Adira Foundation

“Adira engages fractional chief financial officer (cfo) consultants to serve the financial management function, including review of business practices and financial controls in accordance with generally accepted accounting principles. Adira will look to make that job function permanent and brought in-house as our needs and capacity demands. Organization's process to review form 990: the cfo and chief executive officer (ceo) review and discuss the 990. After which they present the 990 to the board for their review before it is filed with the irs.”

“Enforcement of conflicts policy: any potential conflict of interest is required to be disclosed. Each member of the board must annually declare and attest to any potential conflict of interest. At the annual meeting the board discusses those attestations and approves of how to proceed in response, in alignment with the conflict of interest policy.”

“The board meets annually to determine the compensation and benefits package of the organization's ceo. The board evaluates performance relative to annual targets set. The board also factors in comparability data, cash on hand, and current independent compensation analyses. The board then approves annual compensation for the ceo and documents contemporaneous substantiation of their deliberation and decision.”

“The board works with the ceo and cfo annually to develop and approve the budget for the following fiscal year which includes a compensation for key employees.”

“Adira foundation makes its governing documents and conflict of interest policy available to the public through the virginia state corporation commission, other media, and is available upon request.”

“Since its founding, Adira Foundation continues to build and fund better and more responsive services, co-designed from the patient/caregiver point-of-view. We do that through multiple listening and learning activities, but also in funding non-profits throughout the United States in both direct awards and competitive grants. From $100,000 in Round 1 to $260,000 in Round 2, Adiras 2021 Active program year continues to grow by investing in non-profits. (Round 3 was funded in early 2022). Simply put, we ask people what they still need but arent getting, and we ask what better help would look like. Then we fund those things most important to them, and in the ways they want to see it. We take on those common, cross-cutting issues that appear too big for anyone to own, such as caregiving, mental health, navigation of services, making clinical research easier, Disability, Life after leaving the workforce, and similar issues. Moving forward, our commitment to fund better, more responsive programs comes from building Round 4 and other projects through activities such as our Neurodegenerative Disease (ND) Congress. There, At ND Congress events, we bring patients and caregiversacross multiple disease statesin congress with those stakeholders who provide those services, including private, non-profit, and public-sector entities. By the numbers in 2022, Adira monitored implementation of 17 competitive grants from two rounds of funding, nurtured 4 ongoing demonstration projects in caregiving, navigation, story collection, and Social Security Disability. We sponsored three events, one blog series, one peer support program, and reported out on extensive research project among 50+ tools measuring quality of life to find best practices and common ground, towards standardizing something more usable and responsive. Lessons from our second round of competitive grants (obligated in December 2020) led to our third round (announced in Fall 2021) for three areas: simplifying clinical research, preparing for threats to livelihood, and on building confidence and relationships by thriving again through common pursuits. Our Impact Reports detailing these annual activities can be found on our website: https://adirafoundation.org”