Civic Intelligence

Rare Access Action Project Inc

990 • Fiscal year 2021 • EIN 82-4433613

Jan 01, 2021 to Dec 31, 2021 • Filed on Mar 25, 2022

Organization Profilewww.rareaccessactionproject.com
600 Massachusetts Ave NWWashington, DC 20001

(202) 731-1275

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

14th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)4 • $5M-$10M nonprofits • Source year 2021

Liabilities / Revenue

15th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2021 filings • 501(c)4 • $5M-$10M nonprofits • Source year 2021

Net Margin

60th percentile

20%

Higher net margin than 60% of similar nonprofits.

2021 filings • 501(c)4 • $5M-$10M nonprofits • Source year 2021

Top Officer Pay

65th percentile

$130,000

Higher top officer pay than 65% of similar nonprofits.

Top officer pay equals 2.3% of source-year revenue.

2021 filings • 501(c)4 • $5M-$10M nonprofits • Source year 2021

Asset Growth

98th percentile

310%

Faster asset growth than 98% of similar nonprofits.

2021 filings • 501(c)4 • $5M-$10M nonprofits • Annualized from 2020 to 2021

Revenue Growth

98th percentile

1029%

Faster revenue growth than 98% of similar nonprofits.

2021 filings • 501(c)4 • $5M-$10M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets14th percentile

Assets

Up

$1,472,383

Up $1,112,894 (+310%) from 2020

Net Assets

Up

$1,472,383

Up $1,112,894 (+310%) from 2020

Liabilities

Flat

$0

Flat from 2020

Revenue And Expenses
Liabilities / Revenue15th percentileNet Margin60th percentile

Revenue

Up

$5,569,250

Up $5,075,899 (+1029%) from 2020

Expenses

Up

$4,456,356

Up $4,076,639 (+1074%) from 2020

Net Income

Up

$1,112,894

Up $999,260 (+879%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth98th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2020: $359,489Liabilities 2020: $0Net Assets 2020: $359,4892020Assets 2021: $1,472,383Liabilities 2021: $0Net Assets 2021: $1,472,3832021Assets 2022: $860,661Liabilities 2022: $0Net Assets 2022: $860,6612022Assets 2023: $89,120Liabilities 2023: $0Net Assets 2023: $89,1202023Assets 2024: $441,558Liabilities 2024: $0Net Assets 2024: $441,5582024

Highlighted filing

2021

Assets$1,472,383
Liabilities$0
Net Assets$1,472,383
Open 2021 Filing

Operations Trend

Revenue Growth98th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MRevenue 2020: $493,351Expenses 2020: $379,717Net Income 2020: $113,6342020Revenue 2021: $5,569,250Expenses 2021: $4,456,356Net Income 2021: $1,112,8942021Revenue 2022: $2,445,165Expenses 2022: $3,056,887Net Income 2022: -$611,7222022Revenue 2023: $211,979Expenses 2023: $983,520Net Income 2023: -$771,5412023Revenue 2024: $710,027Expenses 2024: $357,589Net Income 2024: $352,4382024

Highlighted filing

2021

Revenue$5,569,250
Expenses$4,456,356
Net Income$1,112,894
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Mar 25, 2022
Return Version
2021v4.0
Gross Receipts
$5,569,250
Mission and Program Overview

Mission

RAAP is a coalition of life sciences and patent stakeholders that explores creative policy solutions to address structural issues is access and coverage. Our priority is to help ensure rare disease patients have access to the care and treatments they need.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$359,489$1,472,383▲ $1,112,894
Savings and Temporary Cash Investments-$0-
Accounts Receivable-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$359,489$1,472,383▲ $1,112,894
Other Assets Total-$0-
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$359,489$1,472,383▲ $1,112,894
Total Net Assets Fund Balance$359,489$1,472,383▲ $1,112,894
Total Liabilities and Net Assets / Fund Balance$359,489$1,472,383▲ $1,112,894
Compensation and Service Providers
Top Officer Pay65th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Michael EgingChairmanPT$130,000$130,000
Evan KozlowTreasurerPT$91,000$91,000

