Civic Intelligence

Project a L Sinc

990 • Fiscal year 2014 • EIN 13-4019464

Aug 01, 2013 to Jul 31, 2014 • Filed on Mar 04, 2015

801 Riverside Drive 6G10032

(212) 420-7382

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

88th percentile

0.85x

Higher debt load relative to assets than 88% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

84th percentile

1.01x

Higher debt load relative to revenue than 84% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

28th percentile

-4.6%

Higher net margin than 28% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

87th percentile

$168,294

Higher top officer pay than 87% of similar nonprofits.

Top officer pay equals 8.7% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

11th percentile

-11%

Faster asset growth than 11% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2014

Assets

Down

$2,270,964

Down $285,664 (-11%) from 2013

Net Assets

Down

$332,563

Down $88,479 (-21%) from 2013

Liabilities

Down

$1,938,401

Down $197,185 (-9.2%) from 2013

Revenue

$1,925,701

No earlier filing loaded for comparison.

Expenses

Down

$2,014,180

Down $501,531 (-20%) from 2013

Net Income

-$88,479

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0-$2.0MAssets 2011: $2,731,589Liabilities 2011: $2,112,095Net Assets 2011: $619,4942011Assets 2012: $3,065,094Liabilities 2012: $2,149,036Net Assets 2012: $916,0582012Assets 2013: $2,556,628Liabilities 2013: $2,135,586Net Assets 2013: $421,0422013Assets 2014: $2,270,964Liabilities 2014: $1,938,401Net Assets 2014: $332,5632014Assets 2015: $3,230,058Liabilities 2015: $2,927,335Net Assets 2015: $302,7232015Assets 2016: $2,486,877Liabilities 2016: $2,374,261Net Assets 2016: $112,6162016Assets 2017: $4,278,481Liabilities 2017: $3,965,613Net Assets 2017: $312,8682017Assets 2018: $3,858,975Liabilities 2018: $3,605,300Net Assets 2018: $253,6752018Assets 2019: $2,000,729Liabilities 2019: $2,515,167Net Assets 2019: -$514,4382019Assets 2020: $2,583,051Liabilities 2020: $2,597,587Net Assets 2020: -$14,5362020Assets 2021: $1,558,325Liabilities 2021: $2,131,278Net Assets 2021: -$572,9532021Assets 2022: $1,177,668Liabilities 2022: $1,595,143Net Assets 2022: -$417,4752022Assets 2023: $1,661,605Liabilities 2023: $2,290,954Net Assets 2023: -$629,3492023Assets 2024: $1,748,266Liabilities 2024: $2,810,948Net Assets 2024: -$1,062,6822024

Highlighted filing

2014

Assets$2,270,964
Liabilities$1,938,401
Net Assets$332,563

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2011: $5,087,2502011Expenses 2012: $4,943,6702012Expenses 2013: $2,515,7112013Revenue 2014: $1,925,701Expenses 2014: $2,014,180Net Income 2014: -$88,4792014Revenue 2015: $2,951,504Expenses 2015: $2,974,443Net Income 2015: -$22,9392015Revenue 2016: $2,362,369Expenses 2016: $2,508,621Net Income 2016: -$146,2522016Revenue 2017: $5,513,484Expenses 2017: $5,325,775Net Income 2017: $187,7092017Revenue 2018: $4,107,224Expenses 2018: $4,180,948Net Income 2018: -$73,7242018Revenue 2019: $3,840,925Expenses 2019: $4,609,038Net Income 2019: -$768,1132019Revenue 2020: $4,308,751Expenses 2020: $3,808,849Net Income 2020: $499,9022020Revenue 2021: $2,611,375Expenses 2021: $3,172,033Net Income 2021: -$560,6582021Revenue 2022: $3,596,233Expenses 2022: $3,498,948Net Income 2022: $97,2852022Revenue 2023: $3,776,913Expenses 2023: $4,483,713Net Income 2023: -$706,8002023Revenue 2024: $2,979,518Expenses 2024: $3,412,851Net Income 2024: -$433,3332024

Highlighted filing

2014

Revenue$1,925,701
Expenses$2,014,180
Net Income-$88,479
Jump To
Filing Snapshot
Filing Period
Aug 1, 2013 to Jul 31, 2014
Signed
Mar 4, 2015
Return Version
2013v4.0
Gross Receipts
$2,334,460
Mission and Program Overview

Mission

To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.

