Civic Intelligence

I Am Als

990 • Fiscal year 2021 • EIN 83-2016277

Jan 01, 2021 to Dec 31, 2021 • Filed on Aug 28, 2023

1200 Pennsylvania Ave NW 14135Washington, DC 20044

(202) 505-1256

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

37th percentile

0.02x

Higher debt load relative to assets than 37% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

29th percentile

0.02x

Higher debt load relative to revenue than 29% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

73rd percentile

29%

Higher net margin than 73% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

85th percentile

$153,591

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 4.6% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

95th percentile

133%

Faster asset growth than 95% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

88th percentile

105%

Faster revenue growth than 88% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Assets

Up

$2,432,581

Up $1,386,841 (+133%) from 2020

Net Assets

Up

$2,377,402

Up $1,446,304 (+155%) from 2020

Liabilities

Down

$55,179

Down $59,463 (-52%) from 2020

Revenue

Up

$3,345,834

Up $1,713,357 (+105%) from 2020

Expenses

Up

$2,374,530

Up $8,239 (+0.3%) from 2020

Net Income

Up

$971,304

Up $1,705,118 (+232%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2018: $925Liabilities 2018: $0Net Assets 2018: $9252018Assets 2019: $1,685,514Liabilities 2019: $20,602Net Assets 2019: $1,664,9122019Assets 2020: $1,045,740Liabilities 2020: $114,642Net Assets 2020: $931,0982020Assets 2021: $2,432,581Liabilities 2021: $55,179Net Assets 2021: $2,377,4022021Assets 2022: $1,680,946Liabilities 2022: $38,149Net Assets 2022: $1,642,7972022Assets 2023: $1,851,960Liabilities 2023: $57,081Net Assets 2023: $1,794,8792023Assets 2024: $3,413,223Liabilities 2024: $57,550Net Assets 2024: $3,355,6732024

Highlighted filing

2021

Assets$2,432,581
Liabilities$55,179
Net Assets$2,377,402

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2018: $97,109Expenses 2018: $96,184Net Income 2018: $9252018Revenue 2019: $2,591,486Expenses 2019: $927,499Net Income 2019: $1,663,9872019Revenue 2020: $1,632,477Expenses 2020: $2,366,291Net Income 2020: -$733,8142020Revenue 2021: $3,345,834Expenses 2021: $2,374,530Net Income 2021: $971,3042021Revenue 2022: $1,631,851Expenses 2022: $2,291,456Net Income 2022: -$659,6052022Revenue 2023: $2,326,778Expenses 2023: $2,174,696Net Income 2023: $152,0822023Revenue 2024: $4,117,942Expenses 2024: $2,566,630Net Income 2024: $1,551,3122024

Highlighted filing

2021

Revenue$3,345,834
Expenses$2,374,530
Net Income$971,304
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Aug 28, 2023
Return Version
2021v4.2
Gross Receipts
$3,408,833
Mission and Program Overview

Mission

To raise awareness as well as support, care and funding for amyotrophic lateral sclerosis ("als") and the search for cures for als.

SEE PART III, LINE 1.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$615,595$1,363,548▲ $747,953
Pledges and Grants Receivable-$630,000-
Savings and Temporary Cash Investments$74,471$249,357▲ $174,886
Accounts Receivable$349,643$173,045▼ $176,598
Prepaid Expenses and Deferred Charges$6,031$10,077▲ $4,046
Total Assets$1,045,740$2,432,581▲ $1,386,841
Other Assets Total$0$6,554▲ $6,554
Liabilities
Unsecured Notes Loans Payable$100,900--
Accounts Payable and Accrued Expenses$13,742$55,179▲ $41,437
Total Liabilities$114,642$55,179▼ $59,463
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$527,702$1,557,787▲ $1,030,085
Net Assets With Donor Restrictions$403,396$819,615▲ $416,219
Total Net Assets Fund Balance$931,098$2,377,402▲ $1,446,304
Total Liabilities and Net Assets / Fund Balance$1,045,740$2,432,581▲ $1,386,841
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Suzanne AnthonyChief Operating OfficerFT$146,813$6,778$153,591
Danielle CarnivalCEO (until 07/2021)FT$142,188$6,382$148,570
Theresa GarnerCommunications & Organizing DirectorFT$139,375$7,889$147,264
Michael Slaby See Schd LDir., Then Interim CEO (from 06/21)FT$143,645-$143,645
Aditi NarayanDirector of Community SupportFT$123,600$6,573$130,173