Board Members and Trustees

NameTitle
Jennifer BeachellDirector
Shelly RosenstockSecretary

Highest Paid Contractors

ContractorServicesLocationCompensation
Purple StategiesConsulting815 Slaters Lane, Alexandria, VA 22314$3,652,500
Revenue and Support

Revenue Composition

Contributions and Grants
$5,569,250
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$5,569,250
Change in Net Assets
$1,112,894
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$4,221,336
Salaries, Compensation, and Employee Benefits$221,000
Grants and Similar Amounts Paid$14,020
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$3,811,574--$3,811,574
Fees for Services Management$147,000$147,000-$294,000
Current Officers, Directors, Trustees, and Key Employees$74,000$147,000-$221,000
Conferences and Meetings$67,635--$67,635
Advertising$23,273--$23,273
Grants to Domestic Orgs$14,020--$14,020
Fees for Services Legal-$8,597-$8,597
Occupancy$3,000$3,000-$6,000
Fees for Services Accounting-$3,601-$3,601
Travel$3,255--$3,255
Office Expenses-$1,322-$1,322
Insurance-$462-$462
Other Expenses$39$1,578-$39
Total Functional Expenses$4,143,796$312,560$0$4,456,356
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
NCSL Foundation for State LegWashington, DC--$13,650
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Line 11B: Form 990 Review Process

“No review was or will be conducted.”

Form 990, Part VI, Line 19: Other Organization Documents Publicly Available

“No documents available to the public.”

Filing and Contact Details

Filer

Filer Name
Rare Access Action Project Inc
EIN
82-4433613
Phone
2027311275
Address
600 Massachusetts Ave NW, Washington, DC 20001

Signing Officer

Name
Michael Eging
Title
Chairman
Signed
2022-03-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Michael Eging
Formed
2018
Legal Domicile
Dc
Voting Board Members
4
Independent Board Members
4
Employees
0

Preparer

Firm
Pro Money Works
Address
2423 Aubrey Falls Ct, Katy, TX 77450
Preparer
Heather Monk
Phone
8326554031
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IRS990/WebsiteAddressTxt0www.rareaccessactionproject.com
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/AuthenticationAssuranceLevelCd0AAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/FederatedAssuranceLevelCd0FAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd02
ReturnHeader/BuildTS02022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0Michael Eging
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Chairman
ReturnHeader/BusinessOfficerGrp/SignatureDt02022-03-25
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Rare Access Action Project Inc
ReturnHeader/Filer/BusinessNameControlTxt0RARE
ReturnHeader/Filer/EIN0824433613
ReturnHeader/Filer/PhoneNum02027311275
ReturnHeader/Filer/USAddress/AddressLine1Txt0600 Massachusetts Ave NW
ReturnHeader/Filer/USAddress/CityNm0Washington
ReturnHeader/Filer/USAddress/StateAbbreviationCd0DC
ReturnHeader/Filer/USAddress/ZIPCd020001
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0841954199
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Pro Money Works
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt02423 Aubrey Falls Ct
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Katy
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0TX
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd077450
ReturnHeader/PreparerPersonGrp/PhoneNum08326554031
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Heather Monk
ReturnHeader/PreparerPersonGrp/SelfEmployedInd0X
ReturnHeader/ReturnTs02022-03-25T10:58:19-07:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0Michael
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0Eging
ReturnHeader/TaxPeriodBeginDt02021-01-01
ReturnHeader/TaxPeriodEndDt02021-12-31
ReturnHeader/TaxYr02021

Document Assets

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,472,383
Liabilities
$0
Net assets
$1,472,383
Revenue
$5,569,250
Expenses
$4,456,356
Net income
$1,112,894
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.44$0.00$0.44$0.71$0.36$0.35
2023Detailed filing. Detailed filing data is available for this year.$0.09$0.00$0.09$0.21$0.98$0.77
2022Detailed filing. Detailed filing data is available for this year.$0.86$0.00$0.86$2.45$3.06$0.61
2021Detailed filing. Detailed filing data is available for this year.$1.47$0.00$1.47$5.57$4.46$1.11
2020Detailed filing. Detailed filing data is available for this year.$0.36$0.00$0.36$0.49$0.38$0.11