Civic Intelligence

Milas Miracle Foundation Inc.

990 • Fiscal year 2017 • EIN 81-4713372

Jan 01, 2017 to Dec 31, 2017 • Filed on Nov 14, 2018

Organization ProfileWWW.STOPBATTEN.ORG
PO Box 19675Boulder, CO 80308

(440) 333-9004

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

75th percentile

0.39x

Higher debt load relative to assets than 75% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

46th percentile

0.08x

Higher debt load relative to revenue than 46% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

70th percentile

12%

Higher net margin than 70% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

35th percentile

$0

Higher top officer pay than 35% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2017

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2017

Balance Sheet
Liabilities / Assets75th percentile

Assets

$318,290

No earlier filing loaded for comparison.

Net Assets

$193,290

No earlier filing loaded for comparison.

Liabilities

$125,000

No earlier filing loaded for comparison.

Revenue And Expenses
Liabilities / Revenue46th percentileNet Margin70th percentile

Revenue

$1,548,040

No earlier filing loaded for comparison.

Expenses

$1,354,750

No earlier filing loaded for comparison.

Net Income

$193,290

No earlier filing loaded for comparison.

Historical Trend

Balance Sheet Trend

Asset GrowthScore unavailable

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2017: $318,290Liabilities 2017: $125,000Net Assets 2017: $193,2902017Assets 2018: $949,082Liabilities 2018: $0Net Assets 2018: $949,0822018Assets 2019: $1,491,059Liabilities 2019: $0Net Assets 2019: $1,491,0592019Assets 2020: $893,276Liabilities 2020: $0Net Assets 2020: $893,2762020Assets 2021: $652,565Liabilities 2021: $0Net Assets 2021: $652,5652021Assets 2022: $640,713Liabilities 2022: $0Net Assets 2022: $640,7132022Assets 2023: $270,092Net Assets 2023: $270,0922023Assets 2024: $483,957Liabilities 2024: $0Net Assets 2024: $483,9572024

Highlighted filing

2017

Assets$318,290
Liabilities$125,000
Net Assets$193,290
Open 2017 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.0M$0-$1.0MRevenue 2017: $1,548,040Expenses 2017: $1,354,750Net Income 2017: $193,2902017Revenue 2018: $1,229,034Expenses 2018: $473,242Net Income 2018: $755,7922018Revenue 2019: $1,258,854Expenses 2019: $716,877Net Income 2019: $541,9772019Revenue 2020: $194,010Expenses 2020: $791,793Net Income 2020: -$597,7832020Revenue 2021: $263,834Expenses 2021: $504,545Net Income 2021: -$240,7112021Revenue 2022: $649,623Expenses 2022: $661,475Net Income 2022: -$11,8522022Revenue 2023: $21,487Expenses 2023: $392,108Net Income 2023: -$370,6212023Revenue 2024: $706,872Expenses 2024: $493,007Net Income 2024: $213,8652024

Highlighted filing

2017

Revenue$1,548,040
Expenses$1,354,750
Net Income$193,290
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Nov 14, 2018
Return Version
2017v2.3
Gross Receipts
$1,744,454
Mission and Program Overview

Mission

The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other neurodegenerative diseases. Families in this community have been pivotal in raising the necessary funds and awareness. Together with our incredible scientists and partner organizations, we hope that our work will improve the prognosis of batten disease and other neurodegenerative diseases. Through our fundraising - which includes grassroots efforts, individuals and family foundations, and events - we have started two genetic therapy trials (one underway, the other still in the pre-clinical phase) as well as fund scientists focused on bench research to understand the underlying causes and indications of cln7 batten disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts-$305,241-
Loans From Officers Directors-$125,000-
Savings and Temporary Cash Investments-$13,049-
Total Assets$0$318,290▲ $318,290
Liabilities
Total Liabilities$0$125,000▲ $125,000
Net Assets / Fund Balance
Unrestricted Net Assets-$193,290-
Total Net Assets Fund Balance$0$193,290▲ $193,290
Total Liabilities and Net Assets / Fund Balance$0$318,290▲ $318,290
Compensation and Service Providers
Top Officer Pay35th percentile

