Civic Intelligence

Project Als Inc

EIN 13-4019464 • 501(c)3 • New York, NY

Profile

To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.

2585 Broadway 202New York, NY 10025

www.projectals.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

97th percentile

1.61x

Higher debt load relative to assets than 97% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

87th percentile

0.94x

Higher debt load relative to revenue than 87% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

18th percentile

-15%

Higher net margin than 18% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

54th percentile

5.2%

Faster asset growth than 54% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

14th percentile

-21%

Faster revenue growth than 14% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Up

$1,748,266

Up $86,661 (+5.2%) from 2023

Liabilities

Up

$2,810,948

Up $519,994 (+23%) from 2023

Net Assets

Down

-$1,062,682

Down $433,333 (-69%) from 2023

Revenue

Down

$2,979,518

Down $797,395 (-21%) from 2023

Expenses

Down

$3,412,851

Down $1,070,862 (-24%) from 2023

Net Income

Up

-$433,333

Up $273,467 (+39%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$6.0M$4.0M$2.0M$0-$2.0MAssets 2011: $2,731,589Liabilities 2011: $2,112,095Net Assets 2011: $619,4942011Assets 2012: $3,065,094Liabilities 2012: $2,149,036Net Assets 2012: $916,0582012Assets 2013: $2,556,628Liabilities 2013: $2,135,586Net Assets 2013: $421,0422013Assets 2014: $2,270,964Liabilities 2014: $1,938,401Net Assets 2014: $332,5632014Assets 2015: $3,230,058Liabilities 2015: $2,927,335Net Assets 2015: $302,7232015Assets 2016: $2,486,877Liabilities 2016: $2,374,261Net Assets 2016: $112,6162016Assets 2017: $4,278,481Liabilities 2017: $3,965,613Net Assets 2017: $312,8682017Assets 2018: $3,858,975Liabilities 2018: $3,605,300Net Assets 2018: $253,6752018Assets 2019: $2,000,729Liabilities 2019: $2,515,167Net Assets 2019: -$514,4382019Assets 2020: $2,583,051Liabilities 2020: $2,597,587Net Assets 2020: -$14,5362020Assets 2021: $1,558,325Liabilities 2021: $2,131,278Net Assets 2021: -$572,9532021Assets 2022: $1,177,668Liabilities 2022: $1,595,143Net Assets 2022: -$417,4752022Assets 2023: $1,661,605Liabilities 2023: $2,290,954Net Assets 2023: -$629,3492023Assets 2024: $1,748,266Liabilities 2024: $2,810,948Net Assets 2024: -$1,062,6822024

Highlighted filing

2024

Assets$1,748,266
Liabilities$2,810,948
Net Assets-$1,062,682

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $5,087,2502011Expenses 2012: $4,943,6702012Expenses 2013: $2,515,7112013Revenue 2014: $1,925,701Expenses 2014: $2,014,180Net Income 2014: -$88,4792014Revenue 2015: $2,951,504Expenses 2015: $2,974,443Net Income 2015: -$22,9392015Revenue 2016: $2,362,369Expenses 2016: $2,508,621Net Income 2016: -$146,2522016Revenue 2017: $5,513,484Expenses 2017: $5,325,775Net Income 2017: $187,7092017Revenue 2018: $4,107,224Expenses 2018: $4,180,948Net Income 2018: -$73,7242018Revenue 2019: $3,840,925Expenses 2019: $4,609,038Net Income 2019: -$768,1132019Revenue 2020: $4,308,751Expenses 2020: $3,808,849Net Income 2020: $499,9022020Revenue 2021: $2,611,375Expenses 2021: $3,172,033Net Income 2021: -$560,6582021Revenue 2022: $3,596,233Expenses 2022: $3,498,948Net Income 2022: $97,2852022Revenue 2023: $3,776,913Expenses 2023: $4,483,713Net Income 2023: -$706,8002023Revenue 2024: $2,979,518Expenses 2024: $3,412,851Net Income 2024: -$433,3332024

