Liabilities / Assets
15th percentile
Tied with the lowest-debt nonprofits in its peer group.
990 • Fiscal year 2019 • EIN 81-4713372
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
15th percentile
Tied with the lowest-debt nonprofits in its peer group.
Liabilities / Revenue
15th percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
89th percentile
Higher net margin than 89% of similar nonprofits.
Top Officer Pay
68th percentile
Higher top officer pay than 68% of similar nonprofits.
Top officer pay equals 7.9% of source-year revenue.
Asset Growth
92nd percentile
Faster asset growth than 92% of similar nonprofits.
Revenue Growth
46th percentile
Faster revenue growth than 46% of similar nonprofits.
Assets
Up$1,491,059
Up $541,977 (+57%) from 2018
Net Assets
Up$1,491,059
Up $541,977 (+57%) from 2018
Liabilities
Flat$0
Flat from 2018
Revenue
Up$1,258,854
Up $29,820 (+2.4%) from 2018
Expenses
Up$716,877
Up $243,635 (+51%) from 2018
Net Income
Down$541,977
Down $213,815 (-28%) from 2018
The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other neurodegenerative diseases. Families in this community have been pivotal in raising the necessary funds and awareness. Together with our incredible scientists and partner organizations, we hope that our work will improve the prognosis of batten disease and other neurodegenerative diseases. Through our fundraising - which includes grassroots efforts, individuals and family foundations, and events - we have started two genetic therapy trials (one underway, the other still in the pre-clinical phase) as well as fund scientists focused on bench research to understand the underlying causes and indications of cln7 batten disease.
The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other neurodegenerative diseases. Families in this community have been pivotal in raising the necessary funds and awareness. Together with our incredible scientists and partner organizations, we hope that our work will improve the prognosis of batten disease and other neurodegenerative diseases. Through our fundraising - which includes grassroots efforts, individuals and family foundations, and events - we have started two genetic therapy trials (one underway, the other still in the pre-clinical phase) as well as fund scientists focused on bench research to understand the underlying causes and indications of cln7 batten disease. Additionally, we are focused on helping to grow the new field of truly personal medicines which mila's story has opened up, and making it accessible to many more across hundreds of rare diseases. Our hope is that our work will give mila and many others like her a second
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $923,699 | $1,318,193 | ▲ $394,494 |
| Cash and Non-Interest-Bearing Accounts | $25,383 | $172,866 | ▲ $147,483 |
| Total Assets | $949,082 | $1,491,059 | ▲ $541,977 |
| Liabilities | |||
| Total Liabilities | $0 | $0 | → $0 |
| Net Assets / Fund Balance | |||
| Net Assets With Donor Restrictions | - | $800,000 | - |
| Net Assets Without Donor Restrictions | $949,082 | $691,059 | ▼ $258,023 |
| Total Net Assets Fund Balance | $949,082 | $1,491,059 | ▲ $541,977 |
| Total Liabilities and Net Assets / Fund Balance | $949,082 | $1,491,059 | ▲ $541,977 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Julia Vitarello | President | FT | $100,000 | $100,000 |
| Name | Title |
|---|---|
| Katherine Fox Nagel | Chair |
| Adam Vitarello | Vice Chair |
| Lori Sames | Board Member |
| Julie Mitchell | Secretary |
| Jeni Vitarello | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $554,562 |
| Salaries, Compensation, and Employee Benefits | $162,315 |
| Total Fundraising Expense | $8,268 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $523,060 | $1,358 | $1,134 | $525,552 |
| Current Officers, Directors, Trustees, and Key Employees | $71,805 | $24,931 | $3,264 | $100,000 |
| Other Salaries and Wages | $35,903 | $12,465 | $1,632 | $50,000 |
| Payroll Taxes | $8,294 | $3,646 | $375 | $12,315 |
| Travel | $9,641 | - | $1,821 | $11,462 |
| Fees for Services Legal | - | $5,000 | - | $5,000 |
| Office Expenses | - | $1,316 | $42 | $1,358 |
| Advertising | - | $1,340 | - | $1,340 |
| Insurance | - | $1,026 | - | $1,026 |
| Conferences and Meetings | $228 | - | - | $228 |
| Other Expenses | - | $170 | - | $170 |
| Total Functional Expenses | $648,931 | $59,678 | $8,268 | $716,877 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“Julia vitarello jeni vitarello president treasurer family relationship julia vitarello adam vitarello president vice chair family relationship adam vitarello jeni vitarello vice chair treasurer family relationship”
“A copy of form 990 will be provided to each member of the governing body, via email or at a board meeting, prior to submission to the internal revenue service”
“Governing documents are available upon request”
“The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other neurodegenerative diseases. Families in this community have been pivotal in raising the necessary funds and awareness. Together with our incredible scientists and partner organizations, we hope that our work will improve the prognosis of batten disease and other neurodegenerative diseases. Through our fundraising - which includes grassroots efforts, individuals and family foundations, and events - we have started two genetic therapy trials (one underway, the other still in the pre-clinical phase) as well as fund scientists focused on bench research to understand the underlying causes and indications of cln7 batten disease. Additionally, we are focused on helping to grow the new field of truly personal medicines which mila's story has opened up, and making it accessible to many more across hundreds of rare diseases. Our hope is that our work will give mila and many others like her a second chance at life.”
