Liabilities / Assets
89th percentile
Higher debt load relative to assets than 89% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
89th percentile
Higher debt load relative to assets than 89% of similar nonprofits.
Liabilities / Revenue
84th percentile
Higher debt load relative to revenue than 84% of similar nonprofits.
Net Margin
37th percentile
Higher net margin than 37% of similar nonprofits.
Top Officer Pay
87th percentile
Higher top officer pay than 87% of similar nonprofits.
Top officer pay equals 6.0% of source-year revenue.
Asset Growth
90th percentile
Faster asset growth than 90% of similar nonprofits.
Revenue Growth
89th percentile
Faster revenue growth than 89% of similar nonprofits.
Assets
Up$3,230,058
Up $959,094 (+42%) from 2014
Net Assets
Down$302,723
Down $29,840 (-9.0%) from 2014
Liabilities
Up$2,927,335
Up $988,934 (+51%) from 2014
Revenue
Up$2,951,504
Up $1,025,803 (+53%) from 2014
Expenses
Up$2,974,443
Up $960,263 (+48%) from 2014
Net Income
Up-$22,939
Up $65,540 (+74%) from 2014
To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.
Working towards an understanding and treatments for amyotrophic lateral sclerosis
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $787,819 | $1,490,921 | ▲ $703,102 |
| Cash and Non-Interest-Bearing Accounts | $1,296,791 | $1,268,082 | ▼ $28,709 |
| Investments in Publicly Traded Securities | - | $194,407 | - |
| Prepaid Expenses and Deferred Charges | $95,277 | $131,760 | ▲ $36,483 |
| Pledges and Grants Receivable | $75,247 | $128,419 | ▲ $53,172 |
| Land, Buildings, and Equipment, Net | $888 | $449 | ▼ $439 |
| Total Assets | $2,270,964 | $3,230,058 | ▲ $959,094 |
| Other Assets Total | $14,942 | $16,020 | ▲ $1,078 |
| Liabilities | |||
| Grants Payable | $1,680,925 | $2,482,979 | ▲ $802,054 |
| Accounts Payable and Accrued Expenses | $257,476 | $243,048 | ▼ $14,428 |
| Deferred Revenue | - | $201,308 | - |
| Total Liabilities | $1,938,401 | $2,927,335 | ▲ $988,934 |
| Net Assets / Fund Balance | |||
| Unrestricted Net Assets | $264,733 | $234,893 | ▼ $29,840 |
| Temporarily Rstr Net Assets | $67,830 | $67,830 | → $0 |
| Total Net Assets Fund Balance | $332,563 | $302,723 | ▼ $29,840 |
| Total Liabilities and Net Assets / Fund Balance | $2,270,964 | $3,230,058 | ▲ $959,094 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $449 | $428,862 | $429,311 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Valerie Estess | Vice President | FT | $157,300 | $21,244 | $178,544 |
| Meredith Estess | President | FT | $157,300 | - | $157,300 |
| Name | Title |
|---|---|
| Robert S Kaplan | Chairman |
| Debbie Wilpon | Co-chairman |
| F Jonathan Dracos | Co-chairman |
| Ashley Mcdermott | Director |
| Bonnie Verbitsky | Director |
| Brad Grey | Director |
| Chad Cascarilla | Director |
| Christine Taylor | Director |
| Daniel Kellison | Director |
| Darci Dematteo | Director |
| David L Jaffe | Director |
| Harriet Abramson | Director |
| Jack Merrill | Director |
| Lawrence Tarica | Director |
| Martha Mccully | Director |
| Michael Berman | Director |
| Nancy Jarecki | Director |
| Peter Hulbert | Director |
| Regina Kulik Scully | Director |
| Rob Burnett | Director |
| Rob Morrow | Director |
| Simon Halls | Director |
| Stephanie George | Director |
| Sue Leibman | Director |
| Tom Kirchhoff | Director |
| Aimee David | Director (commenced 9/14) |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $1,812,777 |
| Other Expenses | $592,677 |
| Salaries, Compensation, and Employee Benefits | $568,989 |
| Total Fundraising Expense | $195,325 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $1,812,777 | - | - | $1,812,777 |
| Current Officers, Directors, Trustees, and Key Employees | $285,106 | $16,547 | $18,997 | $320,650 |
| Other Salaries and Wages | $75,373 | $83,174 | $9,176 | $167,723 |
| Fees for Services Other | $58,761 | $3,675 | $89,614 | $152,050 |
| Conferences and Meetings | $58,607 | $460 | $597 | $59,664 |
| Occupancy | $34,764 | $9,617 | $2,717 | $47,098 |
| Other Employee Benefits | $32,980 | $9,124 | $2,578 | $44,682 |
| Office Expenses | $27,749 | $7,676 | $2,169 | $37,594 |
| Fees for Services Accounting | - | $37,140 | - | $37,140 |
| Payroll Taxes | $26,524 | $7,337 | $2,073 | $35,934 |
| All Other Expenses | $12,272 | $909 | $8,060 | $21,241 |
