Civic Intelligence

Project a L Sinc

990 • Fiscal year 2016 • EIN 13-4019464

Aug 01, 2015 to Jul 31, 2016 • Filed on Feb 07, 2017

801 Riverside Drive No 6GNew York, NY 10032

(212) 420-7382

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

90th percentile

0.95x

Higher debt load relative to assets than 90% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Liabilities / Revenue

85th percentile

1.01x

Higher debt load relative to revenue than 85% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Net Margin

27th percentile

-6.2%

Higher net margin than 27% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Top Officer Pay

88th percentile

$186,146

Higher top officer pay than 88% of similar nonprofits.

Top officer pay equals 7.9% of source-year revenue.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Asset Growth

5th percentile

-23%

Faster asset growth than 5% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Revenue Growth

16th percentile

-20%

Faster revenue growth than 16% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Assets

Down

$2,486,877

Down $743,181 (-23%) from 2015

Net Assets

Down

$112,616

Down $190,107 (-63%) from 2015

Liabilities

Down

$2,374,261

Down $553,074 (-19%) from 2015

Revenue

Down

$2,362,369

Down $589,135 (-20%) from 2015

Expenses

Down

$2,508,621

Down $465,822 (-16%) from 2015

Net Income

Down

-$146,252

Down $123,313 (-538%) from 2015

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0-$2.0MAssets 2011: $2,731,589Liabilities 2011: $2,112,095Net Assets 2011: $619,4942011Assets 2012: $3,065,094Liabilities 2012: $2,149,036Net Assets 2012: $916,0582012Assets 2013: $2,556,628Liabilities 2013: $2,135,586Net Assets 2013: $421,0422013Assets 2014: $2,270,964Liabilities 2014: $1,938,401Net Assets 2014: $332,5632014Assets 2015: $3,230,058Liabilities 2015: $2,927,335Net Assets 2015: $302,7232015Assets 2016: $2,486,877Liabilities 2016: $2,374,261Net Assets 2016: $112,6162016Assets 2017: $4,278,481Liabilities 2017: $3,965,613Net Assets 2017: $312,8682017Assets 2018: $3,858,975Liabilities 2018: $3,605,300Net Assets 2018: $253,6752018Assets 2019: $2,000,729Liabilities 2019: $2,515,167Net Assets 2019: -$514,4382019Assets 2020: $2,583,051Liabilities 2020: $2,597,587Net Assets 2020: -$14,5362020Assets 2021: $1,558,325Liabilities 2021: $2,131,278Net Assets 2021: -$572,9532021Assets 2022: $1,177,668Liabilities 2022: $1,595,143Net Assets 2022: -$417,4752022Assets 2023: $1,661,605Liabilities 2023: $2,290,954Net Assets 2023: -$629,3492023Assets 2024: $1,748,266Liabilities 2024: $2,810,948Net Assets 2024: -$1,062,6822024

Highlighted filing

2016

Assets$2,486,877
Liabilities$2,374,261
Net Assets$112,616

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $5,087,2502011Expenses 2012: $4,943,6702012Expenses 2013: $2,515,7112013Revenue 2014: $1,925,701Expenses 2014: $2,014,180Net Income 2014: -$88,4792014Revenue 2015: $2,951,504Expenses 2015: $2,974,443Net Income 2015: -$22,9392015Revenue 2016: $2,362,369Expenses 2016: $2,508,621Net Income 2016: -$146,2522016Revenue 2017: $5,513,484Expenses 2017: $5,325,775Net Income 2017: $187,7092017Revenue 2018: $4,107,224Expenses 2018: $4,180,948Net Income 2018: -$73,7242018Revenue 2019: $3,840,925Expenses 2019: $4,609,038Net Income 2019: -$768,1132019Revenue 2020: $4,308,751Expenses 2020: $3,808,849Net Income 2020: $499,9022020Revenue 2021: $2,611,375Expenses 2021: $3,172,033Net Income 2021: -$560,6582021Revenue 2022: $3,596,233Expenses 2022: $3,498,948Net Income 2022: $97,2852022Revenue 2023: $3,776,913Expenses 2023: $4,483,713Net Income 2023: -$706,8002023Revenue 2024: $2,979,518Expenses 2024: $3,412,851Net Income 2024: -$433,3332024

