Liabilities / Assets
72nd percentile
Higher debt load relative to assets than 72% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
72nd percentile
Higher debt load relative to assets than 72% of similar nonprofits.
Liabilities / Revenue
38th percentile
Higher debt load relative to revenue than 38% of similar nonprofits.
Net Margin
19th percentile
Higher net margin than 19% of similar nonprofits.
Top Officer Pay
85th percentile
Higher top officer pay than 85% of similar nonprofits.
Top officer pay equals 14.6% of source-year revenue.
Asset Growth
1st percentile
Faster asset growth than 1% of similar nonprofits.
Revenue Growth
99th percentile
Faster revenue growth than 99% of similar nonprofits.
Assets
Down$13,374
Down $91,178 (-87%) from 2023
Net Assets
Down$11,587
Down $88,130 (-88%) from 2023
Liabilities
Down$1,787
Down $3,048 (-63%) from 2023
Revenue
Up$649,177
Up $593,967 (+1076%) from 2023
Expenses
Up$737,307
Up $489,396 (+197%) from 2023
Net Income
Up-$88,130
Up $104,571 (+54%) from 2023
The Firefly Fund Neurodegenerative diseases affect children many different ways, but their families share a common and grave reality. These children typically die before the age of 20. Today, the Firefly Fund is focused on Neimann-Pick Type C (NPC), also referred to as Childhood Alzheimer's. NPC results in the buildup of cholesterol in the brain, liver, and spleen, leading to progressive neurodegeneration and organ damage. Currently, there are no FDA approved therapies to treat NPC and there is no cure.
Newborn screening preparedness and advocacy; medical research; patients access/impact
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Rtn Earn Endowment Incm Other Fnds | $99,717 | $11,587 | ▼ $88,130 |
| Prepaid Expenses and Deferred Charges | $6,735 | $6,744 | ▲ $9 |
| Receivables From Officers Etc | - | $3,727 | - |
| Cash and Non-Interest-Bearing Accounts | $97,817 | $2,903 | ▼ $94,914 |
| Pd in Cap Srpls Land Bldg Eqp Fund | $0 | $0 | → $0 |
| Cap Stk Tr Prin Current Funds | $0 | $0 | → $0 |
| Total Assets | $104,552 | $13,374 | ▼ $91,178 |
| Other Assets Total | $0 | $0 | → $0 |
| Liabilities | |||
| Other Liabilities | $4,835 | $1,787 | ▼ $3,048 |
| Total Liabilities | $4,835 | $1,787 | ▼ $3,048 |
| Net Assets / Fund Balance | |||
| Total Net Assets Fund Balance | $99,717 | $11,587 | ▼ $88,130 |
| Total Liabilities and Net Assets / Fund Balance | $104,552 | $13,374 | ▼ $91,178 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Beryl Pam Andrews | Executive Director | FT | $95,000 | $95,000 |
| Name | Title |
|---|---|
| Beryl Crowley | Director |
| Chris Andrews | Director |
| Collin Hovinga | Director |
| Hallie Imroth | Director |
| Jenny Cook | Director |
| Lara Laneri Keel | Director |
| Sarah Reilly | Director |
| Contribution Type | Contribution Count | Reported Amount |
|---|---|---|
| Other Non Cash Contri Table | 3 | $420,100 |
| Total Noncash Contributions | 3 | $420,100 |
| Line Item | Amount |
|---|---|
| Other Expenses | $579,055 |
| Salaries, Compensation, and Employee Benefits | $102,742 |
| Total Fundraising Expense | $78,309 |
| Professional Fundraising Fees | $37,510 |
| Grants and Similar Amounts Paid | $18,000 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Current Officers, Directors, Trustees, and Key Employees | $95,000 | - | - | $95,000 |
| Fees for Services Professional Fundraising | - | - | $37,510 | $37,510 |
| Advertising | - | - | $32,318 | $32,318 |
| Fees for Services Accounting | - | $23,463 | - | $23,463 |
| Fees for Services Other | $18,834 | $2,868 | - | $21,702 |
| All Other Expenses | - | $11,053 | $8,481 | $19,534 |
| Grants to Domestic Orgs | $18,000 | - | - | $18,000 |
| Travel | $9,544 | - | - | $9,544 |
| Other Expenses | $18,750 | $9,044 | - | $9,044 |
| Payroll Taxes | $7,742 | - | - | $7,742 |
| Insurance | - | $1,140 | - | $1,140 |
| Office Expenses | - | $733 | - | $733 |
| Conferences and Meetings | $250 | - | - | $250 |
| Total Functional Expenses | $588,220 | $70,778 | $78,309 | $737,307 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Dripping Springs Friendship Club | Austin, TX | - | To Help Offset Costs of Community Events or Outings | $10,000 |
| The Eddie Ray Band | Austin, TX | - | Support for Adults With Disabilities | $8,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $37,510 |
| Line Item | Beginning | End | Change |
|---|---|---|---|
| Receivables from Officers, Directors, Trustees, and Key Employees | - | $3,727 | - |
| Liability | Amount |
|---|---|
| Payroll Liabilities | $1,787 |
“Pam andrews and chris andrews are spouses and beryl crowley is the mother of pam andrews.”
