Adira Foundation

“Adira engages fractional chief financial officer cfo consultants to serve the financial management function, including review of business practices and financial controls in accordance with generally accepted accounting principles. Adira will look to make that job function permanent and brought in-house as our needs and capacity demands. Organization's process to review form 990: the cfo and chief executive officer ceo review and discuss the 990. After which they present the 990 to the board for their review before it is filed with the irs.”

“Enforcement of conflicts policy: any potential conflict of interest is required to be disclosed. Each member of the board must annually declare and attest to any potential conflict of interest. At the annual meeting the board discusses those attestations and approves of how to proceed in response, in alignment with the conflict of interest policy.”

“The board meets annually to determine the compensation and benefits package of the organization's ceo. The board evaluates performance relative to annual targets set. The board also factors in comparability data, cash on hand, and current independent compensation analyses. The board then approves annual compensation for the ceo and documents contemporaneous substantiation of their deliberation and decision.”

“The board works with the ceo and cfo annually to develop and approve the budget for the following fiscal year which includes a compensation for key employees.”

“Adira foundation makes its governing documents and conflict of interest policy available to the public through the virginia state corporation commission, other media, and is available upon request.”

“Adira Foundation made significant, consequential impact before entering dissolution at the end of 2022. During the short time we were active, we completed 5 special projects, awarded 20 grants, held 3 neurodegenerative disease congress events, assessed fifty quality of life measurement tools, hosted numerous listening and learning events, and issued substantive reports, all culminating in our final ND Congress Report as well as our Blueprint for Action. Both of these reports as well as details on all of our activities can be found on our legacy website: https://adirafoundation.org SINCE ITS FOUNDING, ADIRA FOUNDATION AIMED TO BUILD AND FUND BETTER AND MORE RESPONSIVE SERVICES, CO-DESIGNED FROM THE PATIENT/CAREGIVER POINT-OF-VIEW. WE did that THAT THROUGH MULTIPLE LISTENING AND LEARNING ACTIVITIES, BUT ALSO IN FUNDING NON-PROFITS THROUGHOUT THE UNITED STATES IN BOTH DIRECT AWARDS AND COMPETITIVE GRANTS. FROM $100,000 IN ROUND 1 TO $260,000 IN ROUND 2, ADIRAS 2021 ACTIVE PROGRAM YEAR CONTINUES TO GROW BY INVESTING IN NON-PROFITS. In 2022, we implemented a third round of competitive grantmaking on three key topics: simplifying clinical research, preparing for financial threats, and helping people thrive again. This third round of $281,521 WAS FUNDED IN EARLY 2022. SIMPLY PUT, WE ASKed PEOPLE WHAT THEY STILL NEED BUT ARENT GETTING, AND WE ASKed WHAT BETTER HELP WOULD LOOK LIKE. THEN WE FUNDed THOSE THINGS MOST IMPORTANT TO THEM, AND IN THE WAYS THEY WANT TO SEE IT. WE Took ON THOSE COMMON, CROSS-CUTTING ISSUES THAT APPEAR TOO BIG FOR ANYONE TO OWN, SUCH AS CAREGIVING, MENTAL HEALTH, NAVIGATION OF SERVICES, MAKING CLINICAL RESEARCH EASIER, DISABILITY, LIFE AFTER LEAVING THE WORKFORCE, AND SIMILAR ISSUES. Our aim for the future had been to build Round 4 and other activities by bringing patients and caregivers with lived expertise in congress with those with career expertise to design better help together. We did this through three ND Congress events throughout 2022. Unfortunately, we were forced to close at the end of the year before being able to action a Round 4 of competitive grants. Again, OUR IMPACT REPORTS DETAILING all of these ACTIVITIES CAN BE FOUND ON OUR legacy WEBSITE: HTTPS://ADIRAFOUNDATION.ORG.”