Civic Intelligence

Milas Miracle Foundation Inc.

990 • Fiscal year 2018 • EIN 81-4713372

Jan 01, 2018 to Dec 31, 2018 • Filed on Jul 01, 2019

PO Box 19675Boulder, CO 80308

(440) 333-9004

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

14th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Liabilities / Revenue

14th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Net Margin

94th percentile

61%

Higher net margin than 94% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Top Officer Pay

35th percentile

$0

Higher top officer pay than 35% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2018

Asset Growth

98th percentile

198%

Faster asset growth than 98% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Revenue Growth

14th percentile

-21%

Faster revenue growth than 14% of similar nonprofits.

2018 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2017 to 2018

Assets

Up

$949,082

Up $630,792 (+198%) from 2017

Net Assets

Up

$949,082

Up $755,792 (+391%) from 2017

Liabilities

Down

$0

Down $125,000 (-100%) from 2017

Revenue

Down

$1,229,034

Down $319,006 (-21%) from 2017

Expenses

Down

$473,242

Down $881,508 (-65%) from 2017

Net Income

Up

$755,792

Up $562,502 (+291%) from 2017

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2017: $318,290Liabilities 2017: $125,000Net Assets 2017: $193,2902017Assets 2018: $949,082Liabilities 2018: $0Net Assets 2018: $949,0822018Assets 2019: $1,491,059Liabilities 2019: $0Net Assets 2019: $1,491,0592019Assets 2020: $893,276Liabilities 2020: $0Net Assets 2020: $893,2762020Assets 2021: $652,565Liabilities 2021: $0Net Assets 2021: $652,5652021Assets 2022: $640,713Liabilities 2022: $0Net Assets 2022: $640,7132022Assets 2023: $270,092Net Assets 2023: $270,0922023Assets 2024: $483,957Liabilities 2024: $0Net Assets 2024: $483,9572024

Highlighted filing

2018

Assets$949,082
Liabilities$0
Net Assets$949,082

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.0M$0-$1.0MRevenue 2017: $1,548,040Expenses 2017: $1,354,750Net Income 2017: $193,2902017Revenue 2018: $1,229,034Expenses 2018: $473,242Net Income 2018: $755,7922018Revenue 2019: $1,258,854Expenses 2019: $716,877Net Income 2019: $541,9772019Revenue 2020: $194,010Expenses 2020: $791,793Net Income 2020: -$597,7832020Revenue 2021: $263,834Expenses 2021: $504,545Net Income 2021: -$240,7112021Revenue 2022: $649,623Expenses 2022: $661,475Net Income 2022: -$11,8522022Revenue 2023: $21,487Expenses 2023: $392,108Net Income 2023: -$370,6212023Revenue 2024: $706,872Expenses 2024: $493,007Net Income 2024: $213,8652024

Highlighted filing

2018

Revenue$1,229,034
Expenses$473,242
Net Income$755,792
Jump To
Filing Snapshot
Filing Period
Jan 1, 2018 to Dec 31, 2018
Signed
Jul 1, 2019
Return Version
2018v3.1
Gross Receipts
$1,229,034
Mission and Program Overview

Mission

The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other neurodegenerative diseases. Families in this community have been pivotal in raising the necessary funds and awareness. Together with our incredible scientists and partner organizations, we hope that our work will improve the prognosis of batten disease and other neurodegenerative diseases. Through our fundraising - which includes grassroots efforts, individuals and family foundations, and events - we have started two genetic therapy trials (one underway, the other still in the pre-clinical phase) as well as fund scientists focused on bench research to understand the underlying causes and indications of cln7 batten disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$13,049$923,699▲ $910,650
Loans From Officers Directors$125,000--
Cash and Non-Interest-Bearing Accounts$305,241$25,383▼ $279,858
Total Assets$318,290$949,082▲ $630,792
Liabilities
Total Liabilities$125,000$0▼ $125,000
Net Assets / Fund Balance
Unrestricted Net Assets$193,290$949,082▲ $755,792
Total Net Assets Fund Balance$193,290$949,082▲ $755,792
Total Liabilities and Net Assets / Fund Balance$318,290$949,082▲ $630,792
Compensation and Service Providers

Board Members and Trustees

NameTitle
Julia VitarelloPresident
Adam VitarelloBoard Member
Lori SamesBoard Member
Julie MitchellSecretary
Alek MakovecVP/treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,228,384
Program Service Revenue
$0
Investment Income
$650
Other Revenue
$0
All Other Contributions
$1,228,384
Change in Net Assets
$755,792
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$473,242
Total Fundraising Expense$14,719
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$433,153$8,093$11,304$452,550
Travel$8,835-$2,029$10,864
Advertising-$989$1,360$2,349
Office Expenses$450$104$26$580
Conferences and Meetings$399--$399
Other Expenses-$16-$16
Total Functional Expenses$442,837$15,686$14,719$473,242
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$125,000--
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
No
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 2

Julia vitarello alek makovec president v. President family relationship julia vitarello adam vitarello president director family relationship

Form 990, Page 6, Part VI, Line 11B

A copy of form 990 will be provided to each member of the governing body, via email or at a board meeting, prior to submission to the internal revenue service

