Liabilities / Assets
18th percentile
Higher debt load relative to assets than 18% of similar nonprofits.
EIN 83-2498576 • 501(c)3 • Fairfax, VA
Profile
A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
18th percentile
Higher debt load relative to assets than 18% of similar nonprofits.
Liabilities / Revenue
15th percentile
Higher debt load relative to revenue than 15% of similar nonprofits.
Net Margin
80th percentile
Higher net margin than 80% of similar nonprofits.
Top Officer Pay
23rd percentile
Higher top officer pay than 23% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
89th percentile
Faster asset growth than 89% of similar nonprofits.
Revenue Growth
56th percentile
Faster revenue growth than 56% of similar nonprofits.
Assets
Up$7,104,376
Up $1,912,974 (+37%) from 2023
Liabilities
Up$50,400
Up $27,400 (+119%) from 2023
Net Assets
Up$7,053,976
Up $1,885,574 (+36%) from 2023
Revenue
Up$6,614,500
Up $610,079 (+10%) from 2023
Expenses
Up$4,728,926
Up $47,102 (+1.0%) from 2023
Net Income
Up$1,885,574
Up $562,977 (+43%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $5,191,402 | $7,104,376 | ▲ $1,912,974 |
| Total Assets | $5,191,402 | $7,104,376 | ▲ $1,912,974 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $23,000 | $50,400 | ▲ $27,400 |
| Total Liabilities | $23,000 | $50,400 | ▲ $27,400 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $5,168,402 | $7,053,976 | ▲ $1,885,574 |
| Total Net Assets Fund Balance | $5,168,402 | $7,053,976 | ▲ $1,885,574 |
| Total Liabilities and Net Assets / Fund Balance | $5,191,402 | $7,104,376 | ▲ $1,912,974 |
| Name | Title |
|---|---|
| Anthony J Castaldo | President |
| Michal Rutkowski | Vice President |
| Beverley Yamamoto | Director |
| Jorn Schultz-Boysen | Director |
| Natasha Jovanovska Popovska | Director |
| Rachel Annals | Director |
| Sarah Smith Foltz | Director |
| Fiona Nancy Wardman | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $4,728,926 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Salaries, Compensation, and Employee Benefits | $0 |
| Total Fundraising Expense | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Travel | $1,589,146 | $248,017 | - | $1,837,163 |
| Other Expenses | $644,543 | - | - | $644,543 |
| All Other Expenses | $256,760 | $2,048 | - | $258,808 |
| Conferences and Meetings | $167,836 | - | - | $167,836 |
| Office Expenses | $15,804 | $3,951 | - | $19,755 |
| Information Technology | $11,541 | $1,141 | - | $12,682 |
| Fees for Services Legal | $6,429 | $1,607 | - | $8,036 |
| Insurance | $1,391 | - | - | $1,391 |
| Total Functional Expenses | $4,472,162 | $256,764 | $0 | $4,728,926 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe including Iceland and Greenland | Program services | Advocacy Education | 1 | - | $1,118,041 |
| East Asia and the Pacific | Program services | Advocacy Education | - | - | $894,432 |
| South America | Program services | Advocacy Education | - | - | $670,825 |
| Central America and the Caribbean | Program services | Advocacy Education | - | - | $447,216 |
| South Asia | Program services | Advocacy Education | - | - | $447,216 |
| Middle East and North Africa | Program services | Advocacy Education | - | - | $447,216 |
| Sub-Saharan Africa | Program services | Advocacy Education | - | - | $447,216 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Interested Party | Relationship | Description | Shared Revenue | Amount |
|---|---|---|---|---|
| Fiona Wardman | Director HAEI Sienter | Identify HAE patients local health coordinat | No | $225,381 |
| Michael Rutkowski | Director HAEI AEE Services | Identify HAE patients local health coordinat | No | $128,403 |
| Anthony J Castaldo | Director HAEI RDAG LLC | Manage research activities | No | $120,000 |
| Rachel Annals | Director HAEI Vezar | Coordinator ADCARE and global advocacy | No | $101,763 |
“Members of the Board of Directors or their companies who have training and expertise consistent with the operational needs of the Organization may be considered for contracting after thoughtful and thorough review in relation to other companies. The Board of Directors considers the importance of a thorough understanding of Hereditary Angioedema when evaluating proposals for approval. Disclosure and approval of related party relationships by the Board of Directors is required in all instances.”
