Liabilities / Assets
97th percentile
Higher debt load relative to assets than 97% of similar nonprofits.
EIN 13-4019464 • 501(c)3 • New York, NY
Profile
To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
97th percentile
Higher debt load relative to assets than 97% of similar nonprofits.
Liabilities / Revenue
87th percentile
Higher debt load relative to revenue than 87% of similar nonprofits.
Net Margin
18th percentile
Higher net margin than 18% of similar nonprofits.
Top Officer Pay
Score unavailable
No filing with officer rows is available for this organization yet.
Asset Growth
54th percentile
Faster asset growth than 54% of similar nonprofits.
Revenue Growth
14th percentile
Faster revenue growth than 14% of similar nonprofits.
Assets
Up$1,748,266
Up $86,661 (+5.2%) from 2023
Liabilities
Up$2,810,948
Up $519,994 (+23%) from 2023
Net Assets
Down-$1,062,682
Down $433,333 (-69%) from 2023
Revenue
Down$2,979,518
Down $797,395 (-21%) from 2023
Expenses
Down$3,412,851
Down $1,070,862 (-24%) from 2023
Net Income
Up-$433,333
Up $273,467 (+39%) from 2023
Most recent year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.
Working towards an understanding and treatments for amyotrophic lateral sclerosis.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $1,187,500 | $1,244,776 | ▲ $57,276 |
| Savings and Temporary Cash Investments | $298,296 | $260,878 | ▼ $37,418 |
| Prepaid Expenses and Deferred Charges | $118,691 | $134,245 | ▲ $15,554 |
| Pledges and Grants Receivable | $49,337 | $100,898 | ▲ $51,561 |
| Investments in Publicly Traded Securities | $200 | $200 | → $0 |
| Land, Buildings, and Equipment, Net | $0 | $0 | → $0 |
| Total Assets | $1,661,605 | $1,748,266 | ▲ $86,661 |
| Other Assets Total | $7,581 | $7,269 | ▼ $312 |
| Liabilities | |||
| Grants Payable | $1,859,661 | $2,350,902 | ▲ $491,241 |
| Deferred Revenue | $382,501 | $351,375 | ▼ $31,126 |
| Accounts Payable and Accrued Expenses | $48,792 | $108,671 | ▲ $59,879 |
| Total Liabilities | $2,290,954 | $2,810,948 | ▲ $519,994 |
| Net Assets / Fund Balance | |||
| Net Assets With Donor Restrictions | $103,789 | $530,894 | ▲ $427,105 |
| Net Assets Without Donor Restrictions | $-733,138 | $-1,593,576 | ▼ $860,438 |
| Total Net Assets Fund Balance | $-629,349 | $-1,062,682 | ▼ $433,333 |
| Total Liabilities and Net Assets / Fund Balance | $1,661,605 | $1,748,266 | ▲ $86,661 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $0 | $433,213 | $433,213 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Valerie Estess | Vice President | FT | $225,000 | $31,281 | $256,281 |
| Meredith Estess Hulbert | President | FT | $225,000 | $19,800 | $244,800 |
| Gail Carson | Controller (CFO) | FT | $103,900 | $7,919 | $111,819 |
| Margaret Shanahan | Executive Director | FT | $85,000 | - | $85,000 |
| Name | Title |
|---|---|
| Debbie Wilpon | Chair |
| Robert S Kaplan | Chair |
| Arthur Frasier | Director |
| Bonnie Verbitsky | Director |
| Bruce Spohler | Director |
| Chad Cascarilla | Director |
| Christine Taylor | Director |
| Daniel Kellison | Director |
| Darci Carlton | Director |
| David L Jaffe | Director |
| Debra Wasserman | Director |
| F Jonathan Dracos | Director |
| Jack Merrill | Director |
| Lawrence Tarica | Director |
| Lori Hirshliefer Sills | Director |
| Marcie Fleck | Director |
| Martha Mccully | Director |
| Michael Berman | Director |
| Nancy Jarecki | Director |
| Peter J Hulbert | Director |
| Rob Burnett | Director |
| Rob Morrow | Director |
| Simon Halls | Director |
| Stacey Griffith | Director |
| Staci Kirchhoff | Director |
| Sue Leibman | Director |
| Tara Spiegel | Director |
| Contribution Type | Contribution Count | Reported Amount | Valuation Method |
|---|---|---|---|
| Securities Publicly Traded | 4 | $210,970 | Fair Market Value (FMV) |
| Total Noncash Contributions | 4 | $210,970 | - |
| Line Item | Amount |
|---|---|
| Grants and Similar Amounts Paid | $1,843,678 |
| Salaries, Compensation, and Employee Benefits | $1,104,796 |
| Other Expenses | $464,377 |
| Total Fundraising Expense | $123,294 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $1,843,678 | - | - | $1,843,678 |
| Current Officers, Directors, Trustees, and Key Employees | $555,720 | $158,971 | $18,111 | $732,802 |
| Other Salaries and Wages | $197,689 | $20,027 | $34,719 | $252,435 |
| Fees for Services Other | $65,385 | $1,550 | $52,380 | $119,315 |
| Office Expenses | $65,663 | $14,856 | $5,104 | $85,623 |