Working towards an understanding and treatments for amyotrophic lateral sclerosis

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,479,964$1,296,791▼ $183,173
Savings and Temporary Cash Investments$903,151$787,819▼ $115,332
Prepaid Expenses and Deferred Charges$38,439$95,277▲ $56,838
Pledges and Grants Receivable$14,136$75,247▲ $61,111
Land, Buildings, and Equipment, Net$105,996$888▼ $105,108
Total Assets$2,556,628$2,270,964▼ $285,664
Other Assets Total$14,942$14,942→ $0
Liabilities
Grants Payable$1,871,008$1,680,925▼ $190,083
Accounts Payable and Accrued Expenses$264,578$257,476▼ $7,102
Total Liabilities$2,135,586$1,938,401▼ $197,185
Net Assets / Fund Balance
Unrestricted Net Assets$270,986$264,733▼ $6,253
Temporarily Rstr Net Assets$150,056$67,830▼ $82,226
Total Net Assets Fund Balance$421,042$332,563▼ $88,479
Total Liabilities and Net Assets / Fund Balance$2,556,628$2,270,964▼ $285,664

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$888$428,423$429,311
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Valerie EstessVice PresidentFT$157,300$10,994$168,294
Meredith EstessPresidentFT$157,300-$157,300

Board Members and Trustees

NameTitle
Robert S KaplanChairman
Debbie WilponCo-chairman
F Jonathan DracosCo-chairman
Ashley McdermottDirector
Bonnie VerbitskyDirector
Brad GreyDirector
Chad CascarillaDirector
Christine TaylorDirector
Daniel KellisonDirector
Darci DematteoDirector
David L JaffeDirector
Harriet AbramsonDirector
Jack MerrillDirector
Lawrence TaricaDirector
Martha MccullyDirector
Michael BermanDirector
Nancy JareckiDirector
Peter HulbertDirector
Regina Kulik ScullyDirector
Rob BurnettDirector
Rob MorrowDirector
Simon HallsDirector
Stephanie GeorgeDirector
Sue LeibmanDirector
Tom KirchhoffDirector
Diane MaxDirector-rotated Off 7/14
Revenue and Support

Revenue Composition

Contributions and Grants
$1,675,880
Program Service Revenue
$0
Investment Income
$145
Other Revenue
$249,676
All Other Contributions
$431,628
Change in Net Assets
$-88,479

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,923,081
Revenue Not Reported on Financial Statements
$2,620
Revenue Not Reported on Form 990
$53,401
Other Revenue Adjustments
$2,620
Total Revenue per Audited Statements
$1,976,482
Total Revenue per Form 990
$1,925,701
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$986,667
Salaries, Compensation, and Employee Benefits$510,162
Other Expenses$477,351
Total Fundraising Expense$190,570
Professional Fundraising Fees$40,000

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$986,667--$986,667
Current Officers, Directors, Trustees, and Key Employees$244,602$25,954$44,044$314,600
Other Salaries and Wages$56,805$65,671$8,639$131,115
Fees for Services Other$42,050$200$28,750$71,000
Office Expenses$37,175$9,760$7,372$54,307
Occupancy$30,620$9,309$5,352$45,281
Information Technology$34,578-$6,102$40,680
Fees for Services Professional Fundraising--$40,000$40,000
Fees for Services Accounting-$37,241-$37,241
Other Employee Benefits$22,165$6,738$3,875$32,778
Payroll Taxes$21,416$6,510$3,743$31,669
Travel$28,818$758$758$30,334
Conferences and Meetings$18,120-$465$18,585
Fees for Services Legal$12,844$4,281-$17,125
Insurance$4,807$1,461$840$7,108
All Other Expenses-$2,502$2,620$5,122
Other Expenses$249$137$2,750$3,136
Depreciation Depletion$297$90$52$439
Total Functional Expenses$1,652,998$170,612$190,570$2,014,180

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,064,961
Total Expenses per Form 990$2,014,180
Expenses per Audited Statements$2,011,560
Expenses Not Reported on Form 990$53,401
Expenses Not Reported on Financial Statements$2,620
Other Expense Adjustments$2,620
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
13-5589093-501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$330,900
13-5562308-501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$112,000
04-2103580-501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$100,000
04-2774441-501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$100,000
04-3167352-501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$100,000
13-1924236-501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$94,300
14-1989159-501(c)(3)Research to Find Cure for Amyotrophic Lateral Sclerosis$44,798
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$408,759
Fundraising Gross Income$355,358
Professional Fundraising Fees$40,000

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 2$296,934$167,318$3,384$163,934
Event 1$851,075$134,075$57,034$77,041
Total Events$1,599,610$355,358$408,759$-53,401
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Meredith estess, president, and valerie estess, director, have a family relationship. Meredith estess, president, and peter hulbert, director, have a family relationship. Valerie estess, director, and scott robbins, former director, have a family relationship.

Form 990, Part VI, Section B, Line 11

The president and the controller review the 990 for reasonableness by comparing the data on the return to the audited financial statements, and information provided to the tax preparer. The final form 990 is provided to all members of the governing body prior to filing with the irs.

