Civic Intelligence

Project a L Sinc

990 • Fiscal year 2021 • EIN 13-4019464

Aug 01, 2020 to Jul 31, 2021 • Filed on Jun 13, 2022

Organization ProfileWWW.PROJECTALS.ORG

View Organization Page

4330 Camp Kaufmann RoadHuntingtown, MD 20639

(212) 420-7382

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

97th percentile

1.37x

Higher debt load relative to assets than 97% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

85th percentile

0.82x

Higher debt load relative to revenue than 85% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

10th percentile

-21%

Higher net margin than 10% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

90th percentile

$195,273

Higher top officer pay than 90% of similar nonprofits.

Top officer pay equals 7.5% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

2nd percentile

-40%

Faster asset growth than 2% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

7th percentile

-39%

Faster revenue growth than 7% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets97th percentile

Assets

Flat

$1,558,325

Flat from 2021

Net Assets

Flat

-$572,953

Flat from 2021

Liabilities

Flat

$2,131,278

Flat from 2021

Revenue And Expenses
Liabilities / Revenue85th percentileNet Margin10th percentile

Revenue

Flat

$2,611,375

Flat from 2021

Expenses

Flat

$3,172,033

Flat from 2021

Net Income

Flat

-$560,658

Flat from 2021

Historical Trend

Balance Sheet Trend

Asset Growth2nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0-$2.0MAssets 2011: $2,731,589Liabilities 2011: $2,112,095Net Assets 2011: $619,4942011Assets 2012: $3,065,094Liabilities 2012: $2,149,036Net Assets 2012: $916,0582012Assets 2013: $2,556,628Liabilities 2013: $2,135,586Net Assets 2013: $421,0422013Assets 2014: $2,270,964Liabilities 2014: $1,938,401Net Assets 2014: $332,5632014Assets 2015: $3,230,058Liabilities 2015: $2,927,335Net Assets 2015: $302,7232015Assets 2016: $2,486,877Liabilities 2016: $2,374,261Net Assets 2016: $112,6162016Assets 2017: $4,278,481Liabilities 2017: $3,965,613Net Assets 2017: $312,8682017Assets 2018: $3,858,975Liabilities 2018: $3,605,300Net Assets 2018: $253,6752018Assets 2019: $2,000,729Liabilities 2019: $2,515,167Net Assets 2019: -$514,4382019Assets 2020: $2,583,051Liabilities 2020: $2,597,587Net Assets 2020: -$14,5362020Assets 2021: $1,558,325Liabilities 2021: $2,131,278Net Assets 2021: -$572,9532021Assets 2021: $1,558,325Liabilities 2021: $2,131,278Net Assets 2021: -$572,9532021Assets 2022: $1,177,668Liabilities 2022: $1,595,143Net Assets 2022: -$417,4752022Assets 2023: $1,661,605Liabilities 2023: $2,290,954Net Assets 2023: -$629,3492023Assets 2024: $1,748,266Liabilities 2024: $2,810,948Net Assets 2024: -$1,062,6822024

Highlighted filing

2021

Assets$1,558,325
Liabilities$2,131,278
Net Assets-$572,953
Open 2021 Filing

Operations Trend

Revenue Growth7th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $5,087,2502011Expenses 2012: $4,943,6702012Expenses 2013: $2,515,7112013Revenue 2014: $1,925,701Expenses 2014: $2,014,180Net Income 2014: -$88,4792014Revenue 2015: $2,951,504Expenses 2015: $2,974,443Net Income 2015: -$22,9392015Revenue 2016: $2,362,369Expenses 2016: $2,508,621Net Income 2016: -$146,2522016Revenue 2017: $5,513,484Expenses 2017: $5,325,775Net Income 2017: $187,7092017Revenue 2018: $4,107,224Expenses 2018: $4,180,948Net Income 2018: -$73,7242018Revenue 2019: $3,840,925Expenses 2019: $4,609,038Net Income 2019: -$768,1132019Revenue 2020: $4,308,751Expenses 2020: $3,808,849Net Income 2020: $499,9022020Revenue 2021: $2,611,375Expenses 2021: $3,172,033Net Income 2021: -$560,6582021Revenue 2021: $2,611,375Expenses 2021: $3,172,033Net Income 2021: -$560,6582021Revenue 2022: $3,596,233Expenses 2022: $3,498,948Net Income 2022: $97,2852022Revenue 2023: $3,776,913Expenses 2023: $4,483,713Net Income 2023: -$706,8002023Revenue 2024: $2,979,518Expenses 2024: $3,412,851Net Income 2024: -$433,3332024

Highlighted filing

2021

Revenue$2,611,375
Expenses$3,172,033
Net Income-$560,658
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Aug 1, 2020 to Jul 31, 2021
Signed
Jun 13, 2022
Return Version
2020v4.2
Gross Receipts
$2,850,231
Mission and Program Overview

Mission

To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.