| Other Employee Benefits | $53,400 | $12,687 | $3,745 | $69,832 |
| Payroll Taxes | $38,026 | $9,034 | $2,667 | $49,727 |
| Fees for Services Accounting | - | $46,912 | - | $46,912 |
| Conferences and Meetings | $43,770 | $447 | $447 | $44,664 |
| Travel | $19,517 | $616 | $411 | $20,544 |
| Insurance | $7,425 | $8,436 | $1,677 | $17,538 |
| Occupancy | $8,081 | $1,920 | $567 | $10,568 |
| All Other Expenses | $2,129 | $6,484 | $1,267 | $9,880 |
| Advertising | $9,704 | - | $98 | $9,802 |
| Other Expenses | $3,486 | $10,565 | $2,101 | $3,486 |
| Fees for Services Legal | - | $2,500 | - | $2,500 |
| Total Functional Expenses | $2,994,552 | $295,005 | $123,294 | $3,412,851 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $3,583,306 |
| Expenses per Audited Statements | $3,412,851 |
| Total Expenses per Form 990 | $3,412,851 |
| Expenses Not Reported on Form 990 | $170,455 |
| Expenses Not Reported on Financial Statements | $0 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Columbia University | New York, NY | 501(c)(3) | Medical Research | $718,001 |
| University of California San Francisco | San Francisco, CA | 501(c)(3) | Medical Research | $355,316 |
| Projenx | New York, NY | 501(c)(3) | Medical Research | $253,797 |
| Rutgers Medical School | Piscataway, NJ | 501(c)(3) | Medical Research | $221,394 |
| University of California San Diego | La Jolla, CA | 501(c)(3) | Medical Research | $152,278 |
| Salk Institute | La Jolla, CA | 501(c)(3) | Medical Research | $101,519 |
| Weill Cornell Medical College | New York, NY | 501(c)(3) | Medical Research | $30,207 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $788,857 |
| Fundraising Gross Income | $618,402 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| 25th Anniversary | $1,274,244 | $280,293 | $32,191 | $248,102 |
| Golf | $600,426 | $195,071 | $5,418 | $189,653 |
| Total Events | $2,420,312 | $618,402 | $788,857 | $-170,455 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| Valerie Estess | Family Member of Director | Employed by Organization | No | $261,623 |
| Meredith Estess Hulbert | Family Member of Directors | Employed by Organization | No | $250,895 |
“Meredith estess hulbert, president, and valerie estess, vice president, have a family relationship. Meredith estess hulbert, president, and peter j. Hulbert, director, have a family relationship.”
“The president and controller review the form 990 for reasonableness by comparing the data on the form 990 to the audited financial statements and the information provided to the tax preparer. The final form 990 is provided to all members of the governing body prior to filing with the irs.”
“The organization's conflict of interest policy covers all interested persons which consists of the board of directors, officers, chief employed executive, and chief employed finance executive. Interested persons are required to disclose annually any interests that may be a potential conflict of interest to the chairman of the board of directors who will review and determine any necessary further actions. Any interested person shall recuse oneself from participating and voting in deliberations and discussions to the related transaction.”
“The compensation of the president and vice president is reviewed and approved annually by the independent board's executive committee through the use of comparable data of similarly situated organizations. The process is documented contemporaneously. Meredith and valerie estess do not vote on executive compensation. Compensation for other officers is reviewed by the board of directors.”
“The organization makes its audited financial statements available on its website. The governing documents and conflict of interest policy are available upon request.”
“The organization recognizes and measures its unrecognized tax benefits in accordance with financial accounting standards board ("fasb") accounting standards codification ("asc") 740, income taxes. Under that guidance, the organization assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances and information available at the end of each period. The measurement of unrecognized tax benefits is adjusted when new information is available or when an event occurs that requires a change. Management has evaluated the organization's tax positions and has concluded that the organization has taken no uncertain tax positions that require adjustment to the financial statements.”
“Direct fundraising event expenses 170,455.”