| Fees for Services Legal | $14,250 | $750 | - | $15,000 |
| Other Expenses | $10,743 | $1,200 | $1,192 | $13,135 |
| Insurance | $5,260 | $1,455 | $411 | $7,126 |
| Depreciation Depletion | $324 | $90 | $25 | $439 |
| Total Functional Expenses | $2,596,585 | $182,533 | $195,325 | $2,974,443 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $3,015,864 |
| Total Expenses per Form 990 | $2,974,443 |
| Expenses per Audited Statements | $2,972,253 |
| Expenses Not Reported on Form 990 | $43,611 |
| Expenses Not Reported on Financial Statements | $2,190 |
| Other Expense Adjustments | $2,190 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Columbia University | New York, NY | 501(c)(3) | Research to Find Cure for Amyotrophic Lateral Sclerosis | $1,490,473 |
| New York University | New York, NY | 501(c)(3) | Research to Find Cure for Amyotrophic Lateral Sclerosis | $112,000 |
| BOSTON CHILDREN'S HOSPITAL | Boston, MA | 501(c)(3) | Research to Find Cure for Amyotrophic Lateral Sclerosis | $100,000 |
| University of Massachusett Project Als Fund | North Worcester, MA | 501(c)(3) | Research to Find Cure for Amyotrophic Lateral Sclerosis | $100,000 |
| Neurological Clinical Research Institute | Boston, MA | 501(c)(3) | Research to Find Cure for Amyotrophic Lateral Sclerosis | $10,304 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $588,939 |
| Fundraising Gross Income | $545,328 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Fall Benefit | $1,171,983 | $282,786 | $36,206 | $246,580 |
| Golf | $312,248 | $148,336 | $2,008 | $146,328 |
| Total Events | $1,999,804 | $545,328 | $588,939 | $-43,611 |
“Meredith and valerie estess are sisters and compensated as employees. Meredith estess, president, and peter hulbert, director, are married valerie estess, director, and scott robbins, former director, have a family relationship.”
“The president and the controller review the 990 for reasonableness by comparing the data on the return to the audited financial statements, and information provided to the tax preparer. The final form 990 is provided to all members of the governing body prior to filing with the irs.”
“The organization's conflict of interest policy covers all interested persons which consists of the board of directors, officers, chief employed executive, and chief employed finance executive. Interested persons are required to disclose annually any interests that may be a potential conflict of interest to the chairman of the board of directors who will review and determine any necessary further actions. Any interested person shall recuse oneself from participating and voting in deliberations and discussions to the related transaction.”
“The compensation of the president and director of research is reviewed and approved annually by the independent board's executive committee through the use of comparable data of similarly situated organizations. The process is documented contemporaneously.”
“The organization makes its form 990 and audited financial statements available on its website and other media such as guidestar. The governing documents and conflict of interest policy are available upon request.”
“The organization is exempt from federal income taxes under section 501(c)(3) of the internal revenue code and is also exempt from state and local taxes. The organization recognizes and measures its unrecognized tax benefits in accordance with financial accounting standards board ("fasb") accounting standards codification ("asc") 740, income taxes. Under that guidance, the organization assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances and information available at the end of each period. The measurement of unrecognized tax benefits is adjusted when new information is available, or when an event occurs that requires a change. Management has evaluated the organization's tax positions and has concluded that the organization has taken no uncertain tax positions that require adjustment to the financial statements. Generally, the organization is no longer subject to u.s. Federal or state income tax examinations by taxing authorities for years before 2010.”
“Additional direct fundraising costs 43,611.”
“Other fundraising costs 2,190.”
“Additional direct fundraising costs 43,611.”