Board Members and Trustees

NameTitle
Julia VitarelloPresident
Adam VitarelloBoard Member
Lori SamesBoard Member
Julie MitchellSecretary
Alek MakovecVP/treasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,690,520
Program Service Revenue
$0
Investment Income
$24
Other Revenue
$-142,504
All Other Contributions
$1,630,930
Change in Net Assets
$193,290

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table72$108,625Comparable Sales
Food Inventory50$44,750Comparable Sales
Other Non Cash Contri Table4$6,000Comparable Sales
Other Non Cash Contri Table1$500Comparable Sales
Total Noncash Contributions127$159,875-
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,298,676
Total Fundraising Expense$84,781
Salaries, Compensation, and Employee Benefits$56,074
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$1,215,738$4,190$13,088$1,233,016
Other Salaries and Wages$21,986$9,176$19,484$50,646
Travel$11,287-$2,403$13,690
Payroll Taxes$1,264$1,108$3,056$5,428
Office Expenses--$2,946$2,946
Advertising-$1,884$920$2,804
Conferences and Meetings$1,850--$1,850
Fees for Services Legal-$356-$356
Other Expenses-$250$12,084$250
All Other Expenses-$5-$5
Total Functional Expenses$1,252,125$17,844$84,781$1,354,750
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$196,414
Fundraising Gross Income$53,910
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
May 5 Washingto$47,840$27,580$56,741$-29,161
May 17 Boulder$35,174$14,894$57,759$-42,865
Total Events$113,500$53,910$196,414$-142,504
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees-$125,000-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 2

“Julia vitarello alek makovec president v. President family relationship julia vitarello adam vitarello president director family relationship”

Form 990, Page 6, Part VI, Line 11B

“A copy of form 990 will be provided to each member of the governing body, via email or at a board meeting, prior to submission to the internal revenue service”

Form 990, Page 6, Part VI, Line 19

“Governing documents are available upon request”

Filing and Contact Details

Filer

Filer Name
MILA'S MIRACLE FOUNDATION
EIN
81-4713372
Address
PO BOX 19675, BOULDER, CO 80308

Signing Officer

Name
Julia Vitarello
Title
President
Signed
2018-11-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Julia Vitarello
Formed
2016
Legal Domicile
De
Voting Board Members
5
Independent Board Members
5
Employees
1
Volunteers
2

Preparer

Firm
Kullman CPA LLC
Address
1997 ANNAPOLIS EXCHANGE PKWY SUITE, ANNAPOLIS, MD 21401-3275
Preparer
Stephen J Kullman CPA
Phone
4102669885
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other neurodegenerative diseases. Families in this community have been pivotal in raising the necessary funds and awareness. Together with our incredible scientists and partner organizations, we hope that our work will improve the prognosis of batten disease and other neurodegenerative diseases. Through our fundraising - which includes grassroots efforts, individuals and family foundations, and events - we have started two genetic therapy trials (one underway, the other still in the pre-clinical phase) as well as fund scientists focused on bench research to understand the underlying causes and indications of cln7 batten disease.”

Form 990

“Part ix, line 11g: patient housing is a usual and customary expense for trials”

Form 990, Part IX, Line 11G

“Contract labor 39,617 3,570 13,088 aso trial - mfg & toxicity 598,000 0 0 aso - patient housing 6,534 0 0 gene therapy - vector & tox 449,587 0 0 gene therapy - pre-clinical 122,000 0 0 payroll processing 0 620 0 total 1,215,738 4,190 13,088”

