Liabilities / Assets
59th percentile
Tied with the lowest-debt nonprofits in its peer group.
EIN 82-0714729 • 501(c)3 • New York, NY
Profile
Kif1a.org is a global community dedicated to improving the lives of those affected by kif1a-associated neurological disorders and accelerating research to find a cure.
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
Liabilities / Assets
59th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
61st percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
90th percentile
Higher net margin than 90% of similar nonprofits.
Top Officer Pay
Score unavailable
No filing with officer rows is available for this organization yet.
Asset Growth
96th percentile
Faster asset growth than 96% of similar nonprofits.
Revenue Growth
77th percentile
Faster revenue growth than 77% of similar nonprofits.
Assets
Up$218,316
Up $145,448 (+200%) from 2023
Liabilities
Flat$0
Flat from 2023
Net Assets
Up$218,316
Up $145,448 (+200%) from 2023
Revenue
Up$294,585
Up $65,115 (+28%) from 2023
Expenses
Down$149,137
Down $274,528 (-65%) from 2023
Net Income
Up$145,448
Up $339,643 (+175%) from 2023
Most recent year
2024 • Form 990Detailed filing. Detailed filing data is available for this year.
Kif1a.org inc is a global community dedicated to improving the lives of those affected by kif1a associated neurological disorder (kand) and accelerating research to find a cure.
Kif1a.org is a global community dedicated to improving the lives of those affected by kif1a-associated neurological disorders and accelerating research to find a cure.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $72,868 | $218,316 | ▲ $145,448 |
| Total Assets | $72,868 | $218,316 | ▲ $145,448 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $72,868 | $218,316 | ▲ $145,448 |
| Net Assets With Donor Restrictions | $0 | $0 | → $0 |
| Total Net Assets Fund Balance | $72,868 | $218,316 | ▲ $145,448 |
| Total Liabilities and Net Assets / Fund Balance | $72,868 | $218,316 | ▲ $145,448 |
| Name | Title |
|---|---|
| Angie Fuller | Chairperson, Treasurer |
| Michelle Tao | Vice Chairperson, Secretary |
| Luke Rosen | Board Member |
| Maria Barros | Board Member |
| Patrick Sarmiere | Board Member |
| Sally Jackson | Board Member |
| Tamara Agajanov | Board Member |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $94,873 |
| Other Expenses | $51,084 |
| Total Fundraising Expense | $5,950 |
| Grants and Similar Amounts Paid | $3,180 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $77,525 | - | $4,080 | $81,605 |
| Conferences and Meetings | $13,610 | - | - | $13,610 |
| Office Expenses | $2,092 | $8,674 | $1,240 | $12,006 |
| Fees for Services Accounting | - | $10,930 | - | $10,930 |
| Other Expenses | $2 | $10,166 | $0 | $10,168 |
| Payroll Taxes | $6,336 | - | $334 | $6,670 |
| Other Employee Benefits | $5,623 | $679 | $296 | $6,598 |
| Travel | $3,194 | - | - | $3,194 |
| Grants to Domestic Individuals | $3,180 | - | - | $3,180 |
| Fees for Services Other | - | $1,176 | - | $1,176 |
| Total Functional Expenses | $111,562 | $31,625 | $5,950 | $149,137 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Non-voting honorary board members: luke rosen and sally jackson, are married.”
“The 990 is reviewed and approved by the board of directors prior to filing.”
“Board members are required to disclose any coi prior to entering into any arrangements, financially or otherwise.”
