Civic Intelligence

Project a L Sinc

990 • Fiscal year 2020 • EIN 13-4019464

Aug 01, 2019 to Jul 31, 2020 • Filed on Jun 15, 2021

Organization ProfileWWW.PROJECTALS.ORG

View Organization Page

4330 Camp Kaufmann RoadHuntingtown, MD 20639

(212) 420-7382

Siviq Scores

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Balance Sheet

Assets

Up

$2,579,381

Up $578,652 (+29%) from 2019

Net Assets

Up

-$14,620

Up $499,818 (+97%) from 2019

Liabilities

Up

$2,594,001

Up $78,834 (+3.1%) from 2019

Revenue And Expenses

Revenue

Up

$4,308,671

Up $467,746 (+12%) from 2019

Expenses

Down

$3,808,853

Down $800,185 (-17%) from 2019

Net Income

Up

$499,818

Up $1,267,931 (+165%) from 2019

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0-$2.0MAssets 2011: $2,731,589Liabilities 2011: $2,112,095Net Assets 2011: $619,4942011Assets 2012: $3,065,094Liabilities 2012: $2,149,036Net Assets 2012: $916,0582012Assets 2013: $2,556,628Liabilities 2013: $2,135,586Net Assets 2013: $421,0422013Assets 2014: $2,270,964Liabilities 2014: $1,938,401Net Assets 2014: $332,5632014Assets 2015: $3,230,058Liabilities 2015: $2,927,335Net Assets 2015: $302,7232015Assets 2016: $2,486,877Liabilities 2016: $2,374,261Net Assets 2016: $112,6162016Assets 2017: $4,278,481Liabilities 2017: $3,965,613Net Assets 2017: $312,8682017Assets 2018: $3,858,975Liabilities 2018: $3,605,300Net Assets 2018: $253,6752018Assets 2019: $2,000,729Liabilities 2019: $2,515,167Net Assets 2019: -$514,4382019Assets 2020: $2,579,381Liabilities 2020: $2,594,001Net Assets 2020: -$14,6202020Assets 2020: $2,583,051Liabilities 2020: $2,597,587Net Assets 2020: -$14,5362020Assets 2021: $1,558,325Liabilities 2021: $2,131,278Net Assets 2021: -$572,9532021Assets 2022: $1,177,668Liabilities 2022: $1,595,143Net Assets 2022: -$417,4752022Assets 2023: $1,661,605Liabilities 2023: $2,290,954Net Assets 2023: -$629,3492023Assets 2024: $1,748,266Liabilities 2024: $2,810,948Net Assets 2024: -$1,062,6822024

Highlighted filing

2020

Assets$2,579,381
Liabilities$2,594,001
Net Assets-$14,620
Open 2020 Filing

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $5,087,2502011Expenses 2012: $4,943,6702012Expenses 2013: $2,515,7112013Revenue 2014: $1,925,701Expenses 2014: $2,014,180Net Income 2014: -$88,4792014Revenue 2015: $2,951,504Expenses 2015: $2,974,443Net Income 2015: -$22,9392015Revenue 2016: $2,362,369Expenses 2016: $2,508,621Net Income 2016: -$146,2522016Revenue 2017: $5,513,484Expenses 2017: $5,325,775Net Income 2017: $187,7092017Revenue 2018: $4,107,224Expenses 2018: $4,180,948Net Income 2018: -$73,7242018Revenue 2019: $3,840,925Expenses 2019: $4,609,038Net Income 2019: -$768,1132019Revenue 2020: $4,308,671Expenses 2020: $3,808,853Net Income 2020: $499,8182020Revenue 2020: $4,308,751Expenses 2020: $3,808,849Net Income 2020: $499,9022020Revenue 2021: $2,611,375Expenses 2021: $3,172,033Net Income 2021: -$560,6582021Revenue 2022: $3,596,233Expenses 2022: $3,498,948Net Income 2022: $97,2852022Revenue 2023: $3,776,913Expenses 2023: $4,483,713Net Income 2023: -$706,8002023Revenue 2024: $2,979,518Expenses 2024: $3,412,851Net Income 2024: -$433,3332024

Highlighted filing

2020

Revenue$4,308,671
Expenses$3,808,853
Net Income$499,818
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Aug 1, 2019 to Jul 31, 2020
Signed
Jun 15, 2021
Return Version
2019v5.2
Gross Receipts
$4,974,612
Mission and Program Overview

Mission

To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.

