Civic Intelligence

Kif1Aorg Inc

EIN 82-0714729 • 501(c)3 • New York, NY

Profile

Kif1a.org is a global community dedicated to improving the lives of those affected by kif1a-associated neurological disorders and accelerating research to find a cure.

1178 Broadway 3rd Floor 3535New York, NY 10001

kif1a.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

61st percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

90th percentile

49%

Higher net margin than 90% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

96th percentile

200%

Faster asset growth than 96% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

77th percentile

28%

Faster revenue growth than 77% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Assets

Up

$218,316

Up $145,448 (+200%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Up

$218,316

Up $145,448 (+200%) from 2023

Revenue

Up

$294,585

Up $65,115 (+28%) from 2023

Expenses

Down

$149,137

Down $274,528 (-65%) from 2023

Net Income

Up

$145,448

Up $339,643 (+175%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2018: $635Liabilities 2018: $0Net Assets 2018: $6352018Assets 2019: $81,094Liabilities 2019: $0Net Assets 2019: $81,0942019Assets 2020: $504,969Liabilities 2020: $0Net Assets 2020: $504,9692020Assets 2021: $763,933Liabilities 2021: $0Net Assets 2021: $763,9332021Assets 2022: $267,063Liabilities 2022: $0Net Assets 2022: $267,0632022Assets 2023: $72,868Liabilities 2023: $0Net Assets 2023: $72,8682023Assets 2024: $218,316Liabilities 2024: $0Net Assets 2024: $218,3162024

Highlighted filing

2024

Assets$218,316
Liabilities$0
Net Assets$218,316

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2018: $157,983Expenses 2018: $168,752Net Income 2018: -$10,7692018Revenue 2019: $390,961Expenses 2019: $309,867Net Income 2019: $81,0942019Revenue 2020: $741,465Expenses 2020: $301,952Net Income 2020: $439,5132020Revenue 2021: $816,181Expenses 2021: $557,217Net Income 2021: $258,9642021Revenue 2022: $557,417Expenses 2022: $1,054,287Net Income 2022: -$496,8702022Revenue 2023: $229,470Expenses 2023: $423,665Net Income 2023: -$194,1952023Revenue 2024: $294,585Expenses 2024: $149,137Net Income 2024: $145,4482024

Highlighted filing

2024

Revenue$294,585
Expenses$149,137
Net Income$145,448

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
May 8, 2025
Return Version
2024v5.0
Gross Receipts
$294,585
Mission and Program Overview

Mission

Kif1a.org inc is a global community dedicated to improving the lives of those affected by kif1a associated neurological disorder (kand) and accelerating research to find a cure.

Kif1a.org is a global community dedicated to improving the lives of those affected by kif1a-associated neurological disorders and accelerating research to find a cure.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$72,868$218,316▲ $145,448
Total Assets$72,868$218,316▲ $145,448
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$72,868$218,316▲ $145,448
Net Assets With Donor Restrictions$0$0→ $0
Total Net Assets Fund Balance$72,868$218,316▲ $145,448
Total Liabilities and Net Assets / Fund Balance$72,868$218,316▲ $145,448
Compensation and Service Providers

Board Members and Trustees

NameTitle
Angie FullerChairperson, Treasurer
Michelle TaoVice Chairperson, Secretary
Luke RosenBoard Member
Maria BarrosBoard Member
Patrick SarmiereBoard Member
Sally JacksonBoard Member
Tamara AgajanovBoard Member
Revenue and Support

Revenue Composition

Contributions and Grants
$292,389
Program Service Revenue
$2,196
Investment Income
$0
Other Revenue
$0
All Other Contributions
$292,389
Change in Net Assets
$145,448
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$94,873
Other Expenses$51,084
Total Fundraising Expense$5,950
Grants and Similar Amounts Paid$3,180
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$77,525-$4,080$81,605
Conferences and Meetings$13,610--$13,610
Office Expenses$2,092$8,674$1,240$12,006
Fees for Services Accounting-$10,930-$10,930
Other Expenses$2$10,166$0$10,168
Payroll Taxes$6,336-$334$6,670
Other Employee Benefits$5,623$679$296$6,598
Travel$3,194--$3,194
Grants to Domestic Individuals$3,180--$3,180
Fees for Services Other-$1,176-$1,176
Total Functional Expenses$111,562$31,625$5,950$149,137
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

Non-voting honorary board members: luke rosen and sally jackson, are married.

