Liabilities / Assets
27th percentile
Tied with the lowest-debt nonprofits in its peer group.
990 • Fiscal year 2020 • EIN 81-4713372
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
27th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
27th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
1st percentile
Higher net margin than 1% of similar nonprofits.
Top Officer Pay
88th percentile
Higher top officer pay than 88% of similar nonprofits.
Top officer pay equals 51.5% of source-year revenue.
Asset Growth
3rd percentile
Faster asset growth than 3% of similar nonprofits.
Revenue Growth
2nd percentile
Faster revenue growth than 2% of similar nonprofits.
Assets
Down$893,276
Down $597,783 (-40%) from 2019
Net Assets
Down$893,276
Down $597,783 (-40%) from 2019
Liabilities
Flat$0
Flat from 2019
Revenue
Down$194,010
Down $1,064,844 (-85%) from 2019
Expenses
Up$791,793
Up $74,916 (+10%) from 2019
Net Income
Down-$597,783
Down $1,139,760 (-210%) from 2019
The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other neurodegenerative diseases. Families in this community have been pivotal in raising the necessary funds and awareness. Together with our incredible scientists and partner organizations, we hope that our work will improve the prognosis of batten disease and other neurodegenerative diseases. Through our fundraising - which includes grassroots efforts, individuals and family foundations, and events - we have started two genetic therapy trials (one underway, the other still in the pre-clinical phase) as well as fund scientists focused on bench research to understand the underlying causes and indications of cln7 batten disease.
The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other neurodegenerative diseases. Families in this community have been pivotal in raising the necessary funds and awareness. Together with our incredible scientists and partner organizations, we hope that our work will improve the prognosis of batten disease and other neurodegenerative diseases. Through our fundraising - which includes grassroots efforts, individuals and family foundations, and events - we have started two genetic therapy trials (one underway, the other still in the pre-clinical phase) as well as fund scientists focused on bench research to understand the underlying causes and indications of cln7 batten disease. Additionally, we are focused on helping to grow the new field of truly personal medicines which mila's story has opened up, and making it accessible to many more across hundreds of rare diseases. Our hope is that our work will give mila and many others like her a second
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $1,318,193 | $518,592 | ▼ $799,601 |
| Other Notes and Loans Receivable, Net | - | $373,676 | - |
| Cash and Non-Interest-Bearing Accounts | $172,866 | $1,008 | ▼ $171,858 |
| Total Assets | $1,491,059 | $893,276 | ▼ $597,783 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $691,059 | $893,276 | ▲ $202,217 |
| Net Assets With Donor Restrictions | $800,000 | - | - |
| Total Net Assets Fund Balance | $1,491,059 | $893,276 | ▼ $597,783 |
| Total Liabilities and Net Assets / Fund Balance | $1,491,059 | $893,276 | ▼ $597,783 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Julia Vitarello | President | FT | $100,000 | $100,000 |
| Name | Title |
|---|---|
| Katherine Fox Nagel | Chair |
| Adam Vitarello | Vice Chair |
| Lori Sames | Board Member |
| Julie Mitchell | Secretary |
| Jeni Vitarello | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $630,234 |
| Salaries, Compensation, and Employee Benefits | $161,559 |
| Total Fundraising Expense | $11,563 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $610,468 | $612 | - | $611,080 |
| Current Officers, Directors, Trustees, and Key Employees | $77,569 | $15,278 | $7,153 | $100,000 |
| Other Salaries and Wages | $38,785 | $7,639 | $3,576 | $50,000 |
| Payroll Taxes | $8,947 | $1,778 | $834 | $11,559 |
| Other Expenses | - | $3,852 | - | $3,852 |
| Travel | $3,067 | - | - | $3,067 |
| Advertising | - | $2,791 | - | $2,791 |
| Insurance | - | $1,024 | - | $1,024 |
| Office Expenses | - | $396 | - | $396 |
| Conferences and Meetings | $370 | - | - | $370 |
| Total Functional Expenses | $739,206 | $41,024 | $11,563 | $791,793 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Julia vitarello jeni vitarello president treasurer family relationship julia vitarello adam vitarello president vice chair family relationship adam vitarello jeni vitarello vice chair treasurer family relationship”
“A copy of form 990 will be provided to each member of the governing body, via email or at a board meeting, prior to submission to the internal revenue service”
“Members of the board are asked to disclose and present on potential conflicts to the full board of directors during regularly scheduled meetings. Meetings adjourn to an executive session, as noted in the minutes, at which time the remaining directors review, discuss and vote to determine if a conflict of interest exists and if any further action needs to be taken. Directors and officers are asked to sign an affirmation statement annually and conduct periodic reviews to ensure the organization operates in a manner consistent with charitable purposes and does not engage in activities that could jeopardize its tax-exempt status.”
