Civic Intelligence

Project a L Sinc

990 • Fiscal year 2023 • EIN 13-4019464

Aug 01, 2022 to Jul 31, 2023 • Filed on Jun 17, 2024

Organization ProfileWWW.PROJECTALS.ORG

View Organization Page

2585 Broadway Ste 202New York, NY 10032

(212) 420-7382

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

96th percentile

1.38x

Higher debt load relative to assets than 96% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Liabilities / Revenue

83rd percentile

0.61x

Higher debt load relative to revenue than 83% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Net Margin

16th percentile

-19%

Higher net margin than 16% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Top Officer Pay

91st percentile

$220,712

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 5.8% of source-year revenue.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2023

Asset Growth

87th percentile

41%

Faster asset growth than 87% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Revenue Growth

47th percentile

5.0%

Faster revenue growth than 47% of similar nonprofits.

2023 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets96th percentile

Assets

Flat

$1,661,605

Flat from 2023

Net Assets

Flat

-$629,349

Flat from 2023

Liabilities

Flat

$2,290,954

Flat from 2023

Revenue And Expenses
Liabilities / Revenue83rd percentileNet Margin16th percentile

Revenue

Flat

$3,776,913

Flat from 2023

Expenses

Flat

$4,483,713

Flat from 2023

Net Income

Flat

-$706,800

Flat from 2023

Historical Trend

Balance Sheet Trend

Asset Growth87th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0-$2.0MAssets 2011: $2,731,589Liabilities 2011: $2,112,095Net Assets 2011: $619,4942011Assets 2012: $3,065,094Liabilities 2012: $2,149,036Net Assets 2012: $916,0582012Assets 2013: $2,556,628Liabilities 2013: $2,135,586Net Assets 2013: $421,0422013Assets 2014: $2,270,964Liabilities 2014: $1,938,401Net Assets 2014: $332,5632014Assets 2015: $3,230,058Liabilities 2015: $2,927,335Net Assets 2015: $302,7232015Assets 2016: $2,486,877Liabilities 2016: $2,374,261Net Assets 2016: $112,6162016Assets 2017: $4,278,481Liabilities 2017: $3,965,613Net Assets 2017: $312,8682017Assets 2018: $3,858,975Liabilities 2018: $3,605,300Net Assets 2018: $253,6752018Assets 2019: $2,000,729Liabilities 2019: $2,515,167Net Assets 2019: -$514,4382019Assets 2020: $2,583,051Liabilities 2020: $2,597,587Net Assets 2020: -$14,5362020Assets 2021: $1,558,325Liabilities 2021: $2,131,278Net Assets 2021: -$572,9532021Assets 2022: $1,177,668Liabilities 2022: $1,595,143Net Assets 2022: -$417,4752022Assets 2023: $1,661,605Liabilities 2023: $2,290,954Net Assets 2023: -$629,3492023Assets 2023: $1,661,605Liabilities 2023: $2,290,954Net Assets 2023: -$629,3492023Assets 2024: $1,748,266Liabilities 2024: $2,810,948Net Assets 2024: -$1,062,6822024

Highlighted filing

2023

Assets$1,661,605
Liabilities$2,290,954
Net Assets-$629,349
Open 2023 Filing

Operations Trend

Revenue Growth47th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $5,087,2502011Expenses 2012: $4,943,6702012Expenses 2013: $2,515,7112013Revenue 2014: $1,925,701Expenses 2014: $2,014,180Net Income 2014: -$88,4792014Revenue 2015: $2,951,504Expenses 2015: $2,974,443Net Income 2015: -$22,9392015Revenue 2016: $2,362,369Expenses 2016: $2,508,621Net Income 2016: -$146,2522016Revenue 2017: $5,513,484Expenses 2017: $5,325,775Net Income 2017: $187,7092017Revenue 2018: $4,107,224Expenses 2018: $4,180,948Net Income 2018: -$73,7242018Revenue 2019: $3,840,925Expenses 2019: $4,609,038Net Income 2019: -$768,1132019Revenue 2020: $4,308,751Expenses 2020: $3,808,849Net Income 2020: $499,9022020Revenue 2021: $2,611,375Expenses 2021: $3,172,033Net Income 2021: -$560,6582021Revenue 2022: $3,596,233Expenses 2022: $3,498,948Net Income 2022: $97,2852022Revenue 2023: $3,776,913Expenses 2023: $4,483,713Net Income 2023: -$706,8002023Revenue 2023: $3,776,913Expenses 2023: $4,483,713Net Income 2023: -$706,8002023Revenue 2024: $2,979,518Expenses 2024: $3,412,851Net Income 2024: -$433,3332024

Highlighted filing

2023

Revenue$3,776,913
Expenses$4,483,713
Net Income-$706,800
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Aug 1, 2022 to Jul 31, 2023
Signed
Jun 17, 2024
Return Version
2022v5.0
Gross Receipts
$4,349,693
Mission and Program Overview

Mission

To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.