“Contract labor 7,380 734 1,134 aso trial 346,086 0 0 gene therapy 125,740 0 0 basic science - research 43,831 0 0 basic science - meals 23 0 0 payroll processing 0 624 0 total 523,060 1,358 1,134”
“Donated prof. Services not included in inc. Or exp -61,231”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | true |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER NEURODEGENERATIVE DISEASES. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - WE HAVE STARTED TWO GENETIC THERAPY TRIALS (ONE UNDERWAY, THE OTHER STILL IN THE PRE-CLINICAL PHASE) AS WELL AS FUND SCIENTISTS FOCUSED ON BENCH RESEARCH TO UNDERSTAND THE UNDERLYING CAUSES AND INDICATIONS OF CLN7 BATTEN DISEASE. ADDITIONALLY, WE ARE FOCUSED ON HELPING TO GROW THE NEW FIELD OF TRULY PERSONAL MEDICINES WHICH MILA'S STORY HAS OPENED UP, AND MAKING IT ACCESSIBLE TO MANY MORE ACROSS HUNDREDS OF RARE DISEASES. OUR HOPE IS THAT OUR WORK WILL GIVE MILA AND MANY OTHERS LIKE HER A SECOND |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 1340 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 1340 |
| IRS990/AllOtherContributionsAmt | 0 | 1258360 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | false |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | MARGARET SPOTH |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 2165135201 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 2641 SHAKER ROAD |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | CLEVELAND HEIGHTS |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | OH |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 44118 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 25383 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 172866 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 3264 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 24931 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 71805 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 100000 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 228 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 228 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1258360 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 0 |
| IRS990/CYInvestmentIncomeAmt | 0 | 494 |
| IRS990/CYOtherExpensesAmt | 0 | 554562 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 541977 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 162315 |
| IRS990/CYTotalExpensesAmt | 0 | 716877 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 8268 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1258854 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - MMF IS WORKING HARD TO START AND FUND NEW TREATMENTS THAT COULD HELP CHILDREN WITH BATTEN AND OTHER LIFE- THREATENING NEUROLOGICAL DISORDERS. IN 2019, OUR FOUNDATION'S WORK FOCUSED ON THREE PRIMARY PROGRAM INITIATIVES: AN ANTISENSE OLIGONUCLEOTIDE (ASO) CLINICAL TRIAL & THE EXPANSION OF PERSONAL MEDICINES (UNDERWAY); A CLN7 GENE THERAPY TRIAL (IN THE PRE-CLINICAL PHASE); AND BASIC SCIENCE RESEARCH FOR BATTEN DISEASE (TWO GRANT PROJECTS UNDERWAY). |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonatedServicesAndUseFcltsAmt | 0 | 61231 |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 800000 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 2 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 648931 |
| IRS990/FamilyOrBusinessRlnInd | 0 | true |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 5000 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 5000 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 1134 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 1358 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 523060 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 525552 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | JULIA VITARELLO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JULIE MITCHELL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JENI VITARELLO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | KATHERINE FOX NAGEL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | ADAM VITARELLO |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | LORI SAMES |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 100000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | BOARD MEMBER |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2016 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | false |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | false |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 1258854 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | false |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1026 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1026 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 494 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 494 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 1 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | DE |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingCashInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER NEURODEGENERATIVE DISEASES. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - WE HAVE STARTED TWO GENETIC THERAPY TRIALS (ONE UNDERWAY, THE OTHER STILL IN THE PRE-CLINICAL PHASE) AS WELL AS FUND SCIENTISTS FOCUSED ON BENCH RESEARCH TO UNDERSTAND THE UNDERLYING CAUSES AND INDICATIONS OF CLN7 BATTEN DISEASE. ADDITIONALLY, WE ARE FOCUSED ON HELPING TO GROW THE NEW FIELD OF TRULY PERSONAL MEDICINES WHICH MILA'S STORY HAS OPENED UP, AND MAKING IT ACCESSIBLE TO MANY MORE ACROSS HUNDREDS OF RARE DISEASES. OUR HOPE IS THAT OUR WORK WILL GIVE MILA AND MANY OTHERS LIKE HER A SECOND |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 949082 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1491059 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 949082 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 691059 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 42 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1316 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 1358 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | -61231 |
| IRS990/OtherExpensesGrp/Desc | 0 | DUES & SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/Desc | 1 | TAXES & LICENSES |