“Governing documents are available upon request”
“The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other neurodegenerative diseases. Families in this community have been pivotal in raising the necessary funds and awareness. Together with our incredible scientists and partner organizations, we hope that our work will improve the prognosis of batten disease and other neurodegenerative diseases. Through our fundraising - which includes grassroots efforts, individuals and family foundations, and events - we have started two genetic therapy trials (one underway, the other still in the pre-clinical phase) as well as fund scientists focused on bench research to understand the underlying causes and indications of cln7 batten disease. Additionally, we are focused on helping to grow the new field of truly personal medicines which mila's story has opened up, and making it accessible to many more across hundreds of rare diseases. Our hope is that our work will give mila and many others like her a second chance at life.”
“Aso trial 54,290 0 0 platform development 426,324 0 0 basic science - research 1 42,562 0 0 basic science - research 2 87,292 0 0 payroll processing 0 612 0 total 610,468 612 0”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | true |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER NEURODEGENERATIVE DISEASES. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - WE HAVE STARTED TWO GENETIC THERAPY TRIALS (ONE UNDERWAY, THE OTHER STILL IN THE PRE-CLINICAL PHASE) AS WELL AS FUND SCIENTISTS FOCUSED ON BENCH RESEARCH TO UNDERSTAND THE UNDERLYING CAUSES AND INDICATIONS OF CLN7 BATTEN DISEASE. ADDITIONALLY, WE ARE FOCUSED ON HELPING TO GROW THE NEW FIELD OF TRULY PERSONAL MEDICINES WHICH MILA'S STORY HAS OPENED UP, AND MAKING IT ACCESSIBLE TO MANY MORE ACROSS HUNDREDS OF RARE DISEASES. OUR HOPE IS THAT OUR WORK WILL GIVE MILA AND MANY OTHERS LIKE HER A SECOND |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 2791 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 2791 |
| IRS990/AllOtherContributionsAmt | 0 | 193610 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | MARGARET SPOTH |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2165135201 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 2641 SHAKER ROAD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | CLEVELAND HEIGHTS |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | OH |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 44118 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 172866 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 1008 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 7153 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 15278 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 77569 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 100000 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 370 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 370 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 193610 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 400 |
| IRS990/CYOtherExpensesAmt | 0 | 630234 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -597783 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 161559 |
| IRS990/CYTotalExpensesAmt | 0 | 791793 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 11563 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 194010 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - MMF IS WORKING HARD TO START AND FUND NEW TREATMENTS THAT COULD HELP CHILDREN WITH BATTEN AND OTHER LIFE- THREATENING NEUROLOGICAL DISORDERS. IN 2020, OUR FOUNDATION'S WORK FOCUSED ON FOUR PRIMARY PROGRAM INITIATIVES: AN ANTISENSE OLIGONUCLEOTIDE (ASO) CLINICAL TRIAL & THE EXPANSION OF PERSONAL MEDICINES (UNDERWAY); A CLN7 GENE THERAPY TRIAL (IN THE PRE-CLINICAL PHASE); BASIC SCIENCE RESEARCH FOR BATTEN DISEASE (TWO GRANT PROJECTS UNDERWAY); AND A BATTEN & NEURODEGENERATIVE DISEASE PROGRAM (FIRST CLINIC LAUNCHED & UNDERWAY). |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 800000 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 739206 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 612 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 610468 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 611080 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JULIA VITARELLO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JULIE MITCHELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JENI VITARELLO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | KATHERINE FOX NAGEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ADAM VITARELLO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | LORI SAMES |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 100000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2016 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 5 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 194010 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 5 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1024 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1024 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 400 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 400 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 0 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | DE |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER NEURODEGENERATIVE DISEASES. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - WE HAVE STARTED TWO GENETIC THERAPY TRIALS (ONE UNDERWAY, THE OTHER STILL IN THE PRE-CLINICAL PHASE) AS WELL AS FUND SCIENTISTS FOCUSED ON BENCH RESEARCH TO UNDERSTAND THE UNDERLYING CAUSES AND INDICATIONS OF CLN7 BATTEN DISEASE. ADDITIONALLY, WE ARE FOCUSED ON HELPING TO GROW THE NEW FIELD OF TRULY PERSONAL MEDICINES WHICH MILA'S STORY HAS OPENED UP, AND MAKING IT ACCESSIBLE TO MANY MORE ACROSS HUNDREDS OF RARE DISEASES. OUR HOPE IS THAT OUR WORK WILL GIVE MILA AND MANY OTHERS LIKE HER A SECOND |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1491059 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 893276 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 691059 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 893276 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 396 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 396 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherExpensesGrp/Desc | 0 | DUES & SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | TAXES & LICENSES |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 7654 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 3852 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 7654 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 3852 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 3576 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 7639 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 38785 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 50000 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OthNotesLoansReceivableNetGrp/EOYAmt | 0 | 373676 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 834 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1778 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 8947 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 11559 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | JULIA VITARELLO |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 1258360 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 494 |
