Civic Intelligence

Hae International

990 • Fiscal year 2022 • EIN 83-2498576

Jan 01, 2022 to Dec 31, 2022 • Filed on Oct 15, 2023

Organization ProfileHAEI.org
10560 Main Street STE PS40Fairfax, VA 22030

(866) 798-5598

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

29th percentile

0.01x

Higher debt load relative to assets than 29% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

25th percentile

0.01x

Higher debt load relative to revenue than 25% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

67th percentile

17%

Higher net margin than 67% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

39th percentile

$0

Higher top officer pay than 39% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

78th percentile

22%

Faster asset growth than 78% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

81st percentile

46%

Faster revenue growth than 81% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets29th percentile

Assets

Up

$3,877,605

Up $696,639 (+22%) from 2021

Net Assets

Up

$3,845,805

Up $670,839 (+21%) from 2021

Liabilities

Up

$31,800

Up $25,800 (+430%) from 2021

Revenue And Expenses
Liabilities / Revenue25th percentileNet Margin67th percentile

Revenue

Up

$3,911,197

Up $1,235,087 (+46%) from 2021

Expenses

Up

$3,240,358

Up $1,239,843 (+62%) from 2021

Net Income

Down

$670,839

Down $4,756 (-0.7%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth78th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2019: $1,990,359Liabilities 2019: $15,960Net Assets 2019: $1,974,3992019Assets 2020: $2,505,371Liabilities 2020: $6,000Net Assets 2020: $2,499,3712020Assets 2021: $3,180,966Liabilities 2021: $6,000Net Assets 2021: $3,174,9662021Assets 2022: $3,877,605Liabilities 2022: $31,800Net Assets 2022: $3,845,8052022Assets 2023: $5,191,402Liabilities 2023: $23,000Net Assets 2023: $5,168,4022023Assets 2024: $7,104,376Liabilities 2024: $50,400Net Assets 2024: $7,053,9762024

Highlighted filing

2022

Assets$3,877,605
Liabilities$31,800
Net Assets$3,845,805
Open 2022 Filing

Operations Trend

Revenue Growth81st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0Revenue 2019: $3,036,736Expenses 2019: $2,323,656Net Income 2019: $713,0802019Revenue 2020: $2,242,659Expenses 2020: $1,717,687Net Income 2020: $524,9722020Revenue 2021: $2,676,110Expenses 2021: $2,000,515Net Income 2021: $675,5952021Revenue 2022: $3,911,197Expenses 2022: $3,240,358Net Income 2022: $670,8392022Revenue 2023: $6,004,421Expenses 2023: $4,681,824Net Income 2023: $1,322,5972023Revenue 2024: $6,614,500Expenses 2024: $4,728,926Net Income 2024: $1,885,5742024

Highlighted filing

2022

Revenue$3,911,197
Expenses$3,240,358
Net Income$670,839
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Oct 15, 2023
Return Version
2022v5.0
Gross Receipts
$3,911,197
Mission and Program Overview

Mission

A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$3,180,966$3,877,605▲ $696,639
Total Assets$3,180,966$3,877,605▲ $696,639
Liabilities
Accounts Payable and Accrued Expenses$6,000$31,800▲ $25,800
Total Liabilities$6,000$31,800▲ $25,800
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$3,174,966$3,845,805▲ $670,839
Total Net Assets Fund Balance$3,174,966$3,845,805▲ $670,839
Total Liabilities and Net Assets / Fund Balance$3,180,966$3,877,605▲ $696,639
Compensation and Service Providers
Top Officer Pay39th percentile

