Civic Intelligence

Hae International

990 • Fiscal year 2019 • EIN 83-2498576

Jan 01, 2019 to Dec 31, 2019 • Filed on Oct 18, 2020

Organization ProfileHAEI.org
10560 Main Street STE PS40Fairfax, VA 22030

(866) 798-5598

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

26th percentile

0.01x

Higher debt load relative to assets than 26% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Liabilities / Revenue

20th percentile

0.01x

Higher debt load relative to revenue than 20% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Net Margin

80th percentile

23%

Higher net margin than 80% of similar nonprofits.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Top Officer Pay

36th percentile

$0

Higher top officer pay than 36% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2019 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2019

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2019

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2019

Balance Sheet
Liabilities / Assets26th percentile

Assets

$1,990,359

No earlier filing loaded for comparison.

Net Assets

$1,974,399

No earlier filing loaded for comparison.

Liabilities

$15,960

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / Revenue20th percentileNet Margin80th percentile

Revenue

$3,036,736

No earlier filing loaded for comparison.

Expenses

$2,323,656

No earlier filing loaded for comparison.

Net Income

$713,080

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset GrowthScore unavailable

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$8.0M$6.0M$4.0M$2.0M$0Assets 2019: $1,990,359Liabilities 2019: $15,960Net Assets 2019: $1,974,3992019Assets 2020: $2,505,371Liabilities 2020: $6,000Net Assets 2020: $2,499,3712020Assets 2021: $3,180,966Liabilities 2021: $6,000Net Assets 2021: $3,174,9662021Assets 2022: $3,877,605Liabilities 2022: $31,800Net Assets 2022: $3,845,8052022Assets 2023: $5,191,402Liabilities 2023: $23,000Net Assets 2023: $5,168,4022023Assets 2024: $7,104,376Liabilities 2024: $50,400Net Assets 2024: $7,053,9762024

Highlighted filing

2019

Assets$1,990,359
Liabilities$15,960
Net Assets$1,974,399
Open 2019 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0Revenue 2019: $3,036,736Expenses 2019: $2,323,656Net Income 2019: $713,0802019Revenue 2020: $2,242,659Expenses 2020: $1,717,687Net Income 2020: $524,9722020Revenue 2021: $2,676,110Expenses 2021: $2,000,515Net Income 2021: $675,5952021Revenue 2022: $3,911,197Expenses 2022: $3,240,358Net Income 2022: $670,8392022Revenue 2023: $6,004,421Expenses 2023: $4,681,824Net Income 2023: $1,322,5972023Revenue 2024: $6,614,500Expenses 2024: $4,728,926Net Income 2024: $1,885,5742024

Highlighted filing

2019

Revenue$3,036,736
Expenses$2,323,656
Net Income$713,080
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Oct 18, 2020
Return Version
2019v5.1
Gross Receipts
$3,036,736
Mission and Program Overview

Mission

A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies for individuals

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,261,319$1,971,824▲ $710,505
Prepaid Expenses and Deferred Charges-$18,535-
Total Assets$1,261,319$1,990,359▲ $729,040
Liabilities
Accounts Payable and Accrued Expenses-$15,960-
Total Liabilities$0$15,960▲ $15,960
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,261,319$1,974,399▲ $713,080
Total Net Assets Fund Balance$1,261,319$1,974,399▲ $713,080
Total Liabilities and Net Assets / Fund Balance$1,261,319$1,990,359▲ $729,040
Compensation and Service Providers
Top Officer Pay36th percentile