Highlighted filing

2016

Revenue$2,362,369
Expenses$2,508,621
Net Income-$146,252
Jump To
Filing Snapshot
Filing Period
Aug 1, 2015 to Jul 31, 2016
Signed
Feb 7, 2017
Return Version
2015v3.0
Gross Receipts
$2,899,606
Mission and Program Overview

Mission

To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.

Working towards an understanding and treatments for amyotrophic lateral sclerosis

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$1,490,921$1,245,499▼ $245,422
Cash and Non-Interest-Bearing Accounts$1,268,082$846,717▼ $421,365
Investments in Publicly Traded Securities$194,407$150,551▼ $43,856
Prepaid Expenses and Deferred Charges$131,760$126,398▼ $5,362
Pledges and Grants Receivable$128,419$101,827▼ $26,592
Land, Buildings, and Equipment, Net$449$0▼ $449
Total Assets$3,230,058$2,486,877▼ $743,181
Other Assets Total$16,020$15,885▼ $135
Liabilities
Grants Payable$2,482,979$2,116,872▼ $366,107
Accounts Payable and Accrued Expenses$243,048$247,389▲ $4,341
Deferred Revenue$201,308$10,000▼ $191,308
Total Liabilities$2,927,335$2,374,261▼ $553,074
Net Assets / Fund Balance
Unrestricted Net Assets$234,893$112,616▼ $122,277
Temporarily Rstr Net Assets$67,830$0▼ $67,830
Total Net Assets Fund Balance$302,723$112,616▼ $190,107
Total Liabilities and Net Assets / Fund Balance$3,230,058$2,486,877▼ $743,181

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$429,311$429,311
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Valerie EstessVice PresidentFT$157,600$28,546$186,146
Meredith Estess HulbertPresidentFT$157,600$355$157,955

Board Members and Trustees

NameTitle
Robert S KaplanChairman
Debbie WilponCo-chairman
F Jonathan DracosCo-chairman
Aimee DavidDirector
Bonnie VerbitskyDirector
Brad GreyDirector
Chad CascarillaDirector
Christine TaylorDirector
Daniel KellisonDirector
Darci CarltonDirector
David L JaffeDirector
Harriet AbramsonDirector
Jack MerrillDirector
Lawrence TaricaDirector
Martha MccullyDirector
Michael BermanDirector
Nancy JareckiDirector
Peter HulbertDirector
Regina Kulik ScullyDirector
Rob BurnettDirector
Rob MorrowDirector
Simon HallsDirector
Staci KirchhoffDirector
Stephanie GeorgeDirector
Sue LeibmanDirector
Robert WolfDirector (commenced 2/16)
Stacey GriffithDirector (commenced 2/16)
Ashley McdermottDirector (resigned 2/16)
Revenue and Support

Revenue Composition

Contributions and Grants
$1,983,492
Program Service Revenue
$0
Investment Income
$8,244
Other Revenue
$370,633
All Other Contributions
$791,238
Change in Net Assets
$-146,252

