Liabilities / Assets
38th percentile
Higher debt load relative to assets than 38% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
38th percentile
Higher debt load relative to assets than 38% of similar nonprofits.
Liabilities / Revenue
32nd percentile
Higher debt load relative to revenue than 32% of similar nonprofits.
Net Margin
8th percentile
Higher net margin than 8% of similar nonprofits.
Top Officer Pay
90th percentile
Higher top officer pay than 90% of similar nonprofits.
Top officer pay equals 12.0% of source-year revenue.
Asset Growth
4th percentile
Faster asset growth than 4% of similar nonprofits.
Revenue Growth
7th percentile
Faster revenue growth than 7% of similar nonprofits.
Assets
Down$1,680,946
Down $751,635 (-31%) from 2021
Net Assets
Down$1,642,797
Down $734,605 (-31%) from 2021
Liabilities
Down$38,149
Down $17,030 (-31%) from 2021
Revenue
Down$1,631,851
Down $1,713,983 (-51%) from 2021
Expenses
Down$2,291,456
Down $83,074 (-3.5%) from 2021
Net Income
Down-$659,605
Down $1,630,909 (-168%) from 2021
To raise awareness as well as support, care and funding for amyotrophic lateral sclerosis ("als") and the search for cures for als.
SEE PART III, LINE 1.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $1,363,548 | $924,058 | ▼ $439,490 |
| Savings and Temporary Cash Investments | $249,357 | $386,710 | ▲ $137,353 |
| Accounts Receivable | $173,045 | $204,043 | ▲ $30,998 |
| Pledges and Grants Receivable | $630,000 | $140,000 | ▼ $490,000 |
| Prepaid Expenses and Deferred Charges | $10,077 | $19,581 | ▲ $9,504 |
| Total Assets | $2,432,581 | $1,680,946 | ▼ $751,635 |
| Other Assets Total | $6,554 | $6,554 | → $0 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $55,179 | $38,149 | ▼ $17,030 |
| Total Liabilities | $55,179 | $38,149 | ▼ $17,030 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $1,557,787 | $1,341,564 | ▼ $216,223 |
| Net Assets With Donor Restrictions | $819,615 | $301,233 | ▼ $518,382 |
| Total Net Assets Fund Balance | $2,377,402 | $1,642,797 | ▼ $734,605 |
| Total Liabilities and Net Assets / Fund Balance | $2,432,581 | $1,680,946 | ▼ $751,635 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Laura Pazze Dalle | Chief Executive Officer (start 01/22) | FT | $192,023 | $3,917 | $195,940 |
| Laura Pazze Dalle | Chief Executive Officer (start 01/22 | - | $192,023 | $3,917 | $195,940 |
| Aditi Narayan | VP of Community Support | FT | $149,815 | $12,656 | $162,471 |
| Michael J Lecker | VP of Organizing | FT | $111,376 | $5,742 | $117,118 |
| Name | Title |
|---|---|
| Louise Langheier | Board Chair |
| Brian Wallach | Co Founder |
| Sandra Abrevaya | Co Founder |
| Clare Durrett | Member |
| Daniel Tate Jr | Member |
| Jano Cabrera | Member |
| MICHAEL O'NEIL | Member |
| Michael Slaby | Member |
| Neel Parekh | Member |
| Jessie Rossman | Secretary |
| Peter Bowen | Treasurer |
| Contractor | Services | Location | Compensation |
|---|---|---|---|
| Alpine Group Partners | Legislative Consulting Services | 500 N CAPITOL STREET NW STE 210, Washington, DC 20001 | $124,000 |
| Winning Strategies Washington LLC | Consulting Services | 160 WEST STATE STREET STE 4, Trenton, NJ 08608 | $104,000 |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $1,453,539 |
| Other Expenses | $837,917 |
| Total Fundraising Expense | $69,141 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $807,241 | $148,354 | $29,851 | $985,446 |
| Fees for Services Other | $383,930 | $12,386 | $2,904 | $399,220 |
| Current Officers, Directors, Trustees, and Key Employees | $160,507 | $29,498 | $5,935 | $195,940 |
| Other Employee Benefits | $118,091 | $21,703 | $4,367 | $144,161 |
| Payroll Taxes | $75,216 | $13,823 | $2,781 | $91,820 |
| Fees for Services Accounting | - | $75,207 | - | $75,207 |
| Fees for Services Legal | - | $63,065 | - | $63,065 |
| Information Technology | $34,083 | $20,279 | $8,141 | $62,503 |
| Occupancy | $43,664 | $12,255 | - | $55,919 |
| Pension Plan Contributions | $29,631 | $5,445 | $1,096 | $36,172 |
| Office Expenses | $19,998 | $8,752 | $1,155 | $29,905 |
| Advertising | $25,340 | - | - | $25,340 |
| Fees for Services Lobbying | - | $25,000 | - | $25,000 |
| All Other Expenses | $1,589 | $9,247 | - | $10,836 |
| Travel | $4,078 | $6,591 | - | $10,669 |
| Insurance | - | $10,086 | - | $10,086 |