Form 990, Part VI, Section B, Line 12C

The organization's conflict of interest policy covers all interested persons which consists of the board of directors, officers, chief employed executive, and chief employed finance executive. Interested persons are required to disclose annually any interests that may be a potential conflict of interest to the chairman of the board of directors who will review and determine any necessary further actions. Any interested person shall recuse oneself from participating and voting in deliberations and discussions to the related transaction.

Form 990, Part VI, Section B, Line 15

The compensation of the president and director of research is reviewed and approved annually by the independent board's executive committee through the use of comparable data of similarly situated organizations. The process is documented contemporaneously.

Form 990, Part VI, Section C, Line 19

The organization makes its form 990 and audited financial statements available on its website and other media such as guidestar. The governing documents and conflict of interest policy are available upon request.

Filing and Contact Details

Filer

EIN
13-4019464
Phone
2124207382

Signing Officer

Name
Meredith Estess
Title
President
Phone
2124207382
Signed
2015-03-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Meredith Estess
Formed
1998
Legal Domicile
Ny
Voting Board Members
27
Independent Board Members
25
Employees
7
Volunteers
25

Preparer

Preparer
Paula Vuksic
Phone
2126971000
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

The organization is exempt from federal income taxes under section 501(c)(3) of the internal revenue code and is also exempt from state and local taxes. The organization recognizes and measures its unrecognized tax benefits in accordance with financial accounting standards board ("fasb") accounting standards codification ("asc") 740, income taxes. Under that guidance, the organization assesses the likelihood, based on their technical merit, that tax positions will be sustained upon examination based on the facts, circumstances and information available at the end of each period. The measurement of unrecognized tax benefits is adjusted when new information is available, or when an event occurs that requires a change. Management has evaluated the organization's tax positions and has concluded that the organization has taken no uncertain tax positions that require adjustment to the financial statements. Generally, the organization is no longer subject to u.s. Federal or state income tax examinations by taxing authorities for years before 2010.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Additional direct fundraising costs 53,401.

PART XI, LINE 4B - OTHER ADJUSTMENTS:

Other fundraising costs 2,620.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Additional direct fundraising costs 53,401.

PART XII, LINE 4B - OTHER ADJUSTMENTS:

Other fundraising costs 2,620.