Highlighted filing

2024

Revenue$2,979,518
Expenses$3,412,851
Net Income-$433,333

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.75$2.81$1.06$2.98$3.41$0.43
2023Summary only. Only limited summary data is available for this year.$1.66$2.29$0.63$3.78$4.48$0.71
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$1.60$0.42$3.60$3.50$0.10
2021Summary only. Only limited summary data is available for this year.$1.56$2.13$0.57$2.61$3.17$0.56
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.58$2.60$0.01$4.31$3.81$0.50
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.00$2.52$0.51$3.84$4.61$0.77
2018Summary only. Only limited summary data is available for this year.$3.86$3.61$0.25$4.11$4.18$0.07
2017Summary only. Only limited summary data is available for this year.$4.28$3.97$0.31$5.51$5.33$0.19
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.49$2.37$0.11$2.36$2.51$0.15
2015Detailed filing. Detailed filing data is available for this year.$3.23$2.93$0.30$2.95$2.97$0.02
2014Detailed filing. Detailed filing data is available for this year.$2.27$1.94$0.33$1.93$2.01$0.09
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.56$2.14$0.42$2.52
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.07$2.15$0.92$4.94
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.73$2.11$0.62$5.09
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Aug 1, 2023 to Jul 31, 2024
Signed
Jun 13, 2025
Return Version
2023v6.0
Gross Receipts
$3,979,345
Mission and Program Overview

Mission

To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.

Working towards an understanding and treatments for amyotrophic lateral sclerosis.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,187,500$1,244,776▲ $57,276
Savings and Temporary Cash Investments$298,296$260,878▼ $37,418
Prepaid Expenses and Deferred Charges$118,691$134,245▲ $15,554
Pledges and Grants Receivable$49,337$100,898▲ $51,561
Investments in Publicly Traded Securities$200$200→ $0
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$1,661,605$1,748,266▲ $86,661
Other Assets Total$7,581$7,269▼ $312
Liabilities
Grants Payable$1,859,661$2,350,902▲ $491,241
Deferred Revenue$382,501$351,375▼ $31,126
Accounts Payable and Accrued Expenses$48,792$108,671▲ $59,879
Total Liabilities$2,290,954$2,810,948▲ $519,994
Net Assets / Fund Balance
Net Assets With Donor Restrictions$103,789$530,894▲ $427,105
Net Assets Without Donor Restrictions$-733,138$-1,593,576▼ $860,438
Total Net Assets Fund Balance$-629,349$-1,062,682▼ $433,333
Total Liabilities and Net Assets / Fund Balance$1,661,605$1,748,266▲ $86,661

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$433,213$433,213
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Valerie EstessVice PresidentFT$225,000$31,281$256,281
Meredith Estess HulbertPresidentFT$225,000$19,800$244,800
Gail CarsonController (CFO)FT$103,900$7,919$111,819
Margaret ShanahanExecutive DirectorFT$85,000-$85,000
Revenue and Support

Revenue Composition

Contributions and Grants
$3,118,877
Program Service Revenue
$0
Investment Income
$30,867
Other Revenue
$-170,226
All Other Contributions
$1,316,967
Change in Net Assets
$-433,333

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded4$210,970Fair Market Value (FMV)
Total Noncash Contributions4$210,970-

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,979,518
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$170,455
Total Revenue per Audited Statements
$3,149,973
Total Revenue per Form 990
$2,979,518
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,843,678
Salaries, Compensation, and Employee Benefits$1,104,796
Other Expenses$464,377
Total Fundraising Expense$123,294
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,843,678--$1,843,678
Current Officers, Directors, Trustees, and Key Employees$555,720$158,971$18,111$732,802
Other Salaries and Wages$197,689$20,027$34,719$252,435
Fees for Services Other$65,385$1,550$52,380$119,315
Office Expenses$65,663$14,856$5,104$85,623
Other Employee Benefits$53,400$12,687$3,745$69,832
Payroll Taxes$38,026$9,034$2,667$49,727
Fees for Services Accounting-$46,912-$46,912
Conferences and Meetings$43,770$447$447$44,664
Travel$19,517$616$411$20,544
Insurance$7,425$8,436$1,677$17,538
Occupancy$8,081$1,920$567$10,568
All Other Expenses$2,129$6,484$1,267$9,880
Advertising$9,704-$98$9,802
Other Expenses$3,486$10,565$2,101$3,486
Fees for Services Legal-$2,500-$2,500
Total Functional Expenses$2,994,552$295,005$123,294$3,412,851

