Civic Intelligence

Hae International

EIN 83-2498576 • 501(c)3 • Fairfax, VA

Profile

A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies.

10560 Main Street STE PS40Fairfax, VA 22030

haei.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

18th percentile

0.01x

Higher debt load relative to assets than 18% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

15th percentile

0.01x

Higher debt load relative to revenue than 15% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

80th percentile

29%

Higher net margin than 80% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

23rd percentile

$0

Higher top officer pay than 23% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Asset Growth

89th percentile

37%

Faster asset growth than 89% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

56th percentile

10%

Faster revenue growth than 56% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2023 to 2024

Assets

Up

$7,104,376

Up $1,912,974 (+37%) from 2023

Liabilities

Up

$50,400

Up $27,400 (+119%) from 2023

Net Assets

Up

$7,053,976

Up $1,885,574 (+36%) from 2023

Revenue

Up

$6,614,500

Up $610,079 (+10%) from 2023

Expenses

Up

$4,728,926

Up $47,102 (+1.0%) from 2023

Net Income

Up

$1,885,574

Up $562,977 (+43%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$8.0M$6.0M$4.0M$2.0M$0Assets 2019: $1,990,359Liabilities 2019: $15,960Net Assets 2019: $1,974,3992019Assets 2020: $2,505,371Liabilities 2020: $6,000Net Assets 2020: $2,499,3712020Assets 2021: $3,180,966Liabilities 2021: $6,000Net Assets 2021: $3,174,9662021Assets 2022: $3,877,605Liabilities 2022: $31,800Net Assets 2022: $3,845,8052022Assets 2023: $5,191,402Liabilities 2023: $23,000Net Assets 2023: $5,168,4022023Assets 2024: $7,104,376Liabilities 2024: $50,400Net Assets 2024: $7,053,9762024

Highlighted filing

2024

Assets$7,104,376
Liabilities$50,400
Net Assets$7,053,976

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$8.0M$6.0M$4.0M$2.0M$0Revenue 2019: $3,036,736Expenses 2019: $2,323,656Net Income 2019: $713,0802019Revenue 2020: $2,242,659Expenses 2020: $1,717,687Net Income 2020: $524,9722020Revenue 2021: $2,676,110Expenses 2021: $2,000,515Net Income 2021: $675,5952021Revenue 2022: $3,911,197Expenses 2022: $3,240,358Net Income 2022: $670,8392022Revenue 2023: $6,004,421Expenses 2023: $4,681,824Net Income 2023: $1,322,5972023Revenue 2024: $6,614,500Expenses 2024: $4,728,926Net Income 2024: $1,885,5742024

Highlighted filing

2024

Revenue$6,614,500
Expenses$4,728,926
Net Income$1,885,574

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Oct 3, 2025
Return Version
2024v5.2
Gross Receipts
$6,614,500
Mission and Program Overview

Mission

A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$5,191,402$7,104,376▲ $1,912,974
Total Assets$5,191,402$7,104,376▲ $1,912,974
Liabilities
Accounts Payable and Accrued Expenses$23,000$50,400▲ $27,400
Total Liabilities$23,000$50,400▲ $27,400
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$5,168,402$7,053,976▲ $1,885,574
Total Net Assets Fund Balance$5,168,402$7,053,976▲ $1,885,574
Total Liabilities and Net Assets / Fund Balance$5,191,402$7,104,376▲ $1,912,974
Compensation and Service Providers

Board Members and Trustees

Revenue and Support

Revenue Composition

Contributions and Grants
$6,358,144
Program Service Revenue
$2,360
Investment Income
$253,996
Other Revenue
$0
All Other Contributions
$6,358,144
Change in Net Assets
$1,885,574
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$4,728,926
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Travel$1,589,146$248,017-$1,837,163
Other Expenses$644,543--$644,543
All Other Expenses$256,760$2,048-$258,808
Conferences and Meetings$167,836--$167,836
Office Expenses$15,804$3,951-$19,755
Information Technology$11,541$1,141-$12,682
Fees for Services Legal$6,429$1,607-$8,036
Insurance$1,391--$1,391
Total Functional Expenses$4,472,162$256,764$0$4,728,926
International Activity

International Summary

Offices
1
Spending
$4,472,162

International Compliance

Foreign grant records maintained
Yes

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe including Iceland and GreenlandProgram servicesAdvocacy Education1-$1,118,041
East Asia and the PacificProgram servicesAdvocacy Education--$894,432
South AmericaProgram servicesAdvocacy Education--$670,825
Central America and the CaribbeanProgram servicesAdvocacy Education--$447,216
South AsiaProgram servicesAdvocacy Education--$447,216
Middle East and North AfricaProgram servicesAdvocacy Education--$447,216
Sub-Saharan AfricaProgram servicesAdvocacy Education--$447,216
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Fiona WardmanDirector HAEI SienterIdentify HAE patients local health coordinatNo$225,381
Michael RutkowskiDirector HAEI AEE ServicesIdentify HAE patients local health coordinatNo$128,403
Anthony J CastaldoDirector HAEI RDAG LLCManage research activitiesNo$120,000
Rachel AnnalsDirector HAEI VezarCoordinator ADCARE and global advocacyNo$101,763
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

Members of the Board of Directors or their companies who have training and expertise consistent with the operational needs of the Organization may be considered for contracting after thoughtful and thorough review in relation to other companies. The Board of Directors considers the importance of a thorough understanding of Hereditary Angioedema when evaluating proposals for approval. Disclosure and approval of related party relationships by the Board of Directors is required in all instances.