Form 990, Page 6, Part VI, Line 19

Governing documents are available upon request

Filing and Contact Details

Filer

Filer Name
MILA'S MIRACLE FOUNDATION
EIN
81-4713372
Address
PO BOX 19675, BOULDER, CO 80308

Signing Officer

Name
Julia Vitarello
Title
President
Signed
2019-07-01
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Julia Vitarello
Formed
2016
Legal Domicile
De
Voting Board Members
5
Independent Board Members
5
Employees
0
Volunteers
2

Preparer

Firm
Kullman CPA LLC
Address
1997 ANNAPOLIS EXCHANGE PKWY SUITE, ANNAPOLIS, MD 21401-3275
Preparer
Stephen J Kullman CPA
Phone
4102669885
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other neurodegenerative diseases. Families in this community have been pivotal in raising the necessary funds and awareness. Together with our incredible scientists and partner organizations, we hope that our work will improve the prognosis of batten disease and other neurodegenerative diseases. Through our fundraising - which includes grassroots efforts, individuals and family foundations, and events - we have started two genetic therapy trials (one underway, the other still in the pre-clinical phase) as well as fund scientists focused on bench research to understand the underlying causes and indications of cln7 batten disease.

Form 990

Part ix, line 11g: patient housing is a usual and customary expense for trials

Form 990, Part IX, Line 11G

Contract labor 52,834 7,469 11,304 aso trial - mfg & toxicity 242,298 0 0 aso - patient housing 21,417 0 0 gene therapy - pre-clinical 88,392 0 0 payroll processing 0 624 0 basic science - venue rental 6,448 0 0 basic science - printing 2,585 0 0 basic science - travel 9,690 0 0 basic science - lodging 7,960 0 0 basic science - meals 1,529 0 0 total 433,153 8,093 11,304

Form 990, Part XI, Line 9

Donated prof. Services not included in inc. Or exp -21,063

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER NEURODEGENERATIVE DISEASES. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - WE HAVE STARTED TWO GENETIC THERAPY TRIALS (ONE UNDERWAY, THE OTHER STILL IN THE PRE-CLINICAL PHASE) AS WELL AS FUND SCIENTISTS FOCUSED ON BENCH RESEARCH TO UNDERSTAND THE UNDERLYING CAUSES AND INDICATIONS OF CLN7 BATTEN DISEASE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1PART IX, LINE 11G: PATIENT HOUSING IS A USUAL AND CUSTOMARY EXPENSE FOR TRIALS
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2JULIA VITARELLO ALEK MAKOVEC PRESIDENT V. PRESIDENT FAMILY RELATIONSHIP JULIA VITARELLO ADAM VITARELLO PRESIDENT DIRECTOR FAMILY RELATIONSHIP
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3A COPY OF FORM 990 WILL BE PROVIDED TO EACH MEMBER OF THE GOVERNING BODY, VIA EMAIL OR AT A BOARD MEETING, PRIOR TO SUBMISSION TO THE INTERNAL REVENUE SERVICE
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5CONTRACT LABOR 52,834 7,469 11,304 ASO TRIAL - MFG & TOXICITY 242,298 0 0 ASO - PATIENT HOUSING 21,417 0 0 GENE THERAPY - PRE-CLINICAL 88,392 0 0 PAYROLL PROCESSING 0 624 0 BASIC SCIENCE - VENUE RENTAL 6,448 0 0 BASIC SCIENCE - PRINTING 2,585 0 0 BASIC SCIENCE - TRAVEL 9,690 0 0 BASIC SCIENCE - LODGING 7,960 0 0 BASIC SCIENCE - MEALS 1,529 0 0 TOTAL 433,153 8,093 11,304
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6DONATED PROF. SERVICES NOT INCLUDED IN INC. OR EXP -21,063
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART IX, LINE 11G
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6FORM 990, PART XI, LINE 9
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IRS990/TotalRevenueGrp/ExclusionAmt0650
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt01229034
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IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0949082
IRS990/TravelGrp/FundraisingAmt02029
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IRS990/TravelGrp/TotalAmt010864
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IRS990/WebsiteAddressTxt0WWW.STOPBATTEN.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02019-02-21 02:37:17Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0JULIA VITARELLO
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/SignatureDt02019-07-01
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0MILA'S MIRACLE FOUNDATION
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ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt071.121.147.75
ReturnHeader/FilingSecurityInformation/IPDt02019-07-29
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0CD
ReturnHeader/FilingSecurityInformation/IPTm012:07:46
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0274760605
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0KULLMAN CPA LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt01997 ANNAPOLIS EXCHANGE PKWY SUITE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0ANNAPOLIS
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0214013275
ReturnHeader/PreparerPersonGrp/PhoneNum04102669885
ReturnHeader/PreparerPersonGrp/PreparationDt02019-07-01
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0STEPHEN J KULLMAN CPA
ReturnHeader/ReturnTs02019-07-29T12:07:46-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02018-01-01
ReturnHeader/TaxPeriodEndDt02018-12-31
ReturnHeader/TaxYr02018

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