“The Board of Directors of the Organization is provided a copy of the U.S. Federal Form 990 for review in advance of the filing of the tax return.”
“The Board of Directors provide self-declaration of possible conflicts of interest as part of the annual meeting responsibilities. Potential conflicts identified are reviewed and approved if appropriate as part of the Board of Directors routine responsibilities.”
“The President and Chair of the Board of Directors provides guidance and directive at no expense to the Organization.”
“The Organization makes all federal filings and governing documents available upon formal request. Various companies make these filings available to the general public.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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|---|---|---|
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| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 50400 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies. |
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| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2048 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 256760 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 258808 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | The Organization |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8667985598 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 10560 Main Street STE PS40 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Fairfax |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | VA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 22030 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | true |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
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| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 7104376 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
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| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 167836 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 6358144 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 253996 |
| IRS990/CYOtherExpensesAmt | 0 | 4728926 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 2360 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 1885574 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 0 |
| IRS990/CYTotalExpensesAmt | 0 | 4728926 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 0 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 6614500 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | Development of a global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies for individuals. |
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| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
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| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 0 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 4472162 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
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| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 6429 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 8036 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignCountryCd | 0 | DA |
| IRS990/ForeignFinancialAccountInd | 0 | true |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form1098CFiledInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
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| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
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| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
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| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Sarah Smith Foltz |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Jorn Schultz-Boysen |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Rachel Annals |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Beverley Yamamoto |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Natasha Jovanovska Popovska |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Anthony J Castaldo |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Michal Rutkowski |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Fiona Nancy Wardman |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
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| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Treasurer |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2018 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 8 |
| IRS990/GrantAmt | 0 | 252936 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 6614500 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 8 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 1141 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 11541 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 12682 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 1391 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1391 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 253996 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 253996 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 2 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | VA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | A global not-for-profit network of patient associations dedicated to improving the lives of people with hereditary angioedema (HAE) by raising awareness of HAE, improving diagnosis time and providing advocacy for approval and reimbursement for lifesaving therapies. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 5168402 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 7053976 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 0 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 5168402 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 7053976 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 3951 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 15804 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 19755 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | Global member advocacy cons |
| IRS990/OtherExpensesGrp/Desc | 1 | Member outreach communicati |
| IRS990/OtherExpensesGrp/Desc | 2 | Member network development |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 1443881 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 334831 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 644543 |
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| IRS990/OtherExpensesGrp/TotalAmt | 1 | 334831 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 644543 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
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| IRS990/PoliticalCampaignActyInd | 0 | false |
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| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Gain in foreign exchang |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 2360 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 2360 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
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| IRS990/PYExcessBenefitTransInd | 0 | false |
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| IRS990/PYRevenuesLessExpensesAmt | 0 | 1322597 |
| IRS990/PYTotalExpensesAmt | 0 | 4681824 |
| IRS990/PYTotalRevenueAmt | 0 | 6004421 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 1885574 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
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| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 6358144 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 6358144 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 5833440 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 3888538 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2667782 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1384323 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 20132227 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 253996 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 165806 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 22659 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 2047 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 444508 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.36490 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.48240 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 7508062 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 12624165 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 6358144 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 5833440 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 3888538 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2667782 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1384323 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 20132227 