Form 990 governing body review Part VI line 11

The Board of Directors of the Organization is provided a copy of the U.S. Federal Form 990 for review in advance of the filing of the tax return.

Conflict of interest policy compliance Part VI line 12C

The Board of Directors provide self-declaration of possible conflicts of interest as part of the annual meeting responsibilities. Potential conflicts identified are reviewed and approved if appropriate as part of the Board of Directors routine responsibilities.

CEO executive director top management comp Part VI line 15A

The President and Chair of the Board of Directors provides guidance and directive at no expense to the Organization.

Governing documents etc available to public Part VI line 19

The Organization makes all federal filings and governing documents available upon formal request. Various companies make these filings available to the general public.

Filing and Contact Details

Filer

Filer Name
HAE International
EIN
83-2498576
In Care Of
% Anthony J Castaldo
Phone
8667985598
Address
10560 Main Street STE PS40, Fairfax, VA 22030

Signing Officer

Name
Anthony J Castaldo
Title
President
Phone
8667985598
Signed
2025-10-03
Discuss with paid preparer
Yes

Organization Details

Formed
2018
Legal Domicile
Va
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
20

Preparer

Firm
Allan Smith and Company CPAs PC
Address
Two Cabot Place Suite 8, Stoughton, MA 02072
Preparer
Allan Smith CPA
Phone
7742065553
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IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt2447216
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt3447216
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt4447216
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt5670825
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt6447216
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0Europe including Iceland and Greenland
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1East Asia and the Pacific
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt2Central America and the Caribbean
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt3South Asia
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt4Middle East and North Africa
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt5South America
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt6Sub-Saharan Africa
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt1Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt2Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt3Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt4Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt5Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt6Advocacy Education
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt2Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt3Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt4Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt5Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt6Program services
IRS990ScheduleF/GrantRecordsMaintainedInd0true
IRS990ScheduleF/SubtotalOfficesCnt01
IRS990ScheduleF/SubtotalSpentAmt04472162
IRS990ScheduleF/TotalOfficeCnt01
IRS990ScheduleF/TotalSpentAmt04472162
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm0Fiona Wardman
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm1Michael Rutkowski
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm2Anthony J Castaldo
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm3Rachel Annals
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0Director HAEI Sienter
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt1Director HAEI AEE Services
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt2Director HAEI RDAG LLC
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt3Director HAEI Vezar
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IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd1false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd2false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd3false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt0225381
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt1128403
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt2120000
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt3101763
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0Identify HAE patients local health coordinat
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc1Identify HAE patients local health coordinat
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc2Manage research activities
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc3Coordinator ADCARE and global advocacy
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Members of the Board of Directors or their companies who have training and expertise consistent with the operational needs of the Organization may be considered for contracting after thoughtful and thorough review in relation to other companies. The Board of Directors considers the importance of a thorough understanding of Hereditary Angioedema when evaluating proposals for approval. Disclosure and approval of related party relationships by the Board of Directors is required in all instances.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The Board of Directors of the Organization is provided a copy of the U.S. Federal Form 990 for review in advance of the filing of the tax return.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The Board of Directors provide self-declaration of possible conflicts of interest as part of the annual meeting responsibilities. Potential conflicts identified are reviewed and approved if appropriate as part of the Board of Directors routine responsibilities.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3The President and Chair of the Board of Directors provides guidance and directive at no expense to the Organization.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4The Organization makes all federal filings and governing documents available upon formal request. Various companies make these filings available to the general public.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Officer directors etc family relationship Part VI line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3CEO executive director top management comp Part VI line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Governing documents etc available to public Part VI line 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0VA
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt05191402
IRS990/TotalAssetsEOYAmt07104376
IRS990/TotalAssetsGrp/BOYAmt05191402
IRS990/TotalAssetsGrp/EOYAmt07104376
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt06358144
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt0256764
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt04472162
IRS990/TotalFunctionalExpensesGrp/TotalAmt04728926
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt023000
IRS990/TotalLiabilitiesEOYAmt050400
IRS990/TotalLiabilitiesGrp/BOYAmt023000
IRS990/TotalLiabilitiesGrp/EOYAmt050400
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt05168402
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt07053976
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt04472162
IRS990/TotalProgramServiceRevenueAmt02360
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt0253996
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt02360
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt06614500
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt020
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt05191402
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt07104376
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TransactionWithControlEntInd0false
IRS990/TravelGrp/ManagementAndGeneralAmt0248017
IRS990/TravelGrp/ProgramServicesAmt01589146
IRS990/TravelGrp/TotalAmt01837163
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/VotingMembersGoverningBodyCnt08
IRS990/VotingMembersIndependentCnt08
IRS990/WebsiteAddressTxt0HAEI.org
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0ANTHONY J CASTALDO
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/PhoneNum08667985598
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-10-03
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0HAE International
ReturnHeader/Filer/BusinessNameControlTxt0HAEI
ReturnHeader/Filer/EIN0832498576
ReturnHeader/Filer/InCareOfNm0% Anthony J Castaldo
ReturnHeader/Filer/PhoneNum08667985598
ReturnHeader/Filer/USAddress/AddressLine1Txt010560 Main Street STE PS40
ReturnHeader/Filer/USAddress/CityNm0Fairfax
ReturnHeader/Filer/USAddress/StateAbbreviationCd0VA

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