Civic Intelligence

Kif1Aorg Inc.

990 • Fiscal year 2019 • EIN 82-0714729

Jan 01, 2019 to Dec 31, 2019 • Filed on Nov 11, 2020

Organization ProfileWWW.KIF1A.ORG
808 Columbus Avenue Ste 10ANew York, NY 10025

(212) 896-2925

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

50th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • NTEE F • <$500k nonprofits • Source year 2019

Liabilities / Revenue

50th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2019 filings • NTEE F • <$500k nonprofits • Source year 2019

Net Margin

76th percentile

21%

Higher net margin than 76% of similar nonprofits.

2019 filings • NTEE F • <$500k nonprofits • Source year 2019

Top Officer Pay

73rd percentile

$8,750

Higher top officer pay than 73% of similar nonprofits.

Top officer pay equals 2.2% of source-year revenue.

2019 filings • NTEE F • <$500k nonprofits • Source year 2019

Asset Growth

98th percentile

12671%

Faster asset growth than 98% of similar nonprofits.

2019 filings • NTEE F • <$500k nonprofits • Annualized from 2018 to 2019

Revenue Growth

93rd percentile

147%

Faster revenue growth than 93% of similar nonprofits.

2019 filings • NTEE F • <$500k nonprofits • Annualized from 2018 to 2019

Balance Sheet
Liabilities / Assets50th percentile

Assets

Up

$81,094

Up $80,459 (+12671%) from 2018

Net Assets

Up

$81,094

Up $80,459 (+12671%) from 2018

Liabilities

Flat

$0

Flat from 2018

Revenue And Expenses
Liabilities / Revenue50th percentileNet Margin76th percentile

Revenue

Up

$390,961

Up $232,978 (+147%) from 2018

Expenses

Up

$309,867

Up $141,115 (+84%) from 2018

Net Income

Up

$81,094

Up $91,863 (+853%) from 2018

Historical Trend

Balance Sheet Trend

Asset Growth98th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2018: $635Liabilities 2018: $0Net Assets 2018: $6352018Assets 2019: $81,094Liabilities 2019: $0Net Assets 2019: $81,0942019Assets 2020: $504,969Liabilities 2020: $0Net Assets 2020: $504,9692020Assets 2021: $763,933Liabilities 2021: $0Net Assets 2021: $763,9332021Assets 2022: $267,063Liabilities 2022: $0Net Assets 2022: $267,0632022Assets 2023: $72,868Liabilities 2023: $0Net Assets 2023: $72,8682023Assets 2024: $218,316Liabilities 2024: $0Net Assets 2024: $218,3162024

Highlighted filing

2019

Assets$81,094
Liabilities$0
Net Assets$81,094
Open 2019 Filing

Operations Trend

Revenue Growth93rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2018: $157,983Expenses 2018: $168,752Net Income 2018: -$10,7692018Revenue 2019: $390,961Expenses 2019: $309,867Net Income 2019: $81,0942019Revenue 2020: $741,465Expenses 2020: $301,952Net Income 2020: $439,5132020Revenue 2021: $816,181Expenses 2021: $557,217Net Income 2021: $258,9642021Revenue 2022: $557,417Expenses 2022: $1,054,287Net Income 2022: -$496,8702022Revenue 2023: $229,470Expenses 2023: $423,665Net Income 2023: -$194,1952023Revenue 2024: $294,585Expenses 2024: $149,137Net Income 2024: $145,4482024

Highlighted filing

2019

Revenue$390,961
Expenses$309,867
Net Income$81,094
Open 2019 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Nov 11, 2020
Return Version
2019v5.0
Gross Receipts
$390,961
Mission and Program Overview

Mission

Kif1a.org inc is a global community dedicated to improving the lives of those affected by kif1a associated neurological disorder (kand) and accelerating research to find a cure.

A global community dedicated to improving the lives of those affected by KAND and accelerating research to find a cure

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$635$53,842▲ $53,207
Pledges and Grants Receivable-$27,252-
Total Assets$635$81,094▲ $80,459
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets With Donor Restrictions-$65,456-
Net Assets Without Donor Restrictions$635$15,638▲ $15,003
Total Net Assets Fund Balance$635$81,094▲ $80,459
Total Liabilities and Net Assets / Fund Balance$635$81,094▲ $80,459
Compensation and Service Providers
Top Officer Pay73rd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Kathryn AtchleyPresidentFT$8,750$8,750

Board Members and Trustees

NameTitle
Luke RosenBoard Chair
Sally JacksonDirector
Shannon ScottChief Science Officer
John SiemerTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$390,961
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$390,961
Change in Net Assets
$81,094
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$249,027
Other Expenses$51,421
Salaries, Compensation, and Employee Benefits$9,419
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$210,000--$210,000
Grants to Domestic Individuals$39,027--$39,027
Conferences and Meetings$21,151--$21,151
Travel$11,844--$11,844
Current Officers, Directors, Trustees, and Key Employees-$8,750-$8,750
Information Technology$3,384$2,772-$6,156
Office Expenses$5,635$471-$6,106
Payroll Taxes-$669-$669
Other Expenses-$200-$200
Total Functional Expenses$291,041$18,826$0$309,867
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Columbia UniversityNew York, NY-Scientific research$210,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Part VI Line 2

“Luke Rosen and Sally Jackson are married.”