Form 990, Part VI, Section B, Line 11B

The 990 is reviewed and approved by the board of directors prior to filing.

Form 990, Part VI, Section B, Line 12C

Board members are required to disclose any coi prior to entering into any arrangements, financially or otherwise.

Form 990, Part VI, Section C, Line 19

Upon reasonable request, public websites, and organizational web site. The financial updates are provided during community meetings, and in the annual report. Form 990 can be accessed via irs.gov and guidestar.org.

Filing and Contact Details

Filer

Filer Name
Kif1aorg Inc
EIN
82-0714729
Phone
9296305232
Address
1178 BROADWAY 3RD FLOOR 3535, NEW YORK, NY 10001

Signing Officer

Name
Angie Fuller
Title
Chairperson, Treasurer
Phone
9296305232
Signed
2025-05-08
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Angie Fuller
Formed
2017
Legal Domicile
Ny
Voting Board Members
5
Independent Board Members
5
Employees
1
Volunteers
10

Preparer

Firm
Easy Office Dba Jitasa
Address
1120 S RACKHAM WAY SUITE 300, MERIDIAN, ID 83642
Preparer
Jeremy Cork
Phone
2082874777
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ProgSrvcAccomActy2Grp/Desc0COMMUNITY & FAMILY SUPPORT - KIF1A.ORG'S COMMUNITY AND FAMILY SUPPORT PROGRAM EMPOWERS INDIVIDUALS AFFECTED BY KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) THROUGH DIRECT SUPPORT, RESOURCE DEVELOPMENT, AND FAMILY-CENTERED INITIATIVES. THIS PROGRAM PROVIDES A VITAL SUPPORT NETWORK FOR PATIENTS, CAREGIVERS, AND ADVOCATES NAVIGATING THE CHALLENGES OF A RARE NEURODEGENERATIVE DISEASE. THROUGH VIRTUAL MEETUPS, EDUCATIONAL WEBINARS, PERSONALIZED FAMILY OUTREACH, AND AN ONLINE COMMUNITY PLATFORM, KIF1A.ORG FOSTERS MEANINGFUL CONNECTIONS AMONG FAMILIES AROUND THE WORLD. THE PROGRAM ALSO PROVIDES GUIDANCE ON CLINICAL CARE, ACCESS TO RESEARCH OPPORTUNITIES, AND EMOTIONAL SUPPORT RESOURCES. BY AMPLIFYING THE VOICES OF PATIENTS AND CAREGIVERS, THE COMMUNITY AND FAMILY SUPPORT PROGRAM HELPS BUILD RESILIENCE, REDUCE ISOLATION, AND ENSURE THAT EVERY KAND FAMILY IS EQUIPPED WITH THE TOOLS AND INFORMATION NEEDED TO FACE THE COMPLEX REALITIES OF THIS ULTRA-RARE DISORDER.
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IRS990/ProgSrvcAccomActy3Grp/Desc0MEDICAL RESEARCH AND DEVELOPMENT - KIF1A.ORG'S MEDICAL RESEARCH AND DEVELOPMENT PROGRAM ACCELERATES DISCOVERY AND THERAPEUTIC DEVELOPMENT FOR KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) BY DRIVING SCIENTIFIC COLLABORATION AND PATIENT-CENTERED RESEARCH. LED BY OUR CHIEF SCIENCE OFFICER, THIS PROGRAM FACILITATES COORDINATION AMONG RESEARCHERS, CLINICIANS, AND INSTITUTIONS AROUND THE WORLD TO ALIGN EFFORTS, SHARE DATA AND RESOURCES, AND ADVANCE UNDERSTANDING OF KIF1A-RELATED SYMPTOMS. THROUGH STRATEGIC PARTNERSHIPS, RESEARCH GRANTS, AND CONVENING GLOBAL EXPERTS, THE PROGRAM HELPS IDENTIFY AND PRIORITIZE HIGH-IMPACT RESEARCH PROJECTS. IMPORTANTLY, KIF1A.ORG ENSURES THAT THE PATIENT AND CAREGIVER PERSPECTIVE REMAINS CENTRAL IN ALL SCIENTIFIC DISCUSSIONS, FROM BASIC RESEARCH TO CLINICAL TRIAL DESIGN. BY BRIDGING THE GAP BETWEEN FAMILIES AND THE SCIENTIFIC COMMUNITY, THE MEDICAL RESEARCH AND DEVELOPMENT PROGRAM FOSTERS A COLLABORATIVE ECOSYSTEM DEDICATED TO DELIVERING MEANINGFUL OUTCOMES FOR THOSE AFFECTED BY KAND.
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0557413
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0816181
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0741465
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02614307
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt02196
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt022611
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt04
IRS990ScheduleA/OtherIncome170Grp/TotalAmt022615
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.95368
IRS990ScheduleA/PublicSupportPY170Pct00.95679
IRS990ScheduleA/PublicSupportTotal170Amt02514784
IRS990ScheduleA/SubstantialContributorsTotAmt099523
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0292389
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0206859
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0557413
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0816181
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0741465
