Rarekc Foundation

990EZ • Fiscal year 2020 • EIN 82-3511792

Jan 01, 2020 to Dec 31, 2020 • Filed on Jul 14, 2021

Organization Profile rarekc.org

10708 W 129th StreetOverland Park, KS 66213

(913) 220-8177

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

-121%

Higher net margin than 7% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

Higher top officer pay than 76% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2020 filings • 501(c)3 • <$500k nonprofits • Source year 2020

-17%

Faster asset growth than 21% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

-61%

Faster revenue growth than 16% of similar nonprofits.

2020 filings • 501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Balance Sheet

Liabilities / Assets55th percentile

Assets

Down

$59,534

Down $12,231 (-17%) from 2019

Net Assets

Down

$59,534

Down $12,231 (-17%) from 2019

Liabilities

Flat

Flat from 2019

Revenue And Expenses

Liabilities / Revenue55th percentile Net Margin7th percentile

Revenue

Down

$10,114

Down $15,981 (-61%) from 2019

Expenses

$22,345

Up $12,208 (+120%) from 2019

Net Income

Down

-$12,231

Down $28,189 (-177%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth21st percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

Highlighted filing

2020

Assets$59,534

Liabilities$0

Net Assets$59,534

Open 2020 Filing

Operations Trend

Revenue Growth16th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

Highlighted filing

2020

Revenue$10,114

Expenses$22,345

Net Income-$12,231

Open 2020 Filing

Jump To

Filing Snapshot

Filing Period: Jan 1, 2020 to Dec 31, 2020
Signed: Jul 14, 2021
Return Version: 2020v4.0
Gross Receipts: $10,114

Mission and Program Overview

Mission

The mission of RareKC is to accelerate the diagnosis, care, and treatment of rare conditions. RareKC is bringing together families impacted by rare conditions in the Kansas City area. As individuals, our numbers are often too small to affect the significant changes needed to impact the future of rare. Our combined voices will create the advocacy network needed to achieve the ultimate goal of RareKC: to build a center of excellence for rare disease in Kansas City, the first of its kind in the country.

Program Services

Description	Grants	Expenses
In January 2020, RareKC hosted a strategic Board Retreat to further develop the mission of the organization and chart a path forward to helping rare patients, families, caregivers and community stakeholders. In February 2020, representatives of RareKC attended Rare Disease week in Washington D.C. Throughout the remainder of 2020, much of the work of RareKC was paused as a result of the COVID-19 pandemic.	$0	$0

Compensation and Service Providers

Top Officer Pay76th percentile

Employees

Name	Title	Full / Part Time	Base	Other	Total
Kelly Ranallo	Director	-	$0	-	-
Angie Dunbar	Chair	-	$0	-	-
Dennis Ridenour	Treasurer	-	$0	-	-
Kim Kimminau	Secretary	-	$0	-	-
Jay Vivian	Director	-	$0	-	-
Amber Heineman	Director	-	$0	-	-
Mindy Bridges	Director	-	$0	-	-
Alli Kafka	Director	-	$0	-	-
Eric Rush	Director	-	$0	-	-

Filing and Contact Details

Filer

Filer Name: Rarekc Foundation
EIN: 82-3511792
Phone: 9132208177
Address: 10708 W 129th Street, Overland Park, KS 66213

Signing Officer

Name: Dennis Ridenour
Title: Treasurer
Phone: 4027308263
Signed: 2021-07-14

Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 16

“$2,050 for website development, $1,163 for advertising and marketing, $450 for software, subscriptions, & dues, $389 for meals, entertainment and events associated with events and organizational board meetings.”

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ReturnHeader/BuildTS	0	2022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/PersonNm	0	Dennis Ridenour
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt	0	Treasurer
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ReturnHeader/Filer/BusinessNameControlTxt	0	RARE
ReturnHeader/Filer/EIN	0	823511792
ReturnHeader/Filer/PhoneNum	0	9132208177
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ReturnHeader/Filer/USAddress/CityNm	0	Overland Park
ReturnHeader/Filer/USAddress/StateAbbreviationCd	0	KS
ReturnHeader/Filer/USAddress/ZIPCd	0	66213
ReturnHeader/ReturnTs	0	2021-07-15T12:35:36-07:00
ReturnHeader/ReturnTypeCd	0	990EZ
ReturnHeader/TaxPeriodBeginDt	0	2020-01-01
ReturnHeader/TaxPeriodEndDt	0	2020-12-31
ReturnHeader/TaxYr	0	2020

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2020 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing

Assets: $59,534
Liabilities: $0
Net assets: $59,534
Revenue: $10,114
Expenses: $22,345
Net income: -$12,231

	Balance Sheet			Operations
Year	Assets	Liabilities	Net Assets	Revenue	Expenses	Net Income
2024Detailed filing. Detailed filing data is available for this year.	$0.48		$0.48	$1.34	$1.34	$0.00
2023Detailed filing. Detailed filing data is available for this year.	$0.48		$0.48	$0.47	$0.75	$0.28
2022Detailed filing. Detailed filing data is available for this year.	$0.76		$0.76	$0.89	$0.60	$0.30
2021Detailed filing. Detailed filing data is available for this year.	$0.46	$0.00	$0.46	$0.19	$0.32	$0.13
2020Detailed filing. Detailed filing data is available for this year.	$0.60	$0.00	$0.60	$0.10	$0.22	$0.12
2019Detailed filing. Detailed filing data is available for this year.	$0.72	$0.00	$0.72	$0.26	$0.10	$0.16
2018Detailed filing. Detailed filing data is available for this year.	$0.56	$0.00	$0.56	$0.59	$0.03	$0.56