Civic Intelligence

Project a L Sinc

990 • Fiscal year 2019 • EIN 13-4019464

Aug 01, 2018 to Jul 31, 2019 • Filed on Jul 08, 2020

801 Riverside Drive Apt No 6GNew York, NY 10032

(212) 420-7382

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

96th percentile

1.26x

Higher debt load relative to assets than 96% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2019

Liabilities / Revenue

76th percentile

0.65x

Higher debt load relative to revenue than 76% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2019

Net Margin

13th percentile

-20%

Higher net margin than 13% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2019

Top Officer Pay

76th percentile

$202,032

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 5.3% of source-year revenue.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Source year 2019

Asset Growth

1st percentile

-48%

Faster asset growth than 1% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2018 to 2019

Revenue Growth

25th percentile

-6.5%

Faster revenue growth than 25% of similar nonprofits.

2019 filings • 501(c)3 • $5M-$10M nonprofits • Annualized from 2018 to 2019

Assets

Down

$2,000,729

Down $1,858,246 (-48%) from 2018

Net Assets

Down

-$514,438

Down $768,113 (-303%) from 2018

Liabilities

Down

$2,515,167

Down $1,090,133 (-30%) from 2018

Revenue

Down

$3,840,925

Down $266,299 (-6.5%) from 2018

Expenses

Up

$4,609,038

Up $428,090 (+10%) from 2018

Net Income

Down

-$768,113

Down $694,389 (-942%) from 2018

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0-$2.0MAssets 2011: $2,731,589Liabilities 2011: $2,112,095Net Assets 2011: $619,4942011Assets 2012: $3,065,094Liabilities 2012: $2,149,036Net Assets 2012: $916,0582012Assets 2013: $2,556,628Liabilities 2013: $2,135,586Net Assets 2013: $421,0422013Assets 2014: $2,270,964Liabilities 2014: $1,938,401Net Assets 2014: $332,5632014Assets 2015: $3,230,058Liabilities 2015: $2,927,335Net Assets 2015: $302,7232015Assets 2016: $2,486,877Liabilities 2016: $2,374,261Net Assets 2016: $112,6162016Assets 2017: $4,278,481Liabilities 2017: $3,965,613Net Assets 2017: $312,8682017Assets 2018: $3,858,975Liabilities 2018: $3,605,300Net Assets 2018: $253,6752018Assets 2019: $2,000,729Liabilities 2019: $2,515,167Net Assets 2019: -$514,4382019Assets 2020: $2,583,051Liabilities 2020: $2,597,587Net Assets 2020: -$14,5362020Assets 2021: $1,558,325Liabilities 2021: $2,131,278Net Assets 2021: -$572,9532021Assets 2022: $1,177,668Liabilities 2022: $1,595,143Net Assets 2022: -$417,4752022Assets 2023: $1,661,605Liabilities 2023: $2,290,954Net Assets 2023: -$629,3492023Assets 2024: $1,748,266Liabilities 2024: $2,810,948Net Assets 2024: -$1,062,6822024

Highlighted filing

2019

Assets$2,000,729
Liabilities$2,515,167
Net Assets-$514,438

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $5,087,2502011Expenses 2012: $4,943,6702012Expenses 2013: $2,515,7112013Revenue 2014: $1,925,701Expenses 2014: $2,014,180Net Income 2014: -$88,4792014Revenue 2015: $2,951,504Expenses 2015: $2,974,443Net Income 2015: -$22,9392015Revenue 2016: $2,362,369Expenses 2016: $2,508,621Net Income 2016: -$146,2522016Revenue 2017: $5,513,484Expenses 2017: $5,325,775Net Income 2017: $187,7092017Revenue 2018: $4,107,224Expenses 2018: $4,180,948Net Income 2018: -$73,7242018Revenue 2019: $3,840,925Expenses 2019: $4,609,038Net Income 2019: -$768,1132019Revenue 2020: $4,308,751Expenses 2020: $3,808,849Net Income 2020: $499,9022020Revenue 2021: $2,611,375Expenses 2021: $3,172,033Net Income 2021: -$560,6582021Revenue 2022: $3,596,233Expenses 2022: $3,498,948Net Income 2022: $97,2852022Revenue 2023: $3,776,913Expenses 2023: $4,483,713Net Income 2023: -$706,8002023Revenue 2024: $2,979,518Expenses 2024: $3,412,851Net Income 2024: -$433,3332024

