Civic Intelligence

Kif1Aorg Inc.

990 • Fiscal year 2020 • EIN 82-0714729

Jan 01, 2020 to Dec 31, 2020 • Filed on Nov 15, 2021

Organization ProfileWWW.KIF1A.ORG
808 Columbus Avenue Ste 10ANew York, NY 10025

(212) 896-2925

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

13th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • NTEE F • $500k-$1M nonprofits • Source year 2020

Liabilities / Revenue

12th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2020 filings • NTEE F • $500k-$1M nonprofits • Source year 2020

Net Margin

98th percentile

59%

Higher net margin than 98% of similar nonprofits.

2020 filings • NTEE F • $500k-$1M nonprofits • Source year 2020

Top Officer Pay

37th percentile

$45,284

Higher top officer pay than 37% of similar nonprofits.

Top officer pay equals 6.1% of source-year revenue.

2020 filings • NTEE F • $500k-$1M nonprofits • Source year 2020

Asset Growth

97th percentile

523%

Faster asset growth than 97% of similar nonprofits.

2020 filings • NTEE F • $500k-$1M nonprofits • Annualized from 2019 to 2020

Revenue Growth

97th percentile

90%

Faster revenue growth than 97% of similar nonprofits.

2020 filings • NTEE F • $500k-$1M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets13th percentile

Assets

Up

$504,969

Up $423,875 (+523%) from 2019

Net Assets

Up

$504,969

Up $423,875 (+523%) from 2019

Liabilities

Flat

$0

Flat from 2019

Revenue And Expenses
Liabilities / Revenue12th percentileNet Margin98th percentile

Revenue

Up

$741,465

Up $350,504 (+90%) from 2019

Expenses

Down

$301,952

Down $7,915 (-2.6%) from 2019

Net Income

Up

$439,513

Up $358,419 (+442%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth97th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2018: $635Liabilities 2018: $0Net Assets 2018: $6352018Assets 2019: $81,094Liabilities 2019: $0Net Assets 2019: $81,0942019Assets 2020: $504,969Liabilities 2020: $0Net Assets 2020: $504,9692020Assets 2021: $763,933Liabilities 2021: $0Net Assets 2021: $763,9332021Assets 2022: $267,063Liabilities 2022: $0Net Assets 2022: $267,0632022Assets 2023: $72,868Liabilities 2023: $0Net Assets 2023: $72,8682023Assets 2024: $218,316Liabilities 2024: $0Net Assets 2024: $218,3162024

Highlighted filing

2020

Assets$504,969
Liabilities$0
Net Assets$504,969
Open 2020 Filing

Operations Trend

Revenue Growth97th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2018: $157,983Expenses 2018: $168,752Net Income 2018: -$10,7692018Revenue 2019: $390,961Expenses 2019: $309,867Net Income 2019: $81,0942019Revenue 2020: $741,465Expenses 2020: $301,952Net Income 2020: $439,5132020Revenue 2021: $816,181Expenses 2021: $557,217Net Income 2021: $258,9642021Revenue 2022: $557,417Expenses 2022: $1,054,287Net Income 2022: -$496,8702022Revenue 2023: $229,470Expenses 2023: $423,665Net Income 2023: -$194,1952023Revenue 2024: $294,585Expenses 2024: $149,137Net Income 2024: $145,4482024

Highlighted filing

2020

Revenue$741,465
Expenses$301,952
Net Income$439,513
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2020 to Dec 31, 2020
Signed
Nov 15, 2021
Return Version
2020v4.0
Gross Receipts
$741,465
Mission and Program Overview

Mission

Kif1a.org inc is a global community dedicated to improving the lives of those affected by kif1a associated neurological disorder (kand) and accelerating research to find a cure.

