Civic Intelligence

Rare Access Action Project Inc

990 • Fiscal year 2023 • EIN 82-4433613

Jan 01, 2023 to Dec 31, 2023 • Filed on Jun 12, 2024

Organization Profilewww.rareaccessactionproject.com
1012 14th St NW 500Washington, DC 20005

(202) 731-1275

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)4 • <$500k nonprofits • Source year 2023

Liabilities / Revenue

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2023 filings • 501(c)4 • <$500k nonprofits • Source year 2023

Net Margin

2nd percentile

-364%

Higher net margin than 2% of similar nonprofits.

2023 filings • 501(c)4 • <$500k nonprofits • Source year 2023

Top Officer Pay

99th percentile

$183,000

Higher top officer pay than 99% of similar nonprofits.

Top officer pay equals 86.3% of source-year revenue.

2023 filings • 501(c)4 • <$500k nonprofits • Source year 2023

Asset Growth

3rd percentile

-90%

Faster asset growth than 3% of similar nonprofits.

2023 filings • 501(c)4 • <$500k nonprofits • Annualized from 2022 to 2023

Revenue Growth

4th percentile

-91%

Faster revenue growth than 4% of similar nonprofits.

2023 filings • 501(c)4 • <$500k nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets56th percentile

Assets

Down

$89,120

Down $771,541 (-90%) from 2022

Net Assets

Down

$89,120

Down $771,541 (-90%) from 2022

Liabilities

Flat

$0

Flat from 2022

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin2nd percentile

Revenue

Down

$211,979

Down $2,233,186 (-91%) from 2022

Expenses

Down

$983,520

Down $2,073,367 (-68%) from 2022

Net Income

Down

-$771,541

Down $159,819 (-26%) from 2022

Historical Trend

Balance Sheet Trend

Asset Growth3rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2020: $359,489Liabilities 2020: $0Net Assets 2020: $359,4892020Assets 2021: $1,472,383Liabilities 2021: $0Net Assets 2021: $1,472,3832021Assets 2022: $860,661Liabilities 2022: $0Net Assets 2022: $860,6612022Assets 2023: $89,120Liabilities 2023: $0Net Assets 2023: $89,1202023Assets 2024: $441,558Liabilities 2024: $0Net Assets 2024: $441,5582024

Highlighted filing

2023

Assets$89,120
Liabilities$0
Net Assets$89,120
Open 2023 Filing

Operations Trend

Revenue Growth4th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2020: $493,351Expenses 2020: $379,717Net Income 2020: $113,6342020Revenue 2021: $5,569,250Expenses 2021: $4,456,356Net Income 2021: $1,112,8942021Revenue 2022: $2,445,165Expenses 2022: $3,056,887Net Income 2022: -$611,7222022Revenue 2023: $211,979Expenses 2023: $983,520Net Income 2023: -$771,5412023Revenue 2024: $710,027Expenses 2024: $357,589Net Income 2024: $352,4382024

Highlighted filing

2023

Revenue$211,979
Expenses$983,520
Net Income-$771,541
Open 2023 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2023 to Dec 31, 2023
Signed
Jun 12, 2024
Return Version
2023v5.0
Gross Receipts
$211,979
Mission and Program Overview

Mission

RAAP is a coalition of life sciences and patent stakeholders that explores creative policy solutions to address structural issues is access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments they need.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$857,507$89,119▼ $768,388
Prepaid Expenses and Deferred Charges$3,154$0▼ $3,154
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Total Assets$860,661$89,120▼ $771,541
Other Assets Total-$1-
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$860,661$89,120▼ $771,541
Total Net Assets Fund Balance$860,661$89,120▼ $771,541
Total Liabilities and Net Assets / Fund Balance$860,661$89,120▼ $771,541
Compensation and Service Providers
Top Officer Pay99th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Michael EgingChairmanPT$183,000$183,000
Evan KozlowTreasurerPT$135,000$135,000