“Reviewed at a board meeting prior to execution and filing 81-3737330”
“Annually each board member will complete a conflict of interest disclosure form.”
“The board members review and approve all employee compensation.”
“Maintained at main address, available on guidestar and available upon request.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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|---|---|---|
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| IRS990/ActivityOrMissionDesc | 0 | NEWBORN SCREENING PREPAREDNESS AND ADVOCACY; MEDICAL RESEARCH; PATIENTS ACCESS/IMPACT |
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| IRS990/AdvertisingGrp/TotalAmt | 0 | 32318 |
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| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 8481 |
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| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | AUSTIN |
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| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 78709 |
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| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 2903 |
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| IRS990/CompensationProcessOtherInd | 0 | 0 |
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| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 250 |
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| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 18000 |
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| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 37510 |
| IRS990/CYTotalRevenueAmt | 0 | 649177 |
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| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/Desc | 0 | SINCE 2017 FIREFLY FUND HAS BEEN LEADING THE NPC NBS INITIATIVE WITH A VISION THAT ALL NEWBORNS WILL BE SCREENED FOR NPC, ENABELING EARLY DIAGNOSIS AND INTERVENTION. THE INITIATIVE IS LED BY A BROAD STAKEHOLDER WORKING GROUP, CHAIRED BY DRS. ELIZABETH BERRY-KRAVIS OF RUSH AND MARC PATTERSON OF MAYO CLINIC, WHICH INCLUDES THE NPC COMMUNITY AND INDUSTRY STAKEHOLDERS. TWENTY NINE (29) NPC AND NBS EXPERT CLINICIANS FROM AROUND THE US AND CANADA MAKE UP THE NPC NBS CLINICAL ROUNDTABLE SERVING THE INITIATIVE AS ADVISORS. |
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| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
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| IRS990/InsuranceGrp/TotalAmt | 0 | 1140 |
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| IRS990/MissionDesc | 0 | TO FUND AND SUPPORT RESEARCH AND EDUCATION TO ACCLERATE A CURE FOR RARE AND FATAL NEURODEGENERATIVE GENETIC DISEASES THAT AFFECT CHILDREN. |
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| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | FIREFLY FUND SUPPORTS MEDICAL RESEARCH THAT COULD PROVIDE THERAPEUTICS FOR THE TREATMENT OF NIEMANN PICK TYPE C DISEASE. |
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| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | WORK WITH ACADEMIC CENTERS OF EXCELLENCE AND PATIENT ADVOCACY ORGANIZATIONS TO REMOVE BARRIERS TO CARE AND ACCESS TO THERAPIES NECESSARY FOR THEIR LOVED ONES WITH AN NPC DIAGNOSIS. |
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| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 38627 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 446645 |
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| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 1711008 |
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| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.42500 |
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| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 562234 |
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| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 55210 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 38627 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 446645 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 521349 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 1711008 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 1711008 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt | 0 | 1787 |
| IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc | 0 | PAYROLL LIABILITIES |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 0 |
| IRS990ScheduleD/TotalLiabilityAmt | 0 | 1787 |
| IRS990ScheduleG/AgrmtProfFundraisingActyInd | 0 | 1 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/ActivityTxt | 0 | FUNDRAISING SERVICES |
| IRS990ScheduleG/FundraiserActivityInfoGrp/FundraiserControlOfFundsInd | 0 | 0 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/GrossReceiptsAmt | 0 | 229077 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/NetToOrganizationAmt | 0 | 209289 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/OrganizationBusinessName/BusinessNameLine1Txt | 0 | ALEX FREEMAN |
| IRS990ScheduleG/FundraiserActivityInfoGrp/RetainedByContractorAmt | 0 | 19788 |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/AddressLine1Txt | 0 | 3 KERN RAMBLE STREET |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/CityNm | 0 | AUSTIN |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990ScheduleG/FundraiserActivityInfoGrp/USAddress/ZIPCd | 0 | 78722 |
| IRS990ScheduleG/TotalGrossReceiptsAmt | 0 | 229077 |
| IRS990ScheduleG/TotalNetToOrganizationAmt | 0 | 209289 |
| IRS990ScheduleG/TotalRetainedByContractorsAmt | 0 | 19788 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 10000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 8000 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 0 | 0 |
| IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt | 1 | 0 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | TO HELP OFFSET COSTS OF COMMUNITY EVENTS OR OUTINGS |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | SUPPORT FOR ADULTS WITH DISABILITIES |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | DRIPPING SPRINGS FRIENDSHIP CLUB |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | THE EDDIE RAY BAND |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 993149374 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 993142902 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 12100 TRAUTWEIN RD |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 12100 TRAUTWEIN RD |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | AUSTIN |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | AUSTIN |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | TX |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 78737 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 78737 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION REVIEWS END OF YEAR AMOUNTS RECEIVED VERSUS AMOUNT SPENT. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART I, LINE 2: |
| IRS990ScheduleI/TotalOtherOrgCnt | 0 | 2 |
| IRS990/ScheduleJRequiredInd | 0 | 0 |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BalanceDueAmt | 0 | 3727 |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/BoardOrCommitteeApprovalInd | 0 | 0 |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/DefaultInd | 0 | 0 |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanFromOrganizationInd | 0 | X |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/LoanPurposeTxt | 0 | EMPLOYEE RECEIVABLE |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/OriginalPrincipalAmt | 0 | 3727 |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/PersonNm | 0 | BERYL PAM ANDREWS |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/RelationshipWithOrgTxt | 0 | EXECUTIVE DIRECTOR |
| IRS990ScheduleL/LoansBtwnOrgInterestedPrsnGrp/WrittenAgreementInd | 0 | 0 |
| IRS990ScheduleL/TotalBalanceDueAmt | 0 | 3727 |
| IRS990ScheduleM/AnyPropertyThatMustBeHeldInd | 0 | 0 |
| IRS990ScheduleM/OtherNonCashContriTableGrp/ContributionCnt | 0 | 3 |
| IRS990ScheduleM/OtherNonCashContriTableGrp/Desc | 0 | EQUIPMENT |
| IRS990ScheduleM/OtherNonCashContriTableGrp/NonCashCheckboxInd | 0 | X |
| IRS990ScheduleM/OtherNonCashContriTableGrp/NoncashContributionsRptF990Amt | 0 | 420100 |
