248,987 (+81%) from 2021

Net Income

Down

-$134,117

Down $330,996 (-168%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth13th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.0M$500K$0Assets 2011: $593,236Liabilities 2011: $17,523Net Assets 2011: $575,7132011Assets 2012: $606,282Liabilities 2012: $2,932Net Assets 2012: $603,3502012Assets 2013: $613,891Liabilities 2013: $71,676Net Assets 2013: $542,2152013Assets 2014: $899,436Liabilities 2014: $103,534Net Assets 2014: $795,9022014Assets 2015: $549,636Liabilities 2015: $0Net Assets 2015: $549,6362015Assets 2016: $444,699Liabilities 2016: $0Net Assets 2016: $444,6992016Assets 2017: $352,979Liabilities 2017: $56,997Net Assets 2017: $295,9822017Assets 2018: $403,597Liabilities 2018: $0Net Assets 2018: $403,5972018Assets 2019: $403,962Liabilities 2019: $0Net Assets 2019: $403,9622019Assets 2020: $453,273Liabilities 2020: $0Net Assets 2020: $453,2732020Assets 2021: $650,152Liabilities 2021: $0Net Assets 2021: $650,1522021Assets 2022: $535,451Liabilities 2022: $19,416Net Assets 2022: $516,0352022Assets 2023: $541,359Liabilities 2023: $15,949Net Assets 2023: $525,4102023

Highlighted filing

2022

Assets$535,451
Liabilities$19,416
Net Assets$516,035
Open 2022 Filing

Operations Trend

Revenue Growth22nd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2011: $427,692Expenses 2011: $409,404Net Income 2011: $18,2882011Revenue 2012: $611,699Expenses 2012: $584,062Net Income 2012: $27,6372012Revenue 2013: $562,074Expenses 2013: $623,209Net Income 2013: -$61,1352013Revenue 2014: $762,744Expenses 2014: $509,057Net Income 2014: $253,6872014Revenue 2015: $607,953Expenses 2015: $854,219Net Income 2015: -$246,2662015Revenue 2016: $595,029Expenses 2016: $650,183Net Income 2016: -$55,1542016Revenue 2017: $557,837Expenses 2017: $626,617Net Income 2017: -$68,7802017Revenue 2018: $482,270Expenses 2018: $374,655Net Income 2018: $107,6152018Revenue 2019: $460,908Expenses 2019: $460,543Net Income 2019: $3652019Revenue 2020: $383,634Expenses 2020: $334,323Net Income 2020: $49,3112020Revenue 2021: $503,852Expenses 2021: $306,973Net Income 2021: $196,8792021Revenue 2022: $421,843Expenses 2022: $555,960Net Income 2022: -$134,1172022Revenue 2023: $399,573Expenses 2023: $390,198Net Income 2023: $9,3752023

Highlighted filing

2022

Revenue$421,843
Expenses$555,960
Net Income-$134,117
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Feb 27, 2023
Return Version
2022v4.1
Gross Receipts
$510,848
Mission and Program Overview

Mission

The organization is dedicated to improving the experiences and outcomes of chiari and syringomelia patients by: 1.providing accurate, up-to-date, and easy to understand information to patients so that they can take control of their health care and make intelligent,informed decisions. 2. Raising awareness among family, friends, and the general public so that they can better understand what patients are going through and are better able to provide support. 3.raising awareness among, and providing accruate, up-to-date information to the medical community, so that errors in diagnosis and treatment are reduced. 4.sponsoring research to advance the understanding of these conditions and in the end conquer chiari.

Since our inception, we have made tremendous strides towards the goal of conquering chiari, includng:1.serving as a resource for information on chiari and related topics via our website (www.conquerchiari.org) and various publications. 2. Sponsoring research for chiari via our conquer chiari research conference and the conquer chiari research center located at the university of akron, in which grants for research projects focus on improving diagnostics, assessing the cognitive effects of chiari, genetic research, and other critical areas. 3. Promoting awareness through our conquer chiari walk across america, which is an annual fundraising event consisting of a series of walks held across the country on the same day.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$594,585$529,596▼ $64,989
Pledges and Grants Receivable$38,000$0▼ $38,000
Land, Buildings, and Equipment, Net$17,567$5,855▼ $11,712
Total Assets$650,152$535,451▼ $114,701
Liabilities
Grants Payable$0$19,416▲ $19,416
Total Liabilities$0$19,416▲ $19,416
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$650,152$516,035▼ $134,117
Total Net Assets Fund Balance$650,152$516,035▼ $134,117
Total Liabilities and Net Assets / Fund Balance$650,152$535,451▼ $114,701