Board Members and Trustees

NameTitle
Tara BrittDirector
Chuck ClaptonSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$211,500
Program Service Revenue
$0
Investment Income
$479
Other Revenue
$0
All Other Contributions
$211,500
Change in Net Assets
$-771,541
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$558,620
Salaries, Compensation, and Employee Benefits$318,000
Grants and Similar Amounts Paid$106,900
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$159,000$159,000-$318,000
Fees for Services Management$140,500$140,500-$281,000
Fees for Services Other$139,021--$139,021
Grants to Domestic Orgs$106,900--$106,900
Advertising$42,809--$42,809
Fees for Services Legal$41,570--$41,570
Occupancy$8,525$8,525-$17,050
Travel$16,107--$16,107
Conferences and Meetings$12,439--$12,439
Fees for Services Accounting-$4,270-$4,270
Office Expenses-$1,226-$1,226
Other Expenses$1,556$664-$664
Insurance$389--$389
Total Functional Expenses$668,816$314,704$0$983,520
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
NCSL Foundation for State LegWashington, DC--$106,900
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“990 Reviewed by at least two officers before filing”

Form 990, Part VI, Section C, Line 19

“No documents available to the public.”

Filing and Contact Details

Filer

Filer Name
Rare Access Action Project Inc
EIN
82-4433613
Phone
2027311275
Address
1012 14th St NW 500, Washington, DC 20005

Signing Officer

Name
Evan Kozlow
Title
Treasurer
Signed
2024-06-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Michael Eging
Formed
2018
Legal Domicile
Dc
Voting Board Members
4
Independent Board Members
4
Employees
0

Preparer

Firm
Pro Money Works
Address
2423 Aubrey Falls Ct, Katy, TX 77450
Preparer
Heather Monk
Phone
8326554031
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IRS990/TravelGrp/ProgramServicesAmt016107
IRS990/TravelGrp/TotalAmt016107
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt01012 14th St NW 500
IRS990/USAddress/CityNm0Washington
IRS990/USAddress/StateAbbreviationCd0DC
IRS990/USAddress/ZIPCd020005
IRS990/VotingMembersGoverningBodyCnt04
IRS990/VotingMembersIndependentCnt04
IRS990/WebsiteAddressTxt0www.rareaccessactionproject.com
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/FederatedAssuranceLevelCd0FAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd00
ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Evan Kozlow
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Treasurer
ReturnHeader/BusinessOfficerGrp/SignatureDt02024-06-12
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Rare Access Action Project Inc
ReturnHeader/Filer/BusinessNameControlTxt0RARE
ReturnHeader/Filer/EIN0824433613
ReturnHeader/Filer/PhoneNum02027311275
ReturnHeader/Filer/USAddress/AddressLine1Txt01012 14th St NW 500
ReturnHeader/Filer/USAddress/CityNm0Washington
ReturnHeader/Filer/USAddress/StateAbbreviationCd0DC
ReturnHeader/Filer/USAddress/ZIPCd020005
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0841954199
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Pro Money Works
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt02423 Aubrey Falls Ct
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Katy
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0TX
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd077450
ReturnHeader/PreparerPersonGrp/PhoneNum08326554031
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Heather Monk
ReturnHeader/PreparerPersonGrp/SelfEmployedInd0X
ReturnHeader/ReturnTs02024-06-12T07:39:36-07:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0Evan
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0Kozlow
ReturnHeader/TaxPeriodBeginDt02023-01-01
ReturnHeader/TaxPeriodEndDt02023-12-31
ReturnHeader/TaxYr02023

Document Assets

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Filings

Displayed year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$89,120
Liabilities
$0
Net assets
$89,120
Revenue
$211,979
Expenses
$983,520
Net income
-$771,541
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.44$0.00$0.44$0.71$0.36$0.35
2023Detailed filing. Detailed filing data is available for this year.$0.09$0.00$0.09$0.21$0.98$0.77
2022Detailed filing. Detailed filing data is available for this year.$0.86$0.00$0.86$2.45$3.06$0.61
2021Detailed filing. Detailed filing data is available for this year.$1.47$0.00$1.47$5.57$4.46$1.11
2020Detailed filing. Detailed filing data is available for this year.$0.36$0.00$0.36$0.49$0.38$0.11