Highlighted filing

2019

Revenue$3,840,925
Expenses$4,609,038
Net Income-$768,113
Jump To
Filing Snapshot
Filing Period
Aug 1, 2018 to Jul 31, 2019
Signed
Jul 8, 2020
Return Version
2018v3.2
Gross Receipts
$5,030,243
Mission and Program Overview

Mission

To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.

Working towards an understanding and treatments for amyotrophic lateral sclerosis.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,228,257$1,100,625▼ $127,632
Savings and Temporary Cash Investments$2,244,572$730,804▼ $1,513,768
Investments in Publicly Traded Securities$169,934--
Prepaid Expenses and Deferred Charges$166,614$97,664▼ $68,950
Pledges and Grants Receivable$40,552$56,938▲ $16,386
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$3,858,975$2,000,729▼ $1,858,246
Other Assets Total$9,046$14,698▲ $5,652
Liabilities
Grants Payable$3,223,385$2,218,169▼ $1,005,216
Deferred Revenue$377,750$260,000▼ $117,750
Accounts Payable and Accrued Expenses$4,165$36,998▲ $32,833
Total Liabilities$3,605,300$2,515,167▼ $1,090,133
Net Assets / Fund Balance
Temporarily Rstr Net Assets-$67,322-
Unrestricted Net Assets$253,675$-581,760▼ $835,435
Total Net Assets Fund Balance$253,675$-514,438▼ $768,113
Total Liabilities and Net Assets / Fund Balance$3,858,975$2,000,729▼ $1,858,246

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$429,311$429,311
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Valerie EstessVice PresidentFT$181,193$20,839$202,032
Meredith Estess HulbertPresidentFT$181,139$18,990$200,129

Board Members and Trustees

NameTitle
Debbie WilponCo-chair
Robert S KaplanCo-chair
Arthur FraserDirector
Bonnie VerbitskyDirector
Chad CascarillaDirector
Christine TaylorDirector
Daniel KellisonDirector
Darci CarltonDirector
David L JaffeDirector
Debra WassermanDirector
F Jonathan DracosDirector
Gena Fajgenbaum CombsDirector
Jack MerrillDirector
Lawrence TaricaDirector
Marcie FleckDirector
Martha MccullyDirector
Michael BermanDirector
Nancy JareckiDirector
Peter J HulbertDirector
Regina Kulik ScullyDirector
Rob BurnettDirector
Rob MorrowDirector
Simon HallsDirector
Stacey GriffithDirector
Staci KirchhoffDirector
Sue LeibmanDirector
Aimee DavidDirector - Until 12/31/18
Harriet AbramsonDirector - Until 12/31/18
Revenue and Support

Revenue Composition

Contributions and Grants
$3,750,222
Program Service Revenue
$0
Investment Income
$554
Other Revenue
$90,149
All Other Contributions
$1,391,449
Change in Net Assets
$-768,113

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,640,925
Revenue Not Reported on Financial Statements
$200,000
Revenue Not Reported on Form 990
$109,851
Other Revenue Adjustments
$200,000
Total Revenue per Audited Statements
$3,750,776
Total Revenue per Form 990
$3,840,925
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$3,027,681
Other Expenses$807,037
Salaries, Compensation, and Employee Benefits$774,320
Total Fundraising Expense$168,373
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$3,027,681--$3,027,681
Current Officers, Directors, Trustees, and Key Employees$301,067$19,956$26,029$347,052
Other Salaries and Wages$189,027$110,402$11,095$310,524
Fees for Services Other$234,939$9,355-$244,294
Conferences and Meetings$78,688$2,199$28,926$109,813
Other Employee Benefits$53,859$14,325$4,080$72,264
Office Expenses$37,399$9,947$2,833$50,179
Fees for Services Accounting-$49,348-$49,348
Occupancy$36,030$9,583$2,729$48,342
Payroll Taxes$33,151$8,818$2,511$44,480
All Other Expenses$15,488$17,187$8,077$40,752
Fees for Services Legal$28,950$1,050-$30,000
Other Expenses$7,504$469$1,407$9,380
Total Functional Expenses$4,183,845$256,820$168,373$4,609,038

