Civic Intelligence

Adira Foundation

990 • Fiscal year 2020 • EIN 82-5023726

Jan 01, 2020 to Dec 31, 2020 • Filed on Oct 29, 2021

Organization ProfileWWW.ADIRAFOUNDATION.ORG
7330 Staples Mill Road 288Richmond, VA 23228

(877) 426-0712

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.19x

Higher debt load relative to assets than 61% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

98th percentile

12.84x

Higher debt load relative to revenue than 98% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

1st percentile

-4364%

Higher net margin than 1% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

92nd percentile

$234,248

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 542.0% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

100th percentile

1945%

Faster asset growth than 100% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

99th percentile

1009%

Faster revenue growth than 99% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets61st percentile

Assets

Up

$2,916,341

Up $2,773,730 (+1945%) from 2019

Net Assets

Up

$2,361,484

Up $2,261,785 (+2269%) from 2019

Liabilities

Up

$554,857

Up $511,945 (+1193%) from 2019

Revenue And Expenses
Liabilities / Revenue98th percentileNet Margin1st percentile

Revenue

Up

$43,222

Up $39,323 (+1009%) from 2019

Expenses

Up

$1,929,417

Up $226,975 (+13%) from 2019

Net Income

Down

-$1,886,195

Down $187,652 (-11%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth100th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2019: $142,611Liabilities 2019: $42,912Net Assets 2019: $99,6992019Assets 2020: $2,916,341Liabilities 2020: $554,857Net Assets 2020: $2,361,4842020Assets 2021: $2,118,169Liabilities 2021: $59,708Net Assets 2021: $2,058,4612021Assets 2022: $46,085Liabilities 2022: $15,310Net Assets 2022: $30,7752022Assets 2023: $0Net Assets 2023: $02023

Highlighted filing

2020

Assets$2,916,341
Liabilities$554,857
Net Assets$2,361,484
Open 2020 Filing

Operations Trend

Revenue Growth99th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$4.0M$2.0M$0-$2.0MRevenue 2019: $3,899Expenses 2019: $1,702,442Net Income 2019: -$1,698,5432019Revenue 2020: $43,222Expenses 2020: $1,929,417Net Income 2020: -$1,886,1952020Revenue 2021: $1,074,322Expenses 2021: $1,281,083Net Income 2021: -$206,7612021Revenue 2022: $190,912Expenses 2022: $2,169,415Net Income 2022: -$1,978,5032022Revenue 2023: $3,306Expenses 2023: $34,081Net Income 2023: -$30,7752023

Highlighted filing

2020

Revenue$43,222
Expenses$1,929,417
Net Income-$1,886,195
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Oct 29, 2021
Return Version
2020v4.1
Gross Receipts
$94,744
Mission and Program Overview

Mission

To invest in better lives for people with neurodegenerative diseases, in adira's early years, we will focus principally, though not exclusively, on five neurodegenerative diseases: als, alzheimer's and related dementias, huntington's disease, multiple sclerosis, and parkinson's disease. At adira we accelerate the design and funding of better, more integrated help for people who need it now. We assemble a handful of diseases that struggle with many of the same big things. We take them out of isolation where they're defined not by their diagnosis but by their struggle. From a bird's-eye view, we see the common themes and trends. We speak with people going through this journey to design better programs "with" them, not just "for" them. Then we fund those bigger, common problems with which they say they need the most help. Some examples of our work to date focus on caregiving, navigation of different services, disability, equity, measurements for quality of life, and mental health.

To invest in better lives for people with neurodegenerative diseases. Initially, adira foundation (adira) will focus on five neurodegenerative diseases that are highly complex and have much in common: alzheimer's disease and related dementias, als, huntington's disease, multiple sclerosis, and parkinson's disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments Other Securities-$2,094,016-
Savings and Temporary Cash Investments-$483,398-
Cash and Non-Interest-Bearing Accounts$67,868$321,714▲ $253,846
Land, Buildings, and Equipment, Net$69,543$12,699▼ $56,844
Prepaid Expenses and Deferred Charges$5,200$3,695▼ $1,505
Total Assets$142,611$2,916,341▲ $2,773,730
Other Assets Total$0$819▲ $819
Liabilities
Grants Payable-$360,000-
Other Liabilities$11,587$133,620▲ $122,033
Accounts Payable and Accrued Expenses$31,325$61,237▲ $29,912
Total Liabilities$42,912$554,857▲ $511,945
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$99,699$2,361,484▲ $2,261,785
Total Net Assets Fund Balance$99,699$2,361,484▲ $2,261,785
Total Liabilities and Net Assets / Fund Balance$142,611$2,916,341▲ $2,773,730

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$12,699$19,141$31,840
Other Securities$2,094,016--
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Greg SmileyCEOFT$217,198$17,050$234,248
Marilyn SpinnerChief Dev and Ext Affairs OfficerFT$148,891$14,521$163,412