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,583,306
Expenses per Audited Statements$3,412,851
Total Expenses per Form 990$3,412,851
Expenses Not Reported on Form 990$170,455
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Columbia UniversityNew York, NY501(c)(3)Medical Research$718,001
University of California San FranciscoSan Francisco, CA501(c)(3)Medical Research$355,316
ProjenxNew York, NY501(c)(3)Medical Research$253,797
Rutgers Medical SchoolPiscataway, NJ501(c)(3)Medical Research$221,394
University of California San DiegoLa Jolla, CA501(c)(3)Medical Research$152,278
Salk InstituteLa Jolla, CA501(c)(3)Medical Research$101,519
Weill Cornell Medical CollegeNew York, NY501(c)(3)Medical Research$30,207
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$788,857
Fundraising Gross Income$618,402
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
25th Anniversary$1,274,244$280,293$32,191$248,102
Golf$600,426$195,071$5,418$189,653
Total Events$2,420,312$618,402$788,857$-170,455
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Valerie EstessFamily Member of DirectorEmployed by OrganizationNo$261,623
Meredith Estess HulbertFamily Member of DirectorsEmployed by OrganizationNo$250,895
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Meredith estess hulbert, president, and valerie estess, vice president, have a family relationship. Meredith estess hulbert, president, and peter j. Hulbert, director, have a family relationship.

Form 990, Part VI, Section B, Line 11B

The president and controller review the form 990 for reasonableness by comparing the data on the form 990 to the audited financial statements and the information provided to the tax preparer. The final form 990 is provided to all members of the governing body prior to filing with the irs.

Form 990, Part VI, Section B, Line 12C

The organization's conflict of interest policy covers all interested persons which consists of the board of directors, officers, chief employed executive, and chief employed finance executive. Interested persons are required to disclose annually any interests that may be a potential conflict of interest to the chairman of the board of directors who will review and determine any necessary further actions. Any interested person shall recuse oneself from participating and voting in deliberations and discussions to the related transaction.

Form 990, Part VI, Section B, Line 15

The compensation of the president and vice president is reviewed and approved annually by the independent board's executive committee through the use of comparable data of similarly situated organizations. The process is documented contemporaneously. Meredith and valerie estess do not vote on executive compensation. Compensation for other officers is reviewed by the board of directors.

Form 990, Part VI, Section C, Line 19

The organization makes its audited financial statements available on its website. The governing documents and conflict of interest policy are available upon request.

Filing and Contact Details

Filer

Filer Name
Project Als Inc
EIN
13-4019464
Phone
2124207382
Address
2585 BROADWAY 202, NEW YORK, NY 10025

Signing Officer

Name
Meredith Estess Hulbert
Title
President
Phone
2124207382
Signed
2025-06-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meredith Estess Hulbert
Formed
1998
Legal Domicile
Ny
Voting Board Members
29
Independent Board Members
26
Employees
10
Volunteers
20

Preparer

Firm
Citrin Cooperman Advisors LLC
Address
30 BRAINTREE HL OFFICE PARK STE 300, BRAINTREE, MA 02184
Preparer
Amanda Adams
Phone
7813562000
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

The organization recognizes and measures its unrecognized tax benefits in accordance with financial accounting standards board ("fasb") accounting standards codification ("asc") 740, income taxes. Under that guidance, the organization assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances and information available at the end of each period. The measurement of unrecognized tax benefits is adjusted when new information is available or when an event occurs that requires a change. Management has evaluated the organization's tax positions and has concluded that the organization has taken no uncertain tax positions that require adjustment to the financial statements.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Direct fundraising event expenses 170,455.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Direct fundraising event expenses 170,455.

Raw XML AppendixShowing 400 of 796 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt27DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt28DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt29CONTROLLER (CFO)
IRS990/Form990PartVIISectionAGrp/TitleTxt30EXECUTIVE DIRECTOR
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IRS990/MissionDesc0TO RECRUIT THE WORLD'S BEST RESEARCH SCIENTISTS AND CLINICIANS TO WORK TOGETHER TOWARD AN UNDERSTANDING OF AND THE FIRST EFFECTIVE TREATMENTS FOR ALS (AMYOTROPHIC LATERAL SCLEROSIS) ALSO KNOWN AS LOU GEHRIG'S DISEASE.
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