Board Members and Trustees

NameTitle
Louise LangheierBoard Chair
Clare DurrettDirector
Daniel Tate JrDirector
Divya SilbermanDirector
Edwin CohenDirector
Jano CabreraDirector
Peter BowenDirector
Brian WallachCo-founder
Sandra AbrevayaCo-founder
Jessie RossmanTreasurer & Secretary

Highest Paid Contractors

ContractorServicesLocationCompensation
Redtail Production Services LLCVideo Production5757 W CENTURY BLVD 810, Los Angeles, CA 90045$409,000
Visionary MisfitsInterim Ceo Services25 MULBERRY ST, Rhinebeck, NY 12572$143,645
Revenue and Support

Revenue Composition

Contributions and Grants
$3,338,131
Program Service Revenue
$0
Investment Income
$2,386
Other Revenue
$5,317
All Other Contributions
$3,104,131
Change in Net Assets
$971,304

Audited Revenue Reconciliation

Revenue per Audited Statements
$3,345,834
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$210,833
Total Revenue per Audited Statements
$3,556,667
Total Revenue per Form 990
$3,345,834
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$1,207,913
Other Expenses$1,164,617
Total Fundraising Expense$92,689
Grants and Similar Amounts Paid$2,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$670,484$44,361$14,565$729,410
Other Salaries and Wages$548,366$115,943$32,635$696,944
Current Officers, Directors, Trustees, and Key Employees$228,261$53,842$10,112$292,215
Other Employee Benefits$94,424$11,932-$106,356
Information Technology$79,517$21,839-$101,356
Payroll Taxes$54,327$25,439-$79,766
Fees for Services Accounting-$79,506-$79,506
Advertising$56,703$377-$57,080
Office Expenses$24,964$10,455$1,439$36,858
Pension Plan Contributions$15,619$17,013-$32,632
Fees for Services Lobbying$24,000--$24,000
Occupancy$17,432$5,470-$22,902
Travel$2,293$6,010$161$8,464
Insurance-$8,402-$8,402
All Other Expenses$1,512$3,947-$5,459
Other Expenses-$3,392$33,777$3,392
Grants to Domestic Orgs$2,000--$2,000
Conferences and Meetings$573$240-$813
Total Functional Expenses$1,820,475$461,366$92,689$2,374,530

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,585,363
Expenses per Audited Statements$2,374,530
Total Expenses per Form 990$2,374,530
Expenses Not Reported on Form 990$210,833
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
-MICHAEL SLABY, INTERIM CEO OWNS MORE THAN 35%I Am Als Paid Visionary Misfits for Interim CEO CompensationNo$143,645
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Brian wallach and sandra abrevaya have a family relationship. Brian wallach and sandra abrevaya have a business relationship with edwin cohen. Brian wallach and sandra abrevaya have a business relationship with divya silbermann.

Form 990, Part VI, Section B, Line 11B

The form 990 was prepared by the outside accountants and reviewed by the organization's audit committee. The return was then provided to the full board, prior to filing with the irs.