Board Members and Trustees

NameTitle
Anthony CastaldoPresident & Chief Executive O
Michael RutkowskiVice President
Beverly YamomotoDirector
Jorn Schultz-BoysenDirector
Natasha Jovanovska PopovskaDirector
Rachel AnnalsDirector
Sarah Smith FoltzDirector
Finoa WardmanTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$2,194,746
Program Service Revenue
$827,741
Investment Income
$14,249
Other Revenue
$0
All Other Contributions
$2,194,746
Change in Net Assets
$713,080
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$2,243,656
Grants and Similar Amounts Paid$80,000
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$771,789--$771,789
Other Expenses$233,087$84,621-$233,087
Payment Travel Entrtnmnt Publicly Ofcl$117,201$10,191-$127,392
All Other Expenses$100,287$410-$100,697
Grants to Domestic Orgs$80,000--$80,000
Fees for Services Legal$23,398$4,320-$27,718
Information Technology$9,892$860-$10,752
Fees for Services Accounting-$3,385-$3,385
Fees for Services Other$2,701--$2,701
Total Functional Expenses$2,219,869$103,787$0$2,323,656
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
HAE Global Registry FoundationFairfax, VA501c3Global registry development HAE patients$80,000

International Summary

Offices
1
Spending
$2,219,869

International Compliance

Foreign grant records maintained
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe including Iceland and GreenlandProgram servicesAdvocacy Education1-$554,967
East Asia and the PacificProgram servicesAdvocacy Education--$443,974
South AmericaProgram servicesAdvocacy Education--$332,980
Central America and the CaribbeanProgram servicesAdvocacy Education--$221,987
South AsiaProgram servicesAdvocacy Education--$221,987
Middle East and North AfricaProgram servicesAdvocacy Education--$221,987
Sub-Saharan AfricaProgram servicesAdvocacy Education--$221,987
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Members of the Board of Directors or their companies who have training and expertise consistent with the operational needs of the Organization may be considered for contracting after thoughtful and thorough review in relation to other companies. The Board of Directors considers the importance of a thorough understanding of Hereditary Angioedema when evaluating proposals for approval. Disclosure and approval of related party relationships by the Board of Directors is required in all instances.”

Form 990 governing body review Part VI line 11

“The Board of Directors of the Organization is provided a copy of the U.S. Federal Form 990 for review in advance of the filing of the tax return.”

Conflict of interest policy compliance Part VI line 12C

“The Board of Directors provide self-declaration of possible conflicts of interest as part of the annual meeting responsibilities. Potential conflicts identified are reviewed and approved if appropriate as part of the Board of Directors routine responsibilities.”

CEO executive director top management comp Part VI line 15A

“The President and CEO provides guidance and directive at no expense to the Organization.”

Governing documents etc available to public Part VI line 19

“The Organization makes all federal filings and governing documents available upon formal request. Various companies make these filings available to the general public.”

Filing and Contact Details

Filer

Filer Name
HAE International
EIN
83-2498576
Address
10560 Main Street STE PS40, Fairfax, VA 22030

Signing Officer

Name
Anthony Castaldo
Title
President and C
Phone
2022973409
Signed
2020-10-18
Discuss with paid preparer
Yes

Organization Details

Formed
2018
Legal Domicile
Va
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
20

Preparer

Firm
Allan Smith and Company CPAs PC
Address
2 Cabot Place Ste 8, Stoughton, MA 02072
Preparer
Allan Smith CPA
Phone
7742065553
Supplemental Narrative