Board Members and Trustees

NameTitle
Cynthia GomezBoard Chair
Alan J AbramsomVice Chair
Bruce PackettDirector
Bruce Rector MdDirector
Cheryl Sullivan StaveleyDirector
Helen FraryDirector
Laura HanenDirector
Todd EvensonDirector
Zenawit MelesseSecretary/treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$42,420
Program Service Revenue
$0
Investment Income
$675
Other Revenue
$127
All Other Contributions
$42,420
Change in Net Assets
$-1,886,195
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$832,744
Grants and Similar Amounts Paid$614,632
Other Expenses$482,041
Total Fundraising Expense$295,560
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$614,632--$614,632
Other Salaries and Wages$240,181$98,487$163,520$502,188
Current Officers, Directors, Trustees, and Key Employees$89,187$75,584$60,721$225,492
Fees for Services Other$60,725$28,153$29,100$117,978
Fees for Services Accounting-$76,659-$76,659
Occupancy-$75,876-$75,876
Payroll Taxes-$48,457-$48,457
Other Expenses$96,510$43,158-$43,158
Other Employee Benefits-$37,005-$37,005
Advertising--$29,743$29,743
Pension Plan Contributions-$19,602-$19,602
Office Expenses$1,380$9,970$1,300$12,650
Travel--$11,176$11,176
Fees for Services Legal-$7,859-$7,859
Depreciation Depletion-$5,322-$5,322
Fees for Service Investment Mgmnt Fees-$5,110-$5,110
Total Functional Expenses$1,102,615$531,242$295,560$1,929,417
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Fund for a Healthier ColoradoDenver, CO501(c)(3)Chronic Care Collaborative Navigator Program to Assist Coloradans Livingwith Neurodegenerative Diseases and Their Caregivers. Covid-19 Emergency Response Project$85,000
National Alliance for CaregivingWashington, DC501(c)(3)GRANT 114 NAFC; WHILE THIS PROJECT WILL HIGHLIGHT THE NEEDS OF CAREGIVERS OF PEOPLE LIVING WITH A NEURODEGENERATIVE DISEASE SUCH AS ALZHEIMER'SDISEASE, AMYOTROPHIC LATERAL SCLEROSIS, HUNTINGTON'S DISEASE, MULTIPLE SCLEROSIS, AND PARKINSON'S DISEASE, THE RESOURCES AGGREGATED WILL APPLY TO CAREGIVERS AT ALL STAGE OF LIFE AND INCLUDE DISEASE-AGNOSTIC RESOURCES.$79,954
Senior NavigatorNorth Chesterfield, VA501(c)(3)PROVIDE HELPFUL, FREE INFORMATION AND GUIDANCE TO OLDER ADULTS, PEOPLE WITH DISABILITIES, VETERANS, AND THEIR CAREGIVERS AND FAMILIES VIA AN ACCESSIBLE "HIGH-TECH AND HIGH-TOUCH" APPROACH.$75,501
Compassionate Care Als IncWest Falmouth, MA501(c)(3)DEVELOPING A VOLUNTEER CAREGIVER PROGRAM (VCP) AT THE REQUEST OF OUR CURRENT AND FORMER FAMILIES. THIS PROGRAM, INITIALLY FUNDED WITH $25,000 FROM MT PHARMA, WILL PROVIDE ONGOING TRAINING TO CURRENT AND FORMER CAREGIVERS AND FAMILY MEMBERS OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) PATIENTS.$75,000
Family Caregiver AllianceSan Francisco, CA501(c)(3)ENHANCED NEURODEGENERATIVE DISEASE CAREGIVER SUPPORT: A THREE-PRONGED APPROACH$75,000
I Am AlsPalo Alto, CA501(c)(3)Iinitiatives That Expand the Impact of the Navigation Program in Response to Stated Needs Ofthe Community. the Peer Support Initiative, Developed in Response to the Isolating Impact of Als,connects Patients and Caregivers With Each Other for Additional Support and Guidance on Theexperience of Living With Als. the Soon-to-launch Caregivers Platform Will Be an Online Tool Forcaregivers to Nd Affordable Home Health Care Workers With Als Experience.$75,000
Bangor YmcaBangor, ME501(c)(3)Combines Physical Exercise With Social Wellness and Educational Programming in a Community Setting. the Goal Is to Improve He Mental and Physical Wellness of Individuals Living With Nd and Their Caregivers and Prevent Further Deterioration.$60,000
American Parkinson Disease AssociationNew York, NY501(c)(3)Assist the National Multiple Sclerosis Societyin Responding to Immediate Needs of Patients and Caregivers in Response to Emergency Needs Due to Covid-19.$10,000
HUNTINGTON'S DISEASE SOCIETY OF AMERICANew York, NY501(c)(3)Convert Annual Convention to Virtual Experience$10,000
National Ms SocietyStaten Island, NY501(c)(3)Direct Financial Assistance for Self-expressed Needs Including Medication, Respite Care, Home-health Aid, Transportation, Childcare Assistance, Adaptive Equipment, Utility Bill Payment, Emergency Housing Expenses, and Food Assistance$10,000
Regent of University of ColoradoDenver, CO501(c)(3)One-on-one Wellness Assessments (how Is Nd Diagnosed Individual, Is the Caregiver Able to Care for Them, How Is the Caregiver) by Telephone or Video Teleconference$10,000
Rocky Mountain Ms CenterWestminster, CO501(c)(3)Work With Individuals Living With Ms and Related Neurological Diseases During the Covid-19 Pandemic in a Variety of Ways.$10,000
Baker RipleyHouston, TX501(c)(3)Responding to Immediate Needs of Patients and Caregivers in Response to Emergency Needs Due to Covid-19.$9,741
Als Association Dcmdva ChapterRockville, MD501(c)(3)Transition People With Als and Their Caregivers to Virtual Support$8,216
Parkinsons Resources of OregonBeaverton, OR501(c)(3)Covid-19 Outreach and Online Response$7,500
New Horizons Service DogsOrange City, FL501(c)(3)Provides Emergency Financial Aid to Service Dog Owners Facing a Veterinarian Emergency$7,325
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Ppp Loan$133,620
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Adira engages fractional chief financial officer (cfo) consultants to serve the financial management function, including review of business practices and financial controls in accordance with generally accepted accounting principles. Adira will look to make that job function permanent and brought in-house as our needs and capacity demands. Organization's process to review form 990: the cfo and chief executive officer (ceo) review and discuss the 990. After which they present the 990 to the board for their review before it is filed with the irs.”