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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt272
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IRS990ScheduleM/OtherNonCashContriTableGrp/Desc2AUCTION ITEMS
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IRS990ScheduleM/OtherNonCashContriTableGrp/MethodOfDeterminingRevenuesTxt1COMPARABLE SALES
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER NEURODEGENERATIVE DISEASES. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - WE HAVE STARTED TWO GENETIC THERAPY TRIALS (ONE UNDERWAY, THE OTHER STILL IN THE PRE-CLINICAL PHASE) AS WELL AS FUND SCIENTISTS FOCUSED ON BENCH RESEARCH TO UNDERSTAND THE UNDERLYING CAUSES AND INDICATIONS OF CLN7 BATTEN DISEASE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1PART IX, LINE 11G: PATIENT HOUSING IS A USUAL AND CUSTOMARY EXPENSE FOR TRIALS
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2JULIA VITARELLO ALEK MAKOVEC PRESIDENT V. PRESIDENT FAMILY RELATIONSHIP JULIA VITARELLO ADAM VITARELLO PRESIDENT DIRECTOR FAMILY RELATIONSHIP
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3A COPY OF FORM 990 WILL BE PROVIDED TO EACH MEMBER OF THE GOVERNING BODY, VIA EMAIL OR AT A BOARD MEETING, PRIOR TO SUBMISSION TO THE INTERNAL REVENUE SERVICE
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5CONTRACT LABOR 39,617 3,570 13,088 ASO TRIAL - MFG & TOXICITY 598,000 0 0 ASO - PATIENT HOUSING 6,534 0 0 GENE THERAPY - VECTOR & TOX 449,587 0 0 GENE THERAPY - PRE-CLINICAL 122,000 0 0 PAYROLL PROCESSING 0 620 0 TOTAL 1,215,738 4,190 13,088
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART IX, LINE 11G
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IRS990/TotalFunctionalExpensesGrp/FundraisingAmt084781
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt017844
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt01252125
IRS990/TotalFunctionalExpensesGrp/TotalAmt01354750
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt0125000
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IRS990/TotalLiabilitiesGrp/EOYAmt0125000
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IRS990/TotalRevenueGrp/TotalRevenueColumnAmt01548040
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IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0318290
IRS990/TravelGrp/FundraisingAmt02403
IRS990/TravelGrp/ProgramServicesAmt011287
IRS990/TravelGrp/TotalAmt013690
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IRS990/TypeOfOrganizationCorpInd0X
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IRS990/UnrestrictedNetAssetsGrp/EOYAmt0193290
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0PO BOX 19675
IRS990/USAddress/CityNm0BOULDER
IRS990/USAddress/StateAbbreviationCd0CO
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IRS990/VotingMembersIndependentCnt05
IRS990/WebsiteAddressTxt0WWW.STOPBATTEN.ORG
IRS990/WhistleblowerPolicyInd0false
ReturnHeader/BuildTS02019-02-21 02:37:17Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0JULIA VITARELLO
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0PRESIDENT
ReturnHeader/BusinessOfficerGrp/SignatureDt02018-11-14
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0MILA'S MIRACLE FOUNDATION
ReturnHeader/Filer/BusinessNameControlTxt0MILA
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ReturnHeader/Filer/USAddress/AddressLine1Txt0PO BOX 19675
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ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt071.121.147.75
ReturnHeader/FilingSecurityInformation/IPDt02018-11-15
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0CS
ReturnHeader/FilingSecurityInformation/IPTm012:43:10
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0274760605
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0KULLMAN CPA LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt01997 ANNAPOLIS EXCHANGE PKWY SUITE
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0ANNAPOLIS
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0214013275
ReturnHeader/PreparerPersonGrp/PhoneNum04102669885
ReturnHeader/PreparerPersonGrp/PreparationDt02018-11-15
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0STEPHEN J KULLMAN CPA
ReturnHeader/ReturnTs02018-11-15T11:43:10-07:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02017-01-01
ReturnHeader/TaxPeriodEndDt02017-12-31
ReturnHeader/TaxYr02017

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$318,290
Liabilities
$125,000
Net assets
$193,290
Revenue
$1,548,040
Expenses
$1,354,750
Net income
$193,290
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.48$0.00$0.48$0.71$0.49$0.21
2023Detailed filing. Detailed filing data is available for this year.$0.27$0.27$0.02$0.39$0.37
2022Detailed filing. Detailed filing data is available for this year.$0.64$0.00$0.64$0.65$0.66$0.01
2021Detailed filing. Detailed filing data is available for this year.$0.65$0.00$0.65$0.26$0.50$0.24
2020Detailed filing. Detailed filing data is available for this year.$0.89$0.00$0.89$0.19$0.79$0.60
2019Detailed filing. Detailed filing data is available for this year.$1.49$0.00$1.49$1.26$0.72$0.54
2018Detailed filing. Detailed filing data is available for this year.$0.95$0.00$0.95$1.23$0.47$0.76
2017Detailed filing. Detailed filing data is available for this year.$0.32$0.13$0.19$1.55$1.35$0.19