“Other fundraising costs 2,190.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 257476 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 243048 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | WORKING TOWARDS AN UNDERSTANDING AND TREATMENTS FOR AMYOTROPHIC LATERAL SCLEROSIS |
| IRS990/AllOtherContributionsAmt | 0 | 1173915 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 8060 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 909 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 12272 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 21241 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | ORGANIZATION |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2124207382 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 801 RIVERSIDE DRIVE 6G |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | NEW YORK |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 10032 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1296791 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1268082 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 18997 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 16547 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 285106 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 320650 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 597 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 460 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 58607 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 59664 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 1454476 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 2628391 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 1812777 |
| IRS990/CYInvestmentIncomeAmt | 0 | 2640 |
| IRS990/CYOtherExpensesAmt | 0 | 592677 |
| IRS990/CYOtherRevenueAmt | 0 | 320473 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -22939 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 568989 |
| IRS990/CYTotalExpensesAmt | 0 | 2974443 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 195325 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 2951504 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 201308 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 25 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 90 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 324 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 439 |
| IRS990/Desc | 0 | FUNDED RESEARCH - RESEARCH -FUNDING FOR SCIENTIFIC MEDICAL RESEARCH TO FIND TREATMENTS AND ULTIMATELY A CURE FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS) AN ULTIMATELY FATAL MOTOR NEURON DISEASE BY PROMOTING CALABORATION AND INFORMATION SHARING AMONG RESEARCHER FOR ALL RELATED DISEASES SUCH AS PARKINSON'S AND MULTIPLE SCLEROSIS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 5 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 2281386 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 37140 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 37140 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 750 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 14250 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 15000 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 89614 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 3675 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 58761 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 152050 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 18 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 19 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 20 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 21 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 22 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 23 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 24 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 25 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 26 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 27 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 16 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 17 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 18 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 19 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 20 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 21 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 22 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 23 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 24 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 25 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 26 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 27 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 26 | 21244 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | ASHLEY MCDERMOTT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | BONNIE VERBITSKY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | BRAD GREY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | CHAD CASCARILLA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | CHRISTINE TAYLOR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | DANIEL KELLISON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DARCI DEMATTEO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | DAVID L JAFFE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | DEBBIE WILPON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | F JONATHAN DRACOS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | HARRIET ABRAMSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | JACK MERRILL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | LAWRENCE TARICA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | MARTHA MCCULLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | MEREDITH ESTESS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | MICHAEL BERMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | NANCY JARECKI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | PETER HULBERT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | REGINA KULIK SCULLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | ROB BURNETT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 20 | ROB MORROW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 21 | ROBERT S KAPLAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 22 | SIMON HALLS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 23 | STEPHANIE GEORGE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 24 | SUE LEIBMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 25 | TOM KIRCHHOFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 26 | VALERIE ESTESS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 27 | AIMEE DAVID |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 157300 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 26 | 157300 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | CO-CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | CO-CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 20 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 21 | CHAIRMAN |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 22 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 23 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 24 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 25 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 26 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 27 | DIRECTOR (COMMENCED 9/14) |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1998 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 1454476 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 588939 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 545328 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 30 |
| IRS990/GrantAmt | 0 | 1812777 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 1680925 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 2482979 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 1812777 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 1812777 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 3540443 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 27 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 411 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1455 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 5260 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 7126 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 2640 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 2640 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 194407 |
| IRS990/IRPDocumentCnt | 0 | 24 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 428862 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 888 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 449 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 429311 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO RECRUIT THE WORLD'S BEST RESEARCH SCIENTISTS AND CLINICIANS TO WORK TOGETHER TOWARD AN UNDERSTANDING OF AND THE FIRST EFFECTIVE TREATMENTS FOR ALS (AMYOTROPHIC LATERAL SCLEROSIS) ALSO KNOWN AS LOU GEHRIG'S DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 332563 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 302723 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -43611 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -43611 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -6901 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 2717 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 9617 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 34764 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 47098 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 2169 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 7676 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 27749 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 37594 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 14942 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 16020 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 2578 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 9124 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 32980 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 44682 |
| IRS990/OtherExpensesGrp/Desc | 0 | EVENT COSTS |
| IRS990/OtherExpensesGrp/Desc | 1 | PRINTING, PUBLICATIONS |
| IRS990/OtherExpensesGrp/Desc | 2 | TELEPHONE |
| IRS990/OtherExpensesGrp/Desc | 3 | MISCELLANEOUS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 54372 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 2389 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 955 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 1192 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3379 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 1200 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 83498 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 45383 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 12214 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 10743 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 137870 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 47772 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 16548 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 13135 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | NEWSLETTER |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 364084 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 364084 |
| IRS990/OtherRevenueTotalAmt | 0 | 364084 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 9176 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 83174 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 75373 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 167723 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2073 |
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Displayed year
2015 • Form 990Detailed filing. Detailed filing data is available for this year.