Board Members and Trustees

NameTitle
Anthony J CastaldoPresident
Michal RutkowskiVice President
Beverley YamamotoDirector
Jorn Schultz-BoysenDirector
Natasha Jovanovska PopovskaDirector
Rachel AnnalsDirector
Sarah Smith FoltzDirector
Finoa Nancy WardmanTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$3,888,538
Program Service Revenue
$0
Investment Income
$22,659
Other Revenue
$0
All Other Contributions
$3,888,538
Change in Net Assets
$670,839
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$3,240,358
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$1,019,127--$1,019,127
Information Technology$271,903$14,193-$286,096
All Other Expenses$228,124$1,252-$229,376
Travel$31,474$7,869-$39,343
Other Expenses$32,534$3,615-$36,149
Office Expenses$7,269$1,817-$9,086
Fees for Services Legal$5,667$2,429-$8,096
Total Functional Expenses$3,209,183$31,175$0$3,240,358
International Activity

International Summary

Offices
1
Spending
$3,209,183

International Compliance

Foreign grant records maintained
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe including Iceland and GreenlandProgram servicesAdvocacy Education1-$802,296
East Asia and the PacificProgram servicesAdvocacy Education--$641,837
South AmericaProgram servicesAdvocacy Education--$481,378
Central America and the CaribbeanProgram servicesAdvocacy Education--$320,918
South AsiaProgram servicesAdvocacy Education--$320,918
Middle East and North AfricaProgram servicesAdvocacy Education--$320,918
Sub-Saharan AfricaProgram servicesAdvocacy Education--$320,918
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Fiona WardmanDirector HAEI SienterIdentify HAE patients local health coordinatNo$217,880
Anthony J CastaldoDirector HAEI RDAG LLCManage research activitiesNo$90,000
Michael RutkowskiDirector HAEI AEE ServicesIdentify HAE patients local health coordinatNo$73,816
Rachel AnnalsDirector HAEI VezarIdentify HAE patients local health coordinatNo$28,170
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Members of the Board of Directors or their companies who have training and expertise consistent with the operational needs of the Organization may be considered for contracting after thoughtful and thorough review in relation to other companies. The Board of Directors considers the importance of a thorough understanding of Hereditary Angioedema when evaluating proposals for approval. Disclosure and approval of related party relationships by the Board of Directors is required in all instances.”

Form 990 governing body review Part VI line 11

“The Board of Directors of the Organization is provided a copy of the U.S. Federal Form 990 for review in advance of the filing of the tax return.”

Conflict of interest policy compliance Part VI line 12C

“The Board of Directors provide self-declaration of possible conflicts of interest as part of the annual meeting responsibilities. Potential conflicts identified are reviewed and approved if appropriate as part of the Board of Directors routine responsibilities.”

CEO executive director top management comp Part VI line 15A

“The President and Chair of the Board of Directors provides guidance and directive at no expense to the Organization.”

Governing documents etc available to public Part VI line 19

“The Organization makes all federal filings and governing documents available upon formal request. Various companies make these filings available to the general public.”

Filing and Contact Details

Filer

Filer Name
HAE International
EIN
83-2498576
Address
10560 Main Street STE PS40, Fairfax, VA 22030

Signing Officer

Name
Anthony J Castaldo
Title
President
Phone
8667985598
Signed
2023-10-15
Discuss with paid preparer
Yes

Organization Details

Formed
2018
Legal Domicile
Va
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
20