Working towards an understanding and treatments for amyotrophic lateral sclerosis.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$745,680$1,187,500▲ $441,820
Savings and Temporary Cash Investments$122,257$298,296▲ $176,039
Prepaid Expenses and Deferred Charges$160,908$118,691▼ $42,217
Pledges and Grants Receivable$104,245$49,337▼ $54,908
Investments in Publicly Traded Securities$31,019$200▼ $30,819
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$1,177,668$1,661,605▲ $483,937
Other Assets Total$13,559$7,581▼ $5,978
Liabilities
Grants Payable$1,111,641$1,859,661▲ $748,020
Deferred Revenue$316,750$382,501▲ $65,751
Accounts Payable and Accrued Expenses$166,752$48,792▼ $117,960
Total Liabilities$1,595,143$2,290,954▲ $695,811
Net Assets / Fund Balance
Net Assets With Donor Restrictions-$103,789-
Net Assets Without Donor Restrictions$-417,475$-733,138▼ $315,663
Total Net Assets Fund Balance$-417,475$-629,349▼ $211,874
Total Liabilities and Net Assets / Fund Balance$1,177,668$1,661,605▲ $483,937

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$433,213$433,213
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Valerie EstessVice PresidentFT$194,350$26,362$220,712
Meredith Estess HulbertPresidentFT$194,350$11,070$205,420

Board Members and Trustees

NameTitle
Debbie WilponChair
Robert S KaplanChair
Arthur FrasierDirector
Bonnie VerbitskyDirector
Bruce SpohlerDirector
Chad CascarillaDirector
Christine TaylorDirector
Daniel KellisonDirector
Darci CarltonDirector
David L JaffeDirector
Debra WassermanDirector
F Jonathan DracosDirector
Jack MerrillDirector
Lawrence TaricaDirector
Lori Hirshliefer SillsDirector
Marcie FleckDirector
Martha MccullyDirector
Michael BermanDirector
Nancy JareckiDirector
Peter J HulbertDirector
Regina Kulik ScullyDirector
Rob BurnettDirector
Rob MorrowDirector
Simon HallsDirector
Stacey GriffithDirector
Staci KirchhoffDirector
Sue LeibmanDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$3,777,226
Program Service Revenue
$0
Investment Income
$-313
Other Revenue
$0
All Other Contributions
$2,134,472
Change in Net Assets
$-706,800

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,776,913
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$3,776,913
Total Revenue per Form 990
$3,776,913
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$2,940,437
Salaries, Compensation, and Employee Benefits$898,128
Other Expenses$645,148
Total Fundraising Expense$187,055
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$2,940,437--$2,940,437
Current Officers, Directors, Trustees, and Key Employees$391,258$50,366$23,068$464,692
Other Salaries and Wages$200,596$127,416$26,396$354,408
Fees for Services Other$47,226$1,090$42,276$90,592
Office Expenses$64,191$11,789$4,348$80,328
Payroll Taxes$39,285$12,376$3,372$55,033
Fees for Services Accounting-$40,163-$40,163
Travel$22,654$1,259$1,259$25,172
Fees for Services Legal$25,000--$25,000
Other Employee Benefits$9,979$11,819$2,197$23,995
Conferences and Meetings$20,204$206$206$20,616
Insurance$11,559$3,642$992$16,193
Occupancy$11,254$3,545$966$15,765
All Other Expenses-$12,506$873$13,379
Other Expenses$8,186$11,256$9,407$9,407
Total Functional Expenses$4,009,225$287,433$187,055$4,483,713

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$4,483,713
Total Expenses per Form 990$4,483,713
Total Expenses per Audited Statements$3,988,787
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$-494,926
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Columbia UniversityNew York, NY501(c)(3)Medical Research$2,575,227
University of California San DiegoLa Jolla, CA501(c)(3)Medical Research$135,662
Salk InstituteLa Jolla, CA501(c)(3)Medical Research$98,000
University of California San FranciscoSan Francisco, CA501(c)(3)Medical Research$80,000
Weill Cornell Medical CollegeNew York, NY501(c)(3)Medical Research$51,321
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$521,994
Fundraising Gross Income$521,994
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Golf$520,653$206,951$19,629$187,322
25th Anniversary$906,102$144,538$19,227$125,311
Total Events$2,164,748$521,994$521,994$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Meredith Estess HulbertFamily Member of DirectorsEmployed by OrganizationNo$207,891
Valerie EstessFamily Member of DirectorEmployed by OrganizationNo$207,628
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Meredith estess hulbert, president, and valerie estess, vice president, have a family relationship. Meredith estess hulbert, president, and peter j. Hulbert, director, have a family relationship.”