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,356,299
Revenue Not Reported on Financial Statements
$6,070
Revenue Not Reported on Form 990
$-24,108
Other Revenue Adjustments
$6,070
Total Revenue per Audited Statements
$2,332,191
Total Revenue per Form 990
$2,362,369
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,292,765
Salaries, Compensation, and Employee Benefits$621,193
Other Expenses$594,663
Total Fundraising Expense$181,394
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,292,765--$1,292,765
Current Officers, Directors, Trustees, and Key Employees$293,168$17,342$19,820$330,330
Other Salaries and Wages$94,416$93,382$18,157$205,955
Fees for Services Other$30,000$6,549$49,648$86,197
Conferences and Meetings$55,761$372$567$56,700
Occupancy$34,367$9,818$3,367$47,552
Other Employee Benefits$31,884$9,108$3,124$44,116
Payroll Taxes$29,481$8,422$2,889$40,792
Fees for Services Accounting-$34,789-$34,789
All Other Expenses$13,713$3,361$17,582$34,656
Office Expenses$23,947$6,841$2,346$33,134
Other Expenses$13,222$12,055$483$12,538
Insurance$5,341$1,526$524$7,391
Depreciation Depletion$324$93$32$449
Fees for Services Legal-$88-$88
Total Functional Expenses$2,119,704$207,523$181,394$2,508,621

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,522,298
Total Expenses per Form 990$2,508,621
Expenses per Audited Statements$2,502,551
Expenses Not Reported on Form 990$19,747
Expenses Not Reported on Financial Statements$6,070
Other Expense Adjustments$6,070
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Harvard CollegeCambridge, MA501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$605,425
University of Massachusett Project Als FundNorth Worcester, MA501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$298,273
New York UniversityNew York, NY501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$211,000
Memorial Sloan KetteringNew York, NY501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$205,000
BOSTON CHILDREN'S HOSPITALBoston, MA501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$203,000
Neurological Clinical Research InstituteBoston, MA501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$26,854
Columbia UniversityNew York, NY501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$-262,287
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$537,237
Fundraising Gross Income$517,490
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fall Benefit$1,033,463$263,572$64,429$199,143
Golf$372,828$195,823$14,567$181,256
Total Events$1,709,744$517,490$537,237$-19,747
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Meredith and valerie estess are sisters and compensated as employees. Meredith estess, president, and peter hulbert, director, are married valerie estess, director, and scott robbins, former director, have a family relationship.

Form 990, Part VI, Section B, Line 11

The president and the controller review the 990 for reasonableness by comparing the data on the return to the audited financial statements, and information provided to the tax preparer. The final form 990 is provided to all members of the governing body prior to filing with the irs.

Form 990, Part VI, Section B, Line 12C

The organization's conflict of interest policy covers all interested persons which consists of the board of directors, officers, chief employed executive, and chief employed finance executive. Interested persons are required to disclose annually any interests that may be a potential conflict of interest to the chairman of the board of directors who will review and determine any necessary further actions. Any interested person shall recuse oneself from participating and voting in deliberations and discussions to the related transaction.

Form 990, Part VI, Section B, Line 15

The compensation of the president and director of research is reviewed and approved annually by the independent board's executive committee through the use of comparable data of similarly situated organizations. The process is documented contemporaneously.

Form 990, Part VI, Section C, Line 19

The organization makes its form 990 and audited financial statements available on its website and other media such as guidestar. The governing documents and conflict of interest policy are available upon request.

Filing and Contact Details

Filer

Filer Name
Project a L Sinc
EIN
13-4019464
Phone
2124207382
Address
801 RIVERSIDE DRIVE NO 6G, NEW YORK, NY 10032

Signing Officer

Name
Meredith Estess
Title
President
Phone
2124207382
Signed
2017-02-07
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meredith Estess
Formed
1998
Legal Domicile
Ny
Voting Board Members
30
Independent Board Members
27
Employees
6
Volunteers
15

Preparer

Firm
Citrin Cooperman & Company Llp
Address
529 FIFTH AVENUE, NEW YORK, NY 10017-4683
Preparer
Paula Vuksic CPA Mst
Phone
2126971000
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

The organization is exempt from federal income taxes under section 501(c)(3) of the internal revenue code and is also exempt from state and local taxes. The organization recognizes and measures its unrecognized tax benefits in accordance with financial accounting standards board ("fasb") accounting standards codification ("asc") 740, income taxes. Under that guidance, the organization assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances and information available at the end of each period. The measurement of unrecognized tax benefits is adjusted when new information is available, or when an event occurs that requires a change. Management has evaluated the organization's tax positions and has concluded that the organization has taken no uncertain tax positions that require adjustment to the financial statements. Generally, the organization is no longer subject to u.s. Federal or state income tax examinations by taxing authorities for years before 2011.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Additional direct fundraising costs 19,747.

