I Am Als

“Brian wallach and sandra abrevaya have a family relationship. Brian wallach and edwin cohen have a business relationship.”

“The form 990 was prepared by the outside accountants and reviewed by the organization's audit committee. The return was then provided to the full board, prior to filing with the irs.”

“Each director, officer, key person and member of a committee annually signs a conflict of interest statement, which affirms that such person has received, read, understands and agrees with the policy. A conflict of interest arises when a person has an existing or potential financial interest or other material interest that impairs, or appears to impair his or her independence or objectivity in the discharge of responsibilities and duties to i am als. If a conflict arises each related party discloses any direct or indirect financial or other material interest which he or she or his or her relatives has or reasonably expects to have in a related party transaction prior to or as soon as practicable following the start of any negotiations with respect to such matter. Interests will be disclosed in writing to the secretary of the corporation. The secretary of the corporation provides a copy of all such disclosures to the directors of the corporation. The board reviews all transactions, agreements or any other arrangements between the corporation and a related party, and any other transactions which may involve a potential conflict of interest. No related party votes on any matter with respect to which he or she has been determined by the board to have a financial interest. If the board or committee has reasonable cause to believe that a member has failed to disclose actual or possible conflicts of interest, it informs the member of the basis for such belief and afford the member an opportunity to explain the alleged failure to disclose. If, after hearing the member's response and investigating further, as warranted by the circumstances, the board or committee determines that the member has in fact failed to disclose an actual or possible conflict of interest, the board takes appropriate corrective action.”

“The organization sought data from several sources to assess the appropriate compensation range, including an independent search firm and reviewed several compensation studies from professionals for non-profits to koya leadership partners. We determined the key criteria for our decision were 1) competitive data from the sources listed above, 2) qualifications of the candidate including experience to date and graduate training, and 3) our compensation philosophy that we should pay competitively given the demanding and urgent timeline of the job. The search committee of the board developed the criteria via phone conversations and email in partnership with the independent search firm. This proposal was presented to the executive board on a weekly call and sent in writing to the full board for discussion at a board meeting. The last compensation review took place in august 2019.”

“The organization makes its governing documents, conflict of interest policy, and financial statements available to the public per request.”

“Advocacy: program service expenses 49,825. Management and general expenses 0. Fundraising expenses 0. Total expenses 49,825. Communication: program service expenses 59,511. Management and general expenses 0. Fundraising expenses 0. Total expenses 59,511. Digital: program service expenses 109,393. Management and general expenses 5,000. Fundraising expenses 0. Total expenses 114,393. Recruiting services: program service expenses 0. Management and general expenses 90,168. Fundraising expenses 0. Total expenses 90,168. Operation consulting: program service expenses 24,937. Management and general expenses 54,369. Fundraising expenses 0. Total expenses 79,306. Research: program service expenses 46,806. Management and general expenses 726. Fundraising expenses 0. Total expenses 47,532.”

“Prior to receiving its 501(c)(3) designation, iaa entered into a fiscal sponsorship agreement with les turner amytrophic lateral sclerosis foundation, ltd (les turner). During 2019, les turner collected approximately $1,270,000 of funds on behalf of iaa and charged administrative fees of approximately $45,000.”