Form 990, Part VI, Section B, Line 12C

“Enforcement of conflicts policy: any potential conflict of interest is required to be disclosed. Each member of the board must annually declare and attest to any potential conflict of interest. At the annual meeting the board discusses those attestations and approves of how to proceed in response, in alignment with the conflict of interest policy.”

Form 990, Part VI, Section B, Line 15

“Compensation process for top official: the board meets annually to determine the compensation and benefits package of the organization's ceo. The board evaluates performance relative to annual targets set. The board also factors in comparability data, cash on hand, and current independent compensation analyses. The board then approves annual compensation for the ceo and documents contemporaneous substantiation of their deliberation and decision. Compensation process for officers: the board works with the ceo and cfo annually to develop and approve the budget for the following fiscal year which includes a compensation for key employees.”

Form 990, Part VI, Section C, Line 19

“Adira foundation makes its governing documents and conflict of interest policy available to the public through the virginia state corporation commission, other media, and is available upon request.”

Filing and Contact Details

Filer

Filer Name
Adira Foundation
EIN
82-5023726
Phone
8774260712
Address
7330 STAPLES MILL ROAD 288, RICHMOND, VA 23228

Signing Officer

Name
Greg Smiley
Title
Ex Officio
Phone
8774260712
Signed
2021-10-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Greg Smiley
Formed
2018
Legal Domicile
Va
Voting Board Members
8
Independent Board Members
8
Employees
8
Volunteers
0

Preparer

Firm
Keiterstephenshurstgary & Shreavespc
Address
4401 DOMINION BLVD, GLEN ALLEN, VA 23060
Preparer
Jayme Mika
Phone
8047470000
Supplemental Narrative

Additional Explanations

FORM 990, PART XI, LINE 9:

“Asset from caring voice coalition 4,222,044. Difference in net assets -26,221.”

Financial Statement Notes

PART X, LINE 2:

“Management has evaluated the effects of accounting guidance related to uncertain income tax positions and concluded that the foundation had no significant financial statement exposure to uncertain income tax positions at december 31, 2020. The foundation is not currently under audit by any tax jurisdiction.”

PART X, LINE 2 - SUPPLEMENTAL INFORMATION:

“In september 2021 keiter certified public accountants & consultants completed an independent review of the adira 2020 financial statements, as is common practice for a new organization in its first full year of programming. According to the keiter report issued on september 23, 2021, "based on our review, we are not aware of any material modifications that should be made to the accompanying financial statement in order for them to be in accordance with accounting principles generally accepted in the united states."”