| IRS990/OtherExpensesGrp/Desc | 2 | BANK FEES |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 7816 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 610 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 170 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 7816 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 610 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 170 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 1632 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 12465 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 35903 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 50000 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 375 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 3646 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 8294 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 12315 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrincipalOfficerNm | 0 | JULIA VITARELLO |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 1228384 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 650 |
| IRS990/PYOtherExpensesAmt | 0 | 473242 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 755792 |
| IRS990/PYTotalExpensesAmt | 0 | 473242 |
| IRS990/PYTotalRevenueAmt | 0 | 1229034 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 541977 |
| IRS990/RegularMonitoringEnfrcInd | 0 | false |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 923699 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 1318193 |
| IRS990ScheduleA/First5Years170Ind | 0 | X |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | OTHER INCOME 53,910 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | PART II, LINE 10 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1258360 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1228384 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1690520 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 4177264 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 494 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 650 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 24 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 1168 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 53910 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 53910 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 2261205 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 1916059 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1258360 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1228384 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1690520 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 4177264 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 4232342 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | THE MISSION OF MILA'S MIRACLE FOUNDATION IS TO FIND AND FUND PATHS TO A CURE FOR BATTEN AND OTHER NEURODEGENERATIVE DISEASES. FAMILIES IN THIS COMMUNITY HAVE BEEN PIVOTAL IN RAISING THE NECESSARY FUNDS AND AWARENESS. TOGETHER WITH OUR INCREDIBLE SCIENTISTS AND PARTNER ORGANIZATIONS, WE HOPE THAT OUR WORK WILL IMPROVE THE PROGNOSIS OF BATTEN DISEASE AND OTHER NEURODEGENERATIVE DISEASES. THROUGH OUR FUNDRAISING - WHICH INCLUDES GRASSROOTS EFFORTS, INDIVIDUALS AND FAMILY FOUNDATIONS, AND EVENTS - WE HAVE STARTED TWO GENETIC THERAPY TRIALS (ONE UNDERWAY, THE OTHER STILL IN THE PRE-CLINICAL PHASE) AS WELL AS FUND SCIENTISTS FOCUSED ON BENCH RESEARCH TO UNDERSTAND THE UNDERLYING CAUSES AND INDICATIONS OF CLN7 BATTEN DISEASE. ADDITIONALLY, WE ARE FOCUSED ON HELPING TO GROW THE NEW FIELD OF TRULY PERSONAL MEDICINES WHICH MILA'S STORY HAS OPENED UP, AND MAKING IT ACCESSIBLE TO MANY MORE ACROSS HUNDREDS OF RARE DISEASES. OUR HOPE IS THAT OUR WORK WILL GIVE MILA AND MANY OTHERS LIKE HER A SECOND CHANCE AT LIFE. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | JULIA VITARELLO JENI VITARELLO PRESIDENT TREASURER FAMILY RELATIONSHIP JULIA VITARELLO ADAM VITARELLO PRESIDENT VICE CHAIR FAMILY RELATIONSHIP ADAM VITARELLO JENI VITARELLO VICE CHAIR TREASURER FAMILY RELATIONSHIP |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | A COPY OF FORM 990 WILL BE PROVIDED TO EACH MEMBER OF THE GOVERNING BODY, VIA EMAIL OR AT A BOARD MEETING, PRIOR TO SUBMISSION TO THE INTERNAL REVENUE SERVICE |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | CONTRACT LABOR 7,380 734 1,134 ASO TRIAL 346,086 0 0 GENE THERAPY 125,740 0 0 BASIC SCIENCE - RESEARCH 43,831 0 0 BASIC SCIENCE - MEALS 23 0 0 PAYROLL PROCESSING 0 624 0 TOTAL 523,060 1,358 1,134 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | DONATED PROF. SERVICES NOT INCLUDED IN INC. OR EXP -61,231 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990 - ORGANIZATION'S MISSION |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PAGE 6, PART VI, LINE 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PAGE 6, PART VI, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PAGE 6, PART VI, LINE 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART IX, LINE 11G |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PART XI, LINE 9 |
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| IRS990/USAddress/CityNm | 0 | BOULDER |
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| ReturnHeader/BuildTS | 0 | 2021-01-29 14:40:06Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | JULIA VITARELLO |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | PRESIDENT |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2020-09-29 |
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| ReturnHeader/FilingSecurityInformation/IPTm | 0 | 11:20:57 |
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| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | KULLMAN CPA LLC |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 1997 ANNAPOLIS EXCHANGE PKWY SUITE |
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| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2020-09-29 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | STEPHEN J KULLMAN CPA |
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Displayed year
2019 • Form 990Detailed filing. Detailed filing data is available for this year.