Civic Intelligence

Rarekc Foundation

990EZ • Fiscal year 2022 • EIN 82-3511792

Jan 01, 2022 to Dec 31, 2022 • Filed on May 14, 2024

Organization ProfileHTTPS//RAREKC.ORG
10708 W 129th StreetOverland Park, KS 66213

(913) 220-8177

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

Score unavailable

No value available

Liabilities-to-assets requires both liabilities and assets on this filing.

Source year 2022

Liabilities / Revenue

Score unavailable

No value available

Liabilities-to-revenue requires both liabilities and revenue on this filing.

Source year 2022

Net Margin

81st percentile

33%

Higher net margin than 81% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Top Officer Pay

78th percentile

$0

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

87th percentile

64%

Faster asset growth than 87% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Revenue Growth

95th percentile

370%

Faster revenue growth than 95% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / AssetsScore unavailable

Assets

Up

$76,074

Up $29,815 (+64%) from 2021

Net Assets

Up

$76,074

Up $29,815 (+64%) from 2021

Liabilities

-

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / RevenueScore unavailableNet Margin81st percentile

Revenue

Up

$89,342

Up $70,332 (+370%) from 2021

Expenses

Up

$59,527

Up $27,242 (+84%) from 2021

Net Income

Up

$29,815

Up $43,090 (+325%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth87th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$80K$60K$40K$20K$0Assets 2018: $55,807Liabilities 2018: $0Net Assets 2018: $55,8072018Assets 2019: $71,765Liabilities 2019: $0Net Assets 2019: $71,7652019Assets 2020: $59,534Liabilities 2020: $0Net Assets 2020: $59,5342020Assets 2021: $46,259Liabilities 2021: $0Net Assets 2021: $46,2592021Assets 2022: $76,074Net Assets 2022: $76,0742022Assets 2023: $48,026Net Assets 2023: $48,0262023Assets 2024: $47,702Net Assets 2024: $47,7022024

Highlighted filing

2022

Assets$76,074
Liabilities-
Net Assets$76,074
Open 2022 Filing

Operations Trend

Revenue Growth95th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$150K$100K$50K$0-$50KRevenue 2018: $58,738Expenses 2018: $2,931Net Income 2018: $55,8072018Revenue 2019: $26,095Expenses 2019: $10,137Net Income 2019: $15,9582019Revenue 2020: $10,114Expenses 2020: $22,345Net Income 2020: -$12,2312020Revenue 2021: $19,010Expenses 2021: $32,285Net Income 2021: -$13,2752021Revenue 2022: $89,342Expenses 2022: $59,527Net Income 2022: $29,8152022Revenue 2023: $47,121Expenses 2023: $75,169Net Income 2023: -$28,0482023Revenue 2024: $134,028Expenses 2024: $134,352Net Income 2024: -$3242024

Highlighted filing

2022

Revenue$89,342
Expenses$59,527
Net Income$29,815
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
May 14, 2024
Return Version
2022v5.0
Gross Receipts
$89,342
Mission and Program Overview

Mission

The mission of RareKC is to accelerate the diagnosis, care, and treatment of rare conditions. RareKC is bringing together families impacted by rare conditions in the Kansas City area. As individuals, our numbers are often too small to affect the significant changes needed to impact the future of rare. Our combined voices will create the advocacy network needed to achieve the ultimate goal of RareKC: to build a center of excellence for rare disease in Kansas City, the first of its kind in the country.

SEE SCHEDULE O

Program Services

DescriptionGrantsExpenses
RAREKC DELIVERS PROGRAMS THAT CONVENE ALL PERSONS IMPACTED BY RARE DISEASES IN THE KC REGION. THROUGH COMBINED VOICES, ACTIONS, RESOURCES, RAREKC CREATES A NETWORK TO ENSURE ALL AFFECTED HAVE HOPE A PATHWAY TO FOLLOW.-$59,527
Compensation and Service Providers
Top Officer Pay78th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
KELLY RANALLOChair-$0--
ANGELA DUNBARDirector-$0--
DENNIS RIDENOURV. Chair-$0--
KIM KIMMINAUSecretary-$0--
JAY VIVIANDirector-$0--
BILL QUICKDirector-$0--
ALLEN ROBERSONTreasurer-$0--
Filing and Contact Details

Filer

Filer Name
Rarekc Foundation
EIN
82-3511792
Phone
9132208177
Address
10708 W 129TH STREET, OVERLAND PARK, KS 66213

Signing Officer

Name
Dennis Ridenour
Title
Chairman
Phone
9132208177
Signed
2024-05-14
Discuss with paid preparer
Yes

Preparer

Firm
Mendus & Associates Pc
Address
107 ARCHIBALD ST, KANSAS CITY, MO 64111
Preparer
Peggy S Smith
Phone
8167561980
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 16, Other Expenses

“Meals and entertainment 10”

Form 990-EZ, Part I, Line 16, Other Expenses

“MARKETING 778”