Raw XML AppendixShowing 400 of 608 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd01
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt031325
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt061237
IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/ActivitiesConductedPrtshpInd00
IRS990/ActivityOrMissionDesc0TO INVEST IN BETTER LIVES FOR PEOPLE WITH NEURODEGENERATIVE DISEASES. INITIALLY, ADIRA FOUNDATION (ADIRA) WILL FOCUS ON FIVE NEURODEGENERATIVE DISEASES THAT ARE HIGHLY COMPLEX AND HAVE MUCH IN COMMON: ALZHEIMER'S DISEASE AND RELATED DEMENTIAS, ALS, HUNTINGTON'S DISEASE, MULTIPLE SCLEROSIS, AND PARKINSON'S DISEASE.
IRS990/AddressChangeInd0X
IRS990/AdvertisingGrp/FundraisingAmt029743
IRS990/AdvertisingGrp/TotalAmt029743
IRS990/AllOtherContributionsAmt042420
IRS990/AnnualDisclosureCoveredPrsnInd01
IRS990/AuditCommitteeInd00
IRS990/BackupWthldComplianceInd01
IRS990/BooksInCareOfDetail/PersonNm0STEPHEN GATHINGU
IRS990/BooksInCareOfDetail/PhoneNum08048331792
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt07330 STAPLES MILL ROAD 288
IRS990/BooksInCareOfDetail/USAddress/CityNm0RICHMOND
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0VA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd023228
IRS990/BusinessRlnWith35CtrlEntInd00
IRS990/BusinessRlnWithFamMemInd00
IRS990/BusinessRlnWithOrgMemInd00
IRS990/CashNonInterestBearingGrp/BOYAmt067868
IRS990/CashNonInterestBearingGrp/EOYAmt0321714
IRS990/ChangeToOrgDocumentsInd00
IRS990/CntrctRcvdGreaterThan100KCnt00
IRS990/CollectionsOfArtInd00
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt060721
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt075584
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt089187
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt0225492
IRS990/CompensationFromOtherSrcsInd00
IRS990/CompensationProcessCEOInd01
IRS990/CompensationProcessOtherInd01
IRS990/ConflictOfInterestPolicyInd01
IRS990/ConservationEasementsInd00
IRS990/ConsolidatedAuditFinclStmtInd00
IRS990/CreditCounselingInd00
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt042420
IRS990/CYGrantsAndSimilarPaidAmt0614632
IRS990/CYInvestmentIncomeAmt0675
IRS990/CYOtherExpensesAmt0482041
IRS990/CYOtherRevenueAmt0127
IRS990/CYProgramServiceRevenueAmt00
IRS990/CYRevenuesLessExpensesAmt0-1886195
IRS990/CYSalariesCompEmpBnftPaidAmt0832744
IRS990/CYTotalExpensesAmt01929417
IRS990/CYTotalFundraisingExpenseAmt0295560
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt043222
IRS990/DecisionsSubjectToApprovaInd00
IRS990/DeductibleArtContributionInd00
IRS990/DeductibleNonCashContriInd00
IRS990/DelegationOfMgmtDutiesInd00
IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt05322
IRS990/DepreciationDepletionGrp/TotalAmt05322
IRS990/Desc0ADIRA'S PROGRAM ACTIVITIES HAVE FOLLOWED ITS "LISTEN, LEARN, AND THEN ACT" APPROACH TO INVEST IN BETTER LIVES FOR PEOPLE WITH NEURODEGENERATIVE DISEASES, STARTING WITH FIVE COMMUNITIES: ALS, ALZHEIMER'S AND RELATED DEMENTIAS, HUNTINGTON'S DISEASE, MULTIPLE SCLEROSIS AND PARKINSON'S DISEASE.ADIRA SPOKE WITH AND LEARNED WHICH UNMET NEEDS WERE OF MOST PRIORITY TO PATIENTS AND CAREGIVERS, THROUGH HOSTING ONLINE CONVENINGS OF PATIENTS AND GRANTEES; COLLECTING STORIES; JOINING SUPPORT GROUPS, CONDUCTING SURVEYS, AND CO-HOSTING A CAREGIVERS TOWN HALL TALKING TO HUNDREDS OF PEOPLE IN THE NEURODEGENERATIVE DISEASE SPACE.ADIRA ACTED BY DISTRIBUTING $100,000 TO 12 NONPROFITS AROUND THE COUNTRY WHO COLLECTIVELY REACH MORE THAN 500,000 PEOPLE LIVING WITH NEURODEGENERATIVE DISEASES AND THEIR CAREGIVERS. THE PROJECTS FAST-TRACKED AN EMERGENCY RESPONSE TO HEALTH-RELATED NON-PROFITS NEEDING TO PIVOT TO CIRCUMSTANCES CAUSED BY COVID-19. ADIRA CONVENED THOSE GRANTEES TO THEN HELP CROWD-SOURCE WHICH PRIORITIES ADIRA SHOULD IMPLEMENT FOR ITS SECOND ROUND OF GRANTS. THROUGH THAT CONVERSATION, AS WELL AS WHAT ADIRA WAS HEARING AND LEARNING FROM PEOPLE IMPACTED BY THESE DISEASES, THREE ISSUES ROSE TO THE TOP WHICH ADIRA SET AS PRIORITY TOPICS FOR ITS SECOND ROUND OF GRANTS, LAUNCHED IN THE FALL OF 2020: 1. CAREGIVER MENTAL HEALTH, 2. CARE COORDINATION AND NAVIGATION, AND 3. SHARING RESOURCES THAT WORK.ADIRA ALSO PARTNERED WITH OTHER NONPROFITS ON THE DESIGN AND IMPLEMENTATION OF THREE DEMONSTRATION PROJECTS DIRECTLY SERVING PATIENTS AND CAREGIVERS. 