| Other Expenses | $150 | $10,042 | $12,911 | $10,042 |
| Conferences and Meetings | $1,953 | - | - | $1,953 |
| Total Functional Expenses | $1,705,471 | $516,844 | $69,141 | $2,291,456 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $2,291,456 |
| Total Expenses per Audited Statements | $2,291,456 |
| Total Expenses per Form 990 | $2,291,456 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Brian wallach and sandra abrevaya have a family relationship.”
“The form 990 was prepared by the outside accountants and reviewed by the organization's audit committee. The return was then provided to the full board, prior to filing with the irs.”
“Each director, officer, key person and member of a committee annually signs a conflict of interest statement, which affirms that such person has received, read, understands and agrees with the policy. A conflict of interest arises when a person has an existing or potential financial interest or other material interest that impairs, or appears to impair his or her independence or objectivity in the discharge of responsibilities and duties to i am als. If a conflict arises each related party discloses any direct or indirect financial or other material interest which he or she or his or her relatives has or reasonably expects to have in a related party transaction prior to or as soon as practicable following the start of any negotiations with respect to such matter. Interests will be disclosed in writing to the secretary of the corporation. The secretary of the corporation provides a copy of all such disclosures to the directors of the corporation. The board reviews all transactions, agreements or any other arrangements between the corporation and a related party, and any other transactions which may involve a potential conflict of interest. No related party votes on any matter with respect to which he or she has been determined by the board to have a financial interest. If the board or committee has reasonable cause to believe that a member has failed to disclose actual or possible conflicts of interest, it informs the member of the basis for such belief and afford the member an opportunity to explain the alleged failure to disclose. If, after hearing the member's response and investigating further, as warranted by the circumstances, the board or committee determines that the member has in fact failed to disclose an actual or possible conflict of interest, the board takes appropriate corrective action.”
“To set the ceo's initial salary the organization sought data from several sources to assess the appropriate compensation range, including an independent search firm and reviewed several compensation studies from professionals for non-profits to koya leadership partners. We determined the key criteria for our decision were 1) competitive data from the sources listed above, 2) qualifications of the candidate including experience to date and graduate training, and 3) our compensation philosophy that we should pay competitively given the demanding and urgent timeline of the job. The search committee of the board developed the criteria via phone conversations and email in partnership with the independent search firm. This proposal was presented to the executive board on a weekly call and sent in writing to the full board for discussion at a board meeting. The ceo's most recent performance review was presented to the full board on the october 2022 board meeting. In addition to the ceo's salary, the board approves the annual budget, which includes the salaries of all employees.”
“The organization makes its governing documents, conflict of interest policy, and financial statements available to the public per request.”
“Advocacy: program service expenses 247,973. Management and general expenses 0. Fundraising expenses 0. Total expenses 247,973. Communication: program service expenses 114,344. Management and general expenses 0. Fundraising expenses 1,800. Total expenses 116,144. Consulting: program service expenses 21,613. Management and general expenses 12,386. Fundraising expenses 1,104. Total expenses 35,103.”
“In connection with the adoption of asu 2018-08, iaa restated its beginning net assets to properly reflect the retrospective implementation of the asu. -75,000.”