Form 990-EZ, Part I, Line 16, Other Expenses

“Software subscriptions 394”

Form 990-EZ, Part I, Line 16, Other Expenses

“BANK CHARGES 14”

Form 990-EZ, Part I, Line 16, Other Expenses

“INSURANCE 468”

Form 990-EZ, Part I, Line 16, Other Expenses

“WEBSITE 456”

Form 990-EZ, Part III, Line PRIMARY EXEMPT PURPOSE

“The mission of rarekc is to drive innovation in the diagnosis, care and treatment of rare diseases by connecting and inspiring our community. Rarekc will transform the lives of those touched by rare diseases and conditions by ensuring every person impacted by rare has a pathway to follow and a future of hope. At rarekc, we believe by uniting the resources of all rare patients, families, medical doctors and researchers in the kansas city area, the isolation we feel could be lifted and greater light could be shined on diagnosis, treatment, and understanding of rare diseases.”

Raw XML Appendix171 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm3KIM KIMMINAU
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm5BILL QUICK
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm6ALLEN ROBERSON
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0CHAIR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2V. CHAIR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3SECRETARY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt5DIRECTOR
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IRS990EZ/OtherExpensesTotalAmt02120
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IRS990EZ/PoliticalCampaignActyInd0false
IRS990EZ/PrimaryExemptPurposeTxt0SEE SCHEDULE O
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0RAREKC DELIVERS PROGRAMS THAT CONVENE ALL PERSONS IMPACTED BY RARE DISEASES IN THE KC REGION. THROUGH COMBINED VOICES, ACTIONS, RESOURCES, RAREKC CREATES A NETWORK TO ENSURE ALL AFFECTED HAVE HOPE A PATHWAY TO FOLLOW.
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt059527
IRS990EZ/ProhibitedTaxShelterTransInd0false
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IRS990EZ/SchoolOperatingInd0false
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IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt087995
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IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt01347
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IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt013110
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IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt00
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IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
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IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt089342
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IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Meals and entertainment 10
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1MARKETING 778
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2SOFTWARE SUBSCRIPTIONS 394
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3BANK CHARGES 14
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4INSURANCE 468
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5WEBSITE 456
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6THE MISSION OF RAREKC IS TO DRIVE INNOVATION IN THE DIAGNOSIS, CARE AND TREATMENT OF RARE DISEASES BY CONNECTING AND INSPIRING OUR COMMUNITY. RAREKC WILL TRANSFORM THE LIVES OF THOSE TOUCHED BY RARE DISEASES AND CONDITIONS BY ENSURING EVERY PERSON IMPACTED BY RARE HAS A PATHWAY TO FOLLOW AND A FUTURE OF HOPE. AT RAREKC, WE BELIEVE BY UNITING THE RESOURCES OF ALL RARE PATIENTS, FAMILIES, MEDICAL DOCTORS AND RESEARCHERS IN THE KANSAS CITY AREA, THE ISOLATION WE FEEL COULD BE LIFTED AND GREATER LIGHT COULD BE SHINED ON DIAGNOSIS, TREATMENT, AND UNDERSTANDING OF RARE DISEASES.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990-EZ, Part I, Line 16, Other Expenses
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6Form 990-EZ, Part III, Line PRIMARY EXEMPT PURPOSE
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ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0DENNIS RIDENOUR
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0CHAIRMAN
ReturnHeader/BusinessOfficerGrp/PhoneNum09132208177
ReturnHeader/BusinessOfficerGrp/SignatureDt02024-05-14
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ReturnHeader/Filer/BusinessNameControlTxt0RARE
ReturnHeader/Filer/EIN0823511792
ReturnHeader/Filer/PhoneNum09132208177
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ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MO
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ReturnHeader/PreparerPersonGrp/PhoneNum08167561980
ReturnHeader/PreparerPersonGrp/PreparationDt02024-05-15
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0PEGGY S SMITH
ReturnHeader/ReturnTs02024-05-15T07:24:39-00:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0DENNIS
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ReturnHeader/TaxPeriodBeginDt02022-01-01
ReturnHeader/TaxPeriodEndDt02022-12-31
ReturnHeader/TaxYr02022

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$76,074
Liabilities
-
Net assets
$76,074
Revenue
$89,342
Expenses
$59,527
Net income
$29,815
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.48$0.48$1.34$1.34$0.00
2023Detailed filing. Detailed filing data is available for this year.$0.48$0.48$0.47$0.75$0.28
2022Detailed filing. Detailed filing data is available for this year.$0.76$0.76$0.89$0.60$0.30
2021Detailed filing. Detailed filing data is available for this year.$0.46$0.00$0.46$0.19$0.32$0.13
2020Detailed filing. Detailed filing data is available for this year.$0.60$0.00$0.60$0.10$0.22$0.12
2019Detailed filing. Detailed filing data is available for this year.$0.72$0.00$0.72$0.26$0.10$0.16
2018Detailed filing. Detailed filing data is available for this year.$0.56$0.00$0.56$0.59$0.03$0.56