Civic Intelligence

Rare Access Action Project Inc

EIN 82-4433613 • 501(c)4 • Washington, DC

Profile

RAAP is a coalition of life sciences and patent stakeholders that explores creative policy solutions to address structural issues is access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments they need.

1012 14th St NW 500Washington, DC 20005

www.rareaccessactionproject.com

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

40th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)4 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

42nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)4 • $500k-$1M nonprofits • Source year 2024

Net Margin

89th percentile

50%

Higher net margin than 89% of similar nonprofits.

501(c)4 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

84th percentile

$36,000

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 5.1% of source-year revenue.

501(c)4 • $500k-$1M nonprofits • Source year 2024

Asset Growth

99th percentile

395%

Faster asset growth than 99% of similar nonprofits.

501(c)4 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

96th percentile

235%

Faster revenue growth than 96% of similar nonprofits.

501(c)4 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets40th percentile

Assets

Up

$441,558

Up $352,438 (+395%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$441,558

Up $352,438 (+395%) from 2023

Operations
Liabilities / Revenue42nd percentileNet Margin89th percentile

Revenue

Up

$710,027

Up $498,048 (+235%) from 2023

Expenses

Down

$357,589

Down $625,931 (-64%) from 2023

Net Income

Up

$352,438

Up $1,123,979 (+146%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth99th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2020: $359,489Liabilities 2020: $0Net Assets 2020: $359,4892020Assets 2021: $1,472,383Liabilities 2021: $0Net Assets 2021: $1,472,3832021Assets 2022: $860,661Liabilities 2022: $0Net Assets 2022: $860,6612022Assets 2023: $89,120Liabilities 2023: $0Net Assets 2023: $89,1202023Assets 2024: $441,558Liabilities 2024: $0Net Assets 2024: $441,5582024

Highlighted filing

2024

Assets$441,558
Liabilities$0
Net Assets$441,558
Open 2024 Filing

Operations Trend

Revenue Growth96th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2020: $493,351Expenses 2020: $379,717Net Income 2020: $113,6342020Revenue 2021: $5,569,250Expenses 2021: $4,456,356Net Income 2021: $1,112,8942021Revenue 2022: $2,445,165Expenses 2022: $3,056,887Net Income 2022: -$611,7222022Revenue 2023: $211,979Expenses 2023: $983,520Net Income 2023: -$771,5412023Revenue 2024: $710,027Expenses 2024: $357,589Net Income 2024: $352,4382024

Highlighted filing

2024

Revenue$710,027
Expenses$357,589
Net Income$352,438
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$441,558
Liabilities
$0
Net assets
$441,558
Revenue
$710,027
Expenses
$357,589
Net income
$352,438
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.44$0.00$0.44$0.71$0.36$0.35
2023Detailed filing. Detailed filing data is available for this year.$0.09$0.00$0.09$0.21$0.98$0.77
2022Detailed filing. Detailed filing data is available for this year.$0.86$0.00$0.86$2.45$3.06$0.61
2021Detailed filing. Detailed filing data is available for this year.$1.47$0.00$1.47$5.57$4.46$1.11
2020Detailed filing. Detailed filing data is available for this year.$0.36$0.00$0.36$0.49$0.38$0.11
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 15, 2025
Return Version
2024v5.1
Gross Receipts
$710,027
Mission and Program Overview

Mission

RAAP is a coalition of life sciences and patent stakeholders that explores creative policy solutions to address structural issues is access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments they need.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$89,119$441,558▲ $352,439
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$89,120$441,558▲ $352,438
Other Assets Total$1$0▼ $1
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$89,120$441,558▲ $352,438
Total Net Assets Fund Balance$89,120$441,558▲ $352,438
Total Liabilities and Net Assets / Fund Balance$89,120$441,558▲ $352,438
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Evan KozlowTreasurerPT$36,000$36,000
Michael EgingChairmanPT$36,000$36,000

Board Members and Trustees

NameTitle
Tara BrittDirector
Chuck ClaptonSecretary
Revenue and Support

Revenue Composition

Contributions and Grants
$710,000
Program Service Revenue
$0
Investment Income
$27
Other Revenue
$0
All Other Contributions
$710,000
Change in Net Assets
$352,438
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$285,339
Salaries, Compensation, and Employee Benefits$72,000
Grants and Similar Amounts Paid$250
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$91,000$91,000-$182,000
Current Officers, Directors, Trustees, and Key Employees$36,000$36,000-$72,000
Fees for Services Other$45,140--$45,140
Conferences and Meetings$17,848--$17,848
Advertising$14,859--$14,859
Fees for Services Legal-$7,083-$7,083
Travel$6,977--$6,977
Office Expenses-$3,946-$3,946
Fees for Services Accounting-$3,925-$3,925
Occupancy$750$750-$1,500
Insurance-$489-$489
Other Expenses$351$1,221-$351
Grants to Domestic Orgs$250--$250
Total Functional Expenses$213,175$144,414$0$357,589
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“990 Reviewed by at least two officers before filing”

Form 990, Part VI, Section C, Line 19

“No documents available to the public.”

Filing and Contact Details

Filer

Filer Name
Rare Access Action Project Inc
EIN
82-4433613
Phone
2027311275
Address
1012 14th St NW 500, Washington, DC 20005

Signing Officer

Name
Evan Kozlow
Title
Treasurer
Signed
2025-05-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Michael Eging
Formed
2018
Legal Domicile
Dc
Voting Board Members
4
Independent Board Members
4
Employees
0

Preparer

Firm
Pro Money Works
Address
2423 Aubrey Falls Ct, Katy, TX 77450
Preparer
Heather Monk
Phone
8326554031
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Rare Access Action Project Inc
ReturnHeader/Filer/BusinessNameControlTxt0RARE
ReturnHeader/Filer/EIN0824433613
ReturnHeader/Filer/PhoneNum02027311275
ReturnHeader/Filer/USAddress/AddressLine1Txt01012 14th St NW 500
ReturnHeader/Filer/USAddress/CityNm0Washington
ReturnHeader/Filer/USAddress/StateAbbreviationCd0DC
ReturnHeader/Filer/USAddress/ZIPCd020005
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0841954199
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Pro Money Works
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt02423 Aubrey Falls Ct
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Katy
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0TX
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd077450
ReturnHeader/PreparerPersonGrp/PhoneNum08326554031
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Heather Monk
ReturnHeader/PreparerPersonGrp/SelfEmployedInd0X
ReturnHeader/ReturnTs02025-05-15T10:12:50-07:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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