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Form 990$4,609,038
Total Expenses per Audited Statements$4,518,889
Expenses per Audited Statements$4,409,038
Expenses Not Reported on Financial Statements$200,000
Other Expense Adjustments$200,000
Expenses Not Reported on Form 990$109,851
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Columbia UniversityNew York, NY501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$2,342,896
Ny Structural Biology CenterNew York, NY501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$525,000
University of PennsylvaniaPhiladelphia, PA501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$79,535
The Salk InstituteLa Jolla, CA501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$78,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$1,009,957
Fundraising Gross Income$900,106
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Hope Gala$1,019,430$270,100$105,118$164,982
Annual Gala$1,129,208$237,553$96,879$140,674
Total Events$3,258,879$900,106$1,009,957$-109,851
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Meredith estess hulbert, president and valerie estess, vice president are sisters and compensated as employees. Meredith estess hulbert, president, and peter j. Hulbert, director are married.

Form 990, Part VI, Section B, Line 11B

The president and controller review the form 990 for reasonableness by comparing the data on the form 990 to the audited financial statements and the information provided to the tax preparer. The final form 990 is provided to all members of the governing body prior to filing with the irs.

Form 990, Part VI, Section B, Line 12C

The organization's conflict of interest policy covers all interested persons which consists of the board of directors, officers, chief employed executive, and chief employed finance executive. Interested persons are required to disclose annually any interests that may be a potential conflict of interest to the chairman of the board of directors who will review and determine any necessary further actions. Any interested person shall recuse oneself from participating and voting in deliberations and discussions to the related transaction.

Form 990, Part VI, Section B, Line 15

The compensation of the president and director of research is reviewed and approved annually by the independent board's executive committee through the use of comparable data of similarly situated organizations. The process is documented contemporaneously.

Form 990, Part VI, Section C, Line 19

The organization makes its form 990 and audited financial statements available on its website and other media such as guidestar. The governing documents and conflict of interest policy are available upon request.

Filing and Contact Details

Filer

Filer Name
Project Als Inc
EIN
13-4019464
Phone
2124207382
Address
801 RIVERSIDE DRIVE APT NO 6G, NEW YORK, NY 10032

Signing Officer

Name
Meredith Estees
Title
President
Phone
2124207382
Signed
2020-07-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meredith Estess
Formed
1998
Legal Domicile
Ny
Voting Board Members
28
Independent Board Members
25
Employees
7
Volunteers
15

Preparer

Firm
Citrin Cooperman & Company Llp
Address
529 FIFTH AVENUE, NEW YORK, NY 10017-4683
Preparer
Joseph J Barreca
Phone
2126971000
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

The organization did not change its oversight process or selection process during the tax year.

Financial Statement Notes

PART X, LINE 2:

The organization is is a not-for-profit organization and has been recognized by the internal revenue service ("irs") as exempt from federal income taxes under internal revenue code ("irc") section 501(a) as described in irc section 501(c)(3). Accordingly, no provision for income taxes has been made in the accompanying financial statements. The organization is annually required to file a return of organization exempt from income tax (form 990) with the irs. In addition, the entity is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. The organization has determined that it is not subject to unrelated business income tax. The organization recognizes and measures its unrecognized tax benefits in accordance with financial accounting standards board accounting standards codification ("fasb asc") 740, income taxes. Under that guidance, the organization assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances and information available at the end of each period. The measurement of unrecognized tax benefits is adjusted when new information is available or when an event occurs that requires a change. Management has evaluated the organization's tax positions and has concluded that the organization has taken no uncertain tax positions that require adjustment to the financial statements.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Special event costs 109,851.