A global community dedicated to improving the lives of those affected by KAND and accelerating research to find a cure

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$53,842$504,969▲ $451,127
Pledges and Grants Receivable$27,252--
Total Assets$81,094$504,969▲ $423,875
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets With Donor Restrictions$65,456$254,819▲ $189,363
Net Assets Without Donor Restrictions$15,638$250,150▲ $234,512
Total Net Assets Fund Balance$81,094$504,969▲ $423,875
Total Liabilities and Net Assets / Fund Balance$81,094$504,969▲ $423,875
Compensation and Service Providers
Top Officer Pay37th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Kathryn AtchleyPresidentFT$45,284$45,284
Dominique LessardChief Science OfficerFT$33,843$33,843

Board Members and Trustees

NameTitle
Luke RosenBoard Chair
Bobby FlayDirector
Hans ChristingerDirector
Nicole BoiceDirector
Sally JacksonDirector
Shannon DennisChief Patient Officer
John SiemerTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$741,465
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$738,165
Change in Net Assets
$439,513
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$183,882
Salaries, Compensation, and Employee Benefits$85,180
Other Expenses$32,890
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$152,358--$152,358
Current Officers, Directors, Trustees, and Key Employees$71,214$7,913-$79,127
Foreign Grants$31,524--$31,524
Other Expenses$17,740$2,155-$19,895
Information Technology$653$6,221-$6,874
Payroll Taxes$5,448$605-$6,053
Travel-$2,095-$2,095
Office Expenses-$1,799-$1,799
Total Functional Expenses$278,937$23,015$0$301,952
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
UC RegentsDavis, CA-Scientific research$90,000
Columbia UniversityNew York, NY-Scientific research$50,000

International Summary

Offices
2
Employees
3
Spending
$41,524

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
OtherProgram servicesScientific research12$31,524
EuropeProgram serviceScientific research11$10,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Part VI Line 1A

“None”

Part VI Line 1A

“Not applicable”

Part VI Line 2

“Luke Rosen and Sally Jackson are married and both serve as Directors.”

Part VI Line 8B

“None”

Part VI Line 11B

“The 990 is reviewed and approved by the Board of Directors prior to filing.”

Part VI Line 12C

“Board members are required to disclose any COI prior to entering into any”

Part VI Line 12C

“arrangements, financially or otherwise.”

Part VI Line 15A or B

“The President's and Chief Science Officer's compensation was determined”

Part VI Line 15A or B

“based on organizational wide funding which was approved by the Board.”

Part VI Line 19

“Upon Request”

Filing and Contact Details

Filer

Filer Name
Kif1aorg Inc
EIN
82-0714729
In Care Of
% Luke Rosen
Phone
2128962925
Address
808 Columbus Avenue Ste 10A, NEW YORK, NY 10025

Signing Officer

Name
Luke Rosen
Title
Board Chair
Phone
2128962925
Signed
2021-11-15

Organization Details

Principal Officer
Luke Rosen
Formed
2017
Legal Domicile
Ny
Voting Board Members
5
Independent Board Members
5
Employees
2
Volunteers
1,500
Supplemental Narrative

Additional Explanations

Part III Line 3

“The Family & Scientific Engagement Conference was postponed in 2020”