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$5,855$29,279$35,134
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Richard LabudaExecutive Director, SecretFT$86,750$28,847$115,597

Board Members and Trustees

NameTitle
Richard KushnerPresident, Board Member
David LeeVice President, Board Memb
CHARLES O'HANLONDirector
Mark TomczakTreasurer, Board Member
Revenue and Support

Revenue Composition

Contributions and Grants
$441,184
Program Service Revenue
$11,291
Investment Income
$1,386
Other Revenue
$-32,018
All Other Contributions
$138,354
Change in Net Assets
$-134,117

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table264$14,953Donor Value
Other Non Cash Contri Table68$7,825Estimated Value
Other Non Cash Contri Table75$5,670Face Value
Other Non Cash Contri Table18$4,775Similiar Services
Total Noncash Contributions425$33,223-

Audited Revenue Reconciliation

Revenue per Audited Statements
$421,843
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$89,006
Total Revenue per Audited Statements
$510,849
Total Revenue per Form 990
$421,843
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$288,390
Salaries, Compensation, and Employee Benefits$175,442
Total Fundraising Expense$97,520
Other Expenses$92,128
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$288,390--$288,390
Other Salaries and Wages$56,013$35,939$43,075$135,027
Other Employee Benefits$12,215$8,180$9,394$29,789
Conferences and Meetings$12,505--$12,505
Fees for Services Legal-$12,164-$12,164
Information Technology$294$778$10,907$11,979
Depreciation Depletion--$11,711$11,711
Payroll Taxes$4,408$2,828$3,390$10,626
Fees for Services Accounting-$10,457-$10,457
Fees for Services Other$1,000$1,152$7,530$9,682
Insurance-$2,427-$2,427
Other Expenses$2,583$2,017$150$2,017
Total Functional Expenses$377,408$81,032$97,520$555,960

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$644,966
Expenses per Audited Statements$555,960
Total Expenses per Form 990$555,960
Expenses Not Reported on Form 990$89,006
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Northeastern UniversityBoston, MA501(c)(3)C1000 Coordinator/amini, Testing Patho Theory Loth$116,298
Kent State UniversityKent, OH501(c)(3)On-line Act - Phase Ii$74,111
University of AkronAkron, OH501(c)(3)ONGOING BUDGET FOR CONQUER CHIARI RESEARCH CENTER, ESTABLISH "CHIARI 1000", TARGETING SYRINX$45,858
The Medical College of WisconsinMilwaukee, WI501(c)(3)Resting State Fmri - Cogn & Pain$33,873
Beth Israel Deaconness Medical CenterBoston, MA501(c)(3)Bhadelia - Database$18,250
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$89,005
Fundraising Gross Income$56,987
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk Across America$359,817$56,987$89,005$-32,018
Total Events$359,817$56,987$89,005$-32,018
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization distributes a draft 990 to all board directors and the executive director via email. If necessary, discussion is undertaken via email or by meeting if so desired by any director. A vote is then taken to affirmatively adopt and file the 990. At the next official board meeting, the minutes reflect the adoption of the 990.”

Form 990, Part VI, Section B, Line 12C

“The volunteer coordinator is responsible for distributing and collecting signed conflict disclosure statements annually.”

Form 990, Part VI, Section B, Line 15A

“The compensation committee meets to review the performance of the executive director and volunteer coordinator. The compensation committee chair seeks input from the other directors and the executive director regarding accomplishments. The committee establishes an annual performance bonus, if so earned, and salary for the following year. Salary and bonuses are based in part on the size of the organization in revenue and comparable executive directors' salaries at similar sized organizations. The compensation committee's recommendation is made at the following board meeting and voted on by the board. Minutes from the compensation committee's meeting are entered into the record.”

Form 990, Part VI, Section C, Line 19

“Form 990 and the 501(c)(3)determination letter are available on the website. Audited financials and policies are included in the annual report which is posted on the website.”