PART XI, LINE 4B - OTHER ADJUSTMENTS:

Grants recovered 200,000.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Special event costs 109,851.

PART XII, LINE 4B - OTHER ADJUSTMENTS:

Grants recovered 200,000.

Raw XML AppendixShowing 400 of 754 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt210
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt220
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt230
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt240
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt250
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt260
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt270
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt280
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt290
IRS990/Form990PartVIISectionAGrp/PersonNm0HARRIET ABRAMSON
IRS990/Form990PartVIISectionAGrp/PersonNm1ROB BURNETT
IRS990/Form990PartVIISectionAGrp/PersonNm2MICHAEL BERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm3DARCI CARLTON
IRS990/Form990PartVIISectionAGrp/PersonNm4CHAD CASCARILLA
IRS990/Form990PartVIISectionAGrp/PersonNm5GENA FAJGENBAUM COMBS
IRS990/Form990PartVIISectionAGrp/PersonNm6AIMEE DAVID
IRS990/Form990PartVIISectionAGrp/PersonNm7F JONATHAN DRACOS
IRS990/Form990PartVIISectionAGrp/PersonNm8MEREDITH ESTESS HULBERT
IRS990/Form990PartVIISectionAGrp/PersonNm9VALERIE ESTESS
IRS990/Form990PartVIISectionAGrp/PersonNm10MARCIE FLECK
IRS990/Form990PartVIISectionAGrp/PersonNm11ARTHUR FRASER
IRS990/Form990PartVIISectionAGrp/PersonNm12STACEY GRIFFITH
IRS990/Form990PartVIISectionAGrp/PersonNm13SIMON HALLS
IRS990/Form990PartVIISectionAGrp/PersonNm14PETER J HULBERT
IRS990/Form990PartVIISectionAGrp/PersonNm15DAVID L JAFFE
IRS990/Form990PartVIISectionAGrp/PersonNm16NANCY JARECKI
IRS990/Form990PartVIISectionAGrp/PersonNm17ROBERT S KAPLAN
IRS990/Form990PartVIISectionAGrp/PersonNm18DANIEL KELLISON
IRS990/Form990PartVIISectionAGrp/PersonNm19STACI KIRCHHOFF
IRS990/Form990PartVIISectionAGrp/PersonNm20SUE LEIBMAN
IRS990/Form990PartVIISectionAGrp/PersonNm21MARTHA MCCULLY
IRS990/Form990PartVIISectionAGrp/PersonNm22JACK MERRILL
IRS990/Form990PartVIISectionAGrp/PersonNm23ROB MORROW
IRS990/Form990PartVIISectionAGrp/PersonNm24REGINA KULIK SCULLY
IRS990/Form990PartVIISectionAGrp/PersonNm25LAWRENCE TARICA
IRS990/Form990PartVIISectionAGrp/PersonNm26CHRISTINE TAYLOR
IRS990/Form990PartVIISectionAGrp/PersonNm27DEBBIE WILPON
IRS990/Form990PartVIISectionAGrp/PersonNm28DEBRA WASSERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm29BONNIE VERBITSKY
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt8181139
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt9181193
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt290
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt290
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR - UNTIL 12/31/18
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR - UNTIL 12/31/18
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt9VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17CO-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt27CO-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt28DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt29DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01998
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt02358773
IRS990/FundraisingDirectExpensesAmt01009957
IRS990/FundraisingGrossIncomeAmt0900106
IRS990/GainOrLossGrp/SecuritiesAmt0-4867
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt028
IRS990/GrantAmt03027681
IRS990/GrantsPayableGrp/BOYAmt03223385
IRS990/GrantsPayableGrp/EOYAmt02218169
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt03027681
IRS990/GrantsToDomesticOrgsGrp/TotalAmt03027681
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0174494
IRS990/GrossReceiptsAmt05030243
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt025
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InvestmentIncomeGrp/ExclusionAmt05421