Additional Explanations

Explanation of other changes in net assets or fund balances Part XI line 9

“Beginning net assets represent the contribution of residual resources from the predecessor organization.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt2Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt3Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt4Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt5Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt6Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt2Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt3Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt4Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt5Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt6Program services
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IRS990ScheduleF/SubtotalOfficesCnt01
IRS990ScheduleF/SubtotalSpentAmt02219869
IRS990ScheduleF/TotalOfficeCnt01
IRS990ScheduleF/TotalSpentAmt02219869
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt080000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501c3
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Global registry development HAE patients
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0HAE Global Registry Foundation
IRS990ScheduleI/RecipientTable/RecipientEIN0823878232
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt010560 Main Street STE PS40
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Fairfax
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0VA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd022030
IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc0Cost
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Members of the Board of Directors or their companies who have training and expertise consistent with the operational needs of the Organization may be considered for contracting after thoughtful and thorough review in relation to other companies. The Board of Directors considers the importance of a thorough understanding of Hereditary Angioedema when evaluating proposals for approval. Disclosure and approval of related party relationships by the Board of Directors is required in all instances.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The Board of Directors of the Organization is provided a copy of the U.S. Federal Form 990 for review in advance of the filing of the tax return.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The Board of Directors provide self-declaration of possible conflicts of interest as part of the annual meeting responsibilities. Potential conflicts identified are reviewed and approved if appropriate as part of the Board of Directors routine responsibilities.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The President and CEO provides guidance and directive at no expense to the Organization.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4The Organization makes all federal filings and governing documents available upon formal request. Various companies make these filings available to the general public.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Beginning net assets represent the contribution of residual resources from the predecessor organization.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Officer directors etc family relationship Part VI line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3CEO executive director top management comp Part VI line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Explanation of other changes in net assets or fund balances Part XI line 9
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IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0VA
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxableDistributionsInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt01261319
IRS990/TotalAssetsEOYAmt01990359
IRS990/TotalAssetsGrp/BOYAmt01261319
IRS990/TotalAssetsGrp/EOYAmt01990359
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt02194746
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt0103787
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt02219869
IRS990/TotalFunctionalExpensesGrp/TotalAmt02323656
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt015960
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt015960
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt01261319
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt01974399
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt02219869
IRS990/TotalProgramServiceRevenueAmt0827741
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt014249
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt0827741
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt03036736
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt020
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt01261319
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt01990359
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt08
IRS990/WebsiteAddressTxt0HAEI.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02021-01-29 14:40:06Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Anthony Castaldo
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President and C
ReturnHeader/BusinessOfficerGrp/PhoneNum02022973409
ReturnHeader/BusinessOfficerGrp/SignatureDt02020-10-18
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0HAE International
ReturnHeader/Filer/BusinessNameControlTxt0HAEI
ReturnHeader/Filer/EIN0832498576
ReturnHeader/Filer/USAddress/AddressLine1Txt010560 Main Street STE PS40
ReturnHeader/Filer/USAddress/CityNm0Fairfax
ReturnHeader/Filer/USAddress/StateAbbreviationCd0VA
ReturnHeader/Filer/USAddress/ZIPCd022030
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId0BB12902E42B4BE11A1812A8852DCC4944605ACF7
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId0BB12902E42B4BE11A1812A8852DCC4944605ACF7
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionId004664920202963jsyfbt
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionIdDt02020-10-22
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt073.227.69.216
ReturnHeader/FilingSecurityInformation/IPDt02020-10-22
ReturnHeader/FilingSecurityInformation/IPTm014:19:27
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0810974967
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Allan Smith and Company CPAs PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt02 Cabot Place Ste 8
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Stoughton
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd002072
ReturnHeader/PreparerPersonGrp/PhoneNum07742065553
ReturnHeader/PreparerPersonGrp/PreparationDt02020-10-23
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Allan Smith CPA
ReturnHeader/ReturnTs02020-10-23T14:14:22-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,990,359
Liabilities
$15,960
Net assets
$1,974,399
Revenue
$3,036,736
Expenses
$2,323,656
Net income
$713,080
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$7.10$0.05$7.05$6.61$4.73$1.89
2023Detailed filing. Detailed filing data is available for this year.$5.19$0.02$5.17$6.00$4.68$1.32
2022Detailed filing. Detailed filing data is available for this year.$3.88$0.03$3.85$3.91$3.24$0.67
2021Detailed filing. Detailed filing data is available for this year.$3.18$0.01$3.17$2.68$2.00$0.68
2020Detailed filing. Detailed filing data is available for this year.$2.51$0.01$2.50$2.24$1.72$0.52
2019Detailed filing. Detailed filing data is available for this year.$1.99$0.02$1.97$3.04$2.32$0.71