Filing and Contact Details

Filer

Filer Name
C & S Patient Education Foundation
EIN
20-0904691
Phone
7249400116
Address
320 OSPREY COURT, WEXFORD, PA 15090
Doing Business As
Conquer Chiari

Signing Officer

Name
Richard Labuda
Title
Executive Director
Phone
7249400116
Signed
2023-02-27
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Richard Labuda
Formed
2004
Legal Domicile
Pa
Voting Board Members
5
Independent Board Members
4
Employees
3
Volunteers
150

Preparer

Firm
Grossman Yanak & Ford Llp
Address
THREE GATEWAY CTR STE 1800, PITTSBURGH, PA 15222
Preparer
Richard E Dynoske
Phone
4123389300
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The foundation is exempt from federal income taxes under section 501(c)(3) of the internal revenue code and applicable state law. Management believes that there is no liability related to uncertain tax positions at december 31, 2022. The foundation is no longer subject to tax examinations for tax periods through december 31, 2019.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expenses netted against income”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expenses netted against income”

Raw XML AppendixShowing 400 of 530 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0SINCE OUR INCEPTION, WE HAVE MADE TREMENDOUS STRIDES TOWARDS THE GOAL OF CONQUERING CHIARI, INCLUDNG:1.SERVING AS A RESOURCE FOR INFORMATION ON CHIARI AND RELATED TOPICS VIA OUR WEBSITE (WWW.CONQUERCHIARI.ORG) AND VARIOUS PUBLICATIONS. 2. SPONSORING RESEARCH FOR CHIARI VIA OUR CONQUER CHIARI RESEARCH CONFERENCE AND THE CONQUER CHIARI RESEARCH CENTER LOCATED AT THE UNIVERSITY OF AKRON, IN WHICH GRANTS FOR RESEARCH PROJECTS FOCUS ON IMPROVING DIAGNOSTICS, ASSESSING THE COGNITIVE EFFECTS OF CHIARI, GENETIC RESEARCH, AND OTHER CRITICAL AREAS. 3. PROMOTING AWARENESS THROUGH OUR CONQUER CHIARI WALK ACROSS AMERICA, WHICH IS AN ANNUAL FUNDRAISING EVENT CONSISTING OF A SERIES OF WALKS HELD ACROSS THE COUNTRY ON THE SAME DAY.
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IRS990/Desc0GRANTS FOR RESEARCH PROJECTS FOCUSED ON IMPROVING DIAGNOSTICS, ASSESSING THE COGNITIVE EFFECTS OF CHIARI, GENETICS RESEARCH, AND OTHER CRITICAL AREAS. MOST FUNDING IS DIRECTED TOWARDS THE CONQUER CHIARI RESEARCH CENTER (CCRC), THE WORLD'S FIRST RESEARCH LABORATORY DEDICATED SOLELY TO ADVANCING THE MEDICAL AND SCIENTIFIC UNDERSTANDING OF CHIARI MALFORMATION. THE CCRC IS A STATE OF THE ART FACILITY, STAFFED WITH DISTINGUISHED RESEARCHERS, WORKING DILIGENTLY TO: APPLY THE LATEST ENGINEERING TECHNIQUES AND ANALYSIS TO IMPROVE DIAGNOSES AND TREATMENT OPTIONS, LEVERAGE THE CONQUER CHIARI PATIENT REGISTRY TO STUDY THE EPIDEMIOLOGY AND NATURAL HISTORY OF CHIARI, FOSTER COLLABORATIONS WITH LEADING CLINICIANS AND SCIENTISTS TO ADVANCE THE CONQUER CHIARI RESEARCH AGENDA AND ACT AS A FOCAL POINT FOR THE CHIARI RESEARCH.
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IRS990/Form990PartVIISectionAGrp/PersonNm1RICHARD KUSHNER
IRS990/Form990PartVIISectionAGrp/PersonNm2DAVID LEE
IRS990/Form990PartVIISectionAGrp/PersonNm3MARK TOMCZAK
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IRS990/Form990PartVIISectionAGrp/TitleTxt0EXECUTIVE DIRECTOR, SECRET
IRS990/Form990PartVIISectionAGrp/TitleTxt1PRESIDENT, BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt2VICE PRESIDENT, BOARD MEMB
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER, BOARD MEMBER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
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IRS990/MissionDesc0THE ORGANIZATION IS DEDICATED TO IMPROVING THE EXPERIENCES AND OUTCOMES OF CHIARI AND SYRINGOMELIA PATIENTS BY: 1.PROVIDING ACCURATE, UP-TO-DATE, AND EASY TO UNDERSTAND INFORMATION TO PATIENTS SO THAT THEY CAN TAKE CONTROL OF THEIR HEALTH CARE AND MAKE INTELLIGENT,INFORMED DECISIONS. 2. RAISING AWARENESS AMONG FAMILY, FRIENDS, AND THE GENERAL PUBLIC SO THAT THEY CAN BETTER UNDERSTAND WHAT PATIENTS ARE GOING THROUGH AND ARE BETTER ABLE TO PROVIDE SUPPORT. 3.RAISING AWARENESS AMONG, AND PROVIDING ACCRUATE, UP-TO-DATE INFORMATION TO THE MEDICAL COMMUNITY, SO THAT ERRORS IN DIAGNOSIS AND TREATMENT ARE REDUCED. 4.SPONSORING RESEARCH TO ADVANCE THE UNDERSTANDING OF THESE CONDITIONS AND IN THE END CONQUER CHIARI.
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IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt09394
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt08180
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt012215
IRS990/OtherEmployeeBenefitsGrp/TotalAmt029789
IRS990/OtherExpensesGrp/Desc0OTHER
IRS990/OtherExpensesGrp/Desc1PRINTING AND SHIPPING
IRS990/OtherExpensesGrp/Desc2STATE REGISTRATION FEES
IRS990/OtherExpensesGrp/Desc3PAYROLL PROCESSING FEES
IRS990/OtherExpensesGrp/FundraisingAmt07799
IRS990/OtherExpensesGrp/FundraisingAmt13564
IRS990/OtherExpensesGrp/FundraisingAmt2150
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01914
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1253
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt22923
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt32017
IRS990/OtherExpensesGrp/ProgramServicesAmt02583
IRS990/OtherExpensesGrp/TotalAmt012296
IRS990/OtherExpensesGrp/TotalAmt13817
IRS990/OtherExpensesGrp/TotalAmt23073
IRS990/OtherExpensesGrp/TotalAmt32017
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt043075
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt035939
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt056013
IRS990/OtherSalariesAndWagesGrp/TotalAmt0135027
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt03390
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt02828
IRS990/PayrollTaxesGrp/ProgramServicesAmt04408
IRS990/PayrollTaxesGrp/TotalAmt010626
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt038000
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0RICHARD LABUDA
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0PROGRAM RELATED SALES
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt011291
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt011291
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0524251
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt077527
IRS990/PYInvestmentIncomeAmt08
IRS990/PYOtherExpensesAmt068958
IRS990/PYOtherRevenueAmt0-38909
IRS990/PYProgramServiceRevenueAmt018502
IRS990/PYRevenuesLessExpensesAmt0196879
IRS990/PYSalariesCompEmpBnftPaidAmt0160488
IRS990/PYTotalExpensesAmt0306973
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0503852
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-134117
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0498172
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0585072
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0414545
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0562722
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0571308
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02631819
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt01386
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt08
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt073
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0116
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0123
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt01706
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt05383
IRS990ScheduleA/OtherIncome170Grp/TotalAmt05383
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.88510
IRS990ScheduleA/PublicSupportPY170Pct00.88810
IRS990ScheduleA/PublicSupportTotal170Amt02335685