“Upon reasonable request, public websites, and organizational web site. The financial updates are provided during community meetings, and in the annual report. Form 990 can be accessed via irs.gov and guidestar.org.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | KIF1A.ORG IS A GLOBAL COMMUNITY DEDICATED TO IMPROVING THE LIVES OF THOSE AFFECTED BY KIF1A-ASSOCIATED NEUROLOGICAL DISORDERS AND ACCELERATING RESEARCH TO FIND A CURE. |
| IRS990/AllOtherContributionsAmt | 0 | 292389 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 0 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1Txt | 0 | EASY OFFICE DBA JITASA |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2082874777 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 1120 S RACKHAM WAY SUITE 300 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | MERIDIAN |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | ID |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 83642 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | 0 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 72868 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 218316 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 0 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 13610 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 13610 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 292389 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 3180 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 51084 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 2196 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 145448 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 94873 |
| IRS990/CYTotalExpensesAmt | 0 | 149137 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 5950 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 294585 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 0 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | FAMILY & SCIENTIFIC ENGAGEMENT CONFERENCE - KIF1A.ORG HOSTS A BIENNIAL FAMILY AND SCIENTIFIC ENGAGEMENT CONFERENCE TO UNITE THE GLOBAL KAND COMMUNITY-INCLUDING PATIENTS, FAMILIES, RESEARCHERS, CLINICIANS, AND INDUSTRY PARTNERS-FOR A COLLABORATIVE EXCHANGE OF KNOWLEDGE, RESEARCH UPDATES, AND LIVED EXPERIENCES. THIS FLAGSHIP EVENT FOSTERS MEANINGFUL CONNECTIONS, DRIVES CROSS-DISCIPLINARY COLLABORATION, AND AMPLIFIES THE PATIENT VOICE IN THE SEARCH FOR TREATMENTS AND A CURE. ALTHOUGH 2024 WAS AN OFF YEAR FOR THE LIVE CONFERENCE, THE ORGANIZATION FOCUSED ON POST-CONFERENCE ENGAGEMENT STEMMING FROM THE 2023 EVENT AND LAID CRITICAL GROUNDWORK FOR THE 2025 GATHERING. ONGOING ACTIVITIES INCLUDED FOLLOW-UP SESSIONS, PLANNING MEETINGS, COMMUNITY FEEDBACK INITIATIVES, AND SPEAKER COORDINATION. THESE EFFORTS ENSURE THE CONFERENCE REMAINS A POWERFUL CATALYST FOR RESEARCH PROGRESS AND A VITAL SOURCE OF SUPPORT AND EMPOWERMENT FOR FAMILIES AFFECTED BY KAND. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 0 |
| IRS990/DonatedServicesAndUseFcltsAmt | 0 | 0 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 0 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 0 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 0 |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 38258 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 1 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FederatedCampaignsAmt | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 10930 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 10930 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 1176 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 1176 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | ANGIE FULLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | MICHELLE TAO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | PATRICK SARMIERE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | TAMARA AGAJANOV |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | MARIA BARROS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | LUKE ROSEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | SALLY JACKSON |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | CHAIRPERSON, TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE CHAIRPERSON, SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/FormationYr | 0 | 2017 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedInd | 0 | 0 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/FundraisingAmt | 0 | 0 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | 0 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 0 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 5 |
| IRS990/GovernmentGrantsAmt | 0 | 0 |
| IRS990/GrantAmt | 0 | 0 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 3180 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 3180 |
| IRS990/GrantsToIndividualsInd | 0 | 0 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossReceiptsAmt | 0 | 294585 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 0 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 0 |
| IRS990/IndependentVotingMemberCnt | 0 | 5 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InvestmentExpenseAmt | 0 | 0 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | NY |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembershipDuesAmt | 0 | 0 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | KIF1A.ORG IS A GLOBAL COMMUNITY DEDICATED TO IMPROVING THE LIVES OF THOSE AFFECTED BY KIF1A-ASSOCIATED NEUROLOGICAL DISORDERS AND ACCELERATING RESEARCH TO FIND A CURE. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 72868 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 218316 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 0 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 72868 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 218316 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NoncashContributionsAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 1240 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 8674 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 2092 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 12006 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 296 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 679 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 5623 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 6598 |
| IRS990/OtherExpensesGrp/Desc | 0 | DUES & SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 10166 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 2 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 10168 |