Form 990, Part VI, Section B, Line 11B

“The president and controller review the form 990 for reasonableness by comparing the data on the form 990 to the audited financial statements and the information provided to the tax preparer. The final form 990 is provided to all members of the governing body prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“The organization's conflict of interest policy covers all interested persons which consists of the board of directors, officers, chief employed executive, and chief employed finance executive. Interested persons are required to disclose annually any interests that may be a potential conflict of interest to the chairman of the board of directors who will review and determine any necessary further actions. Any interested person shall recuse oneself from participating and voting in deliberations and discussions to the related transaction.”

Form 990, Part VI, Section B, Line 15

“The compensation of the president and vice president is reviewed and approved annually by the independent board's executive committee through the use of comparable data of similarly situated organizations. The process is documented contemporaneously. Meredith and valerie estess do not vote on executive compensation.”

Form 990, Part VI, Section C, Line 19

“The organization makes its audited financial statements available on its website. The governing documents and conflict of interest policy are available upon request.”

Filing and Contact Details

Filer

Filer Name
Project Als Inc
EIN
13-4019464
Phone
2124207382
Address
2585 BROADWAY STE 202, NEW YORK, NY 10032

Signing Officer

Name
Meredith Estess Hulbert
Title
President
Phone
2124207382
Signed
2024-06-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meredith Estess Hulbert
Formed
1998
Legal Domicile
Ny
Voting Board Members
29
Independent Board Members
26
Employees
7
Volunteers
10

Preparer

Firm
Citrin Cooperman Advisors LLC
Address
30 BRAINTREE HL OFFICE PARK STE 300, BRAINTREE, MA 02184
Preparer
Amanda Adams
Phone
7813562000
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Refund/writeoff of prior year grants awarded 494,926.”

Financial Statement Notes

PART X, LINE 2:

“The organization recognizes and measures its unrecognized tax benefits in accordance with financial accounting standards board ("fasb") accounting standards codification ("asc") 740, income taxes. Under that guidance, the organization assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances and information available at the end of each period. The measurement of unrecognized tax benefits is adjusted when new information is available or when an event occurs that requires a change. Management has evaluated the organization's tax positions and has concluded that the organization has taken no uncertain tax positions that require adjustment to the financial statements.”