Working towards an understanding and treatments for amyotrophic lateral sclerosis.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,529,687$880,444▼ $649,243
Savings and Temporary Cash Investments$763,281$363,411▼ $399,870
Pledges and Grants Receivable$143,751$116,327▼ $27,424
Prepaid Expenses and Deferred Charges$36,709$44,462▲ $7,753
Investments Other Securities-$18,668-
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$2,583,051$1,558,325▼ $1,024,726
Other Assets Total$109,623$135,013▲ $25,390
Liabilities
Grants Payable$2,101,883$1,412,396▼ $689,487
Deferred Revenue$182,500$290,000▲ $107,500
Accounts Payable and Accrued Expenses$205,929$219,437▲ $13,508
Other Liabilities$107,275$209,445▲ $102,170
Total Liabilities$2,597,587$2,131,278▼ $466,309
Net Assets / Fund Balance
Net Assets With Donor Restrictions$402,675$0▼ $402,675
Net Assets Without Donor Restrictions$-417,211$-572,953▼ $155,742
Total Net Assets Fund Balance$-14,536$-572,953▼ $558,417
Total Liabilities and Net Assets / Fund Balance$2,583,051$1,558,325▼ $1,024,726

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$5,228$5,228
Other Assets Org$121,453--
Compensation and Service Providers
Top Officer Pay90th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Valerie EstessVice PresidentFT$173,527$21,746$195,273
Meredith Estess HulbertPresidentFT$173,527$18,750$192,277
Erin FlemmingDirector of Research - CORFT$170,000$11,918$181,918

Board Members and Trustees

NameTitle
Debbie WilponCo-chair
Robert S KaplanCo-chair
Arthur FrasierDirector
Bonnie VerbitskyDirector
Chad CascarillaDirector
Christine TaylorDirector
Daniel KellisonDirector
Darci CarltonDirector
David L JaffeDirector
Debra WassermanDirector
F Jonathan DracosDirector
Gena Fajgenbaum CombsDirector
Jack MerrillDirector
Lawrence TaricaDirector
Lori Hirshliefer SillsDirector
Marcie FleckDirector
Martha MccullyDirector
Michael BermanDirector
Nancy JareckiDirector
Peter J HulbertDirector
Regina Kulik ScullyDirector
Rob BurnettDirector
Rob MorrowDirector
Simon HallsDirector
Stacey GriffithDirector
Staci KirchhoffDirector
Sue LeibmanDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$2,629,140
Program Service Revenue
$0
Investment Income
$1,908
Other Revenue
$-19,673
All Other Contributions
$1,524,679
Change in Net Assets
$-560,658

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,611,375
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$21,914
Total Revenue per Audited Statements
$2,633,289
Total Revenue per Form 990
$2,611,375
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,871,507
Salaries, Compensation, and Employee Benefits$842,791
Other Expenses$457,735
Total Fundraising Expense$138,116
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,871,507--$1,871,507
Current Officers, Directors, Trustees, and Key Employees$459,860$29,500$27,694$517,054
Other Salaries and Wages$100,310$97,965$6,622$204,897
Fees for Services Other$101,135$14,341$81,735$197,211
Other Employee Benefits$54,213$12,336$3,321$69,870
Payroll Taxes$39,548$8,999$2,423$50,970
Occupancy$37,726$8,584$2,311$48,621
All Other Expenses$21,849$11,118$9,853$42,820
Fees for Services Legal$30,000$811-$30,811
Office Expenses$23,004$5,234$1,409$29,647
Fees for Services Accounting-$25,804-$25,804
Other Expenses$19,466$4,429$1,192$25,087
Payment Travel Entrtnmnt Publicly Ofcl$7,980$283$283$8,546
Total Functional Expenses$2,814,135$219,782$138,116$3,172,033

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,191,706
Expenses per Audited Statements$3,172,033
Total Expenses per Form 990$3,172,033
Expenses Not Reported on Form 990$19,673
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Prosetin Drug DevelopmentHuntingtown, MD501(c)(3)Medical Research$1,492,411
Columbia UniversityNew York, NY501(c)(3)Medical Research$598,409
Weill Medical CollegeNew York, NY501(c)(3)Medical Research$253,492
Johns Hopkins UniversityBaltimore, MD501(c)(3)Medical Research$115,922
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$238,856
Fundraising Gross Income$219,183
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
9th Golf Classic$298,375$137,958$9,640$128,318
Virtual Dinner$829,414$38,327$21,193$17,134
Total Events$1,323,644$219,183$238,856$-19,673
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Paycheck Protection Program Loan Payable$209,445
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Meredith estess hulbert, president and valerie estess, vice president are sisters and compensated as employees. Meredith estess hulbert, president, and peter j. Hulbert, director are married.”