“For the year ended december 31, 2022, iaa has documented its consideration of fasb asc 740-10, income taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the financial statements.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 55179 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 38149 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 173045 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 204043 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | SEE PART III, LINE 1. |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 25340 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 25340 |
| IRS990/AllOtherContributionsAmt | 0 | 1609370 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 9247 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 1589 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 10836 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | PETER BOWEN |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2025051256 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1200 PENNSYLVANIA AVE NW 14135 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | WASHINGTON |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | DC |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 20044 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 1363548 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 924058 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 2 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 5935 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 29498 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 160507 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 195940 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 1953 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 1953 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 0 | 124000 |
| IRS990/ContractorCompensationGrp/CompensationAmt | 1 | 104000 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 0 | 500 N CAPITOL STREET NW STE 210 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/AddressLine1Txt | 1 | 160 WEST STATE STREET STE 4 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 0 | WASHINGTON |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/CityNm | 1 | TRENTON |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 0 | DC |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/StateAbbreviationCd | 1 | NJ |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 0 | 20001 |
| IRS990/ContractorCompensationGrp/ContractorAddress/USAddress/ZIPCd | 1 | 08608 |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 0 | ALPINE GROUP PARTNERS |
| IRS990/ContractorCompensationGrp/ContractorName/BusinessName/BusinessNameLine1Txt | 1 | WINNING STRATEGIES WASHINGTON LLC |
| IRS990/ContractorCompensationGrp/ServicesDesc | 0 | LEGISLATIVE CONSULTING SERVICES |
| IRS990/ContractorCompensationGrp/ServicesDesc | 1 | CONSULTING SERVICES |
| IRS990/CostOfGoodsSoldAmt | 0 | 11930 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1609370 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 1004 |
| IRS990/CYOtherExpensesAmt | 0 | 837917 |
| IRS990/CYOtherRevenueAmt | 0 | 21477 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -659605 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 1453539 |
| IRS990/CYTotalExpensesAmt | 0 | 2291456 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 69141 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1631851 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | COMMUNITY SUPPORTTHE I AM ALS COMMUNITY SUPPORT TEAM PROVIDES DIRECT EMOTIONAL SUPPORT SERVICES, SUPPORT GROUPS, PEER MATCHING, AND INFORMATION AND RESOURCES TO INDIVIDUALS LIVING WITH ALS, LOVED ONES, AND CAREGIVERS. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 819615 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 301233 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 15 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 585949 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 75207 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 75207 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 63065 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 63065 |
| IRS990/FeesForServicesLobbyingGrp/ManagementAndGeneralAmt | 0 | 25000 |
| IRS990/FeesForServicesLobbyingGrp/TotalAmt | 0 | 25000 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 2904 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 12386 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 383930 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 399220 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 50.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 30.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 4.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 3917 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 5742 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 7656 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | LAURA PAZZE DALLE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | LOUISE LANGHEIER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | PETER BOWEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | JESSIE ROSSMAN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | BRIAN WALLACH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | SANDRA ABREVAYA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | DANIEL TATE JR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | JANO CABRERA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | MICHAEL O'NEIL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | MICHAEL SLABY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | NEEL PAREKH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | CLARE DURRETT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | MICHAEL J LECKER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | ADITI NARAYAN |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 192023 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 111376 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 154815 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHIEF EXECUTIVE OFFICER (START 01/22) |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | BOARD CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | CO FOUNDER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | CO FOUNDER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | VP OF ORGANIZING |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | VP OF COMMUNITY SUPPORT |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2018 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 12 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 1643781 |
| IRS990/GrossSalesOfInventoryAmt | 0 | 33182 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 11 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 3 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 8141 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 20279 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 34083 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 62503 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 10086 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 10086 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 1004 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 1004 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 16 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | IL |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | I AM ALS EXISTS TO SUPPORT AND MOBILIZE THE ALS COMMUNITY FOR THE PURPOSES OF IMPROVING QUALITY OF LIFE, RAISING AWARENESS, INCREASING FUNDING FOR RESEARCH AND ACCESS, AND IDENTIFYING TREATMENTS AND CURES FOR ALS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 2377402 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1642797 |
| IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt | 0 | 21252 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 21252 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 1557787 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 1341564 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 12255 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 43664 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 55919 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1155 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 8752 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 19998 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 29905 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 6554 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 6554 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -75000 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 4367 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 21703 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 118091 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 144161 |
| IRS990/OtherExpensesGrp/Desc | 0 | RECRUITMENT FEES |
| IRS990/OtherExpensesGrp/Desc | 1 | DONATION FEES |
| IRS990/OtherExpensesGrp/Desc | 2 | LICENSES & REGISTRATION |
| IRS990/OtherExpensesGrp/Desc | 3 | PAYROLL PROCESSING |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 12911 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 26713 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 18139 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 259 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 10042 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 150 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 26863 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 18139 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 13170 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 10042 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MISCELLANEOUS REVENUE |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 225 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 225 |
| IRS990/OtherRevenueTotalAmt | 0 | 225 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 29851 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 148354 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 807241 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 985446 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2781 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 13823 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 75216 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 91820 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 1096 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 5445 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 29631 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 36172 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 630000 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 140000 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 10077 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 19581 |
| IRS990/PrincipalOfficerNm | 0 | PETER BOWEN |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | GOVERNMENT AFFAIRS, POLICY, AND RESEARCHI AM ALS ALSO UTILIZES THIS COMMUNITY MOVEMENT AND EXPERTISE TO INFLUENCE CHANGES TO FEDERAL FUNDING, AND TRANSFORM RESEARCH SYSTEMS, INSTITUTIONAL POLICY, AND REGULATORY PROCESSES WITH THE GOALS OF INCREASING RESEARCH FUNDING; IMPROVING PATIENT ACCESS TO TREATMENT; AND SPEEDING THE DEVELOPMENT AND ACCESS OF TREATMENTS AND CURES FOR PEOPLE LIVING WITH ALS. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 445729 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | COMMUNITY ORGANIZING AND COMMUNICATIONS I AM ALS COMMUNICATES WITH AND MOBILIZES THE ALS COMMUNITY IN SELF-ORGANIZED TEAMS AND AS INDIVIDUALS TO CATALYZE POLICY CHANGE AND RESEARCH PROGRESS TO END ALS. THIS INCLUDES EFFORTS AIMED AT PUBLIC AWARENESS; POLICY OUTCOMES; IMPACT ON TRIALS AND TREATMENT ACCESS; AND MORE. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 315458 |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | OTHER PROGRAMS |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 358335 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 3338131 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 2000 |
| IRS990/PYInvestmentIncomeAmt | 0 | 2386 |
| IRS990/PYOtherExpensesAmt | 0 | 1164617 |
| IRS990/PYOtherRevenueAmt | 0 | 5317 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 971304 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 1207913 |
| IRS990/PYTotalExpensesAmt | 0 | 2374530 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 3345834 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -659605 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 249357 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 386710 |
| IRS990ScheduleA/First5Years170Ind | 0 | X |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1609370 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 3338131 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1631151 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2574735 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 9153387 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 1004 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 162 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1326 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 16751 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 19243 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 26099 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 225 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 470 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 695 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 7947255 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 1206132 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1609370 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 3338131 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1631151 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2574735 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 9153387 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 9173325 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleC/DirectContactLegislatorsAmt | 0 | 40000 |
| IRS990ScheduleC/DirectContactLegislatorsInd | 0 | 1 |
| IRS990ScheduleC/GrantsOtherOrganizationsInd | 0 | 0 |
| IRS990ScheduleC/MailingsMembersInd | 0 | 0 |
| IRS990ScheduleC/MediaAdvertisementsInd | 0 | 0 |
| IRS990ScheduleC/NotDescribedSection501c3Ind | 0 | 0 |
| IRS990ScheduleC/OtherActivitiesInd | 0 | 0 |
| IRS990ScheduleC/PaidStaffOrManagementInd | 0 | 1 |
| IRS990ScheduleC/PublicationsOrBroadcastInd | 0 | 0 |
| IRS990ScheduleC/RalliesDemonstrationsInd | 0 | 0 |
| IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt | 0 | INCREASE ALS RESEARCH FUNDING, IMPLEMENTATION OF ACT FOR ALS, EXPAND TREATMENT ACCESS FOR PEOPLE WITH ALS. |
| IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART II-B, LINE 1: |
| IRS990ScheduleC/TotalLobbyingExpendituresAmt | 0 | 40000 |
| IRS990ScheduleC/VolunteersInd | 0 | 1 |
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Displayed year
2022 • Form 990Detailed filing. Detailed filing data is available for this year.