“Direct fundraising event expenses 170,455.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 48792 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 108671 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | WORKING TOWARDS AN UNDERSTANDING AND TREATMENTS FOR AMYOTROPHIC LATERAL SCLEROSIS. |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 98 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 9704 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 9802 |
| IRS990/AllOtherContributionsAmt | 0 | 1316967 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 1267 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 6484 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 2129 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 9880 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | THE ORGANIZATION |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2124207382 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 2585 BROADWAY 202 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | NEW YORK |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | NY |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 10025 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 1 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1187500 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1244776 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 18111 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 158971 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 555720 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 732802 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 447 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 447 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 43770 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 44664 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 1801910 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 3118877 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 1843678 |
| IRS990/CYInvestmentIncomeAmt | 0 | 30867 |
| IRS990/CYOtherExpensesAmt | 0 | 464377 |
| IRS990/CYOtherRevenueAmt | 0 | -170226 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -433333 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 1104796 |
| IRS990/CYTotalExpensesAmt | 0 | 3412851 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 123294 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 2979518 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 1 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 382501 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 351375 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | GRANTS AND RESEARCH - FUNDING FOR SCIENTIFIC MEDICAL RESEARCH TO FIND TREATMENTS AND ULTIMATELY A CURE FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS) AN ULTIMATELY FATAL MOTOR NEURON DISEASE BY PROMOTING COLLABORATION AND INFORMATION SHARING AMONG RESEARCHERS FOR ALL RELATED DISEASES SUCH AS PARKINSON'S AND MULTIPLE SCLEROSIS. PROSETIN DEVELOPMENT FOR FDA SUBMISSION FOR CLINICAL DRUG TRIAL APPROVAL. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 103789 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 530894 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 10 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 2581550 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 46912 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 46912 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 2500 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 2500 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 52380 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 1550 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 65385 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 119315 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 15 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 16 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 17 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 18 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 19 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 20 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 21 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 22 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 23 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 24 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 25 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 26 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 27 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 28 | 0.25 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 29 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 30 | 40.00 |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 14 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 15 | X |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 17 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 18 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 19 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 20 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 21 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 22 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 23 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 24 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 25 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 26 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 27 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 28 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 19800 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 31281 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 29 | 7919 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 30 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | MEREDITH ESTESS HULBERT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | VALERIE ESTESS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | ROBERT S KAPLAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | DEBBIE WILPON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ROB BURNETT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MICHAEL BERMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DARCI CARLTON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | CHAD CASCARILLA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | F JONATHAN DRACOS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | MARCIE FLECK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | ARTHUR FRASIER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | STACEY GRIFFITH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | SIMON HALLS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | PETER J HULBERT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | DAVID L JAFFE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 15 | NANCY JARECKI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 16 | DANIEL KELLISON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 17 | STACI KIRCHHOFF |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 18 | SUE LEIBMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 19 | MARTHA MCCULLY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 20 | JACK MERRILL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 21 | ROB MORROW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 22 | LORI HIRSHLIEFER SILLS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 23 | TARA SPIEGEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 24 | BRUCE SPOHLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 25 | LAWRENCE TARICA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 26 | CHRISTINE TAYLOR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 27 | DEBRA WASSERMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 28 | BONNIE VERBITSKY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 29 | GAIL CARSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 30 | MARGARET SHANAHAN |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 225000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 225000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 29 | 103900 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 30 | 85000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 15 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 16 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 17 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 18 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 19 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 20 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 21 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 22 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 23 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 24 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 25 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 26 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 27 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 28 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 29 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 30 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 15 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 16 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 17 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 18 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 19 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 20 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 21 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 22 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 23 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 24 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 25 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 26 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 27 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 28 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 29 | CONTROLLER (CFO) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 30 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1998 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 1801910 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 788857 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 618402 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | -6545 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 29 |
| IRS990/GrantAmt | 0 | 1843678 |
| IRS990/GrantsPayableGrp/BOYAmt | 0 | 1859661 |
| IRS990/GrantsPayableGrp/EOYAmt | 0 | 2350902 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 1843678 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 1843678 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 204425 |
| IRS990/GrossReceiptsAmt | 0 | 3979345 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 26 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 1677 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 8436 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 7425 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 17538 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 37412 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 37412 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 200 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 200 |
| IRS990/IRPDocumentCnt | 0 | 23 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 433213 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 0 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 433213 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 210970 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MiscellaneousRevenueGrp/ExclusionAmt | 0 | 229 |
| IRS990/MiscellaneousRevenueGrp/TotalRevenueColumnAmt | 0 | 229 |
| IRS990/MissionDesc | 0 | TO RECRUIT THE WORLD'S BEST RESEARCH SCIENTISTS AND CLINICIANS TO WORK TOGETHER TOWARD AN UNDERSTANDING OF AND THE FIRST EFFECTIVE TREATMENTS FOR ALS (AMYOTROPHIC LATERAL SCLEROSIS) ALSO KNOWN AS LOU GEHRIG'S DISEASE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | -629349 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | -1062682 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | -6545 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -6545 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -170455 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -170455 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | -733138 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | -1593576 |
| IRS990/NoncashContributionsAmt | 0 | 210970 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 567 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 1920 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 8081 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 10568 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 5104 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 14856 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 65663 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 85623 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 7581 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 7269 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 3745 |
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