Raw XML AppendixShowing 400 of 744 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt220
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt240
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt250
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt280
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IRS990/Form990PartVIISectionAGrp/PersonNm1VALERIE ESTESS
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IRS990/Form990PartVIISectionAGrp/PersonNm3DEBBIE WILPON
IRS990/Form990PartVIISectionAGrp/PersonNm4ROB BURNETT
IRS990/Form990PartVIISectionAGrp/PersonNm5MICHAEL BERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm6DARCI CARLTON
IRS990/Form990PartVIISectionAGrp/PersonNm7CHAD CASCARILLA
IRS990/Form990PartVIISectionAGrp/PersonNm8F JONATHAN DRACOS
IRS990/Form990PartVIISectionAGrp/PersonNm9MARCIE FLECK
IRS990/Form990PartVIISectionAGrp/PersonNm10ARTHUR FRASIER
IRS990/Form990PartVIISectionAGrp/PersonNm11STACEY GRIFFITH
IRS990/Form990PartVIISectionAGrp/PersonNm12SIMON HALLS
IRS990/Form990PartVIISectionAGrp/PersonNm13PETER J HULBERT
IRS990/Form990PartVIISectionAGrp/PersonNm14DAVID L JAFFE
IRS990/Form990PartVIISectionAGrp/PersonNm15NANCY JARECKI
IRS990/Form990PartVIISectionAGrp/PersonNm16DANIEL KELLISON
IRS990/Form990PartVIISectionAGrp/PersonNm17STACI KIRCHHOFF
IRS990/Form990PartVIISectionAGrp/PersonNm18SUE LEIBMAN
IRS990/Form990PartVIISectionAGrp/PersonNm19MARTHA MCCULLY
IRS990/Form990PartVIISectionAGrp/PersonNm20JACK MERRILL
IRS990/Form990PartVIISectionAGrp/PersonNm21ROB MORROW
IRS990/Form990PartVIISectionAGrp/PersonNm22REGINA KULIK SCULLY
IRS990/Form990PartVIISectionAGrp/PersonNm23LORI HIRSHLIEFER SILLS
IRS990/Form990PartVIISectionAGrp/PersonNm24BRUCE SPOHLER
IRS990/Form990PartVIISectionAGrp/PersonNm25LAWRENCE TARICA
IRS990/Form990PartVIISectionAGrp/PersonNm26CHRISTINE TAYLOR
IRS990/Form990PartVIISectionAGrp/PersonNm27DEBRA WASSERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm28BONNIE VERBITSKY
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1194350
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt270
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt280
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt27DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt28DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01998
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt01642754
IRS990/FundraisingDirectExpensesAmt0521994
IRS990/FundraisingGrossIncomeAmt0521994
IRS990/GainOrLossGrp/SecuritiesAmt0-1142
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt029
IRS990/GrantAmt02940437
IRS990/GrantsPayableGrp/BOYAmt01111641
IRS990/GrantsPayableGrp/EOYAmt01859661
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt02940437
IRS990/GrantsToDomesticOrgsGrp/TotalAmt02940437
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt049644
IRS990/GrossReceiptsAmt04349693
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt026
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InsuranceGrp/FundraisingAmt0992
IRS990/InsuranceGrp/ManagementAndGeneralAmt03642
IRS990/InsuranceGrp/ProgramServicesAmt011559
IRS990/InsuranceGrp/TotalAmt016193
IRS990/InvestmentIncomeGrp/ExclusionAmt0829
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0829
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt031019
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0200
IRS990/IRPDocumentCnt030
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0433213
IRS990/LandBldgEquipBasisNetGrp/BOYAmt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt0433213
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt050786
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IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO RECRUIT THE WORLD'S BEST RESEARCH SCIENTISTS AND CLINICIANS TO WORK TOGETHER TOWARD AN UNDERSTANDING OF AND THE FIRST EFFECTIVE TREATMENTS FOR ALS (AMYOTROPHIC LATERAL SCLEROSIS) ALSO KNOWN AS LOU GEHRIG'S DISEASE.
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IRS990/NoncashContributionsAmt019967
IRS990/NondeductibleContributionsInd00
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IRS990/OccupancyGrp/ManagementAndGeneralAmt03545
IRS990/OccupancyGrp/ProgramServicesAmt011254
IRS990/OccupancyGrp/TotalAmt015765
IRS990/OfficeExpensesGrp/FundraisingAmt04348
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt011789
IRS990/OfficeExpensesGrp/ProgramServicesAmt064191
IRS990/OfficeExpensesGrp/TotalAmt080328
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IRS990/OtherAssetsTotalGrp/EOYAmt07581
IRS990/OtherChangesInNetAssetsAmt0494926
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt02197
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt011819
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt09979
IRS990/OtherEmployeeBenefitsGrp/TotalAmt023995
IRS990/OtherExpensesGrp/Desc0EVENTS
IRS990/OtherExpensesGrp/Desc1RESEARCH
IRS990/OtherExpensesGrp/Desc2BOOKS, DUES & SUBSCRIPT
IRS990/OtherExpensesGrp/Desc3PROMOTIONS AND GIFTS
IRS990/OtherExpensesGrp/FundraisingAmt070672
IRS990/OtherExpensesGrp/FundraisingAmt11023
IRS990/OtherExpensesGrp/FundraisingAmt29407
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt011256
IRS990/OtherExpensesGrp/ProgramServicesAmt0104396
IRS990/OtherExpensesGrp/ProgramServicesAmt1113000
IRS990/OtherExpensesGrp/ProgramServicesAmt28186
IRS990/OtherExpensesGrp/TotalAmt0175068
IRS990/OtherExpensesGrp/TotalAmt1113000
IRS990/OtherExpensesGrp/TotalAmt220465
IRS990/OtherExpensesGrp/TotalAmt39407
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt026396
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0127416
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0200596
IRS990/OtherSalariesAndWagesGrp/TotalAmt0354408

Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,661,605
Liabilities
$2,290,954
Net assets
-$629,349
Revenue
$3,776,913
Expenses
$4,483,713
Net income
-$706,800
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.75$2.81$1.06$2.98$3.41$0.43
2023Detailed filing. Detailed filing data is available for this year.$1.66$2.29$0.63$3.78$4.48$0.71
2023Summary only. Only limited summary data is available for this year.$1.66$2.29$0.63$3.78$4.48$0.71
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$1.60$0.42$3.60$3.50$0.10
2021Summary only. Only limited summary data is available for this year.$1.56$2.13$0.57$2.61$3.17$0.56
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.58$2.60$0.01$4.31$3.81$0.50
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.00$2.52$0.51$3.84$4.61$0.77
2018Summary only. Only limited summary data is available for this year.$3.86$3.61$0.25$4.11$4.18$0.07
2017Summary only. Only limited summary data is available for this year.$4.28$3.97$0.31$5.51$5.33$0.19
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.49$2.37$0.11$2.36$2.51$0.15
2015Detailed filing. Detailed filing data is available for this year.$3.23$2.93$0.30$2.95$2.97$0.02
2014Detailed filing. Detailed filing data is available for this year.$2.27$1.94$0.33$1.93$2.01$0.09
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.56$2.14$0.42$2.52
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.07$2.15$0.92$4.94
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.73$2.11$0.62$5.09