Working towards an understanding and treatments for amyotrophic lateral sclerosis.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,100,625$1,529,689▲ $429,064
Savings and Temporary Cash Investments$730,804$763,281▲ $32,477
Pledges and Grants Receivable$56,938$143,751▲ $86,813
Prepaid Expenses and Deferred Charges$97,664$129,490▲ $31,826
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$2,000,729$2,579,381▲ $578,652
Other Assets Total$14,698$13,170▼ $1,528
Liabilities
Grants Payable$2,218,169$2,101,883▼ $116,286
Accounts Payable and Accrued Expenses$36,998$202,343▲ $165,345
Deferred Revenue$260,000$182,500▼ $77,500
Other Liabilities$0$107,275▲ $107,275
Total Liabilities$2,515,167$2,594,001▲ $78,834
Net Assets / Fund Balance
Net Assets With Donor Restrictions$67,322$408,697▲ $341,375
Net Assets Without Donor Restrictions$-581,760$-423,317▲ $158,443
Total Net Assets Fund Balance$-514,438$-14,620▲ $499,818
Total Liabilities and Net Assets / Fund Balance$2,000,729$2,579,381▲ $578,652

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$429,311$429,311
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Valerie EstessVice PresidentFT$173,526$23,228$196,754
Meredith Estess HulbertPresidentFT$173,526$17,840$191,366
Erin FlemmingDirector of Research - CoreFT$150,000$13,458$163,458

Board Members and Trustees

NameTitle
Debbie WilponCo-chair
Robert S KaplanCo-chair
Adam BrennemanDirector
Aimee DavidDirector
Arthur FrasierDirector
Bonnie VerbitskyDirector
Chad CascarillaDirector
Christine TaylorDirector
Daniel KellisonDirector
Darci CarltonDirector
David L JaffeDirector
Debra WassermanDirector
F Jonathan DracosDirector
Gena Fajgenbaum CombsDirector
Jack MerrillDirector
Lawrence TaricaDirector
Lori Hirshliefer SillsDirector
Marcie FleckDirector
Martha MccullyDirector
Michael BermanDirector
Nancy JareckiDirector
Peter J HulbertDirector
Regina Kulik ScullyDirector
Rob BurnettDirector
Rob MorrowDirector
Simon HallsDirector
Stacey GriffithDirector
Staci KirchhoffDirector
Sue LeibmanDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$4,399,544
Program Service Revenue
$0
Investment Income
$1,645
Other Revenue
$-92,518
All Other Contributions
$2,550,586
Change in Net Assets
$499,818

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded7$86,086Fair Market Value (FMV)
Total Noncash Contributions7$86,086-

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,308,671
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$92,518
Total Revenue per Audited Statements
$4,401,189
Total Revenue per Form 990
$4,308,671
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,616,764
Other Expenses$1,369,066
Salaries, Compensation, and Employee Benefits$823,023
Total Fundraising Expense$113,503
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,616,764--$1,616,764
Current Officers, Directors, Trustees, and Key Employees$293,260$29,500$24,294$347,054
Other Salaries and Wages$215,566$120,487$10,815$346,868
Fees for Services Other$176,704$8,667$52,727$238,098
Other Employee Benefits$59,647$17,582$4,116$81,345
All Other Expenses$25,943$20,579$10,662$57,184
Occupancy$35,840$10,564$2,473$48,877
Payroll Taxes$35,018$10,322$2,416$47,756
Conferences and Meetings$44,866$1,223$1,223$47,312
Office Expenses$33,880$9,987$2,338$46,205
Fees for Services Accounting-$37,786-$37,786
Fees for Services Legal$28,950$1,050-$30,000
Other Expenses$16,033$325$664$17,022
Total Functional Expenses$3,422,260$273,090$113,503$3,808,853

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$3,901,371
Expenses per Audited Statements$3,808,853
Total Expenses per Form 990$3,808,853
Expenses Not Reported on Form 990$92,518
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Columbia UniversityNew York, NY501(c)(3)Medical Research$1,111,056
University of California at San FranciscoSan Francisco, CA501(c)(3)Medical Research$400,000
New York UniversityNew York, NY501(c)(3)Medical Research$105,708
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$579,855
Fundraising Gross Income$487,337
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
22nd Annual Gala$1,141,226$262,398$103,931$158,467
Hope Gala$824,153$214,804$61,390$153,414
Total Events$2,336,295$487,337$579,855$-92,518
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Paycheck Protection Program Loan Payable$107,275
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Meredith estess hulbert, president and valerie estess, vice president are sisters and compensated as employees. Meredith estess hulbert, president, and peter j. Hulbert, director are married.”

Form 990, Part VI, Section B, Line 11B

“The president and controller review the form 990 for reasonableness by comparing the data on the form 990 to the audited financial statements and the information provided to the tax preparer. The final form 990 is provided to all members of the governing body prior to filing with the irs.”

Form 990, Part VI, Section B, Line 12C

“The organization's conflict of interest policy covers all interested persons which consists of the board of directors, officers, chief employed executive, and chief employed finance executive. Interested persons are required to disclose annually any interests that may be a potential conflict of interest to the chairman of the board of directors who will review and determine any necessary further actions. Any interested person shall recuse oneself from participating and voting in deliberations and discussions to the related transaction.”

Form 990, Part VI, Section B, Line 15

“The compensation of the president and director of research is reviewed and approved annually by the independent board's executive committee through the use of comparable data of similarly situated organizations. The process is documented contemporaneously.”