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 20576735 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt | 0 | 1 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 0 | 1118041 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 1 | 894432 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 2 | 447216 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 3 | 447216 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 4 | 447216 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 5 | 670825 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 6 | 447216 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | Europe including Iceland and Greenland |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 1 | East Asia and the Pacific |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 2 | Central America and the Caribbean |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 3 | South Asia |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 4 | Middle East and North Africa |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 5 | South America |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 6 | Sub-Saharan Africa |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 0 | Advocacy Education |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 1 | Advocacy Education |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 2 | Advocacy Education |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 3 | Advocacy Education |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 4 | Advocacy Education |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 5 | Advocacy Education |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 6 | Advocacy Education |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | Program services |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 1 | Program services |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 2 | Program services |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 3 | Program services |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 4 | Program services |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 5 | Program services |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 6 | Program services |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleF/SubtotalOfficesCnt | 0 | 1 |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 4472162 |
| IRS990ScheduleF/TotalOfficeCnt | 0 | 1 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 4472162 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 0 | Fiona Wardman |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 1 | Michael Rutkowski |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 2 | Anthony J Castaldo |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm | 3 | Rachel Annals |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 0 | Director HAEI Sienter |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 1 | Director HAEI AEE Services |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 2 | Director HAEI RDAG LLC |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt | 3 | Director HAEI Vezar |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 0 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 1 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 2 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd | 3 | false |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 0 | 225381 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 1 | 128403 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 2 | 120000 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt | 3 | 101763 |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 0 | Identify HAE patients local health coordinat |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 1 | Identify HAE patients local health coordinat |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 2 | Manage research activities |
| IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc | 3 | Coordinator ADCARE and global advocacy |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Members of the Board of Directors or their companies who have training and expertise consistent with the operational needs of the Organization may be considered for contracting after thoughtful and thorough review in relation to other companies. The Board of Directors considers the importance of a thorough understanding of Hereditary Angioedema when evaluating proposals for approval. Disclosure and approval of related party relationships by the Board of Directors is required in all instances. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The Board of Directors of the Organization is provided a copy of the U.S. Federal Form 990 for review in advance of the filing of the tax return. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | The Board of Directors provide self-declaration of possible conflicts of interest as part of the annual meeting responsibilities. Potential conflicts identified are reviewed and approved if appropriate as part of the Board of Directors routine responsibilities. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | The President and Chair of the Board of Directors provides guidance and directive at no expense to the Organization. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | The Organization makes all federal filings and governing documents available upon formal request. Various companies make these filings available to the general public. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Officer directors etc family relationship Part VI line 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990 governing body review Part VI line 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Conflict of interest policy compliance Part VI line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | CEO executive director top management comp Part VI line 15a |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Governing documents etc available to public Part VI line 19 |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/StatesWhereCopyOfReturnIsFldCd | 0 | VA |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 5191402 |
| IRS990/TotalAssetsEOYAmt | 0 | 7104376 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 5191402 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 7104376 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
| IRS990/TotalContributionsAmt | 0 | 6358144 |
| IRS990/TotalEmployeeCnt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 256764 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 4472162 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 4728926 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 23000 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 50400 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 23000 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 50400 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 5168402 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 7053976 |
| IRS990/TotalOtherCompensationAmt | 0 | 0 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 4472162 |
| IRS990/TotalProgramServiceRevenueAmt | 0 | 2360 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | 253996 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 2360 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 6614500 |
| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/TotalVolunteersCnt | 0 | 20 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 5191402 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 7104376 |
| IRS990/TotReportableCompRltdOrgAmt | 0 | 0 |
| IRS990/TransactionWithControlEntInd | 0 | false |
| IRS990/TravelGrp/ManagementAndGeneralAmt | 0 | 248017 |
| IRS990/TravelGrp/ProgramServicesAmt | 0 | 1589146 |
| IRS990/TravelGrp/TotalAmt | 0 | 1837163 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | false |
| IRS990/UponRequestInd | 0 | X |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 8 |
| IRS990/VotingMembersIndependentCnt | 0 | 8 |
| IRS990/WebsiteAddressTxt | 0 | HAEI.org |
| IRS990/WhistleblowerPolicyInd | 0 | false |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | ANTHONY J CASTALDO |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | President |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 8667985598 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-10-03 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | HAE International |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | HAEI |
| ReturnHeader/Filer/EIN | 0 | 832498576 |
| ReturnHeader/Filer/InCareOfNm | 0 | % Anthony J Castaldo |
| ReturnHeader/Filer/PhoneNum | 0 | 8667985598 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 10560 Main Street STE PS40 |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Fairfax |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | VA |
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