IRS990ScheduleA/SubstantialContributorsTotAmt0296134
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0498172
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0585072
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0414545
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0562722
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0571308
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02631819
IRS990ScheduleA/TotalSupportAmt02638908
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt089006
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0555960
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherExpensesIncludedAmt089006
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt05855
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt029279
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt035134
IRS990ScheduleD/OtherRevenueAmt089006
IRS990ScheduleD/RevenueNotReportedAmt089006
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0421843
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND APPLICABLE STATE LAW. MANAGEMENT BELIEVES THAT THERE IS NO LIABILITY RELATED TO UNCERTAIN TAX POSITIONS AT DECEMBER 31, 2022. THE FOUNDATION IS NO LONGER SUBJECT TO TAX EXAMINATIONS FOR TAX PERIODS THROUGH DECEMBER 31, 2019.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1FUNDRAISING EXPENSES NETTED AGAINST INCOME
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2FUNDRAISING EXPENSES NETTED AGAINST INCOME
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART XI, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc2PART XII, LINE 2D - OTHER ADJUSTMENTS:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt05855
IRS990ScheduleD/TotalExpensesPerForm990Amt0555960
IRS990ScheduleD/TotalRevenuePerForm990Amt0421843
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0510849
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0644966
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0302830
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0302830
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt089005
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0WALK ACROSS AMERICA
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0359817
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0359817
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt056987
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt056987
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt0-32018
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt089005
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt089005
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt045858
IRS990ScheduleI/RecipientTable/CashGrantAmt118250
IRS990ScheduleI/RecipientTable/CashGrantAmt2116298
IRS990ScheduleI/RecipientTable/CashGrantAmt333873
IRS990ScheduleI/RecipientTable/CashGrantAmt474111
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc3501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc4501(C)(3)
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt20
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt30
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt40
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0ONGOING BUDGET FOR CONQUER CHIARI RESEARCH CENTER, ESTABLISH "CHIARI 1000", TARGETING SYRINX
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1BHADELIA - DATABASE
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2C1000 COORDINATOR/AMINI, TESTING PATHO THEORY LOTH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3RESTING STATE FMRI - COGN & PAIN
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4ON-LINE ACT - PHASE II
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF AKRON
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1BETH ISRAEL DEACONNESS MEDICAL CENTER
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2NORTHEASTERN UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3THE MEDICAL COLLEGE OF WISCONSIN
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4KENT STATE UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientEIN0346002924
IRS990ScheduleI/RecipientTable/RecipientEIN1042103881
IRS990ScheduleI/RecipientTable/RecipientEIN2041679980
IRS990ScheduleI/RecipientTable/RecipientEIN3390806261
IRS990ScheduleI/RecipientTable/RecipientEIN4316402079
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0302 E BUCHTEL AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1330 BROOKLINE AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2360 HUNTINGTON AVENUE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt38701 W WESTERTOWN PLANK RD
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt4800 E SUMMIT STREET
IRS990ScheduleI/RecipientTable/USAddress/CityNm0AKRON
IRS990ScheduleI/RecipientTable/USAddress/CityNm1BOSTON
IRS990ScheduleI/RecipientTable/USAddress/CityNm2BOSTON
IRS990ScheduleI/RecipientTable/USAddress/CityNm3MILWAUKEE
IRS990ScheduleI/RecipientTable/USAddress/CityNm4KENT
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0OH
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3WI
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd4OH
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd044325
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd102215
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd202115
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd353226
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd444240
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE EXECUTIVE DIRECTOR IS RESPONSIBLE FOR OVERSEEING RESEARCH GRANTS. EACH GRANT RECIPIENT MUST SUBMIT A FINAL REPORT DETAILING BOTH THE WORK PERFORMED AND HOW THE FUNDS WERE USED.
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt1UNIVERSITY OF AKRON GRANTS WERE USED FOR ONGOING BUDGET FOR CONQUER CHIARI RESEARCH CENTER. THE FOLLOWING ACTIVITY IN 2021 RESULTS IN THE $45,858 REFLECTED ON PART II, LINE 1D: ORIGINAL GRANTS 2022: $56,568 LESS: RETURN OF 2021 GRANTS ($10,710) TOTAL GRANTS FOR 2022: $45,858
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc1PART II, LINE 1D
IRS990/ScheduleJRequiredInd00
IRS990ScheduleM/AnyPropertyThatMustBeHeldInd00
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt0264
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt168
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt275
IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt318
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc0GIFT BASKETS
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc1MISCELLAENOUS DONATIONS
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc2GIFT CERTIFICATES
IRS990ScheduleM/OtherNonCashContriTableGrp/Desc3PROFESSIONAL SERVICES
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt0DONOR VALUE
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt1ESTIMATED VALUE
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt2FACE VALUE
IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt3SIMILIAR SERVICES
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd0X
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd1X
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd2X
IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd3X
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt014953
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt17825
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt25670
IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt34775
IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd00
IRS990ScheduleM/ThirdPartiesUsedInd00
IRS990/ScheduleORequiredInd01

Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$535,451
Liabilities
$19,416
Net assets
$516,035
Revenue
$421,843
Expenses
$555,960
Net income
-$134,117
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$5.41$0.16$5.25$4.00$3.90$0.09
2022Detailed filing. Detailed filing data is available for this year.$5.35$0.19$5.16$4.22$5.56$1.34
2021Summary only. Only limited summary data is available for this year.$6.50$0.00$6.50$5.04$3.07$1.97
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.53$0.00$4.53$3.84$3.34$0.49
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.04$0.00$4.04$4.61$4.61$0.00
2018Summary only. Only limited summary data is available for this year.$4.04$0.00$4.04$4.82$3.75$1.08
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.53$0.57$2.96$5.58$6.27$0.69
2016Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.45$0.00$4.45$5.95$6.50$0.55
2015Summary only. Only limited summary data is available for this year.$5.50$0.00$5.50$6.08$8.54$2.46
2014Summary only. Only limited summary data is available for this year.$8.99$1.04$7.96$7.63$5.09$2.54
2013Summary only. Only limited summary data is available for this year.$6.14$0.72$5.42$5.62$6.23$0.61
2012Summary only. Only limited summary data is available for this year.$6.06$0.03$6.03$6.12$5.84$0.28
2011Summary only. Only limited summary data is available for this year.$5.93$0.18$5.76$4.28$4.09$0.18