Raw XML AppendixShowing 400 of 767 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/PersonNm3CHAD CASCARILLA
IRS990/Form990PartVIISectionAGrp/PersonNm4CHRISTINE TAYLOR
IRS990/Form990PartVIISectionAGrp/PersonNm5DANIEL KELLISON
IRS990/Form990PartVIISectionAGrp/PersonNm6DARCI DEMATTEO
IRS990/Form990PartVIISectionAGrp/PersonNm7DAVID L JAFFE
IRS990/Form990PartVIISectionAGrp/PersonNm8DEBBIE WILPON
IRS990/Form990PartVIISectionAGrp/PersonNm9DIANE MAX
IRS990/Form990PartVIISectionAGrp/PersonNm10F JONATHAN DRACOS
IRS990/Form990PartVIISectionAGrp/PersonNm11HARRIET ABRAMSON
IRS990/Form990PartVIISectionAGrp/PersonNm12JACK MERRILL
IRS990/Form990PartVIISectionAGrp/PersonNm13LAWRENCE TARICA
IRS990/Form990PartVIISectionAGrp/PersonNm14MARTHA MCCULLY
IRS990/Form990PartVIISectionAGrp/PersonNm15MEREDITH ESTESS
IRS990/Form990PartVIISectionAGrp/PersonNm16MICHAEL BERMAN
IRS990/Form990PartVIISectionAGrp/PersonNm17NANCY JARECKI
IRS990/Form990PartVIISectionAGrp/PersonNm18PETER HULBERT
IRS990/Form990PartVIISectionAGrp/PersonNm19REGINA KULIK SCULLY
IRS990/Form990PartVIISectionAGrp/PersonNm20ROB BURNETT
IRS990/Form990PartVIISectionAGrp/PersonNm21ROB MORROW
IRS990/Form990PartVIISectionAGrp/PersonNm22ROBERT S KAPLAN
IRS990/Form990PartVIISectionAGrp/PersonNm23SIMON HALLS
IRS990/Form990PartVIISectionAGrp/PersonNm24STEPHANIE GEORGE
IRS990/Form990PartVIISectionAGrp/PersonNm25SUE LEIBMAN
IRS990/Form990PartVIISectionAGrp/PersonNm26TOM KIRCHHOFF
IRS990/Form990PartVIISectionAGrp/PersonNm27VALERIE ESTESS
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt15157300
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt27157300
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt150
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt160
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt170
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt180
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt190
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt200
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt210
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt220
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt230
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt240
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt250
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt260
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt270
IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8CO-CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR-ROTATED OFF 7/14
IRS990/Form990PartVIISectionAGrp/TitleTxt10CO-CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt17DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt18DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt19DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt20DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt21DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt22CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt23DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt24DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt25DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt26DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt27VICE PRESIDENT
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01998
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt01244252
IRS990/FundraisingDirectExpensesAmt0408759
IRS990/FundraisingGrossIncomeAmt0355358
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt027
IRS990/GrantAmt0986667
IRS990/GrantsPayableGrp/BOYAmt01871008
IRS990/GrantsPayableGrp/EOYAmt01680925
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0986667
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0986667
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt02334460
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt025
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt06102
IRS990/InformationTechnologyGrp/ProgramServicesAmt034578
IRS990/InformationTechnologyGrp/TotalAmt040680
IRS990/InsuranceGrp/FundraisingAmt0840
IRS990/InsuranceGrp/ManagementAndGeneralAmt01461
IRS990/InsuranceGrp/ProgramServicesAmt04807
IRS990/InsuranceGrp/TotalAmt07108
IRS990/InvestmentIncomeGrp/ExclusionAmt0145
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt0145
IRS990/InvestmentInJointVentureInd00
IRS990/IRPDocumentCnt020
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt0428423
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0105996
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0888
IRS990/LandBldgEquipCostOrOtherBssAmt0429311
IRS990/LegalDomicileStateCd0NY
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO RECRUIT THE WORLD'S BEST RESEARCH SCIENTISTS AND CLINICIANS TO WORK TOGETHER TOWARD AN UNDERSTANDING OF AND THE FIRST EFFECTIVE TREATMENTS FOR ALS (AMYOTROPHIC LATERAL SCLEROSIS) ALSO KNOWN AS LOU GEHRIG'S DISEASE.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0421042
IRS990/NetAssetsOrFundBalancesEOYAmt0332563
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-53401
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-53401
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt05352
IRS990/OccupancyGrp/ManagementAndGeneralAmt09309
IRS990/OccupancyGrp/ProgramServicesAmt030620
IRS990/OccupancyGrp/TotalAmt045281
IRS990/OfficeExpensesGrp/FundraisingAmt07372
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt09760
IRS990/OfficeExpensesGrp/ProgramServicesAmt037175
IRS990/OfficeExpensesGrp/TotalAmt054307
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt014942
IRS990/OtherAssetsTotalGrp/EOYAmt014942
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt03875
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt06738
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt022165
IRS990/OtherEmployeeBenefitsGrp/TotalAmt032778
IRS990/OtherExpensesGrp/Desc0EVENT COSTS
IRS990/OtherExpensesGrp/Desc1NEWSLETTER
IRS990/OtherExpensesGrp/Desc2PROMOTIONS AND GIFTS
IRS990/OtherExpensesGrp/Desc3DUES AND SUBSCRIPTIONS
IRS990/OtherExpensesGrp/FundraisingAmt029896
IRS990/OtherExpensesGrp/FundraisingAmt11239
IRS990/OtherExpensesGrp/FundraisingAmt24073
IRS990/OtherExpensesGrp/FundraisingAmt32750
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0137
IRS990/OtherExpensesGrp/ProgramServicesAmt0104761
IRS990/OtherExpensesGrp/ProgramServicesAmt17024
IRS990/OtherExpensesGrp/ProgramServicesAmt2249
IRS990/OtherExpensesGrp/TotalAmt0134657
IRS990/OtherExpensesGrp/TotalAmt18263
IRS990/OtherExpensesGrp/TotalAmt24073
IRS990/OtherExpensesGrp/TotalAmt33136
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0NEWSLETTER
IRS990/OtherRevenueMiscGrp/ExclusionAmt0303077
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0303077
IRS990/OtherRevenueTotalAmt0303077
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt08639
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt065671
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt056805
IRS990/OtherSalariesAndWagesGrp/TotalAmt0131115
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt03743
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt06510

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.75$2.81$1.06$2.98$3.41$0.43
2023Summary only. Only limited summary data is available for this year.$1.66$2.29$0.63$3.78$4.48$0.71
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$1.60$0.42$3.60$3.50$0.10
2021Summary only. Only limited summary data is available for this year.$1.56$2.13$0.57$2.61$3.17$0.56
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.58$2.60$0.01$4.31$3.81$0.50
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.00$2.52$0.51$3.84$4.61$0.77
2018Summary only. Only limited summary data is available for this year.$3.86$3.61$0.25$4.11$4.18$0.07
2017Summary only. Only limited summary data is available for this year.$4.28$3.97$0.31$5.51$5.33$0.19
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.49$2.37$0.11$2.36$2.51$0.15
2015Detailed filing. Detailed filing data is available for this year.$3.23$2.93$0.30$2.95$2.97$0.02
2014Detailed filing. Detailed filing data is available for this year.$2.27$1.94$0.33$1.93$2.01$0.09
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.56$2.14$0.42$2.52
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.07$2.15$0.92$4.94
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.73$2.11$0.62$5.09