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02614307
IRS990ScheduleA/TotalSupportAmt02636922
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0NON-VOTING HONORARY BOARD MEMBERS: LUKE ROSEN AND SALLY JACKSON, ARE MARRIED.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE 990 IS REVIEWED AND APPROVED BY THE BOARD OF DIRECTORS PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2BOARD MEMBERS ARE REQUIRED TO DISCLOSE ANY COI PRIOR TO ENTERING INTO ANY ARRANGEMENTS, FINANCIALLY OR OTHERWISE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3UPON REASONABLE REQUEST, PUBLIC WEBSITES, AND ORGANIZATIONAL WEB SITE. THE FINANCIAL UPDATES ARE PROVIDED DURING COMMUNITY MEETINGS, AND IN THE ANNUAL REPORT. FORM 990 CAN BE ACCESSED VIA IRS.GOV AND GUIDESTAR.ORG.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section A, Line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part VI, Section C, Line 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0NY
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00
IRS990/TotalAssetsBOYAmt072868
IRS990/TotalAssetsEOYAmt0218316
IRS990/TotalAssetsGrp/BOYAmt072868
IRS990/TotalAssetsGrp/EOYAmt0218316
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0292389
IRS990/TotalEmployeeCnt01
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt05950
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt031625
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0111562
IRS990/TotalFunctionalExpensesGrp/TotalAmt0149137
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt072868
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0218316
IRS990/TotalOtherCompensationAmt00
IRS990/TotalOtherProgSrvcExpenseAmt027736
IRS990/TotalOtherProgSrvcGrantAmt00
IRS990/TotalOtherProgSrvcRevenueAmt02196
IRS990/TotalOthProgramServiceRevGrp/ExclusionAmt00
IRS990/TotalOthProgramServiceRevGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalOthProgramServiceRevGrp/TotalRevenueColumnAmt00
IRS990/TotalOthProgramServiceRevGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalProgramServiceExpensesAmt0111562
IRS990/TotalProgramServiceRevenueAmt02196
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt02196
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0294585
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt010
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt072868
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0218316
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ProgramServicesAmt03194
IRS990/TravelGrp/TotalAmt03194
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt01178 BROADWAY 3RD FLOOR 3535
IRS990/USAddress/CityNm0NEW YORK
IRS990/USAddress/StateAbbreviationCd0NY
IRS990/USAddress/ZIPCd010001
IRS990/VotingMembersGoverningBodyCnt05
IRS990/VotingMembersIndependentCnt05
IRS990/WebsiteAddressTxt0www.kif1a.org
IRS990/WhistleblowerPolicyInd01
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0ANGIE FULLER
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0CHAIRPERSON, TREASURER
ReturnHeader/BusinessOfficerGrp/PhoneNum09296305232
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-05-08
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0KIF1AORG INC
ReturnHeader/Filer/BusinessNameControlTxt0KIF1
ReturnHeader/Filer/EIN0820714729
ReturnHeader/Filer/PhoneNum09296305232
ReturnHeader/Filer/USAddress/AddressLine1Txt01178 BROADWAY 3RD FLOOR 3535
ReturnHeader/Filer/USAddress/CityNm0NEW YORK
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NY
ReturnHeader/Filer/USAddress/ZIPCd010001
ReturnHeader/IRSResponsiblePrtyInfoCurrInd01
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0262176601
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0EASY OFFICE DBA JITASA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt01120 S RACKHAM WAY SUITE 300
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0MERIDIAN
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0ID
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd083642
ReturnHeader/PreparerPersonGrp/PhoneNum02082874777
ReturnHeader/PreparerPersonGrp/PreparationDt02025-05-08
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0JEREMY CORK
ReturnHeader/ReturnTs02025-05-08T17:16:07-07:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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