Form 990, Part VI, Section B, Line 11B

“The president and controller review the form 990 for reasonableness by comparing the data on the form 990 to the audited financial statements and the information provided to the tax preparer. The final form 990 is provided to all members of the governing body prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“The organization's conflict of interest policy covers all interested persons which consists of the board of directors, officers, chief employed executive, and chief employed finance executive. Interested persons are required to disclose annually any interests that may be a potential conflict of interest to the chairman of the board of directors who will review and determine any necessary further actions. Any interested person shall recuse oneself from participating and voting in deliberations and discussions to the related transaction.”

Form 990, Part VI, Section B, Line 15

“The compensation of the president and director of research is reviewed and approved annually by the independent board's executive committee through the use of comparable data of similarly situated organizations. The process is documented contemporaneously. Meredith and valerie estess do not vote on executive compensation.”

Form 990, Part VI, Section C, Line 19

“The organization makes its form 990 and audited financial statements available on its website and other media such as guidestar. The governing documents and conflict of interest policy are available upon request.”

Filing and Contact Details

Filer

Filer Name
Project Als Inc
EIN
13-4019464
Phone
2124207382
Address
4330 CAMP KAUFMANN ROAD, HUNTINGTOWN, MD 20639

Signing Officer

Name
Meredith Estess
Title
President
Phone
2124207382
Signed
2022-06-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meredith Estess
Formed
1998
Legal Domicile
Ny
Voting Board Members
29
Independent Board Members
27
Employees
7
Volunteers
10

Preparer

Firm
Citrin Cooperman Advisors LLC
Address
50 ROCKEFELLER PLAZA, NEW YORK, NY 10020
Preparer
Paula Vuksic
Phone
2126971000
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization did not change its oversight process or selection process during the tax year.”

Financial Statement Notes

PART X, LINE 2:

“The organization is a not-for-profit organization and has been recognized by the internal revenue service ("irs") as exempt from federal income taxes under internal revenue code ("irc") section 501(a) as described in irc section 501(c)(3). Accordingly, no provision for income taxes has been made in the accompanying financial statements. The organization is annually required to file a return of organization exempt from income tax (form 990) with the irs. In addition, the entity is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. The organization has determined that it is not subject to unrelated business income tax. The organization recognizes and measures its unrecognized tax benefits in accordance with financial accounting standards board accounting standards codification ("fasb asc") 740, income taxes. Under that guidance, the organization assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances and information available at the end of each period. The measurement of unrecognized tax benefits is adjusted when new information is available or when an event occurs that requires a change. Management has evaluated the organization's tax positions and has concluded that the organization has taken no uncertain tax positions that require adjustment to the financial statements.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Special event costs 19,673.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Special event costs 19,673.”