Preparer

Firm
Allan Smith and Company CPAs PC
Address
Two Cabot Place Suite 8, Stoughton, MA 02072
Preparer
Allan Smith CPA
Phone
7742065553
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IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt5481378
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt6320918
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0Europe including Iceland and Greenland
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1East Asia and the Pacific
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt2Central America and the Caribbean
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt3South Asia
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt4Middle East and North Africa
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt5South America
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt6Sub-Saharan Africa
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt1Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt2Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt3Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt4Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt5Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt6Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt2Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt3Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt4Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt5Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt6Program services
IRS990ScheduleF/GrantRecordsMaintainedInd0true
IRS990ScheduleF/SubtotalOfficesCnt01
IRS990ScheduleF/SubtotalSpentAmt03209183
IRS990ScheduleF/TotalOfficeCnt01
IRS990ScheduleF/TotalSpentAmt03209183
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm0Fiona Wardman
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm1Michael Rutkowski
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm2Anthony J Castaldo
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm3Rachel Annals
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0Director HAEI Sienter
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt1Director HAEI AEE Services
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt2Director HAEI RDAG LLC
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt3Director HAEI Vezar
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd1false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd2false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd3false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt0217880
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt173816
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt290000
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt328170
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0Identify HAE patients local health coordinat
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc1Identify HAE patients local health coordinat
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc2Manage research activities
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc3Identify HAE patients local health coordinat
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Members of the Board of Directors or their companies who have training and expertise consistent with the operational needs of the Organization may be considered for contracting after thoughtful and thorough review in relation to other companies. The Board of Directors considers the importance of a thorough understanding of Hereditary Angioedema when evaluating proposals for approval. Disclosure and approval of related party relationships by the Board of Directors is required in all instances.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The Board of Directors of the Organization is provided a copy of the U.S. Federal Form 990 for review in advance of the filing of the tax return.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The Board of Directors provide self-declaration of possible conflicts of interest as part of the annual meeting responsibilities. Potential conflicts identified are reviewed and approved if appropriate as part of the Board of Directors routine responsibilities.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The President and Chair of the Board of Directors provides guidance and directive at no expense to the Organization.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4The Organization makes all federal filings and governing documents available upon formal request. Various companies make these filings available to the general public.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Officer directors etc family relationship Part VI line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3CEO executive director top management comp Part VI line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Governing documents etc available to public Part VI line 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0VA
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt03180966
IRS990/TotalAssetsEOYAmt03877605
IRS990/TotalAssetsGrp/BOYAmt03180966
IRS990/TotalAssetsGrp/EOYAmt03877605
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt03888538
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt031175
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt03209183
IRS990/TotalFunctionalExpensesGrp/TotalAmt03240358
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt06000
IRS990/TotalLiabilitiesEOYAmt031800
IRS990/TotalLiabilitiesGrp/BOYAmt06000
IRS990/TotalLiabilitiesGrp/EOYAmt031800
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt03174966
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt03845805
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt03209183
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt022659
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt03911197
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt020
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt03180966
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt03877605
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TransactionWithControlEntInd0false
IRS990/TravelGrp/ManagementAndGeneralAmt07869
IRS990/TravelGrp/ProgramServicesAmt031474
IRS990/TravelGrp/TotalAmt039343
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt08
IRS990/WebsiteAddressTxt0HAEI.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL2
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/OOBSecurityVerificationCd000
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd00
ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Anthony J Castaldo
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/PhoneNum08667985598
ReturnHeader/BusinessOfficerGrp/SignatureDt02023-10-15
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0HAE International
ReturnHeader/Filer/BusinessNameControlTxt0HAEI
ReturnHeader/Filer/EIN0832498576
ReturnHeader/Filer/USAddress/AddressLine1Txt010560 Main Street STE PS40
ReturnHeader/Filer/USAddress/CityNm0Fairfax
ReturnHeader/Filer/USAddress/StateAbbreviationCd0VA
ReturnHeader/Filer/USAddress/ZIPCd022030
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Allan Smith and Company CPAs PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0Two Cabot Place Suite 8
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Stoughton
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MA

Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,877,605
Liabilities
$31,800
Net assets
$3,845,805
Revenue
$3,911,197
Expenses
$3,240,358
Net income
$670,839
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$7.10$0.05$7.05$6.61$4.73$1.89
2023Detailed filing. Detailed filing data is available for this year.$5.19$0.02$5.17$6.00$4.68$1.32
2022Detailed filing. Detailed filing data is available for this year.$3.88$0.03$3.85$3.91$3.24$0.67
2021Detailed filing. Detailed filing data is available for this year.$3.18$0.01$3.17$2.68$2.00$0.68
2020Detailed filing. Detailed filing data is available for this year.$2.51$0.01$2.50$2.24$1.72$0.52
2019Detailed filing. Detailed filing data is available for this year.$1.99$0.02$1.97$3.04$2.32$0.71