Form 990, Part VI, Section C, Line 19

“The organization makes its form 990 and audited financial statements available on its website and other media such as guidestar. The governing documents and conflict of interest policy are available upon request.”

Filing and Contact Details

Filer

Filer Name
Project Als Inc
EIN
13-4019464
Phone
2124207382
Address
4330 CAMP KAUFMANN ROAD, HUNTINGTOWN, MD 20639

Signing Officer

Name
Meredith Estess
Title
President
Phone
2124207382
Signed
2021-06-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meredith Estess
Formed
1998
Legal Domicile
Ny
Voting Board Members
31
Independent Board Members
28
Employees
8
Volunteers
5

Preparer

Firm
Citrin Cooperman & Co Llp
Address
529 FIFTH AVENUE, NEW YORK, NY 10017-4683
Preparer
Joseph J Barreca
Phone
2126971000
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C:

“The organization did not change its oversight process or selection process during the tax year.”

Financial Statement Notes

PART X, LINE 2:

“The organization is a not-for-profit organization and has been recognized by the internal revenue service ("irs") as exempt from federal income taxes under internal revenue code ("irc") section 501(a) as described in irc section 501(c)(3). Accordingly, no provision for income taxes has been made in the accompanying financial statements. The organization is annually required to file a return of organization exempt from income tax (form 990) with the irs. In addition, the entity is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. The organization has determined that it is not subject to unrelated business income tax. The organization recognizes and measures its unrecognized tax benefits in accordance with financial accounting standards board accounting standards codification ("fasb asc") 740, income taxes. Under that guidance, the organization assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances and information available at the end of each period. The measurement of unrecognized tax benefits is adjusted when new information is available or when an event occurs that requires a change. Management has evaluated the organization's tax positions and has concluded that the organization has taken no uncertain tax positions that require adjustment to the financial statements.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Special event costs 92,518.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Special event costs 92,518.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm11ARTHUR FRASIER
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IRS990/Form990PartVIISectionAGrp/PersonNm16NANCY JARECKI
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IRS990/Form990PartVIISectionAGrp/PersonNm19STACI KIRCHHOFF
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IRS990/Form990PartVIISectionAGrp/PersonNm22JACK MERRILL
IRS990/Form990PartVIISectionAGrp/PersonNm23ROB MORROW
IRS990/Form990PartVIISectionAGrp/PersonNm24REGINA KULIK SCULLY
IRS990/Form990PartVIISectionAGrp/PersonNm25LORI HIRSHLIEFER SILLS
IRS990/Form990PartVIISectionAGrp/PersonNm26LAWRENCE TARICA
IRS990/Form990PartVIISectionAGrp/PersonNm27CHRISTINE TAYLOR
IRS990/Form990PartVIISectionAGrp/PersonNm28DEBBIE WILPON
IRS990/Form990PartVIISectionAGrp/PersonNm29DEBRA WASSERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm30BONNIE VERBITSKY
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt300
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt270
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt280
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt290
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt300
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt310
IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17CO-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt27DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt28CO-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt29DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt30DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt31DIRECTOR OF RESEARCH - CORE
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01998
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt01848958
IRS990/FundraisingDirectExpensesAmt0579855
IRS990/FundraisingGrossIncomeAmt0487337
IRS990/GainOrLossGrp/SecuritiesAmt0-976
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt031
IRS990/GrantAmt01616764
IRS990/GrantsPayableGrp/BOYAmt02218169
IRS990/GrantsPayableGrp/EOYAmt02101883
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IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
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IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt059647

Document Assets

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Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,579,381
Liabilities
$2,594,001
Net assets
-$14,620
Revenue
$4,308,671
Expenses
$3,808,853
Net income
$499,818
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.75$2.81$1.06$2.98$3.41$0.43
2023Summary only. Only limited summary data is available for this year.$1.66$2.29$0.63$3.78$4.48$0.71
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$1.60$0.42$3.60$3.50$0.10
2021Summary only. Only limited summary data is available for this year.$1.56$2.13$0.57$2.61$3.17$0.56
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.58$2.60$0.01$4.31$3.81$0.50
2020Detailed filing. Detailed filing data is available for this year.$2.58$2.59$0.01$4.31$3.81$0.50
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.00$2.52$0.51$3.84$4.61$0.77
2018Summary only. Only limited summary data is available for this year.$3.86$3.61$0.25$4.11$4.18$0.07
2017Summary only. Only limited summary data is available for this year.$4.28$3.97$0.31$5.51$5.33$0.19
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.49$2.37$0.11$2.36$2.51$0.15
2015Detailed filing. Detailed filing data is available for this year.$3.23$2.93$0.30$2.95$2.97$0.02
2014Detailed filing. Detailed filing data is available for this year.$2.27$1.94$0.33$1.93$2.01$0.09
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.56$2.14$0.42$2.52
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.07$2.15$0.92$4.94
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.73$2.11$0.62$5.09