Liabilities / Assets
56th percentile
Tied with the lowest-debt nonprofits in its peer group.
Siviq Scores
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
0.00x
Liabilities / Revenue
56th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
9th percentile
Higher net margin than 9% of similar nonprofits.
Top Officer Pay
77th percentile
Higher top officer pay than 77% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
17th percentile
Faster asset growth than 17% of similar nonprofits.
Revenue Growth
84th percentile
Faster revenue growth than 84% of similar nonprofits.
Balance Sheet
Assets
Down$46,259
Down $13,275 (-22%) from 2020
Net Assets
Down$46,259
Down $13,275 (-22%) from 2020
Liabilities
Flat$0
Flat from 2020
Revenue And Expenses
Revenue
Up$19,010
Up $8,896 (+88%) from 2020
Expenses
Up$32,285
Up $9,940 (+44%) from 2020
Net Income
Down-$13,275
Down $1,044 (-8.5%) from 2020
Historical Trend
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2021 to Dec 31, 2021
- Signed
- May 10, 2022
- Return Version
- 2021v4.0
- Gross Receipts
- $19,010
Mission and Program Overview
Mission
The mission of RareKC is to accelerate the diagnosis, care, and treatment of rare conditions. RareKC is bringing together families impacted by rare conditions in the Kansas City area. As individuals, our numbers are often too small to affect the significant changes needed to impact the future of rare. Our combined voices will create the advocacy network needed to achieve the ultimate goal of RareKC: to build a center of excellence for rare disease in Kansas City, the first of its kind in the country.
The mission of RareKC is to drive innovation in the diagnosis, care and treatment of rare diseases by connecting and inspiring our community. RareKC will transform the lives of those touched by rare diseases and conditions by ensuring every person impacted by RARE has a pathway to follow and a future of hope. At RareKC, we believe by uniting the resources of all rare patients, families, medical doctors and researchers in the Kansas City area, the isolation we feel could be lifted and greater light could be shined on diagnosis, treatment, and understanding of rare diseases.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| Throughout nearly all of 2021, much of the work of RareKC was paused as a result of the COVID-19 pandemic. However, a new CEO was hired in 2021 and led the organization in strategic planning, event planning for 2022 and evaluation of the infrastructure and operations of the organization, including Board composition and organizational by-laws. Also in 2021, RareKC continued to advocate for rare disease patients and amplify their voice in community efforts, including the Ethical AI initiative, PCORI patient navigators and regional navigators. | $0 | $0 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Kelly Ranallo | Director | - | $0 | - | - |
| Angie Dunbar | Chair | - | $0 | - | - |
| Dennis Ridenour | Treasurer | - | $0 | - | - |
| Kim Kimminau | Secretary | - | $0 | - | - |
| Jay Vivian | Director | - | $0 | - | - |
| Amber Heineman | Director | - | $0 | - | - |
| Bill Quick | Director | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- Rarekc Foundation
- EIN
- 82-3511792
- Phone
- 9132208177
- Address
- 10708 W 129th Street, Overland Park, KS 66213
Signing Officer
- Name
- Dennis Ridenour
- Title
- Treasurer
- Phone
- 4027308263
- Signed
- 2022-05-10
Supplemental Narrative
Additional Explanations
Form 990-EZ, Part I, Line 16
“Advertising $9.99, Marketing $808, Software & Subscriptions $695.52, Bank charges $16, Insurance $450, Dues & Subscriptions $40, Meals & Entertainment $39.58, Travel $10”
Form 990-EZ, Part V, Line 34
“The bylaws were updated and approved by the Board of Directors in 2021.”
Raw XML Appendix235 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | The mission of RareKC is to drive innovation in the diagnosis, care and treatment of rare diseases by connecting and inspiring our community. RareKC will transform the lives of those touched by rare diseases and conditions by ensuring every person impacted by RARE has a pathway to follow and a future of hope. At RareKC, we believe by uniting the resources of all rare patients, families, medical doctors and researchers in the Kansas City area, the isolation we feel could be lifted and greater light could be shined on diagnosis, treatment, and understanding of rare diseases. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Advertising $9.99, Marketing $808, Software & Subscriptions $695.52, Bank charges $16, Insurance $450, Dues & Subscriptions $40, Meals & Entertainment $39.58, Travel $10 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The bylaws were updated and approved by the Board of Directors in 2021. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990-EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990-EZ, Part V, Line 34 |
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| ReturnHeader/BuildTS | 0 | 2022-09-23 18:48:47Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Dennis Ridenour |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Treasurer |
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| ReturnHeader/Filer/USAddress/CityNm | 0 | Overland Park |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | KS |
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| ReturnHeader/ReturnTs | 0 | 2022-05-16T02:02:18-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2021-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2021-12-31 |
| ReturnHeader/TaxYr | 0 | 2021 |
Document Assets
No mirrored PDF or thumbnail assets are attached yet.
Filings
Displayed year
2021 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $46,259
- Liabilities
- $0
- Net assets
- $46,259
- Revenue
- $19,010
- Expenses
- $32,285
- Net income
- -$13,275