1. TO CREATE AN ONLINE, CROWDSOURCED CAREGIVER RESOURCE CLEARINGHOUSE, 2. TO MAP THE NETWORK OF NEURODEGENERATIVE DISEASE-RELATED ORGANIZATIONS AND SERVICES IN VIRGINIA AND THEN APPLY RESULTS AND LESSONS FOR SCALING THE PROGRAM BEYOND VIRGINIA, 3. TO RECORD AUDIO CONVERSATIONS TO HEAR FIRSTHAND FROM PEOPLE IMPACTED BY THESE DISEASES IN ORDER TO PROMOTE THE SPECIFIC NEEDS OF THE PERSON FIRST AS AN "INDIVIDUAL", NOT AS A "PATIENT", 4. ADIRA CONTINUED TO MONITOR AND EVALUATE THE EXTENSION OF A FOURTH DEMONSTRATION PROJECT THAT BEGAN IN 2019 WITH THE HUNTINGTON'S DISEASE SOCIETY OF AMERICA REGARDING LEGAL ADVOCACY AND SUPPORT FOR THOSE SEEKING DISABILITY BENEFITS. ADIRA LOOKS TO APPLY LESSONS LEARNED TO OTHER NEURODEGENERATIVE DISEASE POPULATIONS. ADIRA FURTHER LEARNED HOW TO REFINE AND IMPROVE ITS MODEL BY INVESTING IN RESEARCH WITH TWO MAJOR PROJECTS: 1. ADIRA WORKED WITH GEORGE WASHINGTON UNIVERSITY SCHOOL OF PUBLIC HEALTH TO CONDUCT KEY INFORMANT INTERVIEWS AND MAKE RECOMMENDATIONS FOR APPLYING THE LARGE-SCALE, INTEGRATED MULTILATERAL FUNDING MODELTYPICALLY SEEN IN INFECTIOUS DISEASES SUCH AS HIV/AIDS, TUBERCULOSIS AND OTHERS TO ACHIEVE SIMILARLY TRANSFORMATIVE IMPACT FOR NEURODEGENERATIVE DISEASES, 2. ADIRA WORKED WITH A GROUP OF DIVERSITY, EQUITY, AND INCLUSION EXPERTS TO ENGAGE COMMUNITIES OF COLOR IN DRIVING MORE EFFECTIVE CHANGE IN THE NEURODEGENERATIVE DISEASE SPACE.
IRS990/DescribedInSection501c3Ind01
IRS990/DisregardedEntityInd00
IRS990/DocumentRetentionPolicyInd00
IRS990/DonorAdvisedFundInd00
IRS990/DonorRstrOrQuasiEndowmentsInd00
IRS990/ElectionOfBoardMembersInd00
IRS990/EmployeeCnt08
IRS990/EmploymentTaxReturnsFiledInd01
IRS990/EngagedInExcessBenefitTransInd00
IRS990/ExpenseAmt01102615
IRS990/FamilyOrBusinessRlnInd00
IRS990/FederalGrantAuditRequiredInd00
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt076659
IRS990/FeesForServicesAccountingGrp/TotalAmt076659
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt07859
IRS990/FeesForServicesLegalGrp/TotalAmt07859
IRS990/FeesForServicesOtherGrp/FundraisingAmt029100
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt028153
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt060725
IRS990/FeesForServicesOtherGrp/TotalAmt0117978
IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt05110
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt05110
IRS990/ForeignActivitiesInd00
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt04.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt12.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt22.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt31.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt41.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt51.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt61.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt71.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt81.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt940.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt1040.00
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd7X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd8X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt80
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt917050
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt1014521
IRS990/Form990PartVIISectionAGrp/PersonNm0CYNTHIA GOMEZ
IRS990/Form990PartVIISectionAGrp/PersonNm1ALAN J ABRAMSOM
IRS990/Form990PartVIISectionAGrp/PersonNm2ZENAWIT MELESSE
IRS990/Form990PartVIISectionAGrp/PersonNm3HELEN FRARY
IRS990/Form990PartVIISectionAGrp/PersonNm4TODD EVENSON
IRS990/Form990PartVIISectionAGrp/PersonNm5BRUCE PACKETT
IRS990/Form990PartVIISectionAGrp/PersonNm6BRUCE RECTOR MD
IRS990/Form990PartVIISectionAGrp/PersonNm7CHERYL SULLIVAN STAVELEY
IRS990/Form990PartVIISectionAGrp/PersonNm8LAURA HANEN
IRS990/Form990PartVIISectionAGrp/PersonNm9GREG SMILEY
IRS990/Form990PartVIISectionAGrp/PersonNm10MARILYN SPINNER
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt9217198
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10148891
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/TitleTxt0BOARD CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY/TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt10CHIEF DEV AND EXT AFFAIRS OFFICER
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr02018
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedInd00
IRS990/FundraisingActivitiesInd00
IRS990/GainOrLossGrp/OtherAmt0-51522
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt08
IRS990/GrantAmt0614632
IRS990/GrantsPayableGrp/EOYAmt0360000
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0614632
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0614632
IRS990/GrantsToIndividualsInd00
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossReceiptsAmt094744
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd00
IRS990/IndependentVotingMemberCnt08
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIInd0X
IRS990/InvestmentIncomeGrp/ExclusionAmt052197
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt052197
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt02094016
IRS990/IRPDocumentCnt016