Part VI Line 11B

“The 990 was reviewed and approved by the Board of Directors prior to”

Part VI Line 11B

“filing.”

Part VI Line 12C

“Prior to entering into any arrangements, financially or otherwise,”

Part VI Line 12C

“Board Members and Officer's are required to disclose any COI.”

Part VI Line 15A or B

“The President's salary was determined based on organizational wide funding”

Part VI Line 15A or B

“and approved by the Board of Directors in 2019.”

Part VI Line 19

“Upon request”

Filing and Contact Details

Filer

Filer Name
Kif1aorg Inc
EIN
82-0714729
In Care Of
% Luke Rosen
Phone
2128962925
Address
808 Columbus Avenue Ste 10A, NEW YORK, NY 10025

Signing Officer

Name
Luke Rosen
Title
Board Chair
Phone
2128962925
Signed
2020-11-11

Organization Details

Principal Officer
Luke Rosen
Formed
2017
Legal Domicile
Ny
Voting Board Members
2
Independent Board Members
2
Employees
1
Volunteers
750
Supplemental Narrative

Additional Explanations

Part III Line 2

“KANF Family & Scientific Engagement Conference”

Part III, line 4A

“for KAND.”

Part III, line 4B

“partnership with the scientific community.”

Raw XML Appendix324 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0KIF1A.ORG is a parent-led organization established in 2017 to launch the world's first translational research program dedicated to discovering treatment for people affected by KIF1A Associated Neurological Disorder (KAND). We support a robust research program for KAND in the Chung Lab at Columbia University in New York City. Program elements include a global patient registry and longitudinal natural history study; disease modeling with patient-derived stem cell lines (iPSCs) and animal models; biomarker studies; KAND severity scale and clinical disease characterization. The Chung Lab's work has drastically improved our understanding of KIF1A gene function, clinical care, and targeted strategies to develop treatments and cures
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Luke Rosen and Sally Jackson are married.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2The 990 was reviewed and approved by the Board of Directors prior to
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Prior to entering into any arrangements, financially or otherwise,
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Board Members and Officer's are required to disclose any COI.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6The President's salary was determined based on organizational wide funding
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt7and approved by the Board of Directors in 2019.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt8Upon request
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt9for KAND.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt10partnership with the scientific community.
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IRS990/WebsiteAddressTxt0WWW.KIF1A.ORG
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02021-01-29 14:40:06Z
ReturnHeader/BusinessOfficerGrp/PersonNm0LUKE ROSEN
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Board Chair
ReturnHeader/BusinessOfficerGrp/PhoneNum02128962925
ReturnHeader/BusinessOfficerGrp/SignatureDt02020-11-11
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0KIF1AORG INC
ReturnHeader/Filer/BusinessNameControlTxt0KIFA
ReturnHeader/Filer/EIN0820714729
ReturnHeader/Filer/InCareOfNm0% Luke Rosen
ReturnHeader/Filer/PhoneNum02128962925
ReturnHeader/Filer/USAddress/AddressLine1Txt0808 Columbus Avenue Ste 10A
ReturnHeader/Filer/USAddress/CityNm0NEW YORK
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NY
ReturnHeader/Filer/USAddress/ZIPCd010025
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId0E1632DF229A1CDEC4AA9622027AB8D57DE4AD938
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId0E1632DF229A1CDEC4AA9622027AB8D57DE4AD938
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionId021010520203171244962
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionIdDt02020-11-12
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0O
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt074.83.99.126
ReturnHeader/ReturnTs02020-11-12T11:10:11-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2019 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$81,094
Liabilities
$0
Net assets
$81,094
Revenue
$390,961
Expenses
$309,867
Net income
$81,094
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.22$0.00$0.22$0.29$0.15$0.15
2023Detailed filing. Detailed filing data is available for this year.$0.07$0.00$0.07$0.23$0.42$0.19
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.27$0.00$0.27$0.56$1.05$0.50
2021Detailed filing. Detailed filing data is available for this year.$0.76$0.00$0.76$0.82$0.56$0.26
2020Detailed filing. Detailed filing data is available for this year.$0.50$0.00$0.50$0.74$0.30$0.44
2019Detailed filing. Detailed filing data is available for this year.$0.08$0.00$0.08$0.39$0.31$0.08
2018Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.16$0.17$0.01
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2019 filings • NTEE F01 • <$500k nonprofits