| IRS990/OtherRevenueTotalAmt | 0 | 0 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 4080 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 77525 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 81605 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 334 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 6336 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 6670 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | ANGIE FULLER |
| IRS990/PriorPeriodAdjustmentsAmt | 0 | 0 |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | REGISTRATION FEES |
| IRS990/ProgramServiceRevenueGrp/ExclusionAmt | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 2196 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 2196 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | COMMUNITY & FAMILY SUPPORT - KIF1A.ORG'S COMMUNITY AND FAMILY SUPPORT PROGRAM EMPOWERS INDIVIDUALS AFFECTED BY KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) THROUGH DIRECT SUPPORT, RESOURCE DEVELOPMENT, AND FAMILY-CENTERED INITIATIVES. THIS PROGRAM PROVIDES A VITAL SUPPORT NETWORK FOR PATIENTS, CAREGIVERS, AND ADVOCATES NAVIGATING THE CHALLENGES OF A RARE NEURODEGENERATIVE DISEASE. THROUGH VIRTUAL MEETUPS, EDUCATIONAL WEBINARS, PERSONALIZED FAMILY OUTREACH, AND AN ONLINE COMMUNITY PLATFORM, KIF1A.ORG FOSTERS MEANINGFUL CONNECTIONS AMONG FAMILIES AROUND THE WORLD. THE PROGRAM ALSO PROVIDES GUIDANCE ON CLINICAL CARE, ACCESS TO RESEARCH OPPORTUNITIES, AND EMOTIONAL SUPPORT RESOURCES. BY AMPLIFYING THE VOICES OF PATIENTS AND CAREGIVERS, THE COMMUNITY AND FAMILY SUPPORT PROGRAM HELPS BUILD RESILIENCE, REDUCE ISOLATION, AND ENSURE THAT EVERY KAND FAMILY IS EQUIPPED WITH THE TOOLS AND INFORMATION NEEDED TO FACE THE COMPLEX REALITIES OF THIS ULTRA-RARE DISORDER. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 26729 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 3180 |
| IRS990/ProgSrvcAccomActy2Grp/RevenueAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | MEDICAL RESEARCH AND DEVELOPMENT - KIF1A.ORG'S MEDICAL RESEARCH AND DEVELOPMENT PROGRAM ACCELERATES DISCOVERY AND THERAPEUTIC DEVELOPMENT FOR KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) BY DRIVING SCIENTIFIC COLLABORATION AND PATIENT-CENTERED RESEARCH. LED BY OUR CHIEF SCIENCE OFFICER, THIS PROGRAM FACILITATES COORDINATION AMONG RESEARCHERS, CLINICIANS, AND INSTITUTIONS AROUND THE WORLD TO ALIGN EFFORTS, SHARE DATA AND RESOURCES, AND ADVANCE UNDERSTANDING OF KIF1A-RELATED SYMPTOMS. THROUGH STRATEGIC PARTNERSHIPS, RESEARCH GRANTS, AND CONVENING GLOBAL EXPERTS, THE PROGRAM HELPS IDENTIFY AND PRIORITIZE HIGH-IMPACT RESEARCH PROJECTS. IMPORTANTLY, KIF1A.ORG ENSURES THAT THE PATIENT AND CAREGIVER PERSPECTIVE REMAINS CENTRAL IN ALL SCIENTIFIC DISCUSSIONS, FROM BASIC RESEARCH TO CLINICAL TRIAL DESIGN. BY BRIDGING THE GAP BETWEEN FAMILIES AND THE SCIENTIFIC COMMUNITY, THE MEDICAL RESEARCH AND DEVELOPMENT PROGRAM FOSTERS A COLLABORATIVE ECOSYSTEM DEDICATED TO DELIVERING MEANINGFUL OUTCOMES FOR THOSE AFFECTED BY KAND. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 18839 |
| IRS990/ProgSrvcAccomActy3Grp/GrantAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActy3Grp/RevenueAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | REIMBURSEMENT OTHER PROGRAMS - GENERAL AND CONFERENCE ATTENDANCE. |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 27736 |
| IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt | 0 | 0 |
| IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt | 0 | 2196 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 206859 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 129956 |
| IRS990/PYInvestmentIncomeAmt | 0 | 0 |
| IRS990/PYOtherExpensesAmt | 0 | 169874 |
| IRS990/PYOtherRevenueAmt | 0 | 22611 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -194195 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 123835 |
| IRS990/PYTotalExpensesAmt | 0 | 423665 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 229470 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 145448 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/RelatedOrganizationsAmt | 0 | 0 |
| IRS990/RentalIncomeOrLossGrp/PersonalAmt | 0 | 0 |
| IRS990/RentalIncomeOrLossGrp/RealAmt | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 0 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 0 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | MISCELLANEOUS REVENUE |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | NON-VOTING HONORARY BOARD MEMBERS: LUKE ROSEN AND SALLY JACKSON, ARE MARRIED. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THE 990 IS REVIEWED AND APPROVED BY THE BOARD OF DIRECTORS PRIOR TO FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | BOARD MEMBERS ARE REQUIRED TO DISCLOSE ANY COI PRIOR TO ENTERING INTO ANY ARRANGEMENTS, FINANCIALLY OR OTHERWISE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | UPON REASONABLE REQUEST, PUBLIC WEBSITES, AND ORGANIZATIONAL WEB SITE. THE FINANCIAL UPDATES ARE PROVIDED DURING COMMUNITY MEETINGS, AND IN THE ANNUAL REPORT. FORM 990 CAN BE ACCESSED VIA IRS.GOV AND GUIDESTAR.ORG. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990, Part VI, Section A, Line 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990, Part VI, Section B, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990, Part VI, Section B, Line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990, Part VI, Section C, Line 19 |
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| IRS990/USAddress/CityNm | 0 | NEW YORK |
| IRS990/USAddress/StateAbbreviationCd | 0 | NY |
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| IRS990/VotingMembersIndependentCnt | 0 | 5 |
| IRS990/WebsiteAddressTxt | 0 | www.kif1a.org |
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| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | 1 |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | ANGIE FULLER |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | CHAIRPERSON, TREASURER |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 9296305232 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-05-08 |
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| ReturnHeader/Filer/BusinessNameControlTxt | 0 | KIF1 |
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| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | EASY OFFICE DBA JITASA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 1120 S RACKHAM WAY SUITE 300 |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | MERIDIAN |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | ID |
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| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2025-05-08 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | JEREMY CORK |
| ReturnHeader/ReturnTs | 0 | 2025-05-08T17:16:07-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990 |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
| ReturnHeader/TaxYr | 0 | 2024 |
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