Raw XML AppendixShowing 400 of 750 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt150
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt160
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt170
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt180
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt190
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt200
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt220
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt240
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt270
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt280
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IRS990/Form990PartVIISectionAGrp/PersonNm1VALERIE ESTESS
IRS990/Form990PartVIISectionAGrp/PersonNm2ROBERT S KAPLAN
IRS990/Form990PartVIISectionAGrp/PersonNm3DEBBIE WILPON
IRS990/Form990PartVIISectionAGrp/PersonNm4ROB BURNETT
IRS990/Form990PartVIISectionAGrp/PersonNm5MICHAEL BERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm6DARCI CARLTON
IRS990/Form990PartVIISectionAGrp/PersonNm7CHAD CASCARILLA
IRS990/Form990PartVIISectionAGrp/PersonNm8GENA FAJGENBAUM COMBS
IRS990/Form990PartVIISectionAGrp/PersonNm9F JONATHAN DRACOS
IRS990/Form990PartVIISectionAGrp/PersonNm10MARCIE FLECK
IRS990/Form990PartVIISectionAGrp/PersonNm11ARTHUR FRASIER
IRS990/Form990PartVIISectionAGrp/PersonNm12STACEY GRIFFITH
IRS990/Form990PartVIISectionAGrp/PersonNm13SIMON HALLS
IRS990/Form990PartVIISectionAGrp/PersonNm14PETER J HULBERT
IRS990/Form990PartVIISectionAGrp/PersonNm15DAVID L JAFFE
IRS990/Form990PartVIISectionAGrp/PersonNm16NANCY JARECKI
IRS990/Form990PartVIISectionAGrp/PersonNm17DANIEL KELLISON
IRS990/Form990PartVIISectionAGrp/PersonNm18STACI KIRCHHOFF
IRS990/Form990PartVIISectionAGrp/PersonNm19SUE LEIBMAN
IRS990/Form990PartVIISectionAGrp/PersonNm20MARTHA MCCULLY
IRS990/Form990PartVIISectionAGrp/PersonNm21JACK MERRILL
IRS990/Form990PartVIISectionAGrp/PersonNm22ROB MORROW
IRS990/Form990PartVIISectionAGrp/PersonNm23REGINA KULIK SCULLY
IRS990/Form990PartVIISectionAGrp/PersonNm24LORI HIRSHLIEFER SILLS
IRS990/Form990PartVIISectionAGrp/PersonNm25LAWRENCE TARICA
IRS990/Form990PartVIISectionAGrp/PersonNm26CHRISTINE TAYLOR
IRS990/Form990PartVIISectionAGrp/PersonNm27DEBRA WASSERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm28BONNIE VERBITSKY
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1173527
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt250
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt29170000
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt290
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2CO-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt3CO-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt27DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt28DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt29DIRECTOR OF RESEARCH - COR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01998
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt01104461
IRS990/FundraisingDirectExpensesAmt0238856
IRS990/FundraisingGrossIncomeAmt0219183
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt029
IRS990/GrantAmt01871507
IRS990/GrantsPayableGrp/BOYAmt02101883
IRS990/GrantsPayableGrp/EOYAmt01412396
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01871507
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01871507
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt02850231
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt027
IRS990/IndivRcvdGreaterThan100KCnt03
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InvestmentIncomeGrp/ExclusionAmt01908
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt01908
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt018668
IRS990/IRPDocumentCnt016
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt05228
IRS990/LandBldgEquipBasisNetGrp/BOYAmt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt05228
IRS990/LegalDomicileStateCd0NY
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO RECRUIT THE WORLD'S BEST RESEARCH SCIENTISTS AND CLINICIANS TO WORK TOGETHER TOWARD AN UNDERSTANDING OF AND THE FIRST EFFECTIVE TREATMENTS FOR ALS (AMYOTROPHIC LATERAL SCLEROSIS) ALSO KNOWN AS LOU GEHRIG'S DISEASE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
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IRS990/OccupancyGrp/ManagementAndGeneralAmt08584
IRS990/OccupancyGrp/ProgramServicesAmt037726
IRS990/OccupancyGrp/TotalAmt048621
IRS990/OfficeExpensesGrp/FundraisingAmt01409
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt05234
IRS990/OfficeExpensesGrp/ProgramServicesAmt023004
IRS990/OfficeExpensesGrp/TotalAmt029647
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
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IRS990/OtherAssetsTotalGrp/EOYAmt0135013
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt03321
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt012336
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt054213
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IRS990/OtherExpensesGrp/Desc1TELEPHONE
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IRS990/OtherExpensesGrp/FundraisingAmt11192
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0378
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt14429
IRS990/OtherExpensesGrp/ProgramServicesAmt047537
IRS990/OtherExpensesGrp/ProgramServicesAmt119466
IRS990/OtherExpensesGrp/TotalAmt049188
IRS990/OtherExpensesGrp/TotalAmt125087
IRS990/OtherLiabilitiesGrp/BOYAmt0107275
IRS990/OtherLiabilitiesGrp/EOYAmt0209445
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt06622
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt097965
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0100310
IRS990/OtherSalariesAndWagesGrp/TotalAmt0204897
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt02423
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt08999

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,558,325
Liabilities
$2,131,278
Net assets
-$572,953
Revenue
$2,611,375
Expenses
$3,172,033
Net income
-$560,658
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.75$2.81$1.06$2.98$3.41$0.43
2023Summary only. Only limited summary data is available for this year.$1.66$2.29$0.63$3.78$4.48$0.71
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$1.60$0.42$3.60$3.50$0.10
2021Detailed filing. Detailed filing data is available for this year.$1.56$2.13$0.57$2.61$3.17$0.56
2021Summary only. Only limited summary data is available for this year.$1.56$2.13$0.57$2.61$3.17$0.56
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.58$2.60$0.01$4.31$3.81$0.50
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.00$2.52$0.51$3.84$4.61$0.77
2018Summary only. Only limited summary data is available for this year.$3.86$3.61$0.25$4.11$4.18$0.07
2017Summary only. Only limited summary data is available for this year.$4.28$3.97$0.31$5.51$5.33$0.19
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.49$2.37$0.11$2.36$2.51$0.15
2015Detailed filing. Detailed filing data is available for this year.$3.23$2.93$0.30$2.95$2.97$0.02
2014Detailed filing. Detailed filing data is available for this year.$2.27$1.94$0.33$1.93$2.01$0.09
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.56$2.14$0.42$2.52
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.07$2.15$0.92$4.94
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.73$2.11$0.62$5.09