PART XI, LINE 4B - OTHER ADJUSTMENTS:

Other fundraising costs 6,070.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Additional direct fundraising costs 19,747.

PART XII, LINE 4B - OTHER ADJUSTMENTS:

Other fundraising costs 6,070.

Raw XML AppendixShowing 400 of 767 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt14355
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt210
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt220
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt230
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt240
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt250
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt2628546
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt270
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt280
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt290
IRS990/Form990PartVIISectionAGrp/PersonNm0ASHLEY MCDERMOTT
IRS990/Form990PartVIISectionAGrp/PersonNm1BONNIE VERBITSKY
IRS990/Form990PartVIISectionAGrp/PersonNm2BRAD GREY
IRS990/Form990PartVIISectionAGrp/PersonNm3CHAD CASCARILLA
IRS990/Form990PartVIISectionAGrp/PersonNm4CHRISTINE TAYLOR
IRS990/Form990PartVIISectionAGrp/PersonNm5DANIEL KELLISON
IRS990/Form990PartVIISectionAGrp/PersonNm6DARCI CARLTON
IRS990/Form990PartVIISectionAGrp/PersonNm7DAVID L JAFFE
IRS990/Form990PartVIISectionAGrp/PersonNm8DEBBIE WILPON
IRS990/Form990PartVIISectionAGrp/PersonNm9F JONATHAN DRACOS
IRS990/Form990PartVIISectionAGrp/PersonNm10HARRIET ABRAMSON
IRS990/Form990PartVIISectionAGrp/PersonNm11JACK MERRILL
IRS990/Form990PartVIISectionAGrp/PersonNm12LAWRENCE TARICA
IRS990/Form990PartVIISectionAGrp/PersonNm13MARTHA MCCULLY
IRS990/Form990PartVIISectionAGrp/PersonNm14MEREDITH ESTESS HULBERT
IRS990/Form990PartVIISectionAGrp/PersonNm15MICHAEL BERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm16NANCY JARECKI
IRS990/Form990PartVIISectionAGrp/PersonNm17PETER HULBERT
IRS990/Form990PartVIISectionAGrp/PersonNm18REGINA KULIK SCULLY
IRS990/Form990PartVIISectionAGrp/PersonNm19ROB BURNETT
IRS990/Form990PartVIISectionAGrp/PersonNm20ROB MORROW
IRS990/Form990PartVIISectionAGrp/PersonNm21ROBERT S KAPLAN
IRS990/Form990PartVIISectionAGrp/PersonNm22SIMON HALLS
IRS990/Form990PartVIISectionAGrp/PersonNm23STEPHANIE GEORGE
IRS990/Form990PartVIISectionAGrp/PersonNm24SUE LEIBMAN
IRS990/Form990PartVIISectionAGrp/PersonNm25STACI KIRCHHOFF
IRS990/Form990PartVIISectionAGrp/PersonNm26VALERIE ESTESS
IRS990/Form990PartVIISectionAGrp/PersonNm27AIMEE DAVID
IRS990/Form990PartVIISectionAGrp/PersonNm28STACEY GRIFFITH
IRS990/Form990PartVIISectionAGrp/PersonNm29ROBERT WOLF
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt14157600
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt26157600
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt290
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt290
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR (RESIGNED 2/16)
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8CO-CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt9CO-CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt27DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt28DIRECTOR (COMMENCED 2/16)
IRS990/Form990PartVIISectionAGrp/TitleTxt29DIRECTOR (COMMENCED 2/16)
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01998
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt01192254
IRS990/FundraisingDirectExpensesAmt0537237
IRS990/FundraisingGrossIncomeAmt0517490
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt030
IRS990/GrantAmt01292765
IRS990/GrantsPayableGrp/BOYAmt02482979
IRS990/GrantsPayableGrp/EOYAmt02116872
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01292765
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01292765
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt02899606
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt027