| IRS990ScheduleM/ReviewProcessUnusualNCGiftsInd | 0 | 0 |
| IRS990ScheduleM/ThirdPartiesUsedInd | 0 | 0 |
| IRS990/ScheduleORequiredInd | 0 | 1 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | PAM ANDREWS AND CHRIS ANDREWS ARE SPOUSES AND BERYL CROWLEY IS THE MOTHER OF PAM ANDREWS. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | REVIEWED AT A BOARD MEETING PRIOR TO EXECUTION AND FILING 81-3737330 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | ANNUALLY EACH BOARD MEMBER WILL COMPLETE A CONFLICT OF INTEREST DISCLOSURE FORM. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | THE BOARD MEMBERS REVIEW AND APPROVE ALL EMPLOYEE COMPENSATION. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | MAINTAINED AT MAIN ADDRESS, AVAILABLE ON GUIDESTAR AND AVAILABLE UPON REQUEST. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART VI, SECTION A, LINE 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART VI, SECTION B, LINE 11B |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION B, LINE 12C |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION B, LINE 15A |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART VI, SECTION C, LINE 19 |
| IRS990/SchoolOperatingInd | 0 | 0 |
| IRS990/SignificantChangeInd | 0 | 0 |
| IRS990/SignificantNewProgramSrvcInd | 0 | 0 |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | 0 |
| IRS990/SubjectToProxyTaxInd | 0 | 0 |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | 0 |
| IRS990/TaxablePartyNotificationInd | 0 | 0 |
| IRS990/TaxExemptBondsInd | 0 | 0 |
| IRS990/TerminateOperationsInd | 0 | 0 |
| IRS990/TotalAssetsBOYAmt | 0 | 104552 |
| IRS990/TotalAssetsEOYAmt | 0 | 13374 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 104552 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 13374 |
| IRS990/TotalCompGreaterThan150KInd | 0 | 0 |
| IRS990/TotalContributionsAmt | 0 | 649177 |
| IRS990/TotalEmployeeCnt | 0 | 2 |
| IRS990/TotalFunctionalExpensesGrp/FundraisingAmt | 0 | 78309 |
| IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt | 0 | 70778 |
| IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt | 0 | 588220 |
| IRS990/TotalFunctionalExpensesGrp/TotalAmt | 0 | 737307 |
| IRS990/TotalGrossUBIAmt | 0 | 0 |
| IRS990/TotalLiabilitiesBOYAmt | 0 | 4835 |
| IRS990/TotalLiabilitiesEOYAmt | 0 | 1787 |
| IRS990/TotalLiabilitiesGrp/BOYAmt | 0 | 4835 |
| IRS990/TotalLiabilitiesGrp/EOYAmt | 0 | 1787 |
| IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt | 0 | 99717 |
| IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt | 0 | 11587 |
| IRS990/TotalOtherCompensationAmt | 0 | 0 |
| IRS990/TotalProgramServiceExpensesAmt | 0 | 588220 |
| IRS990/TotalReportableCompFromOrgAmt | 0 | 95000 |
| IRS990/TotalRevenueGrp/ExclusionAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 0 |
| IRS990/TotalRevenueGrp/TotalRevenueColumnAmt | 0 | 649177 |
| IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 0 |
| IRS990/TotalVolunteersCnt | 0 | 7 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt | 0 | 104552 |
| IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt | 0 | 13374 |
| IRS990/TotReportableCompRltdOrgAmt | 0 | 0 |
| IRS990/TravelGrp/ProgramServicesAmt | 0 | 9544 |
| IRS990/TravelGrp/TotalAmt | 0 | 9544 |
| IRS990/TrnsfrExmptNonChrtblRltdOrgInd | 0 | 0 |
| IRS990/TypeOfOrganizationCorpInd | 0 | X |
| IRS990/UnrelatedBusIncmOverLimitInd | 0 | 0 |
| IRS990/UponRequestInd | 0 | X |
| IRS990/USAddress/AddressLine1Txt | 0 | PO BOX 92616 |
| IRS990/USAddress/CityNm | 0 | AUSTIN |
| IRS990/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990/USAddress/ZIPCd | 0 | 78709 |
| IRS990/VotingMembersGoverningBodyCnt | 0 | 8 |
| IRS990/VotingMembersIndependentCnt | 0 | 5 |
| IRS990/WebsiteAddressTxt | 0 | FIREFLYFUND.ORG |
| IRS990/WhistleblowerPolicyInd | 0 | 0 |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
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Displayed year
2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.
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