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt05421
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0169934
IRS990/IRPDocumentCnt032
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0429311
IRS990/LandBldgEquipBasisNetGrp/BOYAmt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt0429311
IRS990/LegalDomicileStateCd0NY
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt0179361
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO RECRUIT THE WORLD'S BEST RESEARCH SCIENTISTS AND CLINICIANS TO WORK TOGETHER TOWARD AN UNDERSTANDING OF AND THE FIRST EFFECTIVE TREATMENTS FOR ALS (AMYOTROPHIC LATERAL SCLEROSIS) ALSO KNOWN AS LOU GEHRIG'S DISEASE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0253675
IRS990/NetAssetsOrFundBalancesEOYAmt0-514438
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-4867
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-4867
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-109851
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-109851
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoncashContributionsAmt04773
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt02729
IRS990/OccupancyGrp/ManagementAndGeneralAmt09583
IRS990/OccupancyGrp/ProgramServicesAmt036030
IRS990/OccupancyGrp/TotalAmt048342
IRS990/OfficeExpensesGrp/FundraisingAmt02833
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt09947
IRS990/OfficeExpensesGrp/ProgramServicesAmt037399
IRS990/OfficeExpensesGrp/TotalAmt050179
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt09046
IRS990/OtherAssetsTotalGrp/EOYAmt014698
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt04080
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt014325
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt053859
IRS990/OtherEmployeeBenefitsGrp/TotalAmt072264
IRS990/OtherExpensesGrp/Desc0PRINTING, PUBLICATIONS
IRS990/OtherExpensesGrp/Desc1NEWSLETTER
IRS990/OtherExpensesGrp/Desc2TELEPHONE
IRS990/OtherExpensesGrp/Desc3POSTAGE AND SHIPPING
IRS990/OtherExpensesGrp/FundraisingAmt070591
IRS990/OtherExpensesGrp/FundraisingAmt18904
IRS990/OtherExpensesGrp/FundraisingAmt21191
IRS990/OtherExpensesGrp/FundraisingAmt31407
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt04181
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt1469
IRS990/OtherExpensesGrp/ProgramServicesAmt0110415
IRS990/OtherExpensesGrp/ProgramServicesAmt113928
IRS990/OtherExpensesGrp/ProgramServicesAmt215719
IRS990/OtherExpensesGrp/ProgramServicesAmt37504
IRS990/OtherExpensesGrp/TotalAmt0181006
IRS990/OtherExpensesGrp/TotalAmt122832
IRS990/OtherExpensesGrp/TotalAmt221091
IRS990/OtherExpensesGrp/TotalAmt39380
IRS990/OtherRevenueMiscGrp/BusinessCd0900099

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.75$2.81$1.06$2.98$3.41$0.43
2023Summary only. Only limited summary data is available for this year.$1.66$2.29$0.63$3.78$4.48$0.71
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$1.60$0.42$3.60$3.50$0.10
2021Summary only. Only limited summary data is available for this year.$1.56$2.13$0.57$2.61$3.17$0.56
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.58$2.60$0.01$4.31$3.81$0.50
2019Detailed filing. Detailed filing data is available for this year.$2.00$2.52$0.51$3.84$4.61$0.77
2018Summary only. Only limited summary data is available for this year.$3.86$3.61$0.25$4.11$4.18$0.07
2017Summary only. Only limited summary data is available for this year.$4.28$3.97$0.31$5.51$5.33$0.19
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.49$2.37$0.11$2.36$2.51$0.15
2015Detailed filing. Detailed filing data is available for this year.$3.23$2.93$0.30$2.95$2.97$0.02
2014Detailed filing. Detailed filing data is available for this year.$2.27$1.94$0.33$1.93$2.01$0.09
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.56$2.14$0.42$2.52
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.07$2.15$0.92$4.94
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.73$2.11$0.62$5.09