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt019141
IRS990/LandBldgEquipBasisNetGrp/BOYAmt069543
IRS990/LandBldgEquipBasisNetGrp/EOYAmt012699
IRS990/LandBldgEquipCostOrOtherBssAmt031840
IRS990/LegalDomicileStateCd0VA
IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt051522
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO INVEST IN BETTER LIVES FOR PEOPLE WITH NEURODEGENERATIVE DISEASES, IN ADIRA'S EARLY YEARS, WE WILL FOCUS PRINCIPALLY, THOUGH NOT EXCLUSIVELY, ON FIVE NEURODEGENERATIVE DISEASES: ALS, ALZHEIMER'S AND RELATED DEMENTIAS, HUNTINGTON'S DISEASE, MULTIPLE SCLEROSIS, AND PARKINSON'S DISEASE.AT ADIRA WE ACCELERATE THE DESIGN AND FUNDING OF BETTER, MORE INTEGRATED HELP FOR PEOPLE WHO NEED IT NOW. WE ASSEMBLE A HANDFUL OF DISEASES THAT STRUGGLE WITH MANY OF THE SAME BIG THINGS. WE TAKE THEM OUT OF ISOLATION WHERE THEY'RE DEFINED NOT BY THEIR DIAGNOSIS BUT BY THEIR STRUGGLE. FROM A BIRD'S-EYE VIEW, WE SEE THE COMMON THEMES AND TRENDS. WE SPEAK WITH PEOPLE GOING THROUGH THIS JOURNEY TO DESIGN BETTER PROGRAMS "WITH" THEM, NOT JUST "FOR" THEM. THEN WE FUND THOSE BIGGER, COMMON PROBLEMS WITH WHICH THEY SAY THEY NEED THE MOST HELP. SOME EXAMPLES OF OUR WORK TO DATE FOCUS ON CAREGIVING, NAVIGATION OF DIFFERENT SERVICES, DISABILITY, EQUITY, MEASUREMENTS FOR QUALITY OF LIFE, AND MENTAL HEALTH.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt099699
IRS990/NetAssetsOrFundBalancesEOYAmt02361484
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0-51522
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-51522
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-47843
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt099699
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt02361484
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt075876
IRS990/OccupancyGrp/TotalAmt075876
IRS990/OfficeExpensesGrp/FundraisingAmt01300
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt09970
IRS990/OfficeExpensesGrp/ProgramServicesAmt01380
IRS990/OfficeExpensesGrp/TotalAmt012650
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt00
IRS990/OtherAssetsTotalGrp/EOYAmt0819
IRS990/OtherChangesInNetAssetsAmt04195823
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt037005
IRS990/OtherEmployeeBenefitsGrp/TotalAmt037005
IRS990/OtherExpensesGrp/Desc0RESEARCH EXPENSES
IRS990/OtherExpensesGrp/Desc1ADMINISTRATIVE EXPENSES
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt043158
IRS990/OtherExpensesGrp/ProgramServicesAmt096510
IRS990/OtherExpensesGrp/TotalAmt096510
IRS990/OtherExpensesGrp/TotalAmt143158
IRS990/OtherLiabilitiesGrp/BOYAmt011587
IRS990/OtherLiabilitiesGrp/EOYAmt0133620
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0MISCELLANEOUS INCOME
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt0127
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt0127
IRS990/OtherRevenueTotalAmt0127
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0163520
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt098487
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0240181
IRS990/OtherSalariesAndWagesGrp/TotalAmt0502188
IRS990/OtherWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt048457
IRS990/PayrollTaxesGrp/TotalAmt048457
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt019602
IRS990/PensionPlanContributionsGrp/TotalAmt019602
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt05200
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt03695
IRS990/PrincipalOfficerNm0GREG SMILEY
IRS990/ProfessionalFundraisingInd00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt03899
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0250000
IRS990/PYInvestmentIncomeAmt00
IRS990/PYOtherExpensesAmt0846705
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-1698543
IRS990/PYSalariesCompEmpBnftPaidAmt0605737
IRS990/PYTotalExpensesAmt01702442
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt03899
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0-1886195
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd01
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0483398
IRS990ScheduleA/First5Years170Ind0X
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt042420
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt03899
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt046319
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportTotal170Amt021331
IRS990ScheduleA/SubstantialContributorsTotAmt024988
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt042420
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt03899
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt046319
IRS990ScheduleA/TotalSupportAmt046319
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt012699