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InsuranceGrp/FundraisingAmt0524
IRS990/InsuranceGrp/ManagementAndGeneralAmt01526
IRS990/InsuranceGrp/ProgramServicesAmt05341
IRS990/InsuranceGrp/TotalAmt07391
IRS990/InvestmentIncomeGrp/ExclusionAmt08244
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt08244
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt0194407
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0150551
IRS990/IRPDocumentCnt042
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0429311
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0449
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt0429311
IRS990/LegalDomicileStateCd0NY
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO RECRUIT THE WORLD'S BEST RESEARCH SCIENTISTS AND CLINICIANS TO WORK TOGETHER TOWARD AN UNDERSTANDING OF AND THE FIRST EFFECTIVE TREATMENTS FOR ALS (AMYOTROPHIC LATERAL SCLEROSIS) ALSO KNOWN AS LOU GEHRIG'S DISEASE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0302723
IRS990/NetAssetsOrFundBalancesEOYAmt0112616
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-19747
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-19747
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-43855
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt03367
IRS990/OccupancyGrp/ManagementAndGeneralAmt09818
IRS990/OccupancyGrp/ProgramServicesAmt034367
IRS990/OccupancyGrp/TotalAmt047552
IRS990/OfficeExpensesGrp/FundraisingAmt02346
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt06841
IRS990/OfficeExpensesGrp/ProgramServicesAmt023947
IRS990/OfficeExpensesGrp/TotalAmt033134
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt016020
IRS990/OtherAssetsTotalGrp/EOYAmt015885
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt03124
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt09108
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt031884
IRS990/OtherEmployeeBenefitsGrp/TotalAmt044116
IRS990/OtherExpensesGrp/Desc0EVENT COSTS
IRS990/OtherExpensesGrp/Desc1PRINTING, PUBLICATIONS
IRS990/OtherExpensesGrp/Desc2TELEPHONE
IRS990/OtherExpensesGrp/Desc3MISCELLANEOUS
IRS990/OtherExpensesGrp/FundraisingAmt055285
IRS990/OtherExpensesGrp/FundraisingAmt16275
IRS990/OtherExpensesGrp/FundraisingAmt21295
IRS990/OtherExpensesGrp/FundraisingAmt3483
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03777
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt112055
IRS990/OtherExpensesGrp/ProgramServicesAmt082083
IRS990/OtherExpensesGrp/ProgramServicesAmt1119232
IRS990/OtherExpensesGrp/ProgramServicesAmt213222
IRS990/OtherExpensesGrp/TotalAmt0137368

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.75$2.81$1.06$2.98$3.41$0.43
2023Summary only. Only limited summary data is available for this year.$1.66$2.29$0.63$3.78$4.48$0.71
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$1.60$0.42$3.60$3.50$0.10
2021Summary only. Only limited summary data is available for this year.$1.56$2.13$0.57$2.61$3.17$0.56
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.58$2.60$0.01$4.31$3.81$0.50
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.00$2.52$0.51$3.84$4.61$0.77
2018Summary only. Only limited summary data is available for this year.$3.86$3.61$0.25$4.11$4.18$0.07
2017Summary only. Only limited summary data is available for this year.$4.28$3.97$0.31$5.51$5.33$0.19
2016Detailed filing. Detailed filing data is available for this year.$2.49$2.37$0.11$2.36$2.51$0.15
2015Detailed filing. Detailed filing data is available for this year.$3.23$2.93$0.30$2.95$2.97$0.02
2014Detailed filing. Detailed filing data is available for this year.$2.27$1.94$0.33$1.93$2.01$0.09
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.56$2.14$0.42$2.52
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.07$2.15$0.92$4.94
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.73$2.11$0.62$5.09