Part III Line 3

“due to COVID.”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt1which is discussed and agreed upon by members of the organization prior to
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt2entering into any agreement and delegating funds. Regular updates are
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt3required by the grantee to ensure that the funds are being used for their
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt4intended purposes.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0P1, Ln 2
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc1P1, Ln 2
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc2P1, Ln 2
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc3P1, Ln 2
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc4P1, Ln 2
IRS990ScheduleF/Total501c3OrgCnt02
IRS990ScheduleF/TotalEmployeeCnt03
IRS990ScheduleF/TotalOfficeCnt02
IRS990ScheduleF/TotalSpentAmt041524
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt050000
IRS990ScheduleI/RecipientTable/CashGrantAmt190000
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Scientific research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1Scientific research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Columbia University
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1UC Regents
IRS990ScheduleI/RecipientTable/RecipientEIN0135598093
IRS990ScheduleI/RecipientTable/RecipientEIN1946036494
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0535 West 116th Street
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1202 Cousteau Place Ste Suite 185
IRS990ScheduleI/RecipientTable/USAddress/CityNm0New York
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Davis
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0NY
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1CA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd010027
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd196618
IRS990ScheduleI/Total501c3OrgCnt00
IRS990ScheduleI/TotalOtherOrgCnt00
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The Family & Scientific Engagement Conference was postponed in 2020
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1due to COVID.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2None
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Not applicable
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Luke Rosen and Sally Jackson are married and both serve as Directors.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5None
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6The 990 is reviewed and approved by the Board of Directors prior to filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt7Board members are required to disclose any COI prior to entering into any
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt8arrangements, financially or otherwise.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt9The President's and Chief Science Officer's compensation was determined
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt10based on organizational wide funding which was approved by the Board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt11Upon Request
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Part III Line 3
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Part III Line 3
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Part VI Line 1a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Part VI Line 1a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Part VI Line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Part VI Line 8b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6Part VI Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc7Part VI Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc8Part VI Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc9Part VI Line 15a or b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc10Part VI Line 15a or b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc11Part VI Line 19
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0true
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0NY
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt081094
IRS990/TotalAssetsEOYAmt0504969
IRS990/TotalAssetsGrp/BOYAmt081094
IRS990/TotalAssetsGrp/EOYAmt0504969
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0741465
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt023015
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0278937
IRS990/TotalFunctionalExpensesGrp/TotalAmt0301952
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt081094
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0504969
IRS990/TotalProgramServiceExpensesAmt0278937
IRS990/TotalReportableCompFromOrgAmt079127
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0741465
IRS990/TotalVolunteersCnt01500
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt081094
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0504969
IRS990/TravelGrp/ManagementAndGeneralAmt02095
IRS990/TravelGrp/TotalAmt02095
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0808 Columbus Avenue Ste 10A
IRS990/USAddress/CityNm0New York
IRS990/USAddress/StateAbbreviationCd0NY
IRS990/USAddress/ZIPCd010025
IRS990/VotingMembersGoverningBodyCnt05
IRS990/VotingMembersIndependentCnt05
IRS990/WebsiteAddressTxt0WWW.KIF1A.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/IdentityAssuranceLevelCd0IAL1
ReturnHeader/AdditionalFilerInformation/TrustedCustomerGrp/TrustedCustomerCd01
ReturnHeader/BuildTS02022-09-23 18:48:47Z
ReturnHeader/BusinessOfficerGrp/PersonNm0LUKE ROSEN
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Board Chair
ReturnHeader/BusinessOfficerGrp/PhoneNum02128962925
ReturnHeader/BusinessOfficerGrp/SignatureDt02021-11-15
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0KIF1AORG INC
ReturnHeader/Filer/BusinessNameControlTxt0KIFA
ReturnHeader/Filer/EIN0820714729
ReturnHeader/Filer/InCareOfNm0% Luke Rosen
ReturnHeader/Filer/PhoneNum02128962925
ReturnHeader/Filer/USAddress/AddressLine1Txt0808 Columbus Avenue Ste 10A
ReturnHeader/Filer/USAddress/CityNm0NEW YORK

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$504,969
Liabilities
$0
Net assets
$504,969
Revenue
$741,465
Expenses
$301,952
Net income
$439,513
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.22$0.00$0.22$0.29$0.15$0.15
2023Detailed filing. Detailed filing data is available for this year.$0.07$0.00$0.07$0.23$0.42$0.19
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.27$0.00$0.27$0.56$1.05$0.50
2021Detailed filing. Detailed filing data is available for this year.$0.76$0.00$0.76$0.82$0.56$0.26
2020Detailed filing. Detailed filing data is available for this year.$0.50$0.00$0.50$0.74$0.30$0.44
2019Detailed filing. Detailed filing data is available for this year.$0.08$0.00$0.08$0.39$0.31$0.08
2018Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.16$0.17$0.01