IRS990ScheduleD/EquipmentGrp/DepreciationAmt019141
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt031840
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt0133620
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0PPP LOAN
IRS990ScheduleD/OtherSecuritiesGrp/BookValueAmt02094016
IRS990ScheduleD/OtherSecuritiesGrp/Desc0ASSET-BACKED SECURITIES
IRS990ScheduleD/OtherSecuritiesGrp/MethodValuationCd0F
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0MANAGEMENT HAS EVALUATED THE EFFECTS OF ACCOUNTING GUIDANCE RELATED TO UNCERTAIN INCOME TAX POSITIONS AND CONCLUDED THAT THE FOUNDATION HAD NO SIGNIFICANT FINANCIAL STATEMENT EXPOSURE TO UNCERTAIN INCOME TAX POSITIONS AT DECEMBER 31, 2020. THE FOUNDATION IS NOT CURRENTLY UNDER AUDIT BY ANY TAX JURISDICTION.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1IN SEPTEMBER 2021 KEITER CERTIFIED PUBLIC ACCOUNTANTS & CONSULTANTS COMPLETED AN INDEPENDENT REVIEW OF THE ADIRA 2020 FINANCIAL STATEMENTS, AS IS COMMON PRACTICE FOR A NEW ORGANIZATION IN ITS FIRST FULL YEAR OF PROGRAMMING. ACCORDING TO THE KEITER REPORT ISSUED ON SEPTEMBER 23, 2021, "BASED ON OUR REVIEW, WE ARE NOT AWARE OF ANY MATERIAL MODIFICATIONS THAT SHOULD BE MADE TO THE ACCOMPANYING FINANCIAL STATEMENT IN ORDER FOR THEM TO BE IN ACCORDANCE WITH ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES."
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc1PART X, LINE 2 - SUPPLEMENTAL INFORMATION:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt012699
IRS990ScheduleD/TotalBookValueSecuritiesAmt02094016
IRS990ScheduleD/TotalLiabilityAmt0133620
IRS990ScheduleI/GrantRecordsMaintainedInd00
IRS990ScheduleI/RecipientTable/CashGrantAmt085000
IRS990ScheduleI/RecipientTable/CashGrantAmt179954
IRS990ScheduleI/RecipientTable/CashGrantAmt275501
IRS990ScheduleI/RecipientTable/CashGrantAmt375000
IRS990ScheduleI/RecipientTable/CashGrantAmt475000
IRS990ScheduleI/RecipientTable/CashGrantAmt575000
IRS990ScheduleI/RecipientTable/CashGrantAmt660000
IRS990ScheduleI/RecipientTable/CashGrantAmt710000
IRS990ScheduleI/RecipientTable/CashGrantAmt810000
IRS990ScheduleI/RecipientTable/CashGrantAmt910000
IRS990ScheduleI/RecipientTable/CashGrantAmt1010000
IRS990ScheduleI/RecipientTable/CashGrantAmt1110000
IRS990ScheduleI/RecipientTable/CashGrantAmt129741
IRS990ScheduleI/RecipientTable/CashGrantAmt138216
IRS990ScheduleI/RecipientTable/CashGrantAmt147500
IRS990ScheduleI/RecipientTable/CashGrantAmt157325
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc3501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc4501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc5501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc6501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc7501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc8501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc9501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc10501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc11501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc12501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc13501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc14501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc15501(C)(3)
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0CHRONIC CARE COLLABORATIVE NAVIGATOR PROGRAM TO ASSIST COLORADANS LIVINGWITH NEURODEGENERATIVE DISEASES AND THEIR CAREGIVERS. COVID-19 EMERGENCY RESPONSE PROJECT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1GRANT 114 NAFC; WHILE THIS PROJECT WILL HIGHLIGHT THE NEEDS OF CAREGIVERS OF PEOPLE LIVING WITH A NEURODEGENERATIVE DISEASE SUCH AS ALZHEIMER'SDISEASE, AMYOTROPHIC LATERAL SCLEROSIS, HUNTINGTON'S DISEASE, MULTIPLE SCLEROSIS, AND PARKINSON'S DISEASE, THE RESOURCES AGGREGATED WILL APPLY TO CAREGIVERS AT ALL STAGE OF LIFE AND INCLUDE DISEASE-AGNOSTIC RESOURCES.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2PROVIDE HELPFUL, FREE INFORMATION AND GUIDANCE TO OLDER ADULTS, PEOPLE WITH DISABILITIES, VETERANS, AND THEIR CAREGIVERS AND FAMILIES VIA AN ACCESSIBLE "HIGH-TECH AND HIGH-TOUCH" APPROACH.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3ENHANCED NEURODEGENERATIVE DISEASE CAREGIVER SUPPORT: A THREE-PRONGED APPROACH