Form 990, Part VI, Section B, Line 12C

Each director, officer, key person and member of a committee annually signs a conflict of interest statement, which affirms that such person has received, read, understands and agrees with the policy. A conflict of interest arises when a person has an existing or potential financial interest or other material interest that impairs, or appears to impair his or her independence or objectivity in the discharge of responsibilities and duties to i am als. If a conflict arises each related party discloses any direct or indirect financial or other material interest which he or she or his or her relatives has or reasonably expects to have in a related party transaction prior to or as soon as practicable following the start of any negotiations with respect to such matter. Interests will be disclosed in writing to the secretary of the corporation. The secretary of the corporation provides a copy of all such disclosures to the directors of the corporation. The board reviews all transactions, agreements or any other arrangements between the corporation and a related party, and any other transactions which may involve a potential conflict of interest. No related party votes on any matter with respect to which he or she has been determined by the board to have a financial interest. If the board or committee has reasonable cause to believe that a member has failed to disclose actual or possible conflicts of interest, it informs the member of the basis for such belief and afford the member an opportunity to explain the alleged failure to disclose. If, after hearing the member's response and investigating further, as warranted by the circumstances, the board or committee determines that the member has in fact failed to disclose an actual or possible conflict of interest, the board takes appropriate corrective action.

Form 990, Part VI, Section B, Line 15

To set the ceo's initial salary the organization sought data from several sources to assess the appropriate compensation range, including an independent search firm and reviewed several compensation studies from professionals for non-profits to koya leadership partners. We determined the key criteria for our decision were 1) competitive data from the sources listed above, 2) qualifications of the candidate including experience to date and graduate training, and 3) our compensation philosophy that we should pay competitively given the demanding and urgent timeline of the job. The search committee of the board developed the criteria via phone conversations and email in partnership with the independent search firm. This proposal was presented to the executive board on a weekly call and sent in writing to the full board for discussion at a board meeting. The ceo's most recent performance review was presented to the full board during the december 2021 board meeting. In addition to the ceo's salary, the board approves the annual budget, which includes the salaries of all employees.

Form 990, Part VI, Section C, Line 19

The organization makes its governing documents, conflict of interest policy, and financial statements available to the public per request.

Filing and Contact Details

Filer

Filer Name
I Am Als
EIN
83-2016277
Phone
2025051256
Address
1200 PENNSYLVANIA AVE NW 14135, WASHINGTON, DC 20044

Signing Officer

Name
Peter Bowen
Title
Treasurer
Phone
2025051256
Signed
2023-08-28
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Louise Langheie
Formed
2018
Legal Domicile
Il
Voting Board Members
11
Independent Board Members
10
Employees
13
Volunteers
100

Preparer

Firm
Gelman Rosenberg & Freedman
Address
4550 MONTGOMERY AVE SUITE 800N, BETHESDA, MD 20814-2930
Preparer
Richard J Locastro CPA
Phone
3019519090
Supplemental Narrative

Additional Explanations

Amended Return

The 990 was amended to update to report the services provided by an independent contractor. Due to this change the following sections of the form have been updated, part iv, line 28c, part vii, section b and schedule l.

Form 990, Part IX, Line 11G

Advocacy: program service expenses 121,750. Management and general expenses 0. Fundraising expenses 0. Total expenses 121,750. Communication: program service expenses 441,331. Management and general expenses 0. Fundraising expenses 200. Total expenses 441,531. Consulting: program service expenses 107,403. Management and general expenses 44,361. Fundraising expenses 14,365. Total expenses 166,129.

Financial Statement Notes

PART X, LINE 2:

For the year ended december 31, 2021, iaa has documented its consideration of fasb asc 740-10, income taxes, that provides guidance for reporting uncertainty in income taxes and has determined that no material uncertain tax positions qualify for either recognition or disclosure in the financial statements.

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IRS990/Desc0DELIVER FOR PATIENTS - DELIVER A COMPREHENSIVE NAVIGATION PROGRAM SERVICING ALS PATIENTS AND THEIR FAMILIES TO EMPOWER PATIENTS AND THEIR FAMILIES WITH RELEVANT MEDICAL AND RESEARCH INFORMATION, SUPPORT THEM EMOTIONALLY, CONNECT THEM WITH PRACTICAL RESOURCES, AND HELP THEM BUILD A COMMUNITY AROUND THEM. I AM ALS NAVIGATION WILL CONNECT THOSE IT SERVES TO THE PROGRAMS AND SERVICES THAT BEST FIT THEIR NEEDS AND BE A PARTNER EVERY STEP OF THE WAY IN THEIR ALS JOURNEY.
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