| IRS990/PYOtherExpensesAmt | 0 | 554562 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 541977 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 162315 |
| IRS990/PYTotalExpensesAmt | 0 | 716877 |
| IRS990/PYTotalRevenueAmt | 0 | 1258854 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -597783 |
| IRS990/RegularMonitoringEnfrcInd | 0 | true |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 1318193 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 518592 |
| IRS990ScheduleA/First5Years170Ind | 0 | X |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | OTHER INCOME 53,910 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | PART II, LINE 10 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 193610 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1258360 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1228384 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1690520 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 4370874 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 400 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 494 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 650 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 24 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 1568 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 53910 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 53910 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 2160509 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 2210365 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 193610 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1258360 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1228384 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1690520 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 4370874 |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER NEURODEGENERATIVE DISEASES. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - WE HAVE STARTED TWO GENETIC THERAPY TRIALS (ONE UNDERWAY, THE OTHER STILL IN THE PRE-CLINICAL PHASE) AS WELL AS FUND SCIENTISTS FOCUSED ON BENCH RESEARCH TO UNDERSTAND THE UNDERLYING CAUSES AND INDICATIONS OF CLN7 BATTEN DISEASE. ADDITIONALLY, WE ARE FOCUSED ON HELPING TO GROW THE NEW FIELD OF TRULY PERSONAL MEDICINES WHICH MILA'S STORY HAS OPENED UP, AND MAKING IT ACCESSIBLE TO MANY MORE ACROSS HUNDREDS OF RARE DISEASES. OUR HOPE IS THAT OUR WORK WILL GIVE MILA AND MANY OTHERS LIKE HER A SECOND CHANCE AT LIFE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | JULIA VITARELLO JENI VITARELLO PRESIDENT TREASURER FAMILY RELATIONSHIP JULIA VITARELLO ADAM VITARELLO PRESIDENT VICE CHAIR FAMILY RELATIONSHIP ADAM VITARELLO JENI VITARELLO VICE CHAIR TREASURER FAMILY RELATIONSHIP |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | A COPY OF FORM 990 WILL BE PROVIDED TO EACH MEMBER OF THE GOVERNING BODY, VIA EMAIL OR AT A BOARD MEETING, PRIOR TO SUBMISSION TO THE INTERNAL REVENUE SERVICE |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | MEMBERS OF THE BOARD ARE ASKED TO DISCLOSE AND PRESENT ON POTENTIAL CONFLICTS TO THE FULL BOARD OF DIRECTORS DURING REGULARLY SCHEDULED MEETINGS. MEETINGS ADJOURN TO AN EXECUTIVE SESSION, AS NOTED IN THE MINUTES, AT WHICH TIME THE REMAINING DIRECTORS REVIEW, DISCUSS AND VOTE TO DETERMINE IF A CONFLICT OF INTEREST EXISTS AND IF ANY FURTHER ACTION NEEDS TO BE TAKEN. DIRECTORS AND OFFICERS ARE ASKED TO SIGN AN AFFIRMATION STATEMENT ANNUALLY AND CONDUCT PERIODIC REVIEWS TO ENSURE THE ORGANIZATION OPERATES IN A MANNER CONSISTENT WITH CHARITABLE PURPOSES AND DOES NOT ENGAGE IN ACTIVITIES THAT COULD JEOPARDIZE ITS TAX-EXEMPT STATUS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | ASO TRIAL 54,290 0 0 PLATFORM DEVELOPMENT 426,324 0 0 BASIC SCIENCE - RESEARCH 1 42,562 0 0 BASIC SCIENCE - RESEARCH 2 87,292 0 0 PAYROLL PROCESSING 0 612 0 TOTAL 610,468 612 0 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990 - ORGANIZATION'S MISSION |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 6, PART VI, LINE 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PART IX, LINE 11G |
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| ReturnHeader/BuildTS | 0 | 2022-09-23 18:48:47Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | JULIA VITARELLO |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | PRESIDENT |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2021-10-26 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | MILA'S MIRACLE FOUNDATION |
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| ReturnHeader/PreparerFirmGrp/PreparerFirmEIN | 0 | 274760605 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | KULLMAN CPA LLC |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 1997 ANNAPOLIS EXCHANGE PKWY SUITE |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | ANNAPOLIS |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | MD |
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| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 4102669885 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2021-11-05 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | STEPHEN J KULLMAN CPA |
| ReturnHeader/ReturnTs | 0 | 2021-11-15T08:37:19-06:00 |
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| ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm | 0 | VITARELLO |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2020-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2020-12-31 |
| ReturnHeader/TaxYr | 0 | 2020 |
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Displayed year
2020 • Form 990Detailed filing. Detailed filing data is available for this year.