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt4IINITIATIVES THAT EXPAND THE IMPACT OF THE NAVIGATION PROGRAM IN RESPONSE TO STATED NEEDS OFTHE COMMUNITY. THE PEER SUPPORT INITIATIVE, DEVELOPED IN RESPONSE TO THE ISOLATING IMPACT OF ALS,CONNECTS PATIENTS AND CAREGIVERS WITH EACH OTHER FOR ADDITIONAL SUPPORT AND GUIDANCE ON THEEXPERIENCE OF LIVING WITH ALS. THE SOON-TO-LAUNCH CAREGIVERS PLATFORM WILL BE AN ONLINE TOOL FORCAREGIVERS TO ND AFFORDABLE HOME HEALTH CARE WORKERS WITH ALS EXPERIENCE.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt5DEVELOPING A VOLUNTEER CAREGIVER PROGRAM (VCP) AT THE REQUEST OF OUR CURRENT AND FORMER FAMILIES. THIS PROGRAM, INITIALLY FUNDED WITH $25,000 FROM MT PHARMA, WILL PROVIDE ONGOING TRAINING TO CURRENT AND FORMER CAREGIVERS AND FAMILY MEMBERS OF AMYOTROPHIC LATERAL SCLEROSIS (ALS) PATIENTS.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt6COMBINES PHYSICAL EXERCISE WITH SOCIAL WELLNESS AND EDUCATIONAL PROGRAMMING IN A COMMUNITY SETTING. THE GOAL IS TO IMPROVE HE MENTAL AND PHYSICAL WELLNESS OF INDIVIDUALS LIVING WITH ND AND THEIR CAREGIVERS AND PREVENT FURTHER DETERIORATION.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt7CONVERT ANNUAL CONVENTION TO VIRTUAL EXPERIENCE
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt8ASSIST THE NATIONAL MULTIPLE SCLEROSIS SOCIETYIN RESPONDING TO IMMEDIATE NEEDS OF PATIENTS AND CAREGIVERS IN RESPONSE TO EMERGENCY NEEDS DUE TO COVID-19.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt9DIRECT FINANCIAL ASSISTANCE FOR SELF-EXPRESSED NEEDS INCLUDING MEDICATION, RESPITE CARE, HOME-HEALTH AID, TRANSPORTATION, CHILDCARE ASSISTANCE, ADAPTIVE EQUIPMENT, UTILITY BILL PAYMENT, EMERGENCY HOUSING EXPENSES, AND FOOD ASSISTANCE
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt10WORK WITH INDIVIDUALS LIVING WITH MS AND RELATED NEUROLOGICAL DISEASES DURING THE COVID-19 PANDEMIC IN A VARIETY OF WAYS.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt11ONE-ON-ONE WELLNESS ASSESSMENTS (HOW IS ND DIAGNOSED INDIVIDUAL, IS THE CAREGIVER ABLE TO CARE FOR THEM, HOW IS THE CAREGIVER) BY TELEPHONE OR VIDEO TELECONFERENCE
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt12RESPONDING TO IMMEDIATE NEEDS OF PATIENTS AND CAREGIVERS IN RESPONSE TO EMERGENCY NEEDS DUE TO COVID-19.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt13TRANSITION PEOPLE WITH ALS AND THEIR CAREGIVERS TO VIRTUAL SUPPORT
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt14COVID-19 OUTREACH AND ONLINE RESPONSE
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt15PROVIDES EMERGENCY FINANCIAL AID TO SERVICE DOG OWNERS FACING A VETERINARIAN EMERGENCY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0THE FUND FOR A HEALTHIER COLORADO
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1NATIONAL ALLIANCE FOR CAREGIVING
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2SENIOR NAVIGATOR
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3FAMILY CAREGIVER ALLIANCE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4I AM ALS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt5COMPASSIONATE CARE ALS INC
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt6BANGOR YMCA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt7HUNTINGTON'S DISEASE SOCIETY OF AMERICA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt8AMERICAN PARKINSON DISEASE ASSOCIATION
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt9NATIONAL MS SOCIETY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt10ROCKY MOUNTAIN MS CENTER
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt11REGENT OF UNIVERSITY OF COLORADO
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt12BAKER RIPLEY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt13ALS ASSOCIATION DCMDVA CHAPTER
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt14PARKINSONS RESOURCES OF OREGON
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt15NEW HORIZONS SERVICE DOGS
IRS990ScheduleI/RecipientTable/RecipientEIN0474101801
IRS990ScheduleI/RecipientTable/RecipientEIN1521931357
IRS990ScheduleI/RecipientTable/RecipientEIN2541977334
IRS990ScheduleI/RecipientTable/RecipientEIN3942687079
IRS990ScheduleI/RecipientTable/RecipientEIN4832016277
IRS990ScheduleI/RecipientTable/RecipientEIN5043567819
IRS990ScheduleI/RecipientTable/RecipientEIN6010211485
IRS990ScheduleI/RecipientTable/RecipientEIN7133349872
IRS990ScheduleI/RecipientTable/RecipientEIN8135661935
IRS990ScheduleI/RecipientTable/RecipientEIN9131962771
IRS990ScheduleI/RecipientTable/RecipientEIN10840795455
IRS990ScheduleI/RecipientTable/RecipientEIN11846000555
IRS990ScheduleI/RecipientTable/RecipientEIN12237062976

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,916,341
Liabilities
$554,857
Net assets
$2,361,484
Revenue
$43,222
Expenses
$1,929,417
Net income
-$1,886,195
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.03$0.03
2022Detailed filing. Detailed filing data is available for this year.$0.05$0.02$0.03$0.19$2.17$1.98
2021Detailed filing. Detailed filing data is available for this year.$2.12$0.06$2.06$1.07$1.28$0.21
2020Detailed filing. Detailed filing data is available for this year.$2.92$0.55$2.36$0.04$1.93$1.89
2019Detailed filing. Detailed filing data is available